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- thejayland10 replied to thejayland10's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease5TTG IgA and IGA elevated mildy
my ttg iga was 16.5 3 months ago and jumped to 30.1 last week. my iga was 415 and jumped to 455. This was done at a different lab though than the first test for ttg iga one had units as ml the other as cu... so not sure if they really jumped as much as shown. i am so strict on my diet and have no clue why this is happening thank you for attaching... -
- HilaryM posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0New onset constant gas
Hi all, I’ve been following a strict gluten-free diet for 1.5 years since I was diagnosed. The last few weeks though I’ve suffered almost continual bloated stomach and flatulence. It literally is almost constant - and I was never this way before. I can’t think of any change to my diet, activity, etc. I’m dying - it’s so uncomfortable and embarrassing to feel l... -
- knitty kitty replied to Bindi's topic in Super Sensitive People43Refractory or super sensitive?
@Levi, How are you doing? Sorry I missed your posts. How's your thyroid? Did your Vitamin D stabilize? Do you have long hauler syndrome after Covid? Consider switching to Vitamin D 3, the natural form of Vitamin D. Vitamin D 2 is the synthetic form of Vitamin D which the body can have difficulty changing to an active form. Also, Thiamine... -
- lizzie42 posted a topic in Gluten-Free Foods, Products, Shopping & Medications0Gluten free and oat free bars not sugary?
I'm looking for bars or non perishable snacks for my 2 kids. They are 5 and 3. The 3 year old seems sensitive to oats also. We do a lot of long hikes and bike rides. They eat mostly fresh foods but for these rides and hikes we need easy and non perishable. Also that taste good! We do a lot of larabars and freeze dried apples but those are getting old. Any... -
- knitty kitty replied to MagsM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Inflammation and Menier’s disease link?
Oh, @MagsM, Sorry you had that happen with Niacin. 500mg is the maximum amount of Niacin one should take. Niacin works hand in hand with Thiamine, so a big influx like that can imbalance thiamine if not supplemented at the same time. All the B vitamins work together in concert. Niacin in doses at 500 mg or above have been used by doctors to lower...
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By thejayland10 · Posted
my ttg iga was 16.5 3 months ago and jumped to 30.1 last week. my iga was 415 and jumped to 455. This was done at a different lab though than the first test for ttg iga one had units as ml the other as cu... so not sure if they really jumped as much as shown. i am so strict on my diet and have no clue why this is happening thank you for attaching this, could this happen randomly even after being gluten-free for so long ? my ttg iga was 16.5 3 months ago and jumped to 30.1 last week. my iga was 415 and jumped to 455. This was done at a different lab though than the first test for ttg iga one had units as ml the other as cu... so not sure if they really jumped as much as shown. i am so strict on my diet and have no clue why this is happening -
Hi all, I’ve been following a strict gluten-free diet for 1.5 years since I was diagnosed. The last few weeks though I’ve suffered almost continual bloated stomach and flatulence. It literally is almost constant - and I was never this way before. I can’t think of any change to my diet, activity, etc. I’m dying - it’s so uncomfortable and embarrassing to feel like I have zero control over this. Any ideas? Thank you!
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By knitty kitty · Posted
@Levi, How are you doing? Sorry I missed your posts. How's your thyroid? Did your Vitamin D stabilize? Do you have long hauler syndrome after Covid? Consider switching to Vitamin D 3, the natural form of Vitamin D. Vitamin D 2 is the synthetic form of Vitamin D which the body can have difficulty changing to an active form. Also, Thiamine is needed to active Vitamin D. Hypothyroidism can be caused by Thiamine deficiency. The thyroid is an organ that uses lots of thiamine. sometimes thyroid deficiency can also cause hyperthyroidism, or swings between both hyper- and hypo-thyroidism. We need more Thiamine when we're sick with an infection (like Covid) or injured. We need more Thiamine when we're physically active. We need more Thiamine when we're emotionally stressed or worried. Our brain uses the more Thiamine just thinking than our muscles do while running a marathon. Thiamine is extremely important in fighting infections. Covid patients and long haulers have found taking Thiamine has improved their survival rate and long term symptoms. Consider taking a Thiamine supplement like Benfotiamine which has been scientifically shown to promote intestinal healing. Damaged villi need thiamine to grow back. Be sure to take a magnesium supplement, too. Thiamine and magnesium make life sustaining enzymes together. You also need magnesium to keep calcium in the bones. The thyroid regulates calcium. A wonky thyroid can lead to reduced bone density. Remember the B vitamins all work together in concert so adding a B Complex to Benfotiamine and magnesium supplements and Vitamin C would be great in improving absorption of nutrients while we're dealing with celiac disease. Namaste -
I'm looking for bars or non perishable snacks for my 2 kids. They are 5 and 3. The 3 year old seems sensitive to oats also. We do a lot of long hikes and bike rides. They eat mostly fresh foods but for these rides and hikes we need easy and non perishable. Also that taste good! We do a lot of larabars and freeze dried apples but those are getting old. Any ideas?
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By knitty kitty · Posted
Oh, @MagsM, Sorry you had that happen with Niacin. 500mg is the maximum amount of Niacin one should take. Niacin works hand in hand with Thiamine, so a big influx like that can imbalance thiamine if not supplemented at the same time. All the B vitamins work together in concert. Niacin in doses at 500 mg or above have been used by doctors to lower triglycerides levels and raise HDL, the good cholesterol. Pharmaceuticals to do the same thing are more expensive and thus more profitable for physicians. Has your doctor tested you for H. Pylori? An infection by H. Pylori can be tested for by your doctor. H. Pylori can cause low tTg IgA results, too. I would hold off on the microbiome test for now. Your microbiome is going to change when you go gluten free. Your microbiome will change when you start taking Thiamine. Thiamine supplementation influences which microbes grow in the intestines, encouraging beneficial bacteria and getting rid of the bad ones. Thiamine in the form Benfothiamine promotes intestinal healing, too. Adopting the Autoimmune Protocol Diet (by Dr. Sarah Ballantyne, a Celiac herself) after diagnosis will also change your microbiome. This is the best diet to heal and recover, IMO. If you're going to have more testing done for vitamin deficiencies, don't take vitamin supplements beforehand, otherwise the tests will measure the vitamin supplements in your bloodstream and give false results. Same thing will happen if you take B vitamin shots. The supplements you mentioned (Arterosil HP and Vascanox HP) are herbal support and do not contain all eight B vitamins. There's no harm in taking them, but I prefer a B Complex that contains all the B vitamins in activated forms like Life Extension's Bioactive Complete B Complex. All the B vitamins work together in concert. Magnesium is important to supplement as thiamine and magnesium make life sustaining enzymes together. Do not buy supplements containing Thiamine Mononitrate because it is not biologically active. It is very hard for the body to utilize. Most of it (70%) passes out unused. Yes, my Meniere's disease has not returned. I was deficient in Vitamin D. I took high doses of Vitamin D 3 to correct the deficiency quickly. I also took TTFD (tetrahydrofurfuryl disulfide) which is a form of thiamine different from Benfotiamine. TTFD can cross the blood brain barrier without a carrier, so it can get into the brain very easily. TTFD helps the Vagus nerve function. The Vagus nerve regulates the ears and balance, and also the digestive system. I like Allithiamine by Ecological Formulas. I also like Thiamax by Objective Nutrients. You should have improvements within a hour with TTFD. TTFD is much stronger, so lower doses will give amazing benefits (50-200 mg). I hope this helps give you some direction to take on your journey!
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