Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Always Cold!


mouse

Recommended Posts

mouse Enthusiast

Someone posted a question asking if anyone felt cold. I cannot find the original post. Yes, I am always cold. I live in Arizona and when it is 68 outside, I have on a long sleeve T and a flannel shirt or a heavier jacket and my hands and feet are still ice cold. I wear boots with knee high socks and sometimes even put on silk long underwear. I have been known to sit on my hands to warm them up. At the time I am dressed like this, my husband is wearing a short sleeve or long sleeve T. :blink: I was assuming it was because I had lost so much weight and did not have the fat to keep me warm.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hez Enthusiast

I am cold alot as well. I assumed it was because I am small and a woman. I have heard that women's heat goes to the core of their body (biology-to keep baby warm). Hence why alot of women have cold feet and hands.

Hez

sneako Rookie

I'm a 6'3" 270lb male and I am also often cold, even with my apartment set for 68 I'm often cold, but othertimes I'm hot, even on cold days, its very confusing for me. But I lost 10 pounds in 2 weeks :D

jerseyangel Proficient

Since I've been gluten-free, I tend to get cold--especially my hands and feet--during the day. At night, at first I have a hard time warming up under the covers, and in the middle of the night, I get hot and have to kick the covers off. Hot flashes are part of the problem, I know :(

francelajoie Explorer

My middle name was cold.

My natural healer said to try and use alot of black pepper and cayenne pepper in your food. Make sure what you drink is at room temp.

I did all of this and it helped alot!

jenvan Collaborator

Could be a circulation issue or anemia, which cold is a symptom of.

ravenwoodglass Mentor
Someone posted a question asking if anyone felt cold. I cannot find the original post. Yes, I am always cold. I live in Arizona and when it is 68 outside, I have on a long sleeve T and a flannel shirt or a heavier jacket and my hands and feet are still ice cold. I wear boots with knee high socks and sometimes even put on silk long underwear. I have been known to sit on my hands to warm them up. At the time I am dressed like this, my husband is wearing a short sleeve or long sleeve T. :blink: I was assuming it was because I had lost so much weight and did not have the fat to keep me warm.

I used to be freezing all the time, I was never warm even in the summer. I am over 3 years post diagnosis and this winter I am actually able to keep the heat at a level that does not have everyone else sweating. I kept getting out of bed and turning down the thermostat until I realized I was setting it at 62 every night. I also have always run a low body temp and thought it was due to that. I now think it may have had something to do with the gluten injestion but it seems odd it would take almost 3 years to go away.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mouse Enthusiast

It has just been under two years since my diag. After you said it took you three years, I am HOPING it will also happen to me. My family would love it as I keep the heat on too high for them and am still bundled up in the house.

carriecraig Enthusiast

I too am often quite cold. It seems to have subsided a bit since I've been gluten-free, and sometimes I am warmer then my husband! Which is a first. I just figured that I had poor circulation, but who knows if it was another wonderful trait of celiac disease.

mouse Enthusiast

OOPS. Forgot to mention Jen, that I have been tested yearly (for anemia) and my cardiologist checks my circulation every two years as I have a minor blockage. Thank you for the suggestion though as it might help someone that is on this topic. :):)

gointribal Enthusiast

I just posted something along the same lines...I am always freezing! The doctors checked to see if I was anemic but I was fine. I do however bruise really easily after eating gluten, any ideas?

flagbabyds Collaborator

You could also have a thyroid problem, becasue that runs very closely with celiac. And colid is one of the symptoms, I would have that checked out

gointribal Enthusiast

good call, I had my thyroid checked and I was fine but ya never know?! ;)

JKJ Newbie

I used to be freezing all the time, I was never warm even in the summer. I am over 3 years post diagnosis and this winter I am actually able to keep the heat at a level that does not have everyone else sweating. I kept getting out of bed and turning down the thermostat until I realized I was setting it at 62 every night. I also have always run a low body temp and thought it was due to that. I now think it may have had something to do with the gluten injestion but it seems odd it would take almost 3 years to go away.

Me too! all the same -- thyroid testing years ago claimed no problem -but later I have read only the most sophisticated , newest tests catch ALL thyroid problems - - Also have VERY dry skin that flakes -- looking back I see or feel that the problem of wheat/gluten intolerance Or Celiacs - has probably been building for many a year - - didn't come to a head til I was way older than I would have thought possible :) (for discovery )

My body temp has always been around 97 - (that was too bad when I was in school - cause when I was really sick it might reach 99 - - but not sick enough to get sent home from school - ha!

  • 3 years later...
Nadia2009 Enthusiast

I found this discussion with our friend google. Didn't know I was coming back to the celiac.com forum. I have had cold hands and feet for a number of years but it is now getting really bad. I have to find an external source of heat to keep my feet warm and it hurt. Unless I have been walking and moving for the last 2 hours, I cannot just go to sleep like that. My feet are extremely cold at night they prevent me to sleep. Going to the sauna helps so is exercising.

Do you think cold extremities are really related to gluten or it is just a sign of poor circulation?

caligirl2001 Newbie

I also get cold frequently, particularly my feet. If it is below 70, I'm wearing a sweater. I keep a blanket on the couch all the time. And if I mistakenly ingest gluten, I feel like my whole internal thermostat goes wacky.

mushroom Proficient

Count me in on the cold group. Shivering when getting into bed in midsummer, always long sleeves all summer long, wraps for legs when watching TV, etc. I rarely put away winter clothes. Always tested normal (although low normal) on thyroid, but my results have been going up and I do feel less cold now (18 months gluten free, recent B12 injections and B vitamin supplementation).

CaraLouise Explorer

My hands are always cold and usually feet. I have Raynaud's Disease, so you might want to check into that, although there is nothing they can do about it. I also have low low normal thyroid. I usually have problems with vitamins, so I haven't really taken any additional B supplements. Glad to know I am not alone!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,697
    • Most Online (within 30 mins)
      7,748

    Nicole Poirier
    Newest Member
    Nicole Poirier
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.