Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Last Meal Before Dx

par18

By par18
in Coping with Celiac Disease

Recommended Posts

par18 Apprentice
par18
Posted

Does everyone remember their last gluten meal before diagnosis. Mine was a ham and cheese on a kaiser roll. 5 mins after eating the GI called with the good/bad news. 5/03/05.

Tom

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


angel-jd1 Community Regular
angel-jd1
Posted

Not exactly sure but during that time I couldn't keep any food down so it was probably pedialyte and possibly a jar or baby food.

I wish I had eaten something wonderful like pizza or take-out chineese! ha

-Jessica :rolleyes:

Lauren M Explorer
Lauren M
Posted

I had absolutely no knowledge of celiac disease and no idea that I was being tested for it (biopsy taken during a follow-up endoscopy for pancreatitis), so it's kind of funny that my "last meal" before diagnosis was a big pancake breakfast from Perkin's. :P I guess that was a good call on my part.

- Lauren

KarenCM Rookie
KarenCM
Posted

My last meal before starting the gluten free diet was homemade pizza. I will never ever forget that last meal.

Karen

lovegrov Collaborator
lovegrov
Posted

I was so ill it was a hospital meal. I have no idea what it was.

richard

Guest nini
Guest nini
Posted

mine was an avocado sandwich on sourdough bread at the Atlanta Bread Company! I went straight from there to the Dr.s office!

key Contributor
key
Posted

Mine was self diagnosed. I was sick all the time. My son had just been diagnosed with celiac. I had had a bagel from Panera. It made me sick the whole day. Nauseated, belching, bloating, yuck. THat was it. THen I decided I had to try gluten-free. Started feeling better in a week. Had borderline blood results after being gluten-free for 5 weeks. THat was enough for me. NOw if I get gluttened, I feel very sick.

Monica

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted

Hamburger, with bun, seasoned fries and a diet coke from Backyard Burgers.

jerseyangel Proficient
jerseyangel
Posted

I seriously don't remember!

danikali Enthusiast
danikali
Posted

It was reccently actually:

My fiance took me to this resturant that is THE BEST resturant in NYC for -shoot, haha, I forgot what's it's called!- well, it was lamb, in this very thick, AMAZING gravy with this creamy rice all around it and delicious bone marrow (hahah sounds gross) mixed with the gravy......I had TONS of bread for an appetizer and a mozzarella cheese plate-the really gourmet, thick moz. cheese! MMMMMMMMMmm! Then for dessert, we got soft batch chocolate chip cookies and EGG NOG (I love that stuff!!!!!!!!!!!!!!!!!!) and put the cookies in the microwave so they were melted and soft and tasted like we just baked them from scratch!

:( I'm getting sad thinking about this meal! I can't have any of that anymore! Ever! I got so sick! I never want to be like that again! But that last hour was pure bliss!!!!!!!!!!!

Thanks for reminding me! :angry:

Haha, j/k :D

nikki-uk Enthusiast
nikki-uk
Posted

My husband had a big bowl of cereal('weetabix'!)with milk,

Later in the eve he had one or two beers :blink:

Bowls of cereal are a distant memory now as he's lactose intolerant too !

Carriefaith Enthusiast
Carriefaith
Posted

Before I started fasting for the biopsy, I had a very big pasta dish at a restaurant called East Side Mario's. That is the last gluten meal that I remember.

Rusla Enthusiast
Rusla
Posted

My last meal was a week long so that my DH could really shine out. So the very last one was Zorba the Greek Pizza from BP.

frenchiemama Collaborator
frenchiemama
Posted

I knew that it was going to be my last hurrah, so I went out for mexican. I had a big carnitas burrito on a flour shell with everything. It was delicious.

Then my doctor called me with my lab results about an hour after I ate. But it was good.

jenvan Collaborator
jenvan
Posted

can't remember THE last one..but the last few days before i had pasta, homemade soda bread, thai food out and a sam adam's oktoberfest i think.

aikiducky Apprentice
aikiducky
Posted

Well, my last gluten meal was a bowl of muesli I ate in an attempt to start eating gluten again for blood tests. It made me so sick I went to have blood drawn the same day. Of course the results were negative. :( I can't say I miss muesli, lol.

Pauliina

Rachel--24 Collaborator
Rachel--24
Posted

After my last meal I ended up in the ER. I was already very sick but wasnt thinking about gluten because my bloodtests were negative. The meal was some kind of breaded fish sandwich with fries. I only ate half of it because I got too sick. :(

Too bad I had no idea it would be my last...if I had known I probably would have had pizza or a big Italian spaghetti dinner with meatballs and tons of bread.

jen3899 Apprentice
jen3899
Posted

I left the hospital after my upper and lower scope, not suppose to eat until the drugs wore off, but insisted that we stop and get a sub from this sub shop (ebert & gerberts in La Crosse, WI) They have the best bread, makes subways taste like crap! I got a foot long turkey sub with tomatoes, lettuce, and extra mayo! Looking back, I could not have picked something I would have enjoyed more, I just wish I wasnt so doped up so I could remember it better! I did cheat once like a week after DX, with some pizza hut pizza, but I knew how sick it was going to make me so I didnt even enjoy it, I think I had like 2 bites before I chickened out, and then tried to make myself puke hopeing that would help. Ahh what fun....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748
    dcarter1682
    Newest Member
    dcarter1682
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.