Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shins?


oni

Recommended Posts

oni Newbie

Hi! I have a super itchy rash on my shin. Is this a normal place for DH flares? I have always gotten rashes, my derm calls it papular eczema (he also said with my history of celiac and seasonal allergies that I just have 'rashy tendencies' whatever that means) He's never tested any spots for DH, just prescribes a steroid cream. I'm celiac and my blood anti ttg titers were in normal ramge last time it was checked. I've had simiar feeling and looking rashes above my ear on my head, laterally on my hips, around my ankles, on my forearms, and frequently on my elbows. I have a steroid cream that I use sometimes when I get a flare but it seems like regardless as to steroid use they last a few weeks before they start going away. Lately the flares have been on my shin and when they kind of go away they leave a patch of skin that's a bit darker than the rest. This time, when it came back, it's still on my shin but moved a bit from the last spot.

Does this seem normal? Any advice?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

It typically affects the elbows, knees, buttocks, and upper back, but can appear on other areas as well. Here is more info:

www.celiac.com/articles/22891/1/Dermatitis-Herpetiformis-Diagnosing-and-Treating-the-Gluten-Rash/Page1.html

 

The biggest concern I would have is that your diet may include small amounts of gluten, which can trigger this. 

squirmingitch Veteran

I agree with Scott depending on how long and how strict you have been gluten free. Hallmarks are that dh appears on both sides of the body echoing each other. Celiacs have a tendency to rashes or skin issues regardless. Your derm would not be able to do a dh biopsy if you're gluten free --- it would turn up negative. Just like with the celiac blood panel, you must be eating a full gluten diet for 6 weeks to 2 months to have a dh biopsy. Here's the bottom line ~~~ you are celiac so there is no point in getting a dx of dh. A dx of dh is a dx of celiac. Either way, you must eat totally gluten free.

oni Newbie

I have been totally gluten-free for almost 3 years (it'll be 3 in Jan). I'm very diligent, so I don't think that's it.

They don't usually show up on both sides of my body, except for on my elbows.

Really, I'm just sick of using steroid creams. Maybe my dermatologist is right and I just get rashes more often than regular folks..

I just wish I knew how to prevent it.

  • 3 weeks later...
irish11 Apprentice

I have often wondered.....if my dad was celiac without knowing?  He had this unexplained rash on his shins...both sides...ever since I could remember as a child...i would ask my mom about it (it would come and go in intensity, not always the same) and the picture i can give you is this....it looked JUST like the ones i have seen here and elsewhere of people's stomachs....

to me it looked kinda orangy red-y in nature....tons of little ones close together.....like a concentrated type rash...but looks like the photos ive seen at these blogs....and NOW i wonder about what dad didnt know...my mom said she didnt know...it just kinda started 10 years or so after they were married (so maybe 30s, 40s)...and he ultimately died of heart disease..CHF.....but who knows?  his mom died , basically, from rheumatoid arthritis stuff....interesting....NOW i wonder about it....we all just thought it was ...whatever...something...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    3. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    4. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    5. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,261
    • Most Online (within 30 mins)
      7,748

    Pbaentine
    Newest Member
    Pbaentine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.