Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think I Get It Now.....

slpinsd

Recommended Posts

slpinsd Contributor
slpinsd
Posted

OK_ I need some confirmation here. As many of you know, one of my worst symptoms, besides the weight loss, is feeling like food is stuck in my esophagus after I eat. I feel a pressure which makes my heart rate go up and I feel anxious. Well, just today, I was reflecting on the alarming improvement of that since 3 wks gluten-free- although there have been some setbacks w/ possible accidental glutening.

I just had a nice afternoon snack of wheat free waffles, strawberries, aunt jemima's syrup (there was teensy bit left and I'm trying to clean out the frig), and these roasted frozen potatoes from trader joes. Immediately while eating, the food is all stuck in my throat. I feel like I can't even swallow correctly, and the food is just sitting in my chest. I went to lay down. I passed out for 2 hours ,I don't even remember. I woke up with my heart beating 120 times a minute, feeling anxious, racing. I went downstairs and grabbed the Aunt Jemima bottle. I looked on the internet. It is supposedly not gluten-free-barley. Then, I rechecked the potatoes. I bought the wrong ones. Included in the ingredients- Malodextrin, soy sauce, (WHEAT, soybeans, salt). It's the potato medley, not the roasted potatoes, that are gluten-free. Now, right after I ate I was convinced that I have a swallowing problem not related to gluten (the heavier the food is it doesn't move down my esophagus). Then after I awoke to find out I WAS glutened, it's all making sense. Does anyone else have a panic attack reaction to eating gluten?

I called Mayo Clinic today. They have received my biopsy (for 2nd opinion), so I'll keep you posted- but these symptoms are enough for me now.

Learning this ingredient thing is hard, really hard.......

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

I most def. have had panic attacks related to getting glutened...

jerseyangel Proficient
jerseyangel
Posted

When I'm having a gluten reaction, I get anxious. The swallowing, and feeling like you are going to choke problem also comes back--although not as bad as before I went gluten-free. Back then, I would drive myself crazy while eating--over-chewing everything, so I wouldn't choke on it or have it get stuck in my throat. Happily, that is pretty much gone now--except, as I said, when I get a reaction.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to CeliacPI's topic in Related Issues & Disorders
      8

      Lymphocytic Colitis with Celiac

      Do discuss this recent article with your doctors. Thiamine Vitamin B 1 is important to intestinal health. Thiamine deficiency can occur in Celiac Disease due to malabsorption. Supplementing with a B Complex, Benfotiamine, and Vitamin D can help symptoms. Thiamine deficiency aggravates experimental colitis in mice by promoting glycolytic reprogramming...
    2. knitty kitty
      - knitty kitty replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Finding gluten free ingredients

      Do keep in mind that most gluten free flours are not enriched nor fortified with vitamins and minerals like gluten containing flours are required to do. Consuming a diet high in carbohydrates without sufficient B vitamins to digest and process them into energy can lead to High Calorie Malnutrition and weight gain. Deficiency symptoms of B vitamins...
    3. knitty kitty
      - knitty kitty replied to KimMS's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Gluten free thyroid medications

      Do be sure to talk to your doctors and dieticians about supplementing with a B Complex and extra Thiamine (Benfotiamine, TTFD, thiamine hydrochloride) and other nutrients one might be low in due to malabsorption of nutrients in Celiac Disease. This study shows that Thiamine deficiency and Vitamin C deficiency is frequently found in Hashimoto's. From...
    4. knitty kitty
      - knitty kitty replied to Rebeccaj's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      symptoms.

      Hi, @Rebeccaj, Those Villa that get damaged by eating gluten are the same billion that absorb nutrients from our food. Damaged villa can't absorb nutrients, vitamins and minerals well. If we don't get sufficient nutrients, our body can't function properly. We can get brain fog, pins and needles or neuropathy, feeling off balance, and even worsening...
    5. Rebeccaj
      - Rebeccaj posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      symptoms.

      What are some symptoms people have experienced when someone has cooked toast? Also, pasta? I've been diagnosed with celiac disease 5 years ago but sometimes symptoms then other times no symptoms its weird.? so neurological is brain fog, off balance, pins and needles, inflammation, also if eat it's like high inflammation then the villas affected! Has anyone...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,506
    • Most Online (within 30 mins)
      7,748
    Celiac731
    Newest Member
    Celiac731
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Lymphocytic Colitis with Celiac

      By knitty kitty · Posted

      Do discuss this recent article with your doctors.  Thiamine Vitamin B 1 is important to intestinal health.  Thiamine deficiency can occur in Celiac Disease due to malabsorption.  Supplementing with a B Complex, Benfotiamine, and Vitamin D can help symptoms.   Thiamine deficiency aggravates experimental colitis in mice by promoting glycolytic reprogramming in macrophages https://pubmed.ncbi.nlm.nih.gov/39890689/#:~:text=Our mechanistic study revealed that,necessary to protect against colitis. "Conclusion and implications: Our study provides evidence linking thiamine deficiency with proinflammatory macrophage activation and colitis aggravation, suggesting that monitoring thiamine status and adjusting thiamine intake is necessary to protect against colitis."
    • knitty kitty
      Finding gluten free ingredients

      By knitty kitty · Posted

      Do keep in mind that most gluten free flours are not enriched nor fortified with vitamins and minerals like gluten containing flours are required to do.   Consuming a diet high in carbohydrates without sufficient B vitamins to digest and process them into energy can lead to High Calorie Malnutrition and weight gain. Deficiency symptoms of B vitamins resemble gastrointestinal symptoms when after eating gluten.  Gastrointestinal Beriberi is a form of Thiamine deficiency.   Do talk to your doctors about supplementing with essential nutrients while on the gluten free diet, especially if you're consuming processed foods.
    • knitty kitty
      Gluten free thyroid medications

      By knitty kitty · Posted

      Do be sure to talk to your doctors and dieticians about supplementing with a B Complex and extra Thiamine (Benfotiamine, TTFD, thiamine hydrochloride) and other nutrients one might be low in due to malabsorption of nutrients in Celiac Disease. This study shows that Thiamine deficiency and Vitamin C deficiency is frequently found in Hashimoto's.  From personal experience, Thiamine and Vitamin C has helped my Hashimoto's. Hypothyroidism Complicated by Vitamin C and Thiamin Deficiency in Surgical Patients https://pubmed.ncbi.nlm.nih.gov/37278003/  
    • knitty kitty
      symptoms.

      By knitty kitty · Posted

      Hi, @Rebeccaj, Those Villa that get damaged by eating gluten are the same billion that absorb nutrients from our food.  Damaged villa can't absorb nutrients, vitamins and minerals well.  If we don't get sufficient nutrients, our body can't function properly.  We can get brain fog, pins and needles or neuropathy, feeling off balance, and even worsening digestive symptoms. Talk to your doctor or dietician about taking vitamin and mineral supplements while healing.  The gluten free diet can be low in nutrients, especially if you eat gluten free facsimile processed foods.  Gluten containing breads have vitamins added to them to replace those lost in processing.  Gluten free facsimile foods usually are not enriched nor fortified with vitamins.   Taking a B Complex, Benfotiamine, Vitamin D, and magnesium help the digestive tract heal, lowers histamine, and regulates the immune system.  
    • Rebeccaj
      symptoms.

      By Rebeccaj · Posted

      What are some symptoms people have experienced when someone has cooked toast? Also, pasta? I've been diagnosed with celiac disease 5 years ago but sometimes symptoms then other times no symptoms its weird.?  so neurological   is brain fog, off balance, pins and needles, inflammation, also if eat it's like high inflammation then the villas affected!  Has anyone experienced this because I'm really starting to get confused but have diagnosis from blood test also endoscopy but it's just an ache. 
×
×
  • Create New...