Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

CDIFF

Nancy D

By Nancy D
in Related Issues & Disorders

 Share

Recommended Posts

Nancy D Rookie
Nancy D
Posted

I have had CDIFF 4 times now, and yes I cheated and did eat Gluten.  My GI Doctor did say that one can get CDIF from

Celiac Disease if you do not stay Gluten Free, not all but enough folks.  This is my advice and no no I was not in the hospital as many get this from there.  FYI  Thanks  .

 

Nancy Dion

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Welcome to the forum, Nancy.

CDIF is most often associated with protracted and repeated antibiotic treatment such that the normal balance of microorganisms in the gut is severely disturbed. CDIF is an opportunist infection in that sense. It moves in when all the normal microbiotic checks and balances have been wiped out. Since many people on extended, heavy- duty antibiotic treatment are also hospitalized, CDIF has become associated with extended hospitalization. But certainly, it can occur outside of hospitals.

That said, there has long been the suspicion that there is a link between celiac disease and antibiotic use. The theory is that those who have frequently been treated with antibiotics have an altered mix of microbes in their gut that can lead to the development of celiac disease. That celiacs typically do not have a normal, balanced population of microbes in their guts has been demonstrated by research. These are the same conditions that can lead to CDIF, although your mention of what your doctor said in that regard is the first I have heard of this.

Scott Adams Grand Master
Scott Adams
Posted

I always heard this referred to a C. diff or Clostridioides difficile or C. difficile, but when I was a teenager I was treated with "low dose" antibiotics for a couple of years. I'll never know the exact trigger of my celiac disease, but it could have been a contributing factor for sure. I'm no expert in how to deal with it, other than to say that taking lots of probiotics, including eating yogurt if you can tolerate casein, would be important.

trents Grand Master
trents
Posted

Scott, was that teenage long term, low dose antibiotic treatment done for acne control by some chance? I was on tetracycline for years for acne back in the day. I think it was common.

Scott Adams Grand Master
Scott Adams
Posted

Yes, it was tetracycline for a couple of years...I had no idea at the time, but was happy with the acne results. I doubt there doing this nowadays...

knitty kitty Grand Master
knitty kitty
Posted

Nancy D,

Try high dose thiamine.  Clostridium bacteria make thiaminases, enzymes that destroy thiamine (Vitamin B1).

High dose Thiamine can help get rid of these undesirable pests.

See this article...

Infant botulism: is there an association with thiamine deficiency?

https://pubmed.ncbi.nlm.nih.gov/25311602/

Thiamine is water soluble, can't be stored in the body (nine days).  There is no toxicity level to thiamine.  It is perfectly safe to take high doses.  

Please discuss this with your doctors.  

Hope this helps!

 

Kate333 Rising Star
Kate333
Posted
On 3/2/2021 at 10:33 AM, Scott Adams said:

I always heard this referred to a C. diff or Clostridioides difficile or C. difficile, but when I was a teenager I was treated with "low dose" antibiotics for a couple of years. I'll never know the exact trigger of my celiac disease, but it could have been a contributing factor for sure. I'm no expert in how to deal with it, other than to say that taking lots of probiotics, including eating yogurt if you can tolerate casein, would be important.

Hi Scott. I have heard of lactose-free yogurt.  Is there also such a thing as CASEIN-FREE yogurt or other dairy products (esp. ice-cream or cheese, which I love)?  I have seen lactose-free cottage cheese on the market (Lactaid is the company).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

I would think you cannot have dairy without casein. It is one of the proteins that define milk. There might be some dairy substitute, however.

Scott Adams Grand Master
Scott Adams
Posted

I don't think there is a way to avoid casein, and lactose-free doesn't mean casein-free, as lactose is the type of sugar in cow's milk. Some people who have issue with casein don't have issues with goat's or sheep's milk products, and there are yogurts made from those. My wife eats a type of yogurt that is made with cashews, and doesn't contain any dairy from any source.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,246
    • Most Online (within 30 mins)
      7,748
    Kathleen weber
    Newest Member
    Kathleen weber
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Hypothetical question about antibodies

      By knitty kitty · Posted

      @Zuma888, The antibodies produced in response to gluten are made in the intestines.  When the body is provoked sufficiently, the antibodies overflow out of the intestines and into the blood stream.  Once in the blood stream, the antibodies can be measured with tTg IgA tests.  Three grams of gluten per day for two weeks minimum is enough gluten to make you feel the symptoms of having been glutened, but the antibodies are not in sufficient quantity to be measured in the blood. Ten grams of gluten per day for a minimum of two weeks is required to get the anti gluten antibodies at a high enough level in the blood stream to be measured by tTg IgA tests. So, no, occasional cross contamination or (heaven forbid) intentional cheat days will not be sufficient for tTg IgA testing.  You will still be making antibodies which will still be causing inflammation and damage to the intestines and body.  Histamine is released as part of the immune response to gluten.  High histamine levels lead to food sensitivities, brain fog, and body aches.   The damage done to the gastrointestinal tract affects the absorption of essential vitamins and minerals.  Malabsorption of fats can cause changes in stools.  Insufficient absorption of vitamins and minerals can cause damage to other organs like the thyroid if it can't get enough Selenium, iodine, iron, zinc, and Thiamine.  Brain fog and fatigue can be caused by low Thiamine and other B Complex vitamins.  Vitamin D is needed to regulate the immune system.  One gene is all that's needed to develop Celiac disease.  I know a Celiac diagnosis is a change that can be difficult to get your head around.  Many people go through the five stages of grief.  One stage is "bargaining".  Sounds like you're stuck there.  Every little cheat counts to your detriment.  But sticking to a gluten free diet, makes every meal a success.   Read the comments below the article... Best wishes!  Keep us posted on your progress!
    • Scott Adams
      Hypothetical question about antibodies

      By Scott Adams · Posted

      No, I would not say this at all. If you were diagnosed with celiac disease and were gluten-free for a while, you could have gone into remission. Everyone's body is different, and some celiacs may be able to get regular contamination and not end up with damaged villi and positive antibody tests, while others who ingest tiny amounts will relapse and have full blown symptoms and flattened villi.  Only a full gluten challenge would reveal where you are at this point. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Inflammation and Menier’s disease link?

      By Scott Adams · Posted

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Pablohoyasaxa
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By Pablohoyasaxa · Posted

      Great  post. The skin issue can be intolerable. I have been taking niacinamide for the past month and have improved with respect to the blistering lesions. 
    • knitty kitty
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By knitty kitty · Posted

      I've found taking Niacin Vitamin B 3 in the form that causes flushing (nicotinic acid) helps immensely to clear my skin.  The flushing is harmless and goes away the longer Niacin is taken.  The flushing (vasodilation in the skin) helps the body get rid of the tTg 3 IgA antibodies that cause the blisters.  TTg 2 IgA antibodies are found in the blood and are measured in diagnostic testing for Celiac.  People with Dermatitis Herpetiformis make tTg 3 as well as tTg 2 antibodies.  Niacin Vitamin B3 in the non flushing form niacinamide also works without the flushing, but takes a bit longer.   I also avoid foods containing high levels of iodine because iodine activates the tTg 3 IgA antibodies to become more active and make more blisters.  I avoid kelp (nori, seaweed) and crustaceans,  eggs, dairy products, and iodized table salt.   Niacinamide and Nicotinic acid are water soluble and harmless.  I'd much rather take Niacin than Dapsone with scary side effects.  
×
×
  • Create New...