Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello New Here From England

yorkshire lass

Recommended Posts

yorkshire lass Newbie
yorkshire lass
Posted
:D Hi all. I am a married Mum of 4 children from Yorkshire, England. I was diagnosed above a year ago, and now my youngest son is going through diet tests hope to chat soon
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Beanie Newbie
Beanie
Posted

Hi "Mum",

I hope you find a support group in your area. This is the single best "defuser" of that overwhelming feeling when you are first or recently diagnosed. It changed my outlook and has forced me to look outside the box and keep current with the disease, coping strategies and new recipes. The good news is that you are getting your children tested! In the U.S. the lag time is about 15 yrs. before a correct diagnosis is made and because doctors are not up to speed on the disease, it is very hard to get them to order the blood tests on children unless they are underweight and fall below the growth rate for their age. So don't despair! Life after celiac is not bad - I joke with my grandchild that "We are the "real" people, the others are mutants! He thinks it's funny!!!

yorkshire lass Newbie
yorkshire lass
Posted
  • Author

Thanks for the welcome. Just realised i didn't put my name there, its Julie :lol: My youngest son, had almost the same symtoms for most of the time i did, and it took me 20 months to get an hospital appointment for him he is 12 years old now, and we have had the gastro camera and endo camera too like i did- they found that he had a 'rare gut allergy' to put it in simple terms. But said there was no evidence of celiac there, however they decided that taking him off all food and giving him drip feed to give his bowel a rest. Then the tube came out and they started him on food again and today at the hospital they have said he can have wheat for next 6 weeks but still no dairy and eggs or milk so that is son 3 background

lizzy Apprentice
lizzy
Posted

welcome julie

its nice to have someone from good old yorkshire on here it makes me feel at home, sorry to here about your son i hope he gets well soon liz

  • 3 months later...
londonlass Newbie
londonlass
Posted

hi there julie are you the same milkfree yorkshire lass ive been chatting too. This is ambers mumma. Its a small world isnt it.

Rusla Enthusiast
Rusla
Posted

Hi Julie,

Welcome to the board. This is a great place for information and support.

  • 4 months later...
weebee Newbie
weebee
Posted
Hi Julie,

Welcome to the board. This is a great place for information and support.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


taz sharratt Enthusiast
taz sharratt
Posted
:D Hi all. I am a married Mum of 4 children from Yorkshire, England. I was diagnosed above a year ago, and now my youngest son is going through diet tests hope to chat soon

hay you , im in uk too. im im tenby west wales. also married mum but of 3 boys. diagnosed 2 months ago.

BRUMI1968 Collaborator
BRUMI1968
Posted

I have an English dog (a staffy bull) and we both welcome you to the board. Can you tell me, how much in pounds is a "stone". Also, do you ever hear the phrase "bully for you" over there? I know it's a British saying, just don't know how common it is these days. Thanks.

taz sharratt Enthusiast
taz sharratt
Posted
I have an English dog (a staffy bull) and we both welcome you to the board. Can you tell me, how much in pounds is a "stone". Also, do you ever hear the phrase "bully for you" over there? I know it's a British saying, just don't know how common it is these days. Thanks.

there are 14 pounds to a stone, and yes " bully for you " is used commonly or at least i hear it. nice you have a bull dog, a friend had one which was lovely but it got stolen anbd used for fighting it was awfull.

bev40 Rookie
bev40
Posted
:D Hi all. I am a married Mum of 4 children from Yorkshire, England. I was diagnosed above a year ago, and now my youngest son is going through diet tests hope to chat soon

Hi! Im a mum of 4 from yorkshire, england too! Huddersfield to be precise. Not diagnosed but suffering all the same :)

nikki-uk Enthusiast
nikki-uk
Posted
I have an English dog (a staffy bull) and we both welcome you to the board. Can you tell me, how much in pounds is a "stone". Also, do you ever hear the phrase "bully for you" over there? I know it's a British saying, just don't know how common it is these days. Thanks.

Bully4you,I've had 2 Staffies-I love them,they are so daft.

Brilliant with kids too-sadly my staffies died.

They get a bad press,but they really are great family dogs!

And yes,we still use the saying 'bully for you'!!

Great picture of your dog :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley...
    2. MogwaiStripe
      - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease. Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/
    3. Scott Adams
      0

      Tahini Swirl Fudgy Brownies (Gluten-Free)

    4. Butch68
      - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too. is this everyone’s experience? Can I drink it? I get dermatitis herpetiformis and don’t get instant react...
    5. trents
      - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,211
    • Most Online (within 30 mins)
      7,748
    MogwaiStripe
    Newest Member
    MogwaiStripe
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Gluten Issues and Vitamin D

      By MogwaiStripe · Posted

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Guinness, can you drink it?

      By Butch68 · Posted

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.