Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Most Ridiculous Gluten Comment I've Heard

C-Girl

By C-Girl
in Coping with Celiac Disease

Recommended Posts

BlessedMommy Rising Star
BlessedMommy
Posted

It's pretty ridiculous and far fetched. Even if some wheat contamination could get into the water supply (which I doubt), it would surely dilute it down to about 0.00000000000000000000000001 PPM by the time that people actually drank it.  :P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 89
  • Created
  • Last Reply
Georgia-guy Enthusiast
Georgia-guy
Posted

It's pretty ridiculous and far fetched. Even if some wheat contamination could get into the water supply (which I doubt), it would surely dilute it down to about 0.00000000000000000000000001 PPM by the time that people actually drank it. :P

Well that just destroyed my excuse for my boss. Darn. Gotta drink water now.

BlessedMommy Rising Star
BlessedMommy
Posted

LOL! :)

chocominties Rookie
chocominties
Posted

I've heard the whey thing (thanks, Mom), and had a classmate gasp in horror when I ate a Snickers bar. 

 

When I was in Japan, the M&Ms did contain wheat starch.  That was annoying. 

 

The gluten line I'm most tired of is:

 

"What are you eating?"

"Cupcake."

 

"You mean, a gluten free cupcake?"

 

"... yes."

 

If I'm eating it and it's a baked good, then it is a gluten free baked good.  I shouldn't have to qualify this every-single-time.

 

"What did you have?"

 

"Bread and butter."

 

"Oh, you mean ..."

 

There's something weirdly ostracizing about it. 

LauraTX Rising Star
LauraTX
Posted

"You mean, a gluten free cupcake?"

 

"... yes."

Haha, yes!  One time early into my dx my husband asked me why soy sauce was on my grocery list.  I just started at him with that face until he got it, LOL!

Georgia-guy Enthusiast
Georgia-guy
Posted

"What are you eating?"

"Cupcake."

"You mean, a gluten free cupcake?"

"... yes."

Lol. I was at mellow mushroom one night and someone I know that is aware I have celiac came in and saw me eating a pizza. She sat there looking at me funny for a minute, then walks over and this is the convo:

Her: I thought you have celiac?

Me: I do...

What are you eating then?

Ummm....some pizza?

Doesn't it have gluten?

Not this one...this is one of the gluten free ones YOU told me about

**face palm**

Pegleg84 Collaborator
Pegleg84
Posted

I had an argument with a dude at the healthfood store the other day who thought barley didn't contain gluten, but was like oats in that its usually ccd. Ummm... Not the last time I checked, dude. Nice try.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Waitingindreams Enthusiast
Waitingindreams
Posted

Lol. I was at mellow mushroom one night and someone I know that is aware I have celiac came in and saw me eating a pizza. She sat there looking at me funny for a minute, then walks over and this is the convo:

Her: I thought you have celiac?

Me: I do...

What are you eating then?

Ummm....some pizza?

Doesn't it have gluten?

Not this one...this is one of the gluten free ones YOU told me about

**face palm**

Omg! Almost the same thing happened to me at work a few months ago. I ordered a sandwich for lunch on a gluten free roll.

 

Coworker: (Confused) "I thought you couldn't have gluten?" 

 

Me: I can't..this is a gluten free roll. (Derp  :P)

 

He was surprised at how much it looked like a "regular" roll. I'm pretty sure it was Udi's, but I'm not positive. 

C-Girl Contributor
C-Girl
Posted
  • Author

I had this glorious dream yesterday morning... I went into a pizzeria, the kind with the big wood-fired ovens and concrete floors (stems from a conversation I had w/ a local chef who is opening a wood-fired grill). I could smell the pizzas. A man came up and asked to take my order, I said, sadly, "I can't have pizza". He looked sad, and asked why, so I told him. He said, "no problem. I can make it". He proceeded to go to a shiny metal table and scrub it clean, taking out all new bowls and mixing up the dough. He carefully arranged all the ingredients on the top. He was in the midst of putting it in the oven when my husband woke me up...

 

Damn it. I really wanted to try that pizza.

nvsmom Community Regular
nvsmom
Posted

LOL  :D

 

My mom is another that always thinks I can't have soy but I have to give her points for trying.  I think she realizes that I can't have most soy SAUCE and somewhere it got scrambled into it that all soy is bad for celiacs.

 

I'm trying to cut down on my soy intake anyways.  :P

beth01 Enthusiast
beth01
Posted

I was at a cookout a few weeks ago and someone asked me if I could have a burger.  I said yes but they would have to clean the grill first.  The response " don't worry the grill is hot enough, it'll kill the gluten".  Err no it wont or I could eat all cooked food. 

IrishHeart Veteran
IrishHeart
Posted

LOL   :D

 

My mom is another that always thinks I can't have soy but I have to give her points for trying.  I think she realizes that I can't have most soy SAUCE and somewhere it got scrambled into it that all soy is bad for celiacs.

 

I'm trying to cut down on my soy intake anyways.   :P

 

 

You probably should, according to Mary Shomon, the mama of all things thyroid.  :)

 

"Soy can, however, still interfere with absorption of your thyroid hormone replacement medication, so be sure to take your medication at least three hours apart from soy foods"..... 

 

Open Original Shared Link

nvsmom Community Regular
nvsmom
Posted

You probably should, according to Mary Shomon, the mama of all things thyroid.  :)

 

"Soy can, however, still interfere with absorption of your thyroid hormone replacement medication, so be sure to take your medication at least three hours apart from soy foods"..... 

 

Open Original Shared Link

 

So true! So true.   :)

 

I eat very little soy as it is. It shows up in my processed treats once in a while, that's about it for me.

psawyer Proficient
psawyer
Posted

I was at a cookout a few weeks ago and someone asked me if I could have a burger.  I said yes but they would have to clean the grill first.  The response " don't worry the grill is hot enough, it'll kill the gluten".  Err no it wont or I could eat all cooked food.

Actually, if you bring the grill to 600F or higher, and hold it there for 30 minutes, it will destroy the proteins on the grill. But if you have anything on the grill while you do that, it will no longer be edible. The clean cycle of a self-cleaning oven will do the same thing, burning off any gluten. FWIW.
LauraTX Rising Star
LauraTX
Posted

Actually, if you bring the grill to 600F or higher, and hold it there for 30 minutes, it will destroy the proteins on the grill. But if you have anything on the grill while you do that, it will no longer be edible. The clean cycle of a self-cleaning oven will do the same thing, burning off any gluten. FWIW.

Thats correct! 

 

At a restaurant one time I asked if there was a shared fryer, the nice girl there said yes, and even though a lady told her one time that she is a nurse and the hot oil burns off the gluten, she doesn't think it is safe.  I commended her for having some sense, and then told her that.  At the end I added, "Since the smoke point of the frying oil is well under 600 degrees, the gluten would only go away if the restaurant burned down."  Got a laugh out of that.  She still works there and I try to go on the days I know she usually works.   :)

 

 

Edit: Bad grammar

  • 2 weeks later...
kayoung4 Collaborator
kayoung4
Posted

I was at a GNC booth before a race and asked numerous questions about all the samples before taking one.  One guy handed me a cup of energy drink and started by saying its gluten free so I took a sip, then proceeded to say "it's made from barley" -- I handed that back faster than you can say NOT GLUTEN FREE.  I've also heard the gamut of "you can't have that, right?" of things that don't naturally contain gluten.  The common theme for me is that they're all white/pale foods - potatoes, yogurt, vanilla ice cream, etc.  Maybe it reminds people of bread/flour!  I'd much rather people be overly safe than tell me something is gluten-free when its not though.  I just smile and say that's safe....after double-checking the ingredient list.

Georgia-guy Enthusiast
Georgia-guy
Posted

I've also heard the gamut of "you can't have that, right?" of things that don't naturally contain gluten.

I get the a lot from someone I know only because she knows what her mom (celiac and about 20 other food allgergies/intolerances) can't have and she tends to get it mixed up occasionally why her mom can't have it, whether it's got gluten or something else her mom can't have. (She is a blonde though, so that might be part of the reason she gets confused ;):P )

beth01 Enthusiast
beth01
Posted

Or she just has brain fog from undiagnosed celiac and it has nothing to do with blonde hair...lol

Georgia-guy Enthusiast
Georgia-guy
Posted

Or she just has brain fog from undiagnosed celiac and it has nothing to do with blonde hair...lol

I've had that convo with her...she has a full panel done every year. So far she has lucked out.
ConnieT Newbie
ConnieT
Posted

I have a co-worker who, despite my efforts to explain what Celiac truly means, still thinks I am on a fad diet. She regularly asks me if I have lost any weight! (I wish-you would think that giving up bread would help in that regard :wacko: )

BlessedMommy Rising Star
BlessedMommy
Posted

The fad diet comments are pretty ridiculous for someone who's gluten-free for medical reasons, especially if they've been on a gluten-free diet long term.

 

I've been gluten-free for 4 1/2 years.  I'm pretty sure that if it was a fad, I would've quit by now. ;)

w8in4dave Community Regular
w8in4dave
Posted

But you can be Celiac and still eat some Gluten, you know , diabetics can still have sugar! Thats what I was told at a party. LOLOLOL yea coming from someone who has no idea!! Absolutly no idea!!! Obviously!! 

Georgia-guy Enthusiast
Georgia-guy
Posted

But you can be Celiac and still eat some Gluten, you know , diabetics can still have sugar!

That is when I would look at them and use the peanut comparison..."would you give someone with a peanut allergy just 1 peanut, it won't kill them right?"
LauraTX Rising Star
LauraTX
Posted

I use the peanut comparison, too.  I will start busting into science talk and it usually makes people look confused and walk away.  LOL

Georgia-guy Enthusiast
Georgia-guy
Posted

I use the peanut comparison, too. I will start busting into science talk and it usually makes people look confused and walk away. LOL

I had someone look at me like I was crazy when I used the peanut line (turns out they are allergic to peanuts, go figure). They told me that they would be stupid to eat even a "skin" from a peanut. I quickly explained "well, you go into anaphylactic shock with a trace amount of peanuts. I go into (insert rather detailed symptom list here) with trace amounts of gluten." They got the point.

Most people are aware of the severity of peanut allergies, so I think it's the easiest way to get people to understand.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,244
    • Most Online (within 30 mins)
      7,748
    Barbara carter
    Newest Member
    Barbara carter
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Hypothetical question about antibodies

      By Scott Adams · Posted

      No, I would not say this at all. If you were diagnosed with celiac disease and were gluten-free for a while, you could have gone into remission. Everyone's body is different, and some celiacs may be able to get regular contamination and not end up with damaged villi and positive antibody tests, while others who ingest tiny amounts will relapse and have full blown symptoms and flattened villi.  Only a full gluten challenge would reveal where you are at this point. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Inflammation and Menier’s disease link?

      By Scott Adams · Posted

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Pablohoyasaxa
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By Pablohoyasaxa · Posted

      Great  post. The skin issue can be intolerable. I have been taking niacinamide for the past month and have improved with respect to the blistering lesions. 
    • knitty kitty
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By knitty kitty · Posted

      I've found taking Niacin Vitamin B 3 in the form that causes flushing (nicotinic acid) helps immensely to clear my skin.  The flushing is harmless and goes away the longer Niacin is taken.  The flushing (vasodilation in the skin) helps the body get rid of the tTg 3 IgA antibodies that cause the blisters.  TTg 2 IgA antibodies are found in the blood and are measured in diagnostic testing for Celiac.  People with Dermatitis Herpetiformis make tTg 3 as well as tTg 2 antibodies.  Niacin Vitamin B3 in the non flushing form niacinamide also works without the flushing, but takes a bit longer.   I also avoid foods containing high levels of iodine because iodine activates the tTg 3 IgA antibodies to become more active and make more blisters.  I avoid kelp (nori, seaweed) and crustaceans,  eggs, dairy products, and iodized table salt.   Niacinamide and Nicotinic acid are water soluble and harmless.  I'd much rather take Niacin than Dapsone with scary side effects.  
    • meghanf
      Airbourne products in same living house hold .

      By meghanf · Posted

      We have a gluten-free household. It's the least stressful option. No one else in my family has Celiac, but they are all extremely supportive. We don't even have Play-doh for this kids.
×
×
  • Create New...