Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Most Ridiculous Gluten Comment I've Heard


C-Girl

Recommended Posts

BlessedMommy Rising Star

It's pretty ridiculous and far fetched. Even if some wheat contamination could get into the water supply (which I doubt), it would surely dilute it down to about 0.00000000000000000000000001 PPM by the time that people actually drank it.  :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 89
  • Created
  • Last Reply
Georgia-guy Enthusiast

It's pretty ridiculous and far fetched. Even if some wheat contamination could get into the water supply (which I doubt), it would surely dilute it down to about 0.00000000000000000000000001 PPM by the time that people actually drank it. :P

Well that just destroyed my excuse for my boss. Darn. Gotta drink water now.

BlessedMommy Rising Star

LOL! :)

chocominties Rookie

I've heard the whey thing (thanks, Mom), and had a classmate gasp in horror when I ate a Snickers bar. 

 

When I was in Japan, the M&Ms did contain wheat starch.  That was annoying. 

 

The gluten line I'm most tired of is:

 

"What are you eating?"

"Cupcake."

 

"You mean, a gluten free cupcake?"

 

"... yes."

 

If I'm eating it and it's a baked good, then it is a gluten free baked good.  I shouldn't have to qualify this every-single-time.

 

"What did you have?"

 

"Bread and butter."

 

"Oh, you mean ..."

 

There's something weirdly ostracizing about it. 

LauraTX Rising Star

"You mean, a gluten free cupcake?"

 

"... yes."

Haha, yes!  One time early into my dx my husband asked me why soy sauce was on my grocery list.  I just started at him with that face until he got it, LOL!

Georgia-guy Enthusiast

"What are you eating?"

"Cupcake."

"You mean, a gluten free cupcake?"

"... yes."

Lol. I was at mellow mushroom one night and someone I know that is aware I have celiac came in and saw me eating a pizza. She sat there looking at me funny for a minute, then walks over and this is the convo:

Her: I thought you have celiac?

Me: I do...

What are you eating then?

Ummm....some pizza?

Doesn't it have gluten?

Not this one...this is one of the gluten free ones YOU told me about

**face palm**

Pegleg84 Collaborator

I had an argument with a dude at the healthfood store the other day who thought barley didn't contain gluten, but was like oats in that its usually ccd. Ummm... Not the last time I checked, dude. Nice try.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Waitingindreams Enthusiast

Lol. I was at mellow mushroom one night and someone I know that is aware I have celiac came in and saw me eating a pizza. She sat there looking at me funny for a minute, then walks over and this is the convo:

Her: I thought you have celiac?

Me: I do...

What are you eating then?

Ummm....some pizza?

Doesn't it have gluten?

Not this one...this is one of the gluten free ones YOU told me about

**face palm**

Omg! Almost the same thing happened to me at work a few months ago. I ordered a sandwich for lunch on a gluten free roll.

 

Coworker: (Confused) "I thought you couldn't have gluten?" 

 

Me: I can't..this is a gluten free roll. (Derp  :P)

 

He was surprised at how much it looked like a "regular" roll. I'm pretty sure it was Udi's, but I'm not positive. 

C-Girl Contributor

I had this glorious dream yesterday morning... I went into a pizzeria, the kind with the big wood-fired ovens and concrete floors (stems from a conversation I had w/ a local chef who is opening a wood-fired grill). I could smell the pizzas. A man came up and asked to take my order, I said, sadly, "I can't have pizza". He looked sad, and asked why, so I told him. He said, "no problem. I can make it". He proceeded to go to a shiny metal table and scrub it clean, taking out all new bowls and mixing up the dough. He carefully arranged all the ingredients on the top. He was in the midst of putting it in the oven when my husband woke me up...

 

Damn it. I really wanted to try that pizza.

nvsmom Community Regular

LOL  :D

 

My mom is another that always thinks I can't have soy but I have to give her points for trying.  I think she realizes that I can't have most soy SAUCE and somewhere it got scrambled into it that all soy is bad for celiacs.

 

I'm trying to cut down on my soy intake anyways.  :P

beth01 Enthusiast

I was at a cookout a few weeks ago and someone asked me if I could have a burger.  I said yes but they would have to clean the grill first.  The response " don't worry the grill is hot enough, it'll kill the gluten".  Err no it wont or I could eat all cooked food. 

IrishHeart Veteran

LOL   :D

 

My mom is another that always thinks I can't have soy but I have to give her points for trying.  I think she realizes that I can't have most soy SAUCE and somewhere it got scrambled into it that all soy is bad for celiacs.

 

I'm trying to cut down on my soy intake anyways.   :P

 

 

You probably should, according to Mary Shomon, the mama of all things thyroid.  :)

 

"Soy can, however, still interfere with absorption of your thyroid hormone replacement medication, so be sure to take your medication at least three hours apart from soy foods"....

 

Open Original Shared Link

nvsmom Community Regular

You probably should, according to Mary Shomon, the mama of all things thyroid.  :)

 

"Soy can, however, still interfere with absorption of your thyroid hormone replacement medication, so be sure to take your medication at least three hours apart from soy foods"....

 

Open Original Shared Link

 

So true! So true.   :)

 

I eat very little soy as it is. It shows up in my processed treats once in a while, that's about it for me.

psawyer Proficient

I was at a cookout a few weeks ago and someone asked me if I could have a burger.  I said yes but they would have to clean the grill first.  The response " don't worry the grill is hot enough, it'll kill the gluten".  Err no it wont or I could eat all cooked food.

Actually, if you bring the grill to 600F or higher, and hold it there for 30 minutes, it will destroy the proteins on the grill. But if you have anything on the grill while you do that, it will no longer be edible. The clean cycle of a self-cleaning oven will do the same thing, burning off any gluten. FWIW.
LauraTX Rising Star

Actually, if you bring the grill to 600F or higher, and hold it there for 30 minutes, it will destroy the proteins on the grill. But if you have anything on the grill while you do that, it will no longer be edible. The clean cycle of a self-cleaning oven will do the same thing, burning off any gluten. FWIW.

Thats correct! 

 

At a restaurant one time I asked if there was a shared fryer, the nice girl there said yes, and even though a lady told her one time that she is a nurse and the hot oil burns off the gluten, she doesn't think it is safe.  I commended her for having some sense, and then told her that.  At the end I added, "Since the smoke point of the frying oil is well under 600 degrees, the gluten would only go away if the restaurant burned down."  Got a laugh out of that.  She still works there and I try to go on the days I know she usually works.   :)

 

 

Edit: Bad grammar

  • 2 weeks later...
kayoung4 Collaborator

I was at a GNC booth before a race and asked numerous questions about all the samples before taking one.  One guy handed me a cup of energy drink and started by saying its gluten free so I took a sip, then proceeded to say "it's made from barley" -- I handed that back faster than you can say NOT GLUTEN FREE.  I've also heard the gamut of "you can't have that, right?" of things that don't naturally contain gluten.  The common theme for me is that they're all white/pale foods - potatoes, yogurt, vanilla ice cream, etc.  Maybe it reminds people of bread/flour!  I'd much rather people be overly safe than tell me something is gluten-free when its not though.  I just smile and say that's safe....after double-checking the ingredient list.

Georgia-guy Enthusiast

I've also heard the gamut of "you can't have that, right?" of things that don't naturally contain gluten.

I get the a lot from someone I know only because she knows what her mom (celiac and about 20 other food allgergies/intolerances) can't have and she tends to get it mixed up occasionally why her mom can't have it, whether it's got gluten or something else her mom can't have. (She is a blonde though, so that might be part of the reason she gets confused ;):P )

beth01 Enthusiast

Or she just has brain fog from undiagnosed celiac and it has nothing to do with blonde hair...lol

Georgia-guy Enthusiast

Or she just has brain fog from undiagnosed celiac and it has nothing to do with blonde hair...lol

I've had that convo with her...she has a full panel done every year. So far she has lucked out.
ConnieT Newbie

I have a co-worker who, despite my efforts to explain what Celiac truly means, still thinks I am on a fad diet. She regularly asks me if I have lost any weight! (I wish-you would think that giving up bread would help in that regard :wacko: )

BlessedMommy Rising Star

The fad diet comments are pretty ridiculous for someone who's gluten-free for medical reasons, especially if they've been on a gluten-free diet long term.

 

I've been gluten-free for 4 1/2 years.  I'm pretty sure that if it was a fad, I would've quit by now. ;)

w8in4dave Community Regular

But you can be Celiac and still eat some Gluten, you know , diabetics can still have sugar! Thats what I was told at a party. LOLOLOL yea coming from someone who has no idea!! Absolutly no idea!!! Obviously!! 

Georgia-guy Enthusiast

But you can be Celiac and still eat some Gluten, you know , diabetics can still have sugar!

That is when I would look at them and use the peanut comparison..."would you give someone with a peanut allergy just 1 peanut, it won't kill them right?"
LauraTX Rising Star

I use the peanut comparison, too.  I will start busting into science talk and it usually makes people look confused and walk away.  LOL

Georgia-guy Enthusiast

I use the peanut comparison, too. I will start busting into science talk and it usually makes people look confused and walk away. LOL

I had someone look at me like I was crazy when I used the peanut line (turns out they are allergic to peanuts, go figure). They told me that they would be stupid to eat even a "skin" from a peanut. I quickly explained "well, you go into anaphylactic shock with a trace amount of peanuts. I go into (insert rather detailed symptom list here) with trace amounts of gluten." They got the point.

Most people are aware of the severity of peanut allergies, so I think it's the easiest way to get people to understand.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,894
    • Most Online (within 30 mins)
      7,748

    Lostcha
    Newest Member
    Lostcha
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.