Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

CDIFF


Nancy D

Recommended Posts

Nancy D Rookie

I have had CDIFF 4 times now, and yes I cheated and did eat Gluten.  My GI Doctor did say that one can get CDIF from

Celiac Disease if you do not stay Gluten Free, not all but enough folks.  This is my advice and no no I was not in the hospital as many get this from there.  FYI  Thanks  .

 

Nancy Dion

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Welcome to the forum, Nancy.

CDIF is most often associated with protracted and repeated antibiotic treatment such that the normal balance of microorganisms in the gut is severely disturbed. CDIF is an opportunist infection in that sense. It moves in when all the normal microbiotic checks and balances have been wiped out. Since many people on extended, heavy- duty antibiotic treatment are also hospitalized, CDIF has become associated with extended hospitalization. But certainly, it can occur outside of hospitals.

That said, there has long been the suspicion that there is a link between celiac disease and antibiotic use. The theory is that those who have frequently been treated with antibiotics have an altered mix of microbes in their gut that can lead to the development of celiac disease. That celiacs typically do not have a normal, balanced population of microbes in their guts has been demonstrated by research. These are the same conditions that can lead to CDIF, although your mention of what your doctor said in that regard is the first I have heard of this.

Scott Adams Grand Master

I always heard this referred to a C. diff or Clostridioides difficile or C. difficile, but when I was a teenager I was treated with "low dose" antibiotics for a couple of years. I'll never know the exact trigger of my celiac disease, but it could have been a contributing factor for sure. I'm no expert in how to deal with it, other than to say that taking lots of probiotics, including eating yogurt if you can tolerate casein, would be important.

trents Grand Master

Scott, was that teenage long term, low dose antibiotic treatment done for acne control by some chance? I was on tetracycline for years for acne back in the day. I think it was common.

Scott Adams Grand Master

Yes, it was tetracycline for a couple of years...I had no idea at the time, but was happy with the acne results. I doubt there doing this nowadays...

knitty kitty Grand Master

Nancy D,

Try high dose thiamine.  Clostridium bacteria make thiaminases, enzymes that destroy thiamine (Vitamin B1).

High dose Thiamine can help get rid of these undesirable pests.

See this article...

Infant botulism: is there an association with thiamine deficiency?

https://pubmed.ncbi.nlm.nih.gov/25311602/

Thiamine is water soluble, can't be stored in the body (nine days).  There is no toxicity level to thiamine.  It is perfectly safe to take high doses.  

Please discuss this with your doctors.  

Hope this helps!

 

Kate333 Rising Star
On 3/2/2021 at 10:33 AM, Scott Adams said:

I always heard this referred to a C. diff or Clostridioides difficile or C. difficile, but when I was a teenager I was treated with "low dose" antibiotics for a couple of years. I'll never know the exact trigger of my celiac disease, but it could have been a contributing factor for sure. I'm no expert in how to deal with it, other than to say that taking lots of probiotics, including eating yogurt if you can tolerate casein, would be important.

Hi Scott. I have heard of lactose-free yogurt.  Is there also such a thing as CASEIN-FREE yogurt or other dairy products (esp. ice-cream or cheese, which I love)?  I have seen lactose-free cottage cheese on the market (Lactaid is the company).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

I would think you cannot have dairy without casein. It is one of the proteins that define milk. There might be some dairy substitute, however.

Scott Adams Grand Master

I don't think there is a way to avoid casein, and lactose-free doesn't mean casein-free, as lactose is the type of sugar in cow's milk. Some people who have issue with casein don't have issues with goat's or sheep's milk products, and there are yogurts made from those. My wife eats a type of yogurt that is made with cashews, and doesn't contain any dairy from any source.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,532
    • Most Online (within 30 mins)
      7,748

    jimploszay
    Newest Member
    jimploszay
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
    • Jmartes71
      Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing 
    • cristiana
      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.