Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Official... We Can Eat Oats!


jkmunchkin

Recommended Posts

jkmunchkin Rising Star

I went to a meeting yesterday where Dr. Peter Green from the Celiac Disease Center at Columbia University was the main speaker. He and Anne Roland Lee, the expert celiac nutritionist, said that it is infact safe for us to have oats. They suggest introducing them in very small quantities to start with but say it is a good idea to eat them if you can as it is a good source of fiber.

The 2 brands that Anne said are safe are McCann's Irish Oats and Country's Choice.

I know a lot of people are still unsure of whether to eat oats but if Dr. Green and Anne say it's ok I trust them more than any other source.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 75
  • Created
  • Last Reply
Carriefaith Enthusiast

From what I understand, pure uncontaminated oats are safe for most celiacs to eat. However, some celiacs will react to the safe oats since the protein is so similar to the protein in wheat barely and rye. The body mistakes the oat protein for the other. I would persoanlly never eat oats because with my luck, I would be the 10-20% or whatever it is that reacts to oats.

VydorScope Proficient

If I turn out to be celiac disease, I would be willing to try it, but only after being gluten-free for a while so that I can see if I react at all.

Guest Viola

I have a sample pack coming from a company in Canada that guarantees un-contaminated oats, so I am going to give them a try. I'm really looking forward to it as I miss my oatmeal in the winter.

If you want to check out a company in the U.S. you can find it at

www.glutenfreeoats.com

Jnkmnky Collaborator

I've decided to wait till my son is a lot older so he can really describe to me how his body reacts. I'd hate to mistake a stomach bug for a neg reaction, or to not quite get a clear understanding from him if he reacts badly.

Guest Viola

Yes, that would be a good idea to wait. It is hard enough for an adult to figure out a trigger to contamination, let alone a child.

RiceGuy Collaborator
The 2 brands that Anne said are safe are McCann's Irish Oats and Country's Choice.

Interesting. I saw some Scottish oats and wondered if they might be safe. I don't know where they are grown or processed though. I'll ask the company and post about it if they're definitely ok.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jkmunchkin Rising Star

Yeah I saw a brand in the store last night, Breadshop - that all the ingredients seemed ok. I called the company but they wouldn't say if it is gluten-free or not because under their guidelines oats are not ok. But she said if Oats are ok then it seems they would be fine. I think I'll get the ingredients and send Anne and e-mail to see what she thinks.

CeliaCruz Rookie
The 2 brands that Anne said are safe are McCann's Irish Oats and Country's Choice.

It's funny. Back when I thought I only had a wheat allergy, I used to eat oatmeal and never had a reaction.

Now that I think about it, I only ate McCann's. I didn't know it was "safe", I just liked the way the can was designed.

RiceGuy Collaborator
Yeah I saw a brand in the store last night, Breadshop - that all the ingredients seemed ok. I called the company but they wouldn't say if it is gluten-free or not because under their guidelines oats are not ok. But she said if Oats are ok then it seems they would be fine. I think I'll get the ingredients and send Anne and e-mail to see what she thinks.

Ingredients? You must be looking at a flavored one, yes? While that's good to know if you plan to buy them, the real concern with oats is the cross-contamination issues, which isn't going to show up on the ingredients list.

Guest Viola

Riceguy is right ... your oats need to be completely un-contaminated, and only a very few brands can say that. Quaker Oats ARE NOT safe! They are contaminated, as is their puffed rice! Take care :rolleyes:

Emme999 Enthusiast

I would *love* to have oats again. But I don't think I will. Before being diagnosed with celiac disease, I was completely asymptomatic - well, except for the osteoporosis <_< I might be one of those people who react to oats - but asymptomatic there as well :blink: And wouldn't that suck? All this stuff I'm doing to fix my bod tossed away for a handful of granola.

The other food intolerances/allergies I have also come without severe intestinal symptoms. I'm afraid that my body would react just enough inside to cause damage, but not enough for me to realize it.

Mmmm granola though :P

Best wishes to those of you who try it! I think I'll opt out until I have free access to an endoscopic clinic - then I'd love to have one done, eat some oats, and have another one done. I think that would be the only way for me to know enough to decide it was okay for *me*

- Michelle :wub:

jnifred Explorer

Well I went out and bought some McCann's Oats. I am going to make oatmeal choc chip cookies, and pray HARD!!! The stuff I read about McCann's is still iffy, but I am going to try it and see.......I'll let you know if it turns out bad....

Guest Viola

Michelle ... from what I understand .. if you have a reaction to oats, it's more of a intollerance. Apparently it does not cause intestenal damage. As long as the oats are pure and uncontaminated.

tarnalberry Community Regular

From the studies on oats in celiacs, a small percentage of celiacs DO get intestinal damage (as determined by biopsy) when eating oats. The number is small, but the avenin protein is very similar to the gliandin protein, and it's thought that the similarity causes the immune system in some celiacs to still recognize it as "evil". It's very much a "eater beware", even outside of contamination issues.

In tests, both Country Pride and McCann's has samples of oats that were found to be contaminated above the CODEX standard of 200ppm, so there is no guarantee with those as well. Don't forget that many doctors believe the diet is so hard to follow that they'll err on the side of allowing some stuff that the stricter people wouldn't want in their diet. Not saying not to trying, just saying to be careful.

key Contributor

My son and I both tried McCann's. I never got nauseous with them. I did have horrible gas. Maybe the fiber though. My son liked them too, but he started having some diarhea after two weeks. WHo knows though with him. IT may have been a bug.

Guest Lucy

The cost of uncontaminated oats puts them still on my "forbidden" list. I wish so much to make "monster" cookies for my son. But.....not for the price.

darlindeb25 Collaborator

I wont ever try oats again--they made me ill before I was gluten free and I wont ever trust them. I like Dr. Green and I do believe most everything he says, but I feel he is wrong about oats. I have listened to him talk too and at that meeting he spoke of oats. He asked the room of over 200 how many would try oats again and only 1 person raised their hand. So, I am not alone in the belief that I will never trust oats. Deb

elisabet Contributor

It was a research in Norway ,studying oats and celiac in 8years ,and the result was that oats is safe,regarding gluten,but soy is also safe ,in this regard but most people with celiac can t tolerate it,some can,I am going to try oats for my son and will let you know.

jenvan Collaborator

I would hesitate to encourage any one to try oats unless they had a tangible way of measuring a reaction...meaning, there could be a reaction, but not one someone would pick up on. Sometimes our reactions can be pretty subjective too...so if I was going to try them (which I'm not at this point), I would make sure I had a concrete way of measuring potential symptoms or damage. I guess that could be several things, ie. a follow-up blood test perhaps...but, that's just my take on it. :)

KaitiUSA Enthusiast

I would also hesitate to encourage oats because a portion of celiacs do get intestinal damage from pure oats and all the oats in the US have had problems with contamination.

2Boys4Me Enthusiast
Riceguy is right ... your oats need to be completely un-contaminated, and only a very few brands can say that. Quaker Oats ARE NOT safe! They are contaminated, as is their puffed rice! Take care :rolleyes:

What?! Quaker puffed rice is unsafe? The Quaker 800 # has a press one for English, press three for gluten free items thingy on the automated answer and the voice told me that Quaker puffed rice is gluten-free. (This wasn't one of the usual voices I hear, it came from the phone :P )

I guess it doesn't matter anyway, I've never found Quaker puffed rice, I found Nature's Path gluten-free rice puffs at Sobeys and the Safeway finally has some that "ingredients: rice, manufactured in a facility that also produces wheat products."

Felidae Enthusiast

The US and Canadian Quaker gluten-free products are not necessarily the same.

Rachel--24 Collaborator

Well...I bought some McCann's oats but now I dont think I can eat them...ever. :unsure:

I'm too scared. :ph34r:

I think I will return the nice round can next week.

VydorScope Proficient

hye... the GPL test lists...

Food Allergy Comprehensive (IgG-96 foods)

almond; amaranth flour; apple; apricot; asparagus; avocado; banana; barley; bean: string, kidney, lima, pinto, soy; beef; beet; blueberry; broccoli; buckwheat; cabbage; carrot; casein; cauliflower; celery; cheese: cheddar, cottage, mozzarella; chicken; clam; cocoa bean; coconut; cod; coffee bean; corn; crab; cranberry; cucumber; egg white; egg yoke; filbert; garlic; gliadin; gluten; grape: red; grapefruit; halibut; honey; lactalbumin; lamb; lemon; lentil; lettuce; lobster; milk: cow, goat; mushroom; oat; olive, black; onion; orange; oyster; papaya; pea; peach; peanut; pear; pecan; pepper: bell; pineapple; plum; pork; potato: sweet & white; pumpkin; radish; raspberry; red snapper; rice: white; rye; salmon; sesame; shrimp; sole; spelt; spinach; squash: zucchini; strawberry; sugar cane; sunflower; tomato; tuna; turkey; walnut; wheat; yeast baker's; yeast brewers; yogurt

SOOOO That would tell us right????

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

    3. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    5. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,845
    • Most Online (within 30 mins)
      7,748

    Paulaannefthimiou
    Newest Member
    Paulaannefthimiou
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
    • xxnonamexx
      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.