Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Daughters Enterolab results-need help!

Adclaure

Recommended Posts

Adclaure Newbie
Adclaure
Posted

I've suspected my 6 year old has gluten sensitivity for years now. Her blood test came back negative so I ordered the Enterolab test. I was blown away by her anti-gliadin #. How accurate is Enterolab? Can we reintroduce dairy down the road? These are her results:

Fecal Anti-gliadin IgA      406 Units   (Normal Range is less than 10 Units)

Fecal Anti-casein (cow’s milk) IgA      98 Units   (Normal Range is less than 10 Units)

Fecal Anti-ovalbumin (chicken egg) IgA      26 Units   (Normal Range is less than 10 Units)

Fecal Anti-soy IgA      39 Units   (Normal Range is less than 10 Units)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

As far as I have heard, they mean nothing.  Sorry.  

Did she have actual Celiac blood tests?  And was she eating gluten at the time?  

 

 

Open Original Shared Link

 

"...ecause of this, we must make our decisions based on what hasbeen published; Harvard, UCSD, and the American College of Gastroenterology all agree that stool tests are simply not sensitive or specific enough methods in screening for celiac disease. We can say therefore with confidence that the test currently being used by these labs is not good enough..."

 

frieze Community Regular
frieze
Posted

did the doc do the WHOLE testing panel?  all six/seven tests?

etbtbfs Rookie
etbtbfs
Posted

The enterolab test corroborated what I already knew, in my case.  So why are you so concerned about tests?  Why don't you just have her go gluten free and see what happens to symptoms?  BTW, my dairy sensitivity went away after I had been gluten-free for several years.

squirmingitch Veteran
squirmingitch
Posted

If she doesn't have a bonafied dx by a MEDICAL DOCTOR then she will not be protected at school & later in college. 

Jmg Mentor
Jmg
Posted
1 hour ago, etbtbfs said:

The enterolab test corroborated what I already knew, in my case.  So why are you so concerned about tests?  Why don't you just have her go gluten free and see what happens to symptoms?  BTW, my dairy sensitivity went away after I had been gluten-free for several years.

Obviously there's always the option to exclude gluten independent of tests but it's a big step for a young kid. There are a lot of sacrifices to make, a lot of birthday parties etc where she will potentially miss out etc. etc. I think Adclaure has every reason to try and work on objective evidence if possible. It's the responsible course of action in my view. 

Adclaure I have no knowledge of the tests but I wish you and your daughter the best. You may find this article interesting before taking a decision on gluten:

Open Original Shared Link

Adclaure Newbie
Adclaure
Posted
  • Author

Now I'm really confused because her gene test (blood work) came back negative for both genes. The doctor said there is no way she could have celiac. But does that also mean there is no way she is gluten sensitive? Europe regocnizes 7 genes for celiac so I'm wondering if she actually is sensitive to gluten and this test  isn't good enough?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


frieze Community Regular
frieze
Posted
On 6/20/2016 at 3:42 PM, Adclaure said:

Now I'm really confused because her gene test (blood work) came back negative for both genes. The doctor said there is no way she could have celiac. But does that also mean there is no way she is gluten sensitive? Europe regocnizes 7 genes for celiac so I'm wondering if she actually is sensitive to gluten and this test  isn't good enough?

your doctor is wrong, ....

Gemini Experienced
Gemini
Posted

While it is less likely someone without either of the 2 Celiac genes actually has Celiac, it is not impossible.  She may be gluten sensitive but you should make the effort to find out if it is Celiac vs. gluten sensitivity because with Celiac, damage occurs to the small intestine. That is really important to know.

As far as being protected in school, you would need a plan for primary school up to age 18.  They are not so good sometimes at understanding Celiac and doing the right things.  However, college is changing at a rapid pace and many colleges will provide gluten free food without a doctor's note. My niece does not have a diagnosis but gets really sick like I do when she eats gluten. She attends Ithaca College in NY state and they accommodate anyone who needs to eat gluten free. She was never mandated to prove she has it. I think by the time kids today reach college, it will be even easier. This is a money thing also......colleges do not want to lose business because they cannot accommodate dietary needs. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748
    PatBurnham
    Newest Member
    PatBurnham
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.