Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Last Meal Before Dx


par18

Recommended Posts

par18 Apprentice

Does everyone remember their last gluten meal before diagnosis. Mine was a ham and cheese on a kaiser roll. 5 mins after eating the GI called with the good/bad news. 5/03/05.

Tom


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



angel-jd1 Community Regular

Not exactly sure but during that time I couldn't keep any food down so it was probably pedialyte and possibly a jar or baby food.

I wish I had eaten something wonderful like pizza or take-out chineese! ha

-Jessica :rolleyes:

Lauren M Explorer

I had absolutely no knowledge of celiac disease and no idea that I was being tested for it (biopsy taken during a follow-up endoscopy for pancreatitis), so it's kind of funny that my "last meal" before diagnosis was a big pancake breakfast from Perkin's. :P I guess that was a good call on my part.

- Lauren

KarenCM Rookie

My last meal before starting the gluten free diet was homemade pizza. I will never ever forget that last meal.

Karen

lovegrov Collaborator

I was so ill it was a hospital meal. I have no idea what it was.

richard

Guest nini

mine was an avocado sandwich on sourdough bread at the Atlanta Bread Company! I went straight from there to the Dr.s office!

key Contributor

Mine was self diagnosed. I was sick all the time. My son had just been diagnosed with celiac. I had had a bagel from Panera. It made me sick the whole day. Nauseated, belching, bloating, yuck. THat was it. THen I decided I had to try gluten-free. Started feeling better in a week. Had borderline blood results after being gluten-free for 5 weeks. THat was enough for me. NOw if I get gluttened, I feel very sick.

Monica


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient

Hamburger, with bun, seasoned fries and a diet coke from Backyard Burgers.

jerseyangel Proficient

I seriously don't remember!

danikali Enthusiast

It was reccently actually:

My fiance took me to this resturant that is THE BEST resturant in NYC for -shoot, haha, I forgot what's it's called!- well, it was lamb, in this very thick, AMAZING gravy with this creamy rice all around it and delicious bone marrow (hahah sounds gross) mixed with the gravy......I had TONS of bread for an appetizer and a mozzarella cheese plate-the really gourmet, thick moz. cheese! MMMMMMMMMmm! Then for dessert, we got soft batch chocolate chip cookies and EGG NOG (I love that stuff!!!!!!!!!!!!!!!!!!) and put the cookies in the microwave so they were melted and soft and tasted like we just baked them from scratch!

:( I'm getting sad thinking about this meal! I can't have any of that anymore! Ever! I got so sick! I never want to be like that again! But that last hour was pure bliss!!!!!!!!!!!

Thanks for reminding me! :angry:

Haha, j/k :D

nikki-uk Enthusiast

My husband had a big bowl of cereal('weetabix'!)with milk,

Later in the eve he had one or two beers :blink:

Bowls of cereal are a distant memory now as he's lactose intolerant too !

Carriefaith Enthusiast

Before I started fasting for the biopsy, I had a very big pasta dish at a restaurant called East Side Mario's. That is the last gluten meal that I remember.

Rusla Enthusiast

My last meal was a week long so that my DH could really shine out. So the very last one was Zorba the Greek Pizza from BP.

frenchiemama Collaborator

I knew that it was going to be my last hurrah, so I went out for mexican. I had a big carnitas burrito on a flour shell with everything. It was delicious.

Then my doctor called me with my lab results about an hour after I ate. But it was good.

jenvan Collaborator

can't remember THE last one..but the last few days before i had pasta, homemade soda bread, thai food out and a sam adam's oktoberfest i think.

aikiducky Apprentice

Well, my last gluten meal was a bowl of muesli I ate in an attempt to start eating gluten again for blood tests. It made me so sick I went to have blood drawn the same day. Of course the results were negative. :( I can't say I miss muesli, lol.

Pauliina

Rachel--24 Collaborator

After my last meal I ended up in the ER. I was already very sick but wasnt thinking about gluten because my bloodtests were negative. The meal was some kind of breaded fish sandwich with fries. I only ate half of it because I got too sick. :(

Too bad I had no idea it would be my last...if I had known I probably would have had pizza or a big Italian spaghetti dinner with meatballs and tons of bread.

jen3899 Apprentice

I left the hospital after my upper and lower scope, not suppose to eat until the drugs wore off, but insisted that we stop and get a sub from this sub shop (ebert & gerberts in La Crosse, WI) They have the best bread, makes subways taste like crap! I got a foot long turkey sub with tomatoes, lettuce, and extra mayo! Looking back, I could not have picked something I would have enjoyed more, I just wish I wasnt so doped up so I could remember it better! I did cheat once like a week after DX, with some pizza hut pizza, but I knew how sick it was going to make me so I didnt even enjoy it, I think I had like 2 bites before I chickened out, and then tried to make myself puke hopeing that would help. Ahh what fun....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,079
    • Most Online (within 30 mins)
      7,748

    Terra33
    Newest Member
    Terra33
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.