Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allergic to Almost all Food - Eating Meat....Support?!

Melissa28

Recommended Posts

Melissa28 Newbie
Melissa28
Posted

Hi.  I've been eating a limited diet since 2007 when I first had allergic reactions to foods and my body went "hyper sensitive", I went gluten-free fully in 2009 and have been living a great life by eating healthy and gluten-free.  About 6 months ago I had 10 reactions in a two month time frame, went on an even cleaner diet, and was good for two months, and then it happened again. Plus I had a reaction to dye free Benadryl. I saw two different functional medicine doctors and signed on with one of them. He took my labs and told me my yeast levels are very high, I have leaky gut and other than that I should be an easy fix because my thyroid and other numbers were good. Well adrenal fatigue I have too of course. (:  Last week he put me on Paleo Protein and L-Glutamine. Both I'd tried the week before in small amounts and did okay with. Well last week Tuesday I reacted to the Paleo Protein and it really stirred up something in me, because Wed I had a reaction to one bite of eggplant and then bruseel sprouts later in the day and they've always been fine. Thursday morning Turkey got stuck in my throat and I felt off from that. So I went back to chicken, beef and water and kept taking the L-Glutamine. Friday I felt funky and so Saturday I stopped talking the L-Glutamine and had chicken and bison. Felt great for the first day. Today I tried just a little bit of the l-glutamine in water again and my throat started to clench and my face felt full. Then my lips felt numb.  So my first question is....what do you guys take other than Benadryl if you're having a stronger reaction??? I have HistDAO histamine blocker, but if I need more I don't know what to take.  Next....help! those of you that are down to only meat and water too, what is working for you???  Thirdly, how off is my body to have a reaction to L-Glutamine? I just can't do anything man-made. Can anyone relate to any of this??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

I suggest researching Mast Cell Activation Syndrome or EOE.  

Open Original Shared Link

 Also, Benadryl crosses the blood brain barrier and there have been long-term complications.  Talk to your doctor about using  another antihistamine.  If your reactions have been anaphylactic, you should have an epi pen.  I hope you feel better soon!  

Jabreu81 Newbie
Jabreu81
Posted

The L-Glutamine may have gluten in it.  Try drinking bone broth daily instead.

Ennis-TX Grand Master
Ennis-TX
Posted

Your getting plenty of proteins for once and I would drop the L-glutamine supplement what brand is it? Paleo Protein as in the brand? They were not gluten free last I checked, I got sick from it 2 years ago or so when they changed to a non dedicated facility.

Melissa28 Newbie
Melissa28
Posted
  • Author

Thanks everyone!  The L-Glutamine is from Nutri-Dyne and the Paleo Protein is from Dynamic and is sold by Nutri-Dyne. Is this the brand you got sick from? 

Melissa28 Newbie
Melissa28
Posted
  • Author

It won't let me attach a picture. It's the Pure Beef Protein Isolate French Vanilla with vanilla seeds in the front.  

Ennis-TX Grand Master
Ennis-TX
Posted
30 minutes ago, Melissa28 said:

It won't let me attach a picture. It's the Pure Beef Protein Isolate French Vanilla with vanilla seeds in the front.  

Yours looks safe I was using paleo pro back then and the company changed from gluten free to manufactured in the same facility as.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,803
    • Most Online (within 30 mins)
      7,748
    MaryAlice
    Newest Member
    MaryAlice
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Wheatwacked · Posted

      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By RMJ · Posted

      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      Just diagnosed today

      By JoJo0611 · Posted

      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.