Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Cheat On My Gf Diet?


Kateteich

Recommended Posts

Kateteich Newbie

Ok, like I said earlier today, I'm 9 days gluten-free.  I feel better honestly, but I'm wondering if I need to go "cold turkey" gluten-free, or if I can "ease into this eating thing"

 

What I'm really asking is "Can I cheat on this diet, and how sorry will I be when I do?"

 

I almost caved the other day when my co-workers were all eating pizza and cookies.... I know I will break down at some point.

 

How much wheat is too much?  After all, I ate wheat products for 50 years, and I have only been sick for 10 years....

 

- Any advice?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Don't cheat. Even if you do not have obvious symptoms when you accidentally encounter gluten during these early days, intentionally ingesting gluten will delay healing and can cause more problems down the road.

Celiac centers recommend those with celiac disease ingest less than 20ppm.

Edited to add...above is if you have celiac disease.

Also...we all eat yummy pizza, baked goods etc...ours our simply not destroying our small intestine :D

LauraTX Rising Star

Have you been diagnosed with Celiac disease, or are you eating gluten free for another reason?

 

With Celiac and Non-Celiac Gluten Intolerance (NCGI for short), the gluten-free diet needs 100% commitment.  There are great gluten-free alternatives to things like cookies... it is just a matter of getting through the transition.

kareng Grand Master

If you are just doing the diet for fun or something... Cheat all you want. I would just appreciate it if you wouldn't go to restaurants and say you need the gluten free meal and then eat the non- gluten-free bread or dessert. That just makes it harder for us Celiacs that need a restaurant to take us seriously.

If you have Celiac disease, then cheating is bad....really bad. I would think feeling sick for 10 years would be enough? You would be tired if it?

Open Original Shared Link

The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. It can take weeks for antibody levels (indicating intestinal damage) to normalize after a person with celiac disease has consumed gluten. Depending on a person’s age at diagnosis, some problems, such as delayed growth and tooth discoloration, may not improve.

IrishHeart Veteran

I just cut to the chase on this "should I cheat?" question:

 

 

NO!

Kateteich Newbie

Ok, like I said earlier today, I'm 9 days gluten-free.  I feel better honestly, but I'm wondering if I need to go "cold turkey" gluten-free, or if I can "ease into this eating thing"

 

What I'm really asking is "Can I cheat on this diet, and how sorry will I be when I do?"

 

I almost caved the other day when my co-workers were all eating pizza and cookies.... I know I will break down at some point.

 

How much wheat is too much?  After all, I ate wheat products for 50 years, and I have only been sick for 10 years....

 

- Any advice?

Thanks again, and I' m sorry if that question offended some, but I am sure I am not the only person that wonders these things, No this isn't a Fad diet for me. I have probably had this disease for 10 + years! but I was only diagnosed 9 days ago. I finally got so bad that I went to a

Gastrointerologist, and he had me tested for celiac's, the tests came back positive 9 days ago.

Anyway, I'm going to try my best, and thank you all for the wonderful advice!

nvsmom Community Regular

Thanks again, and I' m sorry if that question offended some, but I am sure I am not the only person that wonders these things, No this isn't a Fad diet for me. I have probably had this disease for 10 + years! but I was only diagnosed 9 days ago. I finally got so bad that I went to a

Gastrointerologist, and he had me tested for celiac's, the tests came back positive 9 days ago.

Anyway, I'm going to try my best, and thank you all for the wonderful advice!

Those first weeks are the hardest, plus some people have a withdrawal (from the sugars or starches... I don't know) which makes one feel worse with extra fatigue headaches and such. Add to that the fact that you probably are not feeling a whole bumch better yet, and the first month is tough.

 

Stay gluten-free. You'll be happier in the long run.  Best wishes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



user001 Contributor

I actually agree with Karen about the eating out thing.

 

If you think you have celiac disease then go back on gluten and get tested, get the endoscopy. See what 50 years of gluten has done to your gut. That really brought it home for me. If you don't have celiac disease then cheat all you want, I suppose? But I wouldn't until you know your status. If people think this disease is a breeze, it's not. So get diagnosed so you know if you have to commit for life. 

 

I really eat quite a bit of delicious foods, but only in my safe, gluten free apartment. Going out is usually a nightmare, but cheating sets me back too much.

IrishHeart Veteran

I actually agree with Karen about the eating out thing.

 

If you think you have celiac disease then go back on gluten and get tested, get the endoscopy. See what 50 years of gluten has done to your gut. That really brought it home for me. If you don't have celiac disease then cheat all you want, I suppose? But I wouldn't until you know your status. If people think this disease is a breeze, it's not. So get diagnosed so you know if you have to commit for life. 

 

I really eat quite a bit of delicious foods, but only in my safe, gluten free apartment. Going out is usually a nightmare, but cheating sets me back too much.

 

 

She had already said she has diagnosed celiac (see above) 

 

"Thanks again, and I' m sorry if that question offended some, but I am sure I am not the only person that wonders these things, No this isn't a Fad diet for me. I have probably had this disease for 10 + years! but I was only diagnosed 9 days ago. I finally got so bad that I went to a 

Gastrointerologist, and he had me tested for celiac's, the tests came back positive 9 days ago. "

luvs2eat Collaborator

I'm with the others... cheating is never a good thing. When I was diagnosed 2 years before, and had the occasion to eat a huge hunk of (real) bread  it was a no-brainer... keep the kids safe!! 

user001 Contributor

Was it endoscopy or blood or both? I feel that the endoscopy really made it real for me, because the doc could tell how bad it was.

IrishHeart Veteran

Was it endoscopy or blood or both? I feel that the endoscopy really made it real for me, because the doc could tell how bad it was.

 

 

? I do not know why it should  matter. She has a celiac DX and she should not cheat. Period. 

user001 Contributor

? I do not know why it should  matter. She has a celiac DX and she should not cheat. Period. 

oh ok, because that was why my doctor urged me to have the endoscopy even though my antibodies were off the charts. I just assumed it was standard procedure.

LauraTX Rising Star

Good to hear you have a solid diagnosis.  If you feel like you are getting a bit of a knee jerk reaction, it is because the people here feel very passionately about making sure everyone has the info that can make them the most healthy  :wub:  Some have even converted from the dark cheater side after they kept getting sick!  But there are no off limits questions :)  

 

I was a huge carb addict and when I first had to go gluten-free I had the worst time ever.  Before diagnosis all I ate was pasta, bread, breaded stuff... it was terrible.  Eventually, everyone's timeframe is different, but you will just wake up and realize you are over the hump of terribleness.  And although it may take a good while to heal up, there WILL be a revelation point at some time in your future where you feel better, and it will all be worth it! :)   You can make your own awesome gluten-free cookies, we can give you recipes :D Just hang in there  B)

Serielda Enthusiast

Maybe it's because I am still learning. But if you was diagnosed with  celiacs, you need to be gluten free and please for the love of all that is holy say no. I know what that first few days and weeks are like quite vividly. It really wasn't that long ago and I am still in early months of this.  My answer would be oh dear god no, do not do it at all. It can take a small amount and you are ill for  weeks to months stacking toward years  trying to heal from it.  However from what I hear few years ago things was beyond depressing on trying to  work around this nightmare but things have gotten better.  I understand one can feel deprived and hate feeling left out. I have a friend with ADHD, his dr.'s have requested for him to make lifestyle changes, that makes him feel alienated by not taking part in some things.Our peers and fitting in and approval can be a real joy squealing about how awesome things are that we can't do. My friend always does fall off the wagon and his work performance still suffers. With myself I know better as I do not like what feeling glutened feels like. It feels bizarre and well freaks me out by how horrible I feel.  I am not trying to enable anyone, but I will state this. If I did not have to do this and be so critical on everything I eat or drink or how clean the items are ( yes improperly washed items in kitchens can nail you too) .  For myself after diagnosis it wasn't just going on a diet, because diets allow for cheating and do complete a life cycle on how long you are on it. For one who is  gluten intolerant or has celiacs its not a diet but a whole lifestyle change. 

Ok, like I said earlier today, I'm 9 days gluten-free.  I feel better honestly, but I'm wondering if I need to go "cold turkey" gluten-free, or if I can "ease into this eating thing"

 

What I'm really asking is "Can I cheat on this diet, and how sorry will I be when I do?"

 

I almost caved the other day when my co-workers were all eating pizza and cookies.... I know I will break down at some point.

 

How much wheat is too much?  After all, I ate wheat products for 50 years, and I have only been sick for 10 years....

 

- Any advice?

user001 Contributor

Good to hear you have a solid diagnosis.  If you feel like you are getting a bit of a knee jerk reaction, it is because the people here feel very passionately about making sure everyone has the info that can make them the most healthy  :wub:  Some have even converted from the dark cheater side after they kept getting sick!  But there are no off limits questions :)

 

I was a huge carb addict and when I first had to go gluten-free I had the worst time ever.  Before diagnosis all I ate was pasta, bread, breaded stuff... it was terrible.  Eventually, everyone's timeframe is different, but you will just wake up and realize you are over the hump of terribleness.  And although it may take a good while to heal up, there WILL be a revelation point at some time in your future where you feel better, and it will all be worth it! :)   You can make your own awesome gluten-free cookies, we can give you recipes :D Just hang in there  B)

I have the most amazing brownie recipe that im fine tuning if you like that sort of thing. also coconut macaroons.

GottaSki Mentor

Thanks again, and I' m sorry if that question offended some, but I am sure I am not the only person that wonders these things, No this isn't a Fad diet for me. I have probably had this disease for 10 + years! but I was only diagnosed 9 days ago. I finally got so bad that I went to a

Gastrointerologist, and he had me tested for celiac's, the tests came back positive 9 days ago.

Anyway, I'm going to try my best, and thank you all for the wonderful advice!

 

In my opinion you owe no one an apology.  You asked an honest question that has a simple answer.  Since you are diagnosed with Celiac Disease you must do everything you can to avoid gluten in this gluten filled world.  Once you learn, the world doesn't seem gluten filled...but the learning curve is tough.

 

Hang in there :)

Serielda Enthusiast

Could you send me the recipe for the macaroons?  I love them and honestly the ones I do get that are gluten-free are a bit pricey at the grocery I go to by my house for a tiny tiny little bag of them. Thanks in advance.

I have the most amazing brownie recipe that im fine tuning if you like that sort of thing. also coconut macaroons.

BlessedMommy Rising Star

It will get a lot easier in time. Hang in there!

 

Others have given you great advice, the only part I would like to add to the original part is that celiac has a lot of disorders that go with it. You honestly never know what direction your symptoms can go. I never dreamed that I would have a mini-stroke on gluten!

 

These days honestly I can look at other people eating cake and it has no effect on me. None. In fact I'm glad that I have a medical excuse not to eat dessert at most places, it's probably what's kept me from gaining weight. LOL!

 

Stock up with some safe yummy gluten-free cookie ingredients and other staples and you'll get some safe treats figured out in no time. I feel that I've become a much better cook since I went gluten-free.

 

In fact, a few months ago, I brought gluten-free doughnuts to a gathering to share and my doughnuts got eaten a lot faster than the regular gluten ones.  :D

realityrain Newbie

I cheated at the beginning. A lot. I wasn't yet diagnosed with Celiac but I knew gluten was a problem in my body. I still cheated. And I got really, really sick. Eventually it just wasn't worth it anymore. Three months ago I had to get very strict with my diet and figure out all of the foods that were causing me issues, not just gluten. It was very hard at first. About two weeks ago though, I told my mom that I felt like it was all of a sudden a lot easier and I was feeling so much better. She said that it was because I had finally made it to the other side. To the side of the disease where I didn't feel sick all the time, where I wasn't in pain, where I could think! 

 

It isn't easy to make it to the other side, everyone on this forum knows that, but once you get there it will be worth it! It has been worth it to me above and beyond, worth not eating what the others are eating, worth not being able to easily eat out, worth learning a whole new way of life. I too, have been sick for over a decade. You begin to think that being sick is normal but it's not. You can do this! 

user001 Contributor

I cheated at the beginning. A lot. I wasn't yet diagnosed with Celiac but I knew gluten was a problem in my body. I still cheated. And I got really, really sick. Eventually it just wasn't worth it anymore. Three months ago I had to get very strict with my diet and figure out all of the foods that were causing me issues, not just gluten. It was very hard at first. About two weeks ago though, I told my mom that I felt like it was all of a sudden a lot easier and I was feeling so much better. She said that it was because I had finally made it to the other side. To the side of the disease where I didn't feel sick all the time, where I wasn't in pain, where I could think! 

 

It isn't easy to make it to the other side, everyone on this forum knows that, but once you get there it will be worth it! It has been worth it to me above and beyond, worth not eating what the others are eating, worth not being able to easily eat out, worth learning a whole new way of life. I too, have been sick for over a decade. You begin to think that being sick is normal but it's not. You can do this! 

That made me tear a bit. I'm still working on making it to the other side!

  • 1 month later...
MyCeliacKid Newbie

I'm really disappointed your doctor didn't cover this better with you.

 

Celiac Disease doesn't necessarily begin at birth. You've "only" been sick for 10 years, most likely because that's when your trigger occurred. But it did, and you now have Celiac for the rest of your life. My daughter ate wheat great for 9 years of her life before it made her ill. That's how Celiac works: you have the genetic predisposition, and you have the gluten in your diet, and it lays in wait. Somehow (no one knows all the possible ways), a trigger or stressor occurs, and then the Celiac begins.

 

There is NO cheating on your diet. As her GE put it, if she even gets a single macaroni noodle, she will be sick. How much wheat is too much? Any amount.

cap6 Enthusiast

Cheat = sick.   And you set back the healing process. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    2. - trents replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      10

      Help I’m cross contaminating myself,

    4. - DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff
      30

      Does anyone here also have Afib

    5. - Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,925
    • Most Online (within 30 mins)
      7,748

    Linda Stark
    Newest Member
    Linda Stark
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
    • Hmart
      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative.  I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions:  1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten?  When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.