Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Probiotics - How To Use, Should I Use?


cristiana

Recommended Posts

cristiana Veteran

Hi everyone.  

 

My nutritionalist has put me onto a very strong dose of Probiotics which I am supposed to take, once daily, on an empty stomach.   I have had problems with trapped wind and she is of the view that because in the last 18 months I have had to take three rounds of antibiotics, not to mention having experienced a lot of D around the time of my diagnosis in that time, my gut needs some good bacteria.

 

However, I only took one of these expensive probiotics yesterday morning, on an empty stomach, and last night my gut was churning and I had D. this morning.  I am scared to take any more but was told by the person that sold me this stuff in the shop that it might upset my stomach at first.

 

Does anyone have any experience of this sort of thing - I mean, do you think it might be best to take them alternate days to begin with?  I feel like I have gone back to bad old days of being an undiagnosed celiac!

 

The type I am taking is "bacteria lactobacillus - plantarum, rhamnosus and salivarius" and it is hypoallergenic according to the label - gluten isn't mentioned at all.

 

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

I'm a  VERY strong  supporter  of  probiotics  &  digestive  enzymes   for  celiac...  What   do you  consider  a  high strong  dose?  many    contain  50,000  to over  200,000  &  are  considered   fine....  These  little  gems  restore  the  natural  flora  in our  systems..  Think of them  as  healthy  ( superman)  who  are  fighting  off  the  invaders( evils)  in our  bodies...They keep  our  intestinal tract  clean  &  healthy....Our  doc  has  always  told  us to take them on a  empty  stomach so  we  usually  take  them  before  bed...   At  first  we  needed  more  times  a  day but  now  we  are only  once  per  day..... FOr  me  I  would  let  them  do  there  job  for  a  few  weeks  &  then  ask  doctor  about backing  off to  a  lower  level but  not  stopping...  I  sometimes  forget  a  night  here & there  but  usually  always  supply  my body  with  them &  the  digestive  enzymes  to help  break  down  the  carbs, proteins  &  such...

anyone  who has been on  an  antibiotic  regime  needs  these  as  well....as  antibiotics  kill off  our  good  gut  flora...  never  take  antibiotic   &  probiotics  ,  there  needs  to be  a  three to hour   wait  time  between  the two...

cristiana Veteran

I'm a  VERY strong  supporter  of  probiotics  &  digestive  enzymes   for  celiac...  What   do you  consider  a  high strong  dose?  many    contain  50,000  to over  200,000  &  are  considered   fine....  These  little  gems  restore  the  natural  flora  in our  systems..  Think of them  as  healthy  ( superman)  who  are  fighting  off  the  invaders( evils)  in our  bodies...They keep  our  intestinal tract  clean  &  healthy....Our  doc  has  always  told  us to take them on a  empty  stomach so  we  usually  take  them  before  bed...   At  first  we  needed  more  times  a  day but  now  we  are only  once  per  day..... FOr  me  I  would  let  them  do  there  job  for  a  few  weeks  &  then  ask  doctor  about backing  off to  a  lower  level but  not  stopping...  I  sometimes  forget  a  night  here & there  but  usually  always  supply  my body  with  them &  the  digestive  enzymes  to help  break  down  the  carbs, proteins  &  such...

anyone  who has been on  an  antibiotic  regime  needs  these  as  well....as  antibiotics  kill off  our  good  gut  flora...  never  take  antibiotic   &  probiotics  ,  there  needs  to be  a  three to hour   wait  time  between  the two...

Hi mawmaw.   The Nutritional Facts on the back state, "Serving Size 1 Capsule - L plantarum (SD1) 10 Billion; L salvirarius (ATCC 11741) 4 Billion and L rhamnosus (TP) 3 Billion.  It also says the RDA has not yet been established!  Compared with those figures you have given me it seems that these might be far too strong?  How can there be Billions in such manageable capsules, the mind boggles.  

mamaw Community Regular

I  don't  think  yours  is  to  strong  so  I think  you  good  without worry of  that  issue.... lots  of  things  boggle  my  mind!!!  Like  celiac!!!!!  Keep  taking  your  little  gems!!!!!!  Do  a  google  search  for  probiotics  &  digestive  enzymes  ,,  you will be  pleasantly  surprised  at  how  the  human  body loves  them.......  our  kitty  also  takes  probiotics  &  enzymes... I  couldn't  stand  the  grass  eating  &  then  throwing  up   all the  time....they  also are  gluten-free......in their  foods  as well.....

 

hugs

cristiana Veteran

Little Gems, that makes them sound even better!  I might try taking one at night, tonight then.  After all it is Sunday tomorrow so if my tummy protests I can take it easy.  I think I read somewhere that at first there is a bit of a battle going on with the good guys and the baddies so perhaps that's what's happening.  I am keen to give them a go as clearly I am not healing as well as everyone else around me has.  Strange that - and I am more scrupulous than most.  Maybe this will be my breakthrough?  If so, thank you!

StephanieL Enthusiast

Probiotics were a game changer for my DS. We were gluten-free for 3 months with no change in BM habits.  Within 3 days of starting Custom Probiotics he had his first normal BM's EVER!  (He was 3 1/2 at the time)

1desperateladysaved Proficient

I take my probiotics right away in the morning on an empty stomach.  I did experience some gassiness and bloating when I first began with L-Salivarius, but I was still eating gluten at the time. 

 

I have been rechecked and while at first and second checks I had no growth of good bacteria found, but the most recent check did find a mixed growth of good bacteria growing.  I have been taking Restore probiotic which only has the probiotic and no other additives or capsules.  I buy this through Azure Standard.  I sprinkle it over water with each meal.  I think it is good to switch products now and them for probiotics. 

 

Dee


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cristiana Veteran

So interesting, thank you.  I seem to be less upset by the latest dose, perhaps it was because I took the last lot too close to a very strong peppermint tea!  

notme Experienced

it took about 2 weeks for my gut to stop sounding like a war zone.  when i first took them, i was like:  those noises can't be good!  and i was afraid and stopped taking them for awhile until i (lolz) read the insert in the culturelle package.  :D  it's just the flora getting established and doing their job.

IrishHeart Veteran

I am a huge probiotics pusher on here  ^_^ and I highly recommend them. Damaged guts = we need to balance the gut flora.

 

You may feel "off" at first taking them, but it is just the "bad guys" being shoved out. (that's a really simple explanation, but you get what I mean!) 

 

Upon diagnosis, I had no detectable good bacteria in my gut. That's impossible, my doctor said...yeah, well, no wonder I am a mess, I thought.

 

I take probiotics every day and I do switch up brands and strains from time to time. 

 

If D is your problem, Culturelle has lactobacillis GG--which is clinically proven to stop that nonsense. 

 

Custom Probiotics Multistrain was the first one I used. My GI tract was a burning mess. Within a month, I was "normal" for the first time in my life. No more of the "IBS" the docs claimed I had . 

 

I am using Florajen 3 right now. Also very good. 

 

Drink a lot of water with them and soon, your body will adjust. 

cristiana Veteran

Thanks girls!  It certainly feels like a war is going on!  Good to hear from you, Irish Heart.  I have been thinking of you with my burning skin going on still.  I'm having a pelvic scan Wednesday to check this burning pain just below the surface of my skin - still no rash - and now this trapped wind isn't anything else.  By the way, I typed in skin pain on this forum last night and could not believe how many other people have been through the same thing.  I am so thankful to have this forum, and you all, it would be such a lonely scary journey otherwise.

IrishHeart Veteran

Thanks girls!  It certainly feels like a war is going on!  Good to hear from you, Irish Heart.  I have been thinking of you with my burning skin going on still.  I'm having a pelvic scan Wednesday to check this burning pain just below the surface of my skin - still no rash - and now this trapped wind isn't anything else.  By the way, I typed in skin pain on this forum last night and could not believe how many other people have been through the same thing.  I am so thankful to have this forum, and you all, it would be such a lonely scary journey otherwise.

 

You're never alone, hon. I wish I could tell you why you are still burning in that area, but a pelvic scan is a good idea to help rule out some things.

 

Inflammation could be causing this problem and honestly, probiotics reduce inflammation in the gut, so maybe if you stay on them for a bit, you will see more progress overall.

 

Do let us know how you make out.!!

cristiana Veteran

You're never alone, hon. I wish I could tell you why you are still burning in that area, but a pelvic scan is a good idea to help rule out some things.

 

Inflammation could be causing this problem and honestly, probiotics reduce inflammation in the gut, so maybe if you stay on them for a bit, you will see more progress overall.

 

Do let us know how you make out.!!

 

Will do - and thank you! x

cristiana Veteran

Hi Irish Heart.  Reporting back to say scan went well, and probiotics beginning to work!  Wish I had taken them a year ago!  They seem to make me feel a tiny bit nauseous but perhaps that is just me thinking about it too much.  But will persevere as I think the benefits are worth it. Thanks so much for your support. 

IrishHeart Veteran

Hi Irish Heart.  Reporting back to say scan went well, and probiotics beginning to work!  Wish I had taken them a year ago!  They seem to make me feel a tiny bit nauseous but perhaps that is just me thinking about it too much.  But will persevere as I think the benefits are worth it. Thanks so much for your support. 

 

Drink more water and this should pass. Also, "they say" ^_^ you should take them on an empty stomach, but i honestly can't see why you can't take them

with food. Maybe that will help. 

notme Experienced

Drink more water and this should pass. Also, "they say" ^_^ you should take them on an empty stomach, but i honestly can't see why you can't take them

with food. Maybe that will help. 

i have a combination one from walgreens that is probiotic plus digestive enzymes that i take with food (because of the enzymes)  it just says to take it once per day so it's my lunch meal enzyme.  then culturelle at night before i go to bed and just enzymes with breakfast, supper and snacks.  it's a wierd combination, i know, but it is working great :)  it took alot of experimenting.  o, and lots and lots of water, as irish has suggested :)

millerb68 Newbie

I am not sure there is such a thing as a "too strong" probiotic. I was just prescribed one that has 112.5 billion cultures per capsule!  I was found to have a bacterial infection and low levels of good bacteria.

 

As others have said, the discomfort and symptoms are the flora getting reestablished in your gut. It is uncomfortable for a few days, but it's because good things are happening! Stick it out, and you should feel better soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    2. - trents replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      10

      Help I’m cross contaminating myself,

    4. - DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff
      30

      Does anyone here also have Afib

    5. - Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,925
    • Most Online (within 30 mins)
      7,748

    Linda Stark
    Newest Member
    Linda Stark
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
    • Hmart
      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative.  I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions:  1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten?  When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.