Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advice?


Breezy1

Recommended Posts

Breezy1 Explorer

So yesterday I went to a walk in doctor to see if my test results were in. They were normal but they only did one test for celiac ttg iga which was 3, range is 0-15. Since I was at the doctor I decided to mention my foot pain that started about about 3 weeks ago and my wrist pain which has been bothering me off and on for years but has been bad the past few weeks as well. He diagnosed me with plantar fasciitis. And was thinking about doing a blood test for rheumatoid but since my wrists aren’t stiff and unable to move when I wake in the morning he wanted to hold off. He said to stop eating bread and if I still have pain to come back and he will do a bunch of tests. He said he always tells people to stop eating bread because he personally doesn’t think it’s very good for you etc. 

From looking through this forum the past few weeks, and from previous posts I’ve made I’m now aware that the ttg iga can be negative if you are iga deficient. I plan on making an appointment with my family doctor for both my daughter and I. Her results for ttg iga were also 3 on a range from 0-20 (conincidence that we had the same level?)

So I’m just unsure what to do for now. Should I stop eating bread like the doctor suggested? Should I get a second opinion from my family doctor first? If I stop eating bread the amount of gluten I consume will be a lot less and then future testing won’t be accurate. I just want to know what’s wrong. I’ve had awful symptoms since childhood from stomach issues, headaches/migraines, terrible fatigue, anxiety, depression. I remember being depressed even as a child, it would come on all of the sudden and I’d be so sad and I didn’t understand it. Heartburn, sore muscles/joints, and more. All these symptoms have only gotten worse and more keep appearing like the plantar fasciitis, as well as bad memory problems. My boss will tell me something that needs to be done at work and if I don’t write it down right away I forget within minutes. 

Also is plantar fasciitis common in celiac? 

Thank you in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria1234 Experienced

Don't go gluten-free yet. Get the full celiac panel asap. Others will chime in what the full panel is. Sounds a lot like celiac. Your daughter needs the full panel too.

squirmingitch Veteran

Keep eating the bread. Get your primary care doc to do a full celiac panel although I will mention that depending on your insurance, some require you to go to a GI to get the full panel. Here's the list:

Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA 


Also can be termed this way:

Endomysial Antibody IgA
Tissue Transglutaminase IgA 
GLIADIN IgG
GLIADIN IgA
Total Serum IgA 
Deamidated Gliadin Peptide (DGP) IgA and IgG

TexasJen Collaborator

Plantar fasciitis is common in general. I'm not sure if it's more common in celiacs in particular but I don't think it necessarily means anything ominous.

I will say that you should make an appointment with a regular doctor that knows you. You should never go to an urgent care for chronic problems. Their job is to fix one problem and move on. They don't see patients in follow up and don't really learn about chronic disease management either.  

Keep eating bread, get the full celiac panel (and maybe some other tests) and go back to the same doctor to continue to search for answers.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,894
    • Most Online (within 30 mins)
      7,748

    Lostcha
    Newest Member
    Lostcha
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.