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My One Year Follow-up Test Results

jenvan

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jenvan Collaborator
jenvan
Posted

Hey friends! Just thought I would share... I got back the results from my 1 yearish follow-up biopsy etc. The biopsy and blood work (Celiac panel and liver enzymes etc) are normal! :D So good news there... My question is for any of you who have had a follow-up biopsy. The biopsy itself if normal, there is no scalloping or mosaic pattern upon viewing the SI, however, it is still flat and has lost the folds. My GI said it may always be flat. Anyone else here anything about this? It wouldn't totally surprise me, as I have had Celiac for many many years...possibly my entire life. Thanks !

OH, ps--I plan to get my food intolerances tested again at some point. I will post that info as it may interest some of you... I am treating it as a sort-of experiment in leaky-gut theory :)

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jerseyangel Proficient
jerseyangel
Posted

Jen--Wow--great news about your tests! Way to go! :D Can't help on the follow-up biopsy, haven't had one yet. I am looking forward to your findings regarding food intolerances and leaky gut ;)

elisabet Contributor
elisabet
Posted

Wonderful news,good for you.

as I posted before ,my son s teacher said that she was celiac and after 4 years in a Gluten-free Casein-free diet,she could have them in moderation ,I don t know if she had any biopsy or not but I can ask her and post it here.

best of luck

Jnkmnky Collaborator
Jnkmnky
Posted
Wonderful news,good for you.

as I posted before ,my son s teacher said that she was celiac and after 4 years in a Gluten-free Casein-free diet,she could have them in moderation ,I don t know if she had any biopsy or not but I can ask her and post it here.

best of luck

She could have "them" in moderation... ? Do you mean gluten - in moderation? Just curious. :)

  • 2 months later...
elisabet Contributor
elisabet
Posted
She could have "them" in moderation... ? Do you mean gluten - in moderation? Just curious. :)

Yes she says she can have bread and cheese in moderation.

mart Contributor
mart
Posted

Good news Jen! Hallelujah! You are obviously doing a great job on your diet!

wolfie Enthusiast
wolfie
Posted

That is great news! :)

I am interested to hear about the food intolerance testing and leaky gut as well.

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dionnek Enthusiast
dionnek
Posted
Yes she says she can have bread and cheese in moderation.

How can she have gluten in moderation? I thought that if you had celiac, it never went away. Does she really have celiac or just gluten intollerance? I'm new to this, so if there is hope out there that I can once again enjoy my baked goods (normal baked goods that actually taste good!) that would make me so happy! :D

AmandaD Community Regular
AmandaD
Posted

That's very, very cool Jen - you give me hope for when I have my follow-up biopsy. If I were you I'd just call the doc and have them reiterate what it meant...but sounds like you're doing terrific!

Guest nini
Guest nini
Posted

If you have Celiac, the gluten-free diet is for LIFE. Regardless of if you have no symptoms or lots of symptoms when you consume gluten, you need to avoid it for life. No IF'S, AND'S, or BUT'S about it, even if there are no symptoms when you consume gluten after being gluten-free for a while, you are still doing damage to your insides. Cheating increases your risk of intestinal lymphomas and other autoimmune disorders. Anyone that believes that they can have some every once in a while is decieving themselves. When you have Celiac, the only cure is strict adherence to the gluten-free diet for life. Period.

Judyin Philly Enthusiast
Judyin Philly
Posted

Jen, so happy for your good report

judy

laurelfla Enthusiast
laurelfla
Posted

that's great! i'm so happy for you to get good results!

jenvan Collaborator
jenvan
Posted
  • Author
How can she have gluten in moderation? I thought that if you had celiac, it never went away. Does she really have celiac or just gluten intollerance? I'm new to this, so if there is hope out there that I can once again enjoy my baked goods (normal baked goods that actually taste good!) that would make me so happy! :D

Wow--was surprised to see this thread up again :) Dionnek--as Nisla says, gluten-free is gluten-free for life if you are a Celiac--you won't be able to eat the conventional baked goodies again. However, there are some wonderful gluten-free ones out there! I made gluten-free/cf chocolate chip cookies with the tollhouse recipe that are great!

BTW--I wrote my contact at the Chicago celiac disease Center about my question over recovering intestinal folds... She confirmed that it is unlikely I will ever gain them back, but that the biopsy is still be negative/normal even so. That also makes sense since I have had celiac disease for so long, and am older. Does make me think that a slight absorptive disadvantage will continue b/c of it though...

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    • trents
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      By trents · Posted

      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
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      Taking Probiotics but Still Getting Sick After Gluten – Advice?

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    • Julie 911
      Medication

      By Julie 911 · Posted

      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Medication

      By trents · Posted

      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
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