Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can I Trust All "gluten Free" Labels?


CeliacMommaX2

Recommended Posts

CeliacMommaX2 Enthusiast

When my kids were initially diagnosed, I was told (by the dietition) that if it says "gluten free" then it's safe even if it has the "made in a facility with wheat, etc".  Is this true?  I've gotten very paranoid as my daughter has still not gained weight after 4 months gluten free.

 

I just have no idea what products to trust.  I have a hard time telling if my kids are reacting to a certain food... they are only 3 & 5 and can't really tell me "I think I reacted to those crackers".  What if a products doesn't actually say anything about "manufactured in a facility..." but they were and it just isn't on the label.

 

Thanks for your thoughts!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



caro7 Newbie

I am not really an expert on labels but, I do not buy anything that is made in a facility that process wheat.  I feel it is safer not to take chances, your children are so young they cannot tell you if they have minor problems. Stay with whole foods or certified gluten free. At least that is my opinion.

bartfull Rising Star

Companies do not have to disclose whether or not they process wheat in the same facility or equipment. You could be eating something on a regular basis that is made in the same facility and not even know it.

 

Here's they way I handle it. Same facility? I don't worry about it. The chances of CC are tiny. As has been pointed out here many times, unless your entire family is gluten-free your own kitchen is a "same facility".

 

Same EQUIPMENT? That's a different story. I've worked at enough places of all kinds to know that many employees will take shortcuts and some will try to get away with doing as little work as possible. Therefore I don't trust them to clean the machinery well enough to keep me safe.

 

Now here's the good news - there are some companies who will always tell you. Kraft Foods, Con Agra, Nestle's and some others. They don't pay for testing in order to keep their prices down, but their labels will clearly list any gluten ingredients and clearly have the facility/equipment warning. And these are parent companies whose brands cover just about any type of food you can think of. You can google them and find out what brands they are comprised of.

Hellbender Newbie

My opinion, after testing many products with a gluten test kit, is that foods labeled gluten-free usually are. Read carefully though. My wife bought a little cheese cake that was labeled gluten-free. On close examination the boldly written gluten free label was describing the cooking powder used in the cake, one ingredient. Wheat was another ingredient so the product did contain gluten.

The flip side is supplements like multivitamins and glucosamine. Some labeled gluten-free may conain gluten. 

Be aware that the test I use measures down to 10ppm which means that even though the product contains gluten it may still be a legal amount to wear the label, eg. 10ppm<G<20ppm.

BTW. does anyone know if supplements are held to same standards as food?

Dan

w8in4dave Community Regular

Well I think the law is 20PPM for labeling gluten-free, sometimes that is to much for certain people. Alot of people can eat gluten-free oats for example. Others cannot. I do not eat gluten-free boxed stuff, but once every so often. Like crackers or such.  I eat whole foods. Eat freash meat and veggies. I do eat gluten-free rice. It's the only rice I eat. I am very careful with CC . I do the cooking I cook hubbs food first and then my own in my pans with my utensils. It may seem to be a PITA to some but it works for us. Don't fall for the gluten-free isle. I feel 20 ppm and how much of it you eat, you will be eating to much Gluten. Just my opinion. Also if your concerned about a certain food you can call the company. 

bartfull Rising Star

There is one company I know of that makes gluten-free food in a dedicated gluten-free facility. Against The Grain. They don't even let employees bring gluten for lunch. And Ronzoni makes a gluten-free pasta that is made in a dedicated gluten-free facility in Italy.

cap6 Enthusiast

Gluten free products are generally safe, it is all the additives in the product that tend to cause problems.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

My 2 cents. if you're that worried about cross contamination then don't eat out unless you grill the chef & manager. Even then I won't eat out unless it's a totally gluten free place.

Annaem Enthusiast

I am learning the gluten-free label doesn't mean much. Some things say safe from gluten or naturally gluten free. I also find supplements unless checked by a third party the gluten-free status means nothing. I also joined a new site called gluten free watch dogs via Facebook. They actually will test things with lab testing. The gluten-free test kit we use at home is not sensitive to barley :(

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,551
    • Most Online (within 30 mins)
      7,748

    Newest Member

    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.