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HELP.... Can't stop binging gluten

Farrah3

By Farrah3
in Coping with Celiac Disease

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Farrah3 Newbie
Farrah3
Posted

Hi, I am 16 years old and have been gluten free for about 4 months now however I was just officially diagnosed with celiac a month ago. I was completely gluten free for the first week however now I cannot seem to cope with the idea of not eating gluten. And yes I know how damaging it is to my body and it makes me so sick for so long however, I can't seem to stop eating it. I keep putting on a ton of weight and my stomach is so bloated it looks as if Im pregnant (which let me make very clear, I am not). I just don't know what to do. I have suffered from an eating disorder before my diagnosis and am worried that I am going to develop it again. My gluten eating binges usually end with me so sick I can't move or focus and me crying in a bathroom. My entire house is gluten free because my parents are so so supportive of me. I just really need help because as I am typing this I just ate a panini and a croissant. I really need help I can't keep living like this and I thought that someone on here would be able to offer me some much needed advice. Please Please Please help me. 
 

ps... I should also mention that I suffer from many other food sensitivities, mainly dairy, soy and coconut.

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Farrah3 Newbie
Farrah3
Posted
  • Author

I honestly can't stop crying and eating gluten and I have no idea to adjust to this lifestyle. 

cyclinglady Grand Master
cyclinglady
Posted
34 minutes ago, Farrah3 said:

Hi, I am 16 years old and have been gluten free for about 4 months now however I was just officially diagnosed with celiac a month ago. I was completely gluten free for the first week however now I cannot seem to cope with the idea of not eating gluten. And yes I know how damaging it is to my body and it makes me so sick for so long however, I can't seem to stop eating it. I keep putting on a ton of weight and my stomach is so bloated it looks as if Im pregnant (which let me make very clear, I am not). I just don't know what to do. I have suffered from an eating disorder before my diagnosis and am worried that I am going to develop it again. My gluten eating binges usually end with me so sick I can't move or focus and me crying in a bathroom. My entire house is gluten free because my parents are so so supportive of me. I just really need help because as I am typing this I just ate a panini and a croissant. I really need help I can't keep living like this and I thought that someone on here would be able to offer me some much needed advice. Please Please Please help me. 
 

ps... I should also mention that I suffer from many other food sensitivities, mainly dairy, soy and coconut.

Hi!  

Did your doctor refer you to a dietitian who is celiac savvy?  A local celiac support group?  Is he/she aware of your past eating disorder?  Are you getting current help for that?  

It is hard to get a celiac disease diagnosis.  You will go through a grieving process just as if you would if a family member or friend died.  It is okay to have the feelings you are experiencing.  Do your parents know how unhappy you are and that you are eating gluten?  

My daughter who is 17 has one of her friends who was just diagnosed with celiac disease in December.   We baked holiday cookies together and oddly enough, she will text me with questions.  She is the only celiac in her family.  When I bake, I pack extra gluten-free goodies in my daughter’s lunch so that she can share with her friend or I drop it off at her home.  

Consider getting into a group.  You will be surprised how many people actually have celiac disease.  You are NOT alone!  Heck, there are even a gluten-free camps for celiac kids!  I wanna go!  

Please try to talk to your supportive parents.  They love you and can help you!  You found us.  We are here to support you too!  

 

Ennis-TX Grand Master
Ennis-TX
Posted

There is gluten free everything now days no reason to poison yourself, while a whole food diet is normally suggested you can look to this list for treats when you get these urges. https://www.celiac.com/forums/topic/120402-gluten-free-food-alternative-list-2018-q1/

Oh and those food issues, they get worse and evolve the longer you eat gluten....Hey look at me I got a allergy to corn, intolerant to soy, peanuts, dairy....I had some others but they went away on the gluten free diet after a few years. My pancreas does not produce enzymes like it should, so I can not eat red meats, and poultry and fish, crab require to take porcine pancreas enzymes to digest them. OH and I developed other auto immune diseases....Ulcerative Colitis...one that flares up if I eat sugars or CARBS no flour, bread, potatoes, starches, grain, rice etc. Or I distend and start shitting blood.  I also ended up with gluten ataxia....now this is evil..imagine if you eat gluten and you immune system starts to attack your brain and neverous system...and you lose the ablity to do things you take for granted...I lost feelings in my hands and feet..so video games and hobbies that require intricate work I had to give up...and I lost the ability to do certain things...like math, computer coding, other languages I knew, sometimes I even have trouble reading.....

Wish I had known earlier before these all set in...but at least I got under control. I have read worse things like lymphoma, cancers, and intestinal ruptures....

Get it under control now or it gets worse....your very blessed to have a supporting family...mine was not so much and I had to move out....but I did start my own bakery and I now make and sell grain free baked goods, nut butters, etc. and do chef work. I loved food and now I work to make it WHERE I can eat it without getting sick recreating all kinds of other foods. >.> Mine are mostly nut and coconut base.

 

 

pschwab Enthusiast
pschwab
Posted

I’m a high school teacher, someone who had an eating disorder as a teenager and a mom to a celiac superstar (he’s 4). I do and will continue to do everything I can for my son; I’m already trying to plan ahead to make college a seemless transition for him. ? Please, please, please talk to your parents! They are obviously supportive because they made your home gluten free. It might help to talk with a psychiatrist. With your prior eating disorder you know food is an issue for you, so discussing why you are feeling the need to binge gluten might help. You seem like a smart, responsible kid based on the fact that you know you shouldn’t be binging gluten and you reached out for help. It sucks to be a teenager and have something that makes you different, but a gluten free diet isn’t so bad these days. Our family went gluten free when my son was diagnosed and we’ve been able to replace all our favorites with gluten free alternatives. I can’t emphasize enough how important it is to talk to your parents. I wish you the best of luck!!

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