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C-Girl

Most Ridiculous Gluten Comment I've Heard

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It's pretty ridiculous and far fetched. Even if some wheat contamination could get into the water supply (which I doubt), it would surely dilute it down to about 0.00000000000000000000000001 PPM by the time that people actually drank it.  :P


~Ruth

Gluten free since 2/14/2010 after suffering a rare and serious complication from my gluten challenge

 

 

 

 

 

 

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It's pretty ridiculous and far fetched. Even if some wheat contamination could get into the water supply (which I doubt), it would surely dilute it down to about 0.00000000000000000000000001 PPM by the time that people actually drank it. :P

Well that just destroyed my excuse for my boss. Darn. Gotta drink water now.


Been having issues since forever
First issues I can connect to celiac was in middle school
Vit deficiencies, muscle spasms, fatigue

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I've heard the whey thing (thanks, Mom), and had a classmate gasp in horror when I ate a Snickers bar. 

 

When I was in Japan, the M&Ms did contain wheat starch.  That was annoying. 

 

The gluten line I'm most tired of is:

 

"What are you eating?"

"Cupcake."

 

"You mean, a gluten free cupcake?"

 

"... yes."

 

If I'm eating it and it's a baked good, then it is a gluten free baked good.  I shouldn't have to qualify this every-single-time.

 

"What did you have?"

 

"Bread and butter."

 

"Oh, you mean ..."

 

There's something weirdly ostracizing about it. 

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"You mean, a gluten free cupcake?"

 

"... yes."

Haha, yes!  One time early into my dx my husband asked me why soy sauce was on my grocery list.  I just started at him with that face until he got it, LOL!


I am my husband's "Silly Yak Girl" :)

I was diagnosed with Celiac Disease in January 2013. I also have Lupus and Common Variable Immunodeficiency(CVID) for which I am on IVIG.

Celiac.com - Celiac Disease Board Moderator

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"What are you eating?"

"Cupcake."

"You mean, a gluten free cupcake?"

"... yes."

Lol. I was at mellow mushroom one night and someone I know that is aware I have celiac came in and saw me eating a pizza. She sat there looking at me funny for a minute, then walks over and this is the convo:

Her: I thought you have celiac?

Me: I do...

What are you eating then?

Ummm....some pizza?

Doesn't it have gluten?

Not this one...this is one of the gluten free ones YOU told me about

**face palm**


Been having issues since forever
First issues I can connect to celiac was in middle school
Vit deficiencies, muscle spasms, fatigue

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I had an argument with a dude at the healthfood store the other day who thought barley didn't contain gluten, but was like oats in that its usually ccd. Ummm... Not the last time I checked, dude. Nice try.


~ Be a light unto yourself. ~ - The Buddha

- Gluten-free since March 2009 (not officially diagnosed, but most likely Celiac). Symptoms have greatly improved or disappeared since.
- Soy intolerant. Dairy free (likely casein intolerant). Problems with eggs, quinoa, brown rice

- mild gastritis seen on endoscopy Oct 2012. Not sure if healed or not.
- Family members with Celiac: Mother, sister, aunt on mother's side, aunt and uncle on father's side, more being diagnosed every year.

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Lol. I was at mellow mushroom one night and someone I know that is aware I have celiac came in and saw me eating a pizza. She sat there looking at me funny for a minute, then walks over and this is the convo:

Her: I thought you have celiac?

Me: I do...

What are you eating then?

Ummm....some pizza?

Doesn't it have gluten?

Not this one...this is one of the gluten free ones YOU told me about

**face palm**

Omg! Almost the same thing happened to me at work a few months ago. I ordered a sandwich for lunch on a gluten free roll.

 

Coworker: (Confused) "I thought you couldn't have gluten?" 

 

Me: I can't..this is a gluten free roll. (Derp  :P)

 

He was surprised at how much it looked like a "regular" roll. I'm pretty sure it was Udi's, but I'm not positive. 


Diagnosed via blood test: July 2013

Digestive Issues: Lactose Intolerance, Candidiasis, recurring hiatal hernia, possible SIBO

Skin Issues: Rosacea, Seborrheic Dermatitis, Tinea Versicolor

Sleeping Issues: Idiopathic Central Nervous System Hypersomnia, Sleep Paralysis

Allergies: Severe Seasonal allergies,histamine intolerance (under control) sulpha drugs, Oral Allergy Syndrome

Other: TMJ, Gallstones, Orthostatic Hypotension, Dysmennorhea, possible Adrenal Fatigue

Gluten Free - 07/13, Soy Free 05/14, Legume Free 05/14, Dairy Free 09/14, Grain Free 10/14

"I am in control of my own health" - working on crossing everything off this list.

 

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I had this glorious dream yesterday morning... I went into a pizzeria, the kind with the big wood-fired ovens and concrete floors (stems from a conversation I had w/ a local chef who is opening a wood-fired grill). I could smell the pizzas. A man came up and asked to take my order, I said, sadly, "I can't have pizza". He looked sad, and asked why, so I told him. He said, "no problem. I can make it". He proceeded to go to a shiny metal table and scrub it clean, taking out all new bowls and mixing up the dough. He carefully arranged all the ingredients on the top. He was in the midst of putting it in the oven when my husband woke me up...

 

Damn it. I really wanted to try that pizza.

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LOL  :D

 

My mom is another that always thinks I can't have soy but I have to give her points for trying.  I think she realizes that I can't have most soy SAUCE and somewhere it got scrambled into it that all soy is bad for celiacs.

 

I'm trying to cut down on my soy intake anyways.  :P


Nicole 

"Acceptance is the key to happiness."

ITP - 1993

Celiac - June, 2012

Hypothyroid - August, 2012

CANADIAN

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I was at a cookout a few weeks ago and someone asked me if I could have a burger.  I said yes but they would have to clean the grill first.  The response " don't worry the grill is hot enough, it'll kill the gluten".  Err no it wont or I could eat all cooked food. 


Diagnosed April 7th 2014

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LOL   :D

 

My mom is another that always thinks I can't have soy but I have to give her points for trying.  I think she realizes that I can't have most soy SAUCE and somewhere it got scrambled into it that all soy is bad for celiacs.

 

I'm trying to cut down on my soy intake anyways.   :P

 

 

You probably should, according to Mary Shomon, the mama of all things thyroid.  :)

 

"Soy can, however, still interfere with absorption of your thyroid hormone replacement medication, so be sure to take your medication at least three hours apart from soy foods"....

 

http://thyroid.about.com/od/soy/a/soy-thyroid.htm


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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You probably should, according to Mary Shomon, the mama of all things thyroid.  :)

 

"Soy can, however, still interfere with absorption of your thyroid hormone replacement medication, so be sure to take your medication at least three hours apart from soy foods"....

 

http://thyroid.about.com/od/soy/a/soy-thyroid.htm

 

So true! So true.   :)

 

I eat very little soy as it is. It shows up in my processed treats once in a while, that's about it for me.


Nicole 

"Acceptance is the key to happiness."

ITP - 1993

Celiac - June, 2012

Hypothyroid - August, 2012

CANADIAN

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I was at a cookout a few weeks ago and someone asked me if I could have a burger.  I said yes but they would have to clean the grill first.  The response " don't worry the grill is hot enough, it'll kill the gluten".  Err no it wont or I could eat all cooked food.

Actually, if you bring the grill to 600F or higher, and hold it there for 30 minutes, it will destroy the proteins on the grill. But if you have anything on the grill while you do that, it will no longer be edible. The clean cycle of a self-cleaning oven will do the same thing, burning off any gluten. FWIW.

Peter

Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000. I was retested five years later and the biopsy was normal. You can beat this disease!

Type 1 (autoimmune) diabetes diagnosed in March 1986

Markham, Ontario (borders on Toronto)

Celiac.com - Celiac Disease Board Moderator since 2007

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Actually, if you bring the grill to 600F or higher, and hold it there for 30 minutes, it will destroy the proteins on the grill. But if you have anything on the grill while you do that, it will no longer be edible. The clean cycle of a self-cleaning oven will do the same thing, burning off any gluten. FWIW.

Thats correct! 

 

At a restaurant one time I asked if there was a shared fryer, the nice girl there said yes, and even though a lady told her one time that she is a nurse and the hot oil burns off the gluten, she doesn't think it is safe.  I commended her for having some sense, and then told her that.  At the end I added, "Since the smoke point of the frying oil is well under 600 degrees, the gluten would only go away if the restaurant burned down."  Got a laugh out of that.  She still works there and I try to go on the days I know she usually works.   :)

 

 

Edit: Bad grammar


I am my husband's "Silly Yak Girl" :)

I was diagnosed with Celiac Disease in January 2013. I also have Lupus and Common Variable Immunodeficiency(CVID) for which I am on IVIG.

Celiac.com - Celiac Disease Board Moderator

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I was at a GNC booth before a race and asked numerous questions about all the samples before taking one.  One guy handed me a cup of energy drink and started by saying its gluten free so I took a sip, then proceeded to say "it's made from barley" -- I handed that back faster than you can say NOT GLUTEN FREE.  I've also heard the gamut of "you can't have that, right?" of things that don't naturally contain gluten.  The common theme for me is that they're all white/pale foods - potatoes, yogurt, vanilla ice cream, etc.  Maybe it reminds people of bread/flour!  I'd much rather people be overly safe than tell me something is gluten-free when its not though.  I just smile and say that's safe....after double-checking the ingredient list.

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I've also heard the gamut of "you can't have that, right?" of things that don't naturally contain gluten.

I get the a lot from someone I know only because she knows what her mom (celiac and about 20 other food allgergies/intolerances) can't have and she tends to get it mixed up occasionally why her mom can't have it, whether it's got gluten or something else her mom can't have. (She is a blonde though, so that might be part of the reason she gets confused ;):P )


Been having issues since forever
First issues I can connect to celiac was in middle school
Vit deficiencies, muscle spasms, fatigue

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Or she just has brain fog from undiagnosed celiac and it has nothing to do with blonde hair...lol

I've had that convo with her...she has a full panel done every year. So far she has lucked out.

Been having issues since forever
First issues I can connect to celiac was in middle school
Vit deficiencies, muscle spasms, fatigue

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I have a co-worker who, despite my efforts to explain what Celiac truly means, still thinks I am on a fad diet. She regularly asks me if I have lost any weight! (I wish-you would think that giving up bread would help in that regard :wacko: )

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The fad diet comments are pretty ridiculous for someone who's gluten-free for medical reasons, especially if they've been on a gluten-free diet long term.

 

I've been gluten-free for 4 1/2 years.  I'm pretty sure that if it was a fad, I would've quit by now. ;)


~Ruth

Gluten free since 2/14/2010 after suffering a rare and serious complication from my gluten challenge

 

 

 

 

 

 

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But you can be Celiac and still eat some Gluten, you know , diabetics can still have sugar! Thats what I was told at a party. LOLOLOL yea coming from someone who has no idea!! Absolutly no idea!!! Obviously!! 


Recovering Gluten Eater 

DX'd June 17th 2013

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But you can be Celiac and still eat some Gluten, you know , diabetics can still have sugar!

That is when I would look at them and use the peanut comparison..."would you give someone with a peanut allergy just 1 peanut, it won't kill them right?"

Been having issues since forever
First issues I can connect to celiac was in middle school
Vit deficiencies, muscle spasms, fatigue

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I use the peanut comparison, too.  I will start busting into science talk and it usually makes people look confused and walk away.  LOL


I am my husband's "Silly Yak Girl" :)

I was diagnosed with Celiac Disease in January 2013. I also have Lupus and Common Variable Immunodeficiency(CVID) for which I am on IVIG.

Celiac.com - Celiac Disease Board Moderator

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I use the peanut comparison, too. I will start busting into science talk and it usually makes people look confused and walk away. LOL

I had someone look at me like I was crazy when I used the peanut line (turns out they are allergic to peanuts, go figure). They told me that they would be stupid to eat even a "skin" from a peanut. I quickly explained "well, you go into anaphylactic shock with a trace amount of peanuts. I go into (insert rather detailed symptom list here) with trace amounts of gluten." They got the point.

Most people are aware of the severity of peanut allergies, so I think it's the easiest way to get people to understand.


Been having issues since forever
First issues I can connect to celiac was in middle school
Vit deficiencies, muscle spasms, fatigue

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