Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Started The Gf Diet


Danijela

Recommended Posts

Danijela Contributor

hello

I started the gluten-free diet on friday

i was doing really well except my mom bought some bread yesterday and asked me to try it she said it was really expensive and she wanted to see if i could handle it

after i ate it i started to get a feeling of being surreal

i just went on cleaning and it eventually went away

but today i ate fruit from breakfeast and veggies for lunch i had them at about 11am and at 130 i almost passed out my face is numb and i feel terrible i started to panic as well and my hands are shaking

could this be from the bread i ate or from not eating enough

my stomach feels empty

i'm terrified right now i don't know what to do ???

thanks for any advice


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Danijela Contributor

sorry forgot to mention the bread was rye

Guest Viola

Rye is a no no ... it has gluten in it! You need a bread that says gluten free on the label. So it's likely from the bread that you are having all the trouble.

Hope you get feeling better soon!

Kasey'sMom Enthusiast

I went out to eat yesterday and was glutened. I feel really weird after being glutened. My speach gets a little slured and I feel buzzed. Yesterday I was even stumbling as I walked into my house. Sortly after that, I get the digestive symptoms. I too feel like I'm going to panic they day after being glutened.

I was telling my husband last night that I can't believe how sick those tiny particles of gluten can make us. Gluten is hiding in so many things. You might want to take a look at your toothpaste, vitamins etc., if you haven't done so already. There are some good suggestions for gluten-free products on the fourm. Unfortunately for us, comsuing rye, barley and oats is just as serious as wheat.

btw....my dd and I both were really hungry when we first went gluten-free but now we've leveled off. Although, after being glutened yesterday I'm starving today!! :)

I hope you get to feeling better soon.

tarnalberry Community Regular

rye is one of the forbidden grains on the diet, and you are probably having a gluten reaction. but it also sounds as though you're not eating nearly enough. have some peanut butter on an apple, some bean dip with your vegetables, maybe some eggs, maybe some nuts for a snack, but defintely more food!

KaitiUSA Enthusiast

You are probably having a gluten reaction. We can't have wheat,rye,barley, oats, spelt, kamut and a few other ones too. If you check the safe/forbidden list you will see what you can and can't have.

Do you have the lists to help as guidelines?

cornbread Explorer
I went out to eat yesterday and was glutened. I feel really weird after being glutened. My speach gets a little slured and I feel buzzed. Yesterday I was even stumbling as I walked into my house.

<{POST_SNAPBACK}>

This is exactly the kind of feeling I get after getting even the *tiniest* amount of gluten or casein. By tiny, I mean I could lick a stamp, or give a beer drinker a quick peck on the lips, and I'd be glutened. I don't even have to eat the stuff. The 'brain fog' is accompanied by severe exhaustion (too tired to even talk) and major irritability/depression. It lasts at 100% for about 5 days, and then slowly begins to fade, but I don't feel 'right' again for weeks. Anyone who thinks you can try just a "little bit" of ANYTHING with gluten in needs to understand they are POISONING you. No matter how expensive their bread is!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nettiebeads Apprentice
hello

I started the gluten-free diet on friday

i was doing really well except my mom bought some bread yesterday and asked me to try it she said it was really expensive and she wanted to see if i could handle it

thanks for any advice

<{POST_SNAPBACK}>

It sounds like your mother may have "wheat free" confused with "gluten free". Rye is a bad thing for us with celiac disease. I'm sure she meant well. Don't worry, we all go through mistakes on this diet, but this forum should help shorten your learning curve. Also, I've read (and it helps me) to try to get more than average protein. The normal diet is about 50 grams/day, those with celiac disease should up that some - but you need to find out what is your optimum for your body. :)

darkangel Rookie
Also, I've read (and it helps me) to try to get more than average protein.  The normal diet is about 50 grams/day, those with celiac disease should up that some - but you need to find out what is your optimum for your body.  :)

<{POST_SNAPBACK}>

Which brings up a question that's been on my mind. I don't want to hijack the thread, but isn't it tough to get lots of protein in your diet if you're avoiding gluten and casein? I weight train and this is a big issue for me. I don't know how I'm going to get enough protein just from meat and/or eggs.

Guest Viola

There are milk, beans, nuts and good old peanut butter for protien, also all the cheeses if you are not dairy sensitive.

There is a flour free peanut butter cookie recipe in this forum somewhere that is yummy and contains protien too :D

pixiegirl Enthusiast

I might be missing something but if you want protein and you are only avoiding gluten and casien then umm how about beef, chicken, fish, eggs, peanut butter??

Susan

tarnalberry Community Regular
Which brings up a question that's been on my mind. I don't want to hijack the thread, but isn't it tough to get lots of protein in your diet if you're avoiding gluten and casein? I weight train and this is a big issue for me. I don't know how I'm going to get enough protein just from meat and/or eggs.

<{POST_SNAPBACK}>

yeah, it's not a problem. sure, you end up eating a fair amount of meat - make sure to vary it (pork, chicken, beef, turkey, fish, shellfish and more exotic meats like bison, if you can get it). you may need to have meat or eggs at every meal if you're aiming for 200g a day (which is a LOT! even with normal weight training, from my understanding). beans and some nuts/seeds have a good amount of protein in them as well.

Carriefaith Enthusiast

Like the others have said rye bread is a big no on the gluten free diet. You really need to re-evaluate your diet now. Make sure that you read all ingredient labels for gluten and hidden gluten. Here are some sites to help you get started.

Open Original Shared Link (Canadian product list)

https://www.celiac.com/st_main.html?p_catid...-22105022487.2e

https://www.celiac.com/st_main.html?p_catid...-01105324031.a9

Open Original Shared Link

but isn't it tough to get lots of protein in your diet if you're avoiding gluten and casein?
Eggs are good for protein. Salmon would also be good.
jknnej Collaborator

You need to eat more!

Make sure you eat chicken, beef, fish, etc.

Hope you're not a vegatarian!

Seriously,though, my stomach felt "empty" for a few months and then it went away. Some say it is because you have undergone a change in stomach volume. Hang in there; it will get better.

but eat, eat, eat!

mookie03 Contributor

i find that nuts are a great way to keep satiated- i snack on them all day long- they are very filling and help me so i dont even crave the carbs i used to LIVE on! and peanut butter is a staple in my diet

Rachel--24 Collaborator
This is exactly the kind of feeling I get after getting even the *tiniest* amount of gluten or casein.  By tiny, I mean I could lick a stamp, or give a beer drinker a quick peck on the lips, and I'd be glutened. I don't even have to eat the stuff.  The 'brain fog' is accompanied by severe exhaustion (too tired to even talk) and major irritability/depression.  It lasts at 100% for about 5 days, and then slowly begins to fade, but I don't feel 'right' again for weeks.  Anyone who thinks you can try just a "little bit" of ANYTHING with gluten in needs to understand they are POISONING you.  No matter how expensive their bread is!

<{POST_SNAPBACK}>

Those are my symptoms too....getting glutened sucks. Especially when your licking about 20 envelopes and end up majorly spaced out and crying. That used to happen everytime I payed my bills.

Danijela,

Like everyone else already said. Dont eat rye bread. I know you are just starting the diet but if you dont do it 100% you wont know if its working or not.

Ursa Major Collaborator

If I wouldn't be eating some kind of meat at every meal, I'd be starving, too. I am also intolerant to all the other sources of protein, I can't have legumes (which includes peanuts), eggs or milk products at all, no grains of any kind (tried gluten-free brownies yesterday, because I wasn't sure about rice being a problem, and feel terrible today, diarrhea, bloating, achiness and fatigue).

So, without meat I wouldn't be able to be on this diet, it is what gives me energy.

darkangel Rookie
If I wouldn't be eating some kind of meat at every meal, I'd be starving, too. I am also intolerant to all the other sources of protein, I can't have legumes (which includes peanuts), eggs or milk products at all, no grains of any kind (tried gluten-free brownies yesterday, because I wasn't sure about rice being a problem, and feel terrible today, diarrhea, bloating, achiness and fatigue).

So, without meat I wouldn't be able to be on this diet, it is what gives me energy.

<{POST_SNAPBACK}>

I'm afraid I'm going to be in the same boat. When I started losing weight and muscle tone, I upped my whey protein isolate intake. When I got to the point I was in constant pain, it finally dawned on me that I might have a casein/dairy problem, so I eliminated it. I love peanut butter, nuts and nut butters, but I'm afraid they're going to be a problem for me, too, as I get allergic-type reactions when I eat them. Not sure about eggs.

It's difficult to carry meat around as a portable snack. :unsure:

kabowman Explorer

I make sure to have meat and veggies in every meal I eat...really helps and for in between meals, cashew butter on a rice cake or gluten, soy, corn, yeast, etc. free bread that I make. I seem to need heartier snacks during the fall and winter and lighter snackes in the spring and summer.

darkangel Rookie

Anyone know of any "protein bars" that are Gluten-free Casein-free?

Ursa Major Collaborator
Anyone know of any "protein bars" that are Gluten-free Casein-free?

<{POST_SNAPBACK}>

I haven't found any yet, unfortunately. Beef jerky might be an alternative (if you can find any that don't have forbidden things). You can buy jerky guns, and make your own jerky in your oven. I'll have to look into that, as homemade jerky seems like a great snack to take along when going places.

skbird Contributor

I'm replying to the protein part of this thread...

A protein powder I like is rice protein powder. I don't like whey and soy is just not one of the things I like to taste. (edamame excluded).

Organic Food Bar makes bars that are Gluten-free Casein-free. They don't have high protein in them, but usually 14g a bar. Also some low-glycemic carbs (agave nectar). Nuts are a great idea, too. Maybe try some different kinds, maybe something you wouldn't have a reaction to?

Oh, another good protein source is hemp seeds. You can get ground hemp seeds, it's like flour, and you can use it to bake with or I would just stick it in my smoothies as a protein/fiber source. And good oils. Also, flax meal has a decent amount of protein, so adding to smoothies adds protein, fiber, and oils as well.

It's hard at first, but you'll come up with other ideas.

Stephanie

darkangel Rookie
Organic Food Bar makes bars that are Gluten-free Casein-free. They don't have high  protein in them, but usually 14g a bar. Also some low-glycemic carbs (agave nectar). Nuts are a great idea, too.

<{POST_SNAPBACK}>

I checked out their Web site... those look good. They aren't sold from the site. Do you know of any online ordering source?

Rusla Enthusiast
I haven't found any yet, unfortunately. Beef jerky might be an alternative (if you can find any that don't have forbidden things). You can buy jerky guns, and make your own jerky in your oven. I'll have to look into that, as homemade jerky seems like a great snack to take along when going places.

<{POST_SNAPBACK}>

First, on the jerky matter. I use a food dehydrator and make turkey jerky, you can make beef jerky in them. I have a special recipe for the jerky which is so much better than any that is store bought.

Now excuse my ignorance on being "glutened" I am still not sure where I fit in this with wheat allergies and high gluten intolerance. However, the question is: how long were you gluten-free when you realized that when you got even slightly glutened that you felt that way? Prior to being diagnosed did you feel the same before as now when glutened or do you feel worse than you did prior to being diagnosed? Does each accidental glutening make you feel worse than the time before?

Thanks for any and all answers and your patience.

tarnalberry Community Regular
I haven't found any yet, unfortunately. Beef jerky might be an alternative (if you can find any that don't have forbidden things). You can buy jerky guns, and make your own jerky in your oven. I'll have to look into that, as homemade jerky seems like a great snack to take along when going places.

<{POST_SNAPBACK}>

Rather than using jerky guns to "smoosh" out a band of meat, I'd encourage partially freezing london broil, and slicing it, against the grain, by hand. There are a lot of jerkey recipes out there you can make (either without soy sauce, or with your own gluten-free soy sauce), and you don't need a dehydrator to do it (I prefer to use the oven, but a dehydrator will work fabulously too), it's quite easy! :-)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,031
    • Most Online (within 30 mins)
      7,748

    Julie433
    Newest Member
    Julie433
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Suze046
      Yeah I think my body is definitely telling me to lay off the alcohol I just don’t seem to agree with it right now but that might be because my gut is still trying to heal. 
    • Gwen myers
      We are a couple with celiac trying to find a concierge doctor in Palm Beach Gardens/West Palm/ Jupiter area that has knowledge of celiac .  Help!
    • Mettedkny
      Thank you so much for your validation. I completely agree with you that the crackers COULD be the culprit even with very small trace amounts (less than 20ppm) and accumulating over time - I am at the point where I am about to request that my son gets retested to make sure that my "control subject" is still testing perfectly lol. I have a meeting with my celiac disease doc tomorrow and will run the crackers by him to see if he is willing to retest in a few weeks. I have not had any of them for the past 3 weeks so far, so fingers crossed, we can retest and hopefully find out if it is them. And no - I have been scouring EVERYTHING to make sure nothing else has changed. Only use gluten-free lip products and toothpaste so not there either (but very good suggestion). Thank you for validating me. I feel like many are just saying "you are not being gluten-free enough - but I do have a perfect 16 year track record that proves otherwise - so has to be something sneaky.
    • Mettedkny
      OMG thank you so much for validating me in my "craziness" of being on the hunt for the culprit in my case. "Unfortunately" I do not eat any of the foods you mention, but have stopped eating the crackers that are labeled certified gluten-free to see if they might be the problem. I did NOT know about chicken being injected with gluten liquid - that is horrible!  Hoping my doc will agree to retest after I have been off the crackers for a while. My biggest mystery is - why do I not have ANY symptoms of being cross contaminated or glutened? There is no damage (thank godness) to my villi, and normally I will get canker sores the moment something is even the slightest bit cross contaminated... the hunt continues and I will follow up once I find the answer. Glad you found yours! 
    • Winnie-Ther-Pooh
      Fascinating, thanks! So Canada (at least in 2017) had changed the criteria for detection in oat products from 20 to 5ppm. If the regulation still stands in 2025 then that would mean that any product sold in Canada that contains oats and is claimed to be gluten-free must (theoretically) test less than 5ppm... 
×
×
  • Create New...