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first post, warning, GI symptoms discussed :-/


OmaDeb

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OmaDeb Rookie

Hi all,  I am new to forum, but was diagnosed with celiac disease over 20 years ago.  Going gluten-free cleared up many things I thought were normal as well as my chronic anemia.  I tend to be a little overweight, IDK why. I'm 67 years old, retired .

 any way, my concern right now is, 3 weeks ago I got glutened at a restaurant, I take some responsibility for it. tho my husband said I can never go back there. I  had a pretty severe bout of vomitting for a couple of hours.  fast forward 2 weeks, now I am experiencing burping(big burps) when I stand up, very gassy with gas pains and some diarrhea. I feel fine otherwise . since going gluten-free, I have been way less gassy , until now.

 Is this something anyone else has experienced?  how did you treat it?  and EEK I' going camping for a few days, crazy I know.  Thank you for reading and sharing your thoughts/experiences


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trents Grand Master

I often takes two weeks to recover from a glutening espisode.

Scott Adams Grand Master

Yes, and the article below may be helpful. I always take GliadinX enzymes before eating outside my house (full disclosure, they are a sponsor here), as their AN-PEP base enzyme has been shown in many studies to break down small amounts of gluten, like you might get when eating a "gluten-free" meal in a restaurant, in the stomach, before it reaches your intestines.

 

OmaDeb Rookie
On 11/18/2021 at 9:42 AM, trents said:

I often takes two weeks to recover from a glutening espisode.

ok good to know. you would think I would have known since I've been doing this 20 years. I 've episodes of severe vomitting but then I'm fine. go figure

On 11/18/2021 at 1:29 PM, Scott Adams said:

Yes, and the article below may be helpful. I always take GliadinX enzymes before eating outside my house (full disclosure, they are a sponsor here), as their AN-PEP base enzyme has been shown in many studies to break down small amounts of gluten, like you might get when eating a "gluten-free" meal in a restaurant, in the stomach, before it reaches your intestines.

 

thank you for this!

Maverita Rookie

The article above, Ten Things to Try if You Accidentally Ingest Gluten, includes rice milk as something soothing.  They may have changed things, but last time I checked rice milk might qualify as gluten-free, but it may not be wheat-free....  20 years ago my doctor pushed me to add rice milk to my diet and it made me sick... Turned out that the enzymes they used included wheat.  Some of us are unable to tolerate wheat in any form, with or without gluten!  I also cannot tolerate grain alcohol or grain vinegars, all of which are supposed to be GLuten FRee.  And look out for Xanthum Gum which can cause celiac-like symptoms in sensitive individuals and is included in almost ALL gluten-free baking mixes.  Broth BROTH Broth!  I make Ginger Beef Soup whenever I have a bad experience eating out.  

Scott Adams Grand Master

There are many brands of rice milk now, and the biggest one is probably Rice Dream, which is gluten-free:

https://www.dreamplantbased.com/product/rice-dream-classic-original-organic-rice-drink/

OmaDeb Rookie
8 hours ago, Maverita said:

The article above, Ten Things to Try if You Accidentally Ingest Gluten, includes rice milk as something soothing.  They may have changed things, but last time I checked rice milk might qualify as gluten-free, but it may not be wheat-free....  20 years ago my doctor pushed me to add rice milk to my diet and it made me sick... Turned out that the enzymes they used included wheat.  Some of us are unable to tolerate wheat in any form, with or without gluten!  I also cannot tolerate grain alcohol or grain vinegars, all of which are supposed to be GLuten FRee.  And look out for Xanthum Gum which can cause celiac-like symptoms in sensitive individuals and is included in almost ALL gluten-free baking mixes.  Broth BROTH Broth!  I make Ginger Beef Soup whenever I have a bad experience eating out.  

I have never tried rice milk, will consider doing so.  usually when I feel like I've had an exposure I go to yogurt and grits.  fortunately I have no issues with alcohol or gluten-free baking mixes; I use red wine vinegar .   This time was just very extreme, but it seems to have resolved. 

 Thank you for your suggestions


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    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
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