gluten contamination...

[albane]

hi guys, this is probably the dumbest question for those of you who have been coeliac for a long time now, but I’m new to this, I haven’t been diagnosed yet but I’m pretty sure I’m allergic to gluten... tonight I ate a ratatouille my mum made which had pieces of spaghetti in. she makes these all in bulk in advance and stores them in airtight containers for months.. i ate some of this tonight, carefully eliminating any strands of spaghetti, yet here I am an hour later with horrible stomach pain and bloating. is it possible that the gluten dissolved in the sauce? 

[CatS]

Yes, that would cause your symptoms. So sad because ratatouille doesn’t call for pasta! That happened to me in Lisbon. We went to a seafood restaurant and the waiter assured me it was gluten free. It had overcooked macaroni in it which caused the same problem. By the way, my mother, and many others did not get it after my diagnosis and always acted as if “ just this once” or a little bit won’t hurt...Wikipedia has a good explanation about what celiac disease is.

 

[Fenrir]

Yes, cross contamination is a serious issue for celiacs and most certainly could cause a reaction. 

[Awol cast iron stomach]

Oh yes.

I initially was gluten-free (naively- as I had a shared household) 4 years before my testing. I got cc at my sister's 50 b day party, despite them responding weeks earlier to my inquiries that they could accommodate me) . 

I finally got in to a Dr. willing to test me , being suspect my previous IBS diagnosis  on symptoms only 20 years before could have been missed celiac or NCGS since I felt better gluten-free. I explained my shooting neuropathy pain disappeared when I ate gluten-free. That didn't sound like IBS to her and her team.

I was diagnosed told to be strictly gluten-free, joined here learned how to do gluten-free properly from the veterans here, and my cousin found out she wasn't the only celiac / gluten intolerant in the family ?.

Welcome and Good luck on your journey and path to healing.

[albane]

15 hours ago, Awol cast iron stomach said:

Oh yes.

I initially was gluten-free (naively- as I had a shared household) 4 years before my testing. I got cc at my sister's 50 b day party, despite them responding weeks earlier to my inquiries that they could accommodate me) . 

I finally got in to a Dr. willing to test me , being suspect my previous IBS diagnosis  on symptoms only 20 years before could have been missed celiac or NCGS since I felt better gluten-free. I explained my shooting neuropathy pain disappeared when I ate gluten-free. That didn't sound like IBS to her and her team.

I was diagnosed told to be strictly gluten-free, joined here learned how to do gluten-free properly from the veterans here, and my cousin found out she wasn't the only celiac / gluten intolerant in the family ?.

Welcome and Good luck on your journey and path to healing.

i haven’t actually gotten tested for coeliac yet but i know for a fact that every time i try to reintroduce gluten my tummy is so so painful. so i’ve been off gluten for over a year now, but in a household of people who do eat it, so i toast my bread in the normal toaster and everything. to be tested, do i need to reintroduce gluten to my diet or not? because i don’t think i could do that, the pain is so much!!

[CatS]

10 hours ago, albane said:

i haven’t actually gotten tested for coeliac yet but i know for a fact that every time i try to reintroduce gluten my tummy is so so painful. so i’ve been off gluten for over a year now, but in a household of people who do eat it, so i toast my bread in the normal toaster and everything. to be tested, do i need to reintroduce gluten to my diet or not? because i don’t think i could do that, the pain is so much!!

 

[CatS]

Just now, CatS said:

 

I had been gluten free for 4 years [diagnosed by a naturopathic doctor] but was tested by my medical doctor. The night before I ate a Sunday Roast beef dinner in a pub- gravy and Yorkshire pudding. I tested on the extreme end. Maybe if there’s no gluten in your system the test doesn’t turn out correctly. Ask your doctor. My naturopathic doctor also told me to avoid oats- even gluten free oats because the protein is very similar and our bodies can’t tell the difference.

[GFinDC]

10 hours ago, albane said:

i haven’t actually gotten tested for coeliac yet but i know for a fact that every time i try to reintroduce gluten my tummy is so so painful. so i’ve been off gluten for over a year now, but in a household of people who do eat it, so i toast my bread in the normal toaster and everything. to be tested, do i need to reintroduce gluten to my diet or not? because i don’t think i could do that, the pain is so much!!

Hi,

Yes, you would need to eat some gluten daily for 12 weeks for the blood antibodies testing, and 2 weeks for the endoscopy testing.  A slice or 2 of wheat toast is enough for the immune system to react.  More than enough actually.

[Awol cast iron stomach]

Correct. I initially had to have all my allergy testing for IgE allergies ruled out first to proceed to step 2 food intolerances, celiac, ncgs.

  They had me do a gluten challenge despite at the time being in a shared household. It took 8 months for me to get in for an appointment. I cried telling them I knew I couldn't do a 12 week challenge. My goal was 2 weeks of gluten challenge plus both endoscope and colonscopy.  It was very apparent I had issues by day 4 symptoms alone. I couldn't get past day 6 I have many systemic neurological symptoms besides gi. I am classified as NCGS with multiple intolerances in my records. Although I have a past history of Puppp rash after I gave birth to my daughter and my rash (which did not erupt during my challenge ? looks like DH) Regardless we became a completely gluten-free household due to my neurological issues, tremors etc I had. I had to become even more strict. I apparently was not doing gluten-free correctly the first time. I live like a strict celiac.

I learned after my diagnosis on the forums here I was naively gluten-free the first time as I was not properly educated about cc issues. I am now strictly gluten-free . I don't eat out etc, gluten-free home, make many of my own personal care products etc. I am more sensitive in general now to processed foods.

I won't lie it is a challenge to do the gluten challenge. I hope one day there will be accurate testing without a challenge. Until it you decide to test, then as many suggest get all your preliminary testing, a date booked for scopes, plan your 2 week goodbye gluten tour, ( eat your favorite gluten foods) as you may already suspect this is something you have to address.

Good luck

 

[Zenith]

On ‎2‎/‎23‎/‎2020 at 3:40 PM, albane said:

hi guys, this is probably the dumbest question for those of you who have been coeliac for a long time now, but I’m new to this, I haven’t been diagnosed yet but I’m pretty sure I’m allergic to gluten... tonight I ate a ratatouille my mum made which had pieces of spaghetti in. she makes these all in bulk in advance and stores them in airtight containers for months.. i ate some of this tonight, carefully eliminating any strands of spaghetti, yet here I am an hour later with horrible stomach pain and bloating. is it possible that the gluten dissolved in the sauce? 

Honey, the only thing you can eat is NON processed foods or 1 ingredient foods,  OR   only certified gluten free box meals or bread.  If you are gonna make big dishes every thing has to be certified  gluten free.  I just eat salt since I am afraid of any spices that say gluten free since I don't ever  see CERTIFIED gluten free.

[RMJ]

3 hours ago, Zenith said:

 I just eat salt since I am afraid of any spices that say gluten free since I don't ever  see CERTIFIED gluten free.

Spicely has certified gluten free spices.

https://www.spicely.com/pages/certification

[Zenith]

On ‎2‎/‎23‎/‎2020 at 5:08 PM, CatS said:

Yes, that would cause your symptoms. So sad because ratatouille doesn’t call for pasta! That happened to me in Lisbon. We went to a seafood restaurant and the waiter assured me it was gluten free. It had overcooked macaroni in it which caused the same problem. By the way, my mother, and many others did not get it after my diagnosis and always acted as if “ just this once” or a little bit won’t hurt...Wikipedia has a good explanation about what celiac disease is.

 

Oh  I  know doesn't that get on your nerves?   Very sad scary world we live in . Lol  Normal ppl don't get it.    I have only got glutened once and now I am even a million times more careful.  

15 minutes ago, RMJ said:

Spicely has certified gluten free spices.

https://www.spicely.com/pages/certification

thanks  I am going to check it out now.

[cyclinglady]

3 hours ago, Zenith said:

Oh  I  know doesn't that get on your nerves?   Very sad scary world we live in . Lol  Normal ppl don't get it.    I have only got glutened once and now I am even a million times more careful.  

thanks  I am going to check it out now.

I use single-ingredient McCormick spices.  Never had a gluten exposure from them and I am healed based on a repeat endoscopy/biopsy.  If you are concerned about which foods may have gluten in them, consider subscribing to the Gluten Free Watchdog who actually tests products (like a mini Consumer Reports) and is unbiased (no advertising sponsors are accepted and that is why you have to subscribe).  

[Zenith]

17 hours ago, cyclinglady said:

I use single-ingredient McCormick spices.  Never had a gluten exposure from them and I am healed based on a repeat endoscopy/biopsy.  If you are concerned about which foods may have gluten in them, consider subscribing to the Gluten Free Watchdog who actually tests products (like a mini Consumer Reports) and is unbiased (no advertising sponsors are accepted and that is why you have to subscribe).  

OK thanks.  I used the Season Salt. Is It by McCormic? I think so. Well after i got glutened off the spices on the wal mart chips, i am scared to go back and use that.  lol    And the other popcorn salt which I bought 3 flavors over a year ago and all say gluten free.  I never had issues with any of those. But now I am just scared to go back and eat them.  So if I sign up  for the  WatchDOG,  can I get those  CHIPS tested?   How much? I think it is 6.00 per month but how much to get something tested?  I like the  Freshetta gluten-free 4 cheese pizza , and it says it is  pretty much  0ppm of gluten.  No wonder it is 10.00. The NON gluten-free  pizzas are   4.50. Thanks    Is  Pepto Bismol or the  stuff   UP and UP from Target Gluten free?    Pepto say they do not add gluten.  BUT it is in the factory. Up and UP is supposed to be gluten free.  MY mom said she didn't see anything on the label pertaining to that. I will go there and look.  I have NOT used pepto in a long time but just in case i ever need it i need to know.

[Fenrir]

I stick to McCormick because they are almost all gluten-free, even the mixed spices. Never reacted to any McCormicks product I've tried. They do label very well, if it's not listed it's not in there. 

[Zenith]

51 minutes ago, Fenrir said:

I stick to McCormick because they are almost all gluten-free, even the mixed spices. Never reacted to any McCormicks product I've tried. They do label very well, if it's not listed it's not in there. 

ok Thanks so much.  Oh it was Lawrys season salt.  I never reacted on it. I think walmart carries McCormick. I will buy those. I wonder about the spiced at ALDIS.  Anybody have any reaction?  On those organics? Or non organics?  Like  cayenne pepper etc?  Yeah I want my spices back. I guess I got to stop being afraid. 

[Fenrir]

5 minutes ago, Zenith said:

ok Thanks so much.  Oh it was Lawrys season salt.  I never reacted on it. I think walmart carries McCormick. I will buy those. I wonder about the spiced at ALDIS.  Anybody have any reaction?  On those organics? Or non organics?  Like  cayenne pepper etc?  Yeah I want my spices back. I guess I got to stop being afraid. 

McCormicks also makes Lawrys and all McCormicks brands follow the same labeling rules.

McCormick brands:

Lawrys

Grill Mates

Old Bay

Simply Asia

These are as spices and seasonings McCormick makes. Just read the label but if it's not on the label you should be fine. 

 

[CatS]

I don't worry too much about spices and herbs at home because I grow them and never use spice mixes and always buy organic.  But when we were in Spain I always asked whether the food was gluten free. I speak Spanish fluently so that wasn't a problem.  In Spain they have symbols on all the menus.  I was with 3 other people and we wanted to have Paella, an iconic Spanish dish which doesn't call for wheat or flour.  Every restaurant we asked they came back and said it was not gluten free because the spice mixes had flour.  So beware!  Although menus must list known allergens, it is still a very difficult place to travel for celiacs as the culture is very bread oriented!!  At least they were honest with me.

But, onto another gluten contamination we all must remember is from Tea Bags.  Forgetting this I accepted a cup of tea from my hairdresser and got very, very intense pain, bloating and the works.  I just found this out recently from this site and believe me, it is real!