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Who Needs A Dexa Scan?


1desperateladysaved

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1desperateladysaved Proficient

The doctor just told me that DEXA scan may not be covered for every celiac.  She seemed unimpressed to hear a doctor told me my bone mass was nill when I was 25 years old.  I had 30+ years of celiac.  I will call my insurance and find out, but anyone know of general guidelines? 


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kareng Grand Master

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From the osteoporosis org.

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When and how often should adults get screened for osteoporosis/osteopenia after being diagnosed with celiac disease?

60% of celiacs at the time of diagnosis have abnormal bone mass, therefore you should be screened at diagnosis. If bone density is normal at diagnosis, proceed with routine screening with your primary care physician. If abnormal, then get re-screened after you’ve been on a gluten-free diet for one year to see if there is improvement. In some cases, you may need to see a bone specialist if osteoporosis hasn’t improved while on a gluten-free diet.

Hard to cut and paste on my iPad. If I take too long, it deletes what I was trying to post. Anyway, try showing the doc this info. Bone density scans are pretty standard for women over 50 as a base line.

Gemini Experienced

The doctor just told me that DEXA scan may not be covered for every celiac.  She seemed unimpressed to hear a doctor told me my bone mass was nill when I was 25 years old.  I had 30+ years of celiac.  I will call my insurance and find out, but anyone know of general guidelines? 

Maybe they are unsure of what is covered now that our health system is being tampered with?  I have had 3 of these things myself and never had problem with coverage.  I think if you have an underlying condition that can damage your bone density, coverage is different than for those with normal bone density.  You have to ask your insurer....good luck!

cahill Collaborator

Talk to your insurance co ,, mine only pays for  a DEXA scan  every two years and I have a celiac and an osteoporosis diagnosis

LauraTX Rising Star

I had a DEXA scan ordered by my rheumatologist in December because of my lupus + celiac + long term steroid use.  I think the imaging place did a pre approval on it, so you can ask the facility they send you to if they do pre-approvals first to prevent any trouble.

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      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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