Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did Your Vitamin D Levels Go Up?


1desperateladysaved

Recommended Posts

FruitEnthusiast Enthusiast

Hmmm... sunscreen blocks out the rays that provide vit D. I'm fair so I'm going to use sunscreen and take a D supplement. I've had family with minor skin cancer, but it was easy to remove and not serious. Still I have to be careful. Does anyone else ever feel like they weren't made to survive on this planet?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

you only need 10/15 minutes per day of sun for Vitamin D.  you DO NOT want to develop a tan!  If you tan, you need more sun, rinse and repeat.

frieze Community Regular

what side effects??  unless you have a problem with the oily kind?  that may be gall bladder.

  • 4 weeks later...
1desperateladysaved Proficient

I got a new reading for my vitamin D.  Just to remember previous readings were 30(Minnesota Mn after diagnosis and some supplements, 33 (last June while gardening) and current (June) is 48!  That really jumped compared to the last time!

dilettantesteph Collaborator

Good news

  • 2 weeks later...
motheroftwins2010 Rookie

Yes, for unknown reasons pre-diagnosis my Vit D levels were a bit high at 79 (I did not take any supplements and was not eating dairy so we chalked it up to being outside a lot and being very fair) now I'm nearly 90 and they've asked me to cut back on my new multivitamin, even though I'm low on other things, to prevent it from getting dangerous.

greenbeanie Enthusiast

Does anyone have reliable info about what the recommended D level is? I've heard wildly different things from different doctors. My daughter and I were both tested in early summer last year, at the same lab. We both spend lots of time outside. Her level was 29, and her doctor said he wants to see it much higher, to 50 at least. My level was 30, and my doctor said that's more than enough and that there's no need to try to raise it through supplements or ever retest it to see if it goes up. Again, our blood was drawn at the same lab in the same week, presumably using the same testing methods. I have trouble believing that a 1-point difference between us shows that hers is much too low and mine is more than high enough. Or are there really drastically different levels of D that are considered adequate for children and adults?

I took supplements anyway, based on info from my daughter's doctor who seemed more informed - but I'm really just wondering if there's any actual medical consensus on adequate levels, or whether it just depends on each particular doctor's opinion.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

I'd say you both are at minimal acceptable. Do you have previous tests to compare if either of your levels have risen?

As example...mine was 17 at celiac diagnosis....rose to 28 with supplementation first year gluten-free...has continued to rise without supplementation each subsequent year since.

greenbeanie Enthusiast

I'd say you both are at minimal acceptable. Do you have previous tests to compare if either of your levels have risen?

Thanks for the info, Lisa. My daughter has no other tests to compare to, but after that she started taking an adult dose of chewable Caltrate every day (which has 800IU of D3) on the recommendation of the dietitian at her GI's office, mainly for the calcium. My level was retested by a different doctor about six months after the first test and had risen significantly, though I forget the exact number now and the lab had a different reference range. I'd been supplementing with 4000IU per day in between and was feeling much better, so I stopped taking it regularly. I was never really clear on what level to aim for.

dilettantesteph Collaborator

I have some information about vitamin D levels.  It seems that there were some very high levels of vitamin D being recommended. Then the Institute of Medicine of the National Academies were asked to study the matter by the US and Candian governements.  They came up with lower recommendations.  Many labs and doctors are still using the very high levels.  Also, different units are used in different countries, which further complicates matters.  You can read about it here: Open Original Shared Link

SkyBlue4 Apprentice

My Vit D went from the low end of insufficient (on supplements for years) to the high end of sufficient (without any supplements at all) after just 6 months gluten free. My antibodies were all down to almost nothing as well.

 

I was so happy that I wanted to frame that lab report!  :D

frieze Community Regular

medscape.com/viewarticle718671 

 

you can try this, copy and paste wouldn't work....

across Contributor

My doctor was appalled that I was at 20 and said she wants me to be near 80! That sounds pretty high to me. I'm not sure what to make of it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,542
    • Most Online (within 30 mins)
      7,748

    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.