Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gastroperesis


Laura P63

Recommended Posts

Laura P63 Rookie

How do you recover from mysterious gluten contamination? My guts won't wake up despite hot liquids, stewed vegetables, broth & yogurt (goat)....many days later. Doesn't drive you crazy when you cannot sleuth out how you were glutened? I'm 56, teach high school and been gluten-free for 3 years. Thank you!

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master
(edited)

>.< I use hot magnesium citrate to flush it down then stay on a bone broth, eggs, and some soft cooked meats for awhile and drink 16oz of warm water every 1-2hours most of the day. But my gut still randomly decided to hold onto food til I vomit it hours later....so far as long as I stay away from emulsifiers (guar gum, xantham gum, starches, agar. etc.) and spices stuff keeps flushing down the stomach. I have been dealing with random Gastroperesis like issues for years...I have honestly given in to comparing my stomach to a toilet and force flushing it via plenty of warm liquids hours later after giving it time to digest. I also take extra digestive enzymes to help break stuff down.
THIS IS IN NO WAY medical advice, just what I am doing as a stopgap measure til my GI doctor figures this out.

Edited by Ennis_TX
Laura P63 Rookie

OMG I feel like less of a freak - thank you! Hot mag drink sounds really smart and I will try it tonight. Eggs are easy to eat (eve buy them from farmer who does not feed grain) and would help with energy. I've had 8 gut surgeries before figiei.g out that gluten was poisoning me....

GFinDC Veteran

Hi Laura,

Milk of Magnesia can help get things moving sometimes.   CVS also sell liquid magnesium drinks in small bottles.  Those are probably the nuclear option though.

cyclinglady Grand Master

Is it Gastroparesis or constipation?  If it is the stomach not emptying (vomiting often resolves it), I am not sure taking a laxative is going to help.

in any case, healing from celiac disease should help.  You have to avoid gluten at all costs.  Deviations from the diet can set you back (as you have discovered).  

Recovery for me is weeks or months.  Why?  Because gluten triggers an autoimmune reaction like RA or lupus.  The body will stop producing antibodies when it decides and not just when you eliminate gluten from the body.  

Be patient.  ?

knitty kitty Grand Master

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6739701/

Gastroparesis may be caused by thiamine deficiency.  

Hope this helps.

Posterboy Mentor

LauraP63,

To add to what Knitty Kitty said here are some links that might help you.

https://annals.org/aim/article-abstract/718014/gastrointestinal-beriberi-previously-unrecognized-syndrome

https://www.ncbi.nlm.nih.gov/pubmed/29982183

This happens often because Beri Beri is great imitator of other diseases.

http://www.hormonesmatter.com/beriberi-the-great-imitator/

I hope this is helpful but it is not medical advise.

Posterboy,


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    2. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    4. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    5. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.