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The Ups And Downs Of Cd

Jen H

By Jen H
in Coping with Celiac Disease

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Jen H Contributor
Jen H
Posted

Hi everyone,

I'm still fairly new to celiac disease and was hoping I could ask you guys a question. I was diagnosed in August and have been eating gluten-free since then. I've been extremely careful about what I eat and I'm fairly sure I have rid my diet of gluten. Over the past 3 months I seem to have "waves" of symptoms. Some days I feel great and other days I have stomach pain and am exhausted. I'm pretty sure I'm not glutening myself, so is it normal for me to go through ups and downs like this? I'm just so new to it all I don't know what to expect.

Thanks so much!

:D Jen

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KaitiUSA Enthusiast
KaitiUSA
Posted

Yes, I was up and down for many months before feeling better.

I know you said your foods have been gluten free but what about your products?

Also, since you are kind of new to the diet it does take time to feel better it took me 8 months to get back to normal but I felt better and saw improvement before then...have you seen any improvement? If you have by now that should be encouraging.

jerseyangel Proficient
jerseyangel
Posted

I agree that it takes a while to feel better more or less consistantly. At 3 months, I was still having bad days but after the fourth month, there were definately more good days than bad--thats the point where I felt I had my gluten-free act together and kind of turned a corner so to speak. I'm only five months into it now but the D is gone :D but some of the other symptoms still remain--but not as severe. I figure that its all part of the healing process and will improve with time (and being strictly gluten-free!!). Sounds like you're on the right track--keep us posted :)

jenvan Collaborator
jenvan
Posted

It is not uncommon to go up and down. I am 9 mos gluten-free and still riding that rollercoaster. Sometimes it can be attributed to less sleep, more stress, different foods...other times there is no correlation, and who knows what your body is up to. :) In the scheme of things, you are still just beginning, and I am only really beginning to get some where in terms of healing. Now, I will say if you are having varing digestive issues, not just fatigue, you may want to track your symptoms. Something could be getting in or there may be another food or product that bothers you. I highly recommend food/symptom journals to come up with correlations and track progress. Hope this week/end is a good one for you!

Jen H Contributor
Jen H
Posted
  • Author

Thanks for all your replies! Jenvan, I think I'm going to start keeping my food journal again. I was doing great for a while, and then BAM, I started getting stomach symptoms again. I bet you're right-there's been a leak. I've been super careful about checking what I eat, but today I noticed that the wraps I've been eating for lunch seem to affect me. I was sick within ten minutes of eating it. I've been using the corn tortilla wraps from Trader Joes (on the gluten-free list) and Carl Buddig Ham (which is gluten-free on their website). I've been eating this sandwich all week and have had similar symptoms. I'm not sure how that's making me sick, but it seems to be. Have you had reactions from gluten-free foods?

Jen

jerseyangel Proficient
jerseyangel
Posted

Could there be cross contamination from the slicer used on your ham? Just a thought.

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      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

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