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first post, warning, GI symptoms discussed :-/

OmaDeb

By OmaDeb
in Related Issues & Disorders

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OmaDeb Rookie
OmaDeb
Posted

Hi all,  I am new to forum, but was diagnosed with celiac disease over 20 years ago.  Going gluten-free cleared up many things I thought were normal as well as my chronic anemia.  I tend to be a little overweight, IDK why. I'm 67 years old, retired .

 any way, my concern right now is, 3 weeks ago I got glutened at a restaurant, I take some responsibility for it. tho my husband said I can never go back there. I  had a pretty severe bout of vomitting for a couple of hours.  fast forward 2 weeks, now I am experiencing burping(big burps) when I stand up, very gassy with gas pains and some diarrhea. I feel fine otherwise . since going gluten-free, I have been way less gassy , until now.

 Is this something anyone else has experienced?  how did you treat it?  and EEK I' going camping for a few days, crazy I know.  Thank you for reading and sharing your thoughts/experiences

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trents Grand Master
trents
Posted

I often takes two weeks to recover from a glutening espisode.

Scott Adams Grand Master
Scott Adams
Posted

Yes, and the article below may be helpful. I always take GliadinX enzymes before eating outside my house (full disclosure, they are a sponsor here), as their AN-PEP base enzyme has been shown in many studies to break down small amounts of gluten, like you might get when eating a "gluten-free" meal in a restaurant, in the stomach, before it reaches your intestines.

 

OmaDeb Rookie
OmaDeb
Posted
  • Author
On 11/18/2021 at 9:42 AM, trents said:

I often takes two weeks to recover from a glutening espisode.

ok good to know. you would think I would have known since I've been doing this 20 years. I 've episodes of severe vomitting but then I'm fine. go figure

On 11/18/2021 at 1:29 PM, Scott Adams said:

Yes, and the article below may be helpful. I always take GliadinX enzymes before eating outside my house (full disclosure, they are a sponsor here), as their AN-PEP base enzyme has been shown in many studies to break down small amounts of gluten, like you might get when eating a "gluten-free" meal in a restaurant, in the stomach, before it reaches your intestines.

 

thank you for this!

Maverita Rookie
Maverita
Posted

The article above, Ten Things to Try if You Accidentally Ingest Gluten, includes rice milk as something soothing.  They may have changed things, but last time I checked rice milk might qualify as gluten-free, but it may not be wheat-free....  20 years ago my doctor pushed me to add rice milk to my diet and it made me sick... Turned out that the enzymes they used included wheat.  Some of us are unable to tolerate wheat in any form, with or without gluten!  I also cannot tolerate grain alcohol or grain vinegars, all of which are supposed to be GLuten FRee.  And look out for Xanthum Gum which can cause celiac-like symptoms in sensitive individuals and is included in almost ALL gluten-free baking mixes.  Broth BROTH Broth!  I make Ginger Beef Soup whenever I have a bad experience eating out.  

Scott Adams Grand Master
Scott Adams
Posted

There are many brands of rice milk now, and the biggest one is probably Rice Dream, which is gluten-free:

https://www.dreamplantbased.com/product/rice-dream-classic-original-organic-rice-drink/

OmaDeb Rookie
OmaDeb
Posted
  • Author
8 hours ago, Maverita said:

The article above, Ten Things to Try if You Accidentally Ingest Gluten, includes rice milk as something soothing.  They may have changed things, but last time I checked rice milk might qualify as gluten-free, but it may not be wheat-free....  20 years ago my doctor pushed me to add rice milk to my diet and it made me sick... Turned out that the enzymes they used included wheat.  Some of us are unable to tolerate wheat in any form, with or without gluten!  I also cannot tolerate grain alcohol or grain vinegars, all of which are supposed to be GLuten FRee.  And look out for Xanthum Gum which can cause celiac-like symptoms in sensitive individuals and is included in almost ALL gluten-free baking mixes.  Broth BROTH Broth!  I make Ginger Beef Soup whenever I have a bad experience eating out.  

I have never tried rice milk, will consider doing so.  usually when I feel like I've had an exposure I go to yogurt and grits.  fortunately I have no issues with alcohol or gluten-free baking mixes; I use red wine vinegar .   This time was just very extreme, but it seems to have resolved. 

 Thank you for your suggestions

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    • Dora77
      Ocd making gluten fears unmanageable. Need advice

      By Dora77 · Posted

      Sorry for the long post. I’m 18, and I was diagnosed with celiac disease and type 1 diabetes (T1D). My transglutaminase IgA was >128 U/mL, EMA IgA positive twice, and I’m HLA-DQ2 and DQ8 positive. I’ve been completely asymptomatic since diagnosis, even when I cheated with gluten sometimes in the past and used to eat out(2-5 years ago) I don’t get the typical celiac reactions, which makes it really hard to know when (or if) I’ve been glutened. But for the past year, I’ve been the most strict with my diet, and that’s also when a bunch of new issues started. I eat completely glutenfree, never eat out, dont eat food that says „may contain gluten“.   Current Health Problems • Floating, undigested stools for over a year now. Dont think its related to celiac as it was like this since im 17 and not 13-16( i got diagnosed at 13). • Chronic back pain started gradually, worsens with movement, lots of cracking/popping sounds. Been ongoing for a year now. First noticed in the gym. • Abdominal bulge on the right side, not painful but seems to be getting slightly bigger. Doctor didn’t find a hernia on ultrasound, but it was done lying down (I’ve read those can miss hernias). Noticed it like 6 months ago, couldve been there longer. • extremely dry and mildly swollen hands (this started before I started excessive hand-washing), and bloated face. • Signs of inattentive ADHD (noticed over the past 3 years), now combined with severe OCD focused on contamination and cross-contact. • Growth/puberty seemed to started after going gluten-free. Before that I was not developing. Dont know if any of these are because of celiac as my dad doesnt have those and he is a lot less strict gluten-free then me. I also had pancreatic elastase tested four times: values were 46 (very low), 236, 158, and 306 (normal). Gastroenterologist said one normal value is enough and I don’t have EPI. Family doctor prescribed Kreon anyway (after I pushed for it), and I just started taking 1 capsule (10,000 units) with meals 2 days ago, but couldn‘t see effects yet because I’ve been constipated the last few days. Maybe because of thyroid. I don’t have Hashimoto’s. No thyroid antibodies. But I took levothyroxine for slightly low FT4 levels. My thyroid levels fluctuated between borderline low and low-normal. And recently lowered my dose so that may have caused the constipating. I probably didn’t need it in the first place, and am thinking about stopping it soon.   Current Diet Right now, I only eat a very limited set of “safe” foods I prepare myself: • Gluten-free bread with tuna or cheese • Milk and cornflakes • gluten-free cookies/snacks • Bananas (the only fruit I trust right now) I rarely eat other fruits or vegetables, because I’m scared of contamination. My dad, who also has celiac but doesn’t care about CC, buys fruits, and he might’ve picked them up right after handling gluten bread. That makes me feel unsafe eating them. Even fruit at stores or markets feels risky because so many people with gluten on their hands touch them.   My Home Situation (Shared Kitchen) We’re a family of 5. Only my dad and I have celiac. He eats glutenfree but doesn’t care about CC and sometimes (but rarely) cheats. My mom and siblings eat gluten bread at every meal. My mom is honest (so if i ask her to be cautious, she most likely would try to), but doesn’t seem to understand how serious celiac is. She: • Stopped using gluten flour • only cooks gluten-free meals (but they still heat up gluten bread and also cook gluten noodles) • Keeps separate butter/jam/jars for me • Bought me a stainless steel pan Bu we didn’t replace old wooden utensils, cutting boards, or other pans. The new they bought me pan was even carried home in a shopping bag with gluten bread in it, which triggered my OCD. It also has a rubber handle and I’m scared it might still hold onto gluten. Even if it’s washed well, it’s stored next to other pans that were used for gluten food/bread. Our kitchen table is used for eating gluten bread daily. My mom wipes it but not with soap. I’m scared tiny particles remain. If she made gluten-free bread dough on a board at the table, I’d still worry about cross contmaination contamination even with something under the dough and on the table as at one point the dough would probably touch the table. So I stopped eating anything she makes.   I know OCD is making it worse, but I can’t tell how much of my fear is real and how much is anxiety. 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Is spices like pepper with “may contain traces of gluten” safe if no gluten ingredients are listed? Or does everything need to be labeled gluten-free?  7. Is continuing to only eat my own food the better choice, or could I eventually go back to eating what my mom cooks if she’s careful? 8. is cutlery from dishwasher safe if there are stains? Stuff like knives is used for cutting gluten bread or fork for noodles etc. I often see stains which i dont know if its gluten or something else but our dish washer doesnt seem to make it completely clean. 9. I wash my hands multiple times while preparing food. Do i need to do the same when touching my phone. Like if i touch the fridge handle, I wash my hands then touch the phone. I dont eat while using my phone but i leave it on my bed and pillow and my face could come in contact with where it was.  10. Do i need to clean my phone or laptop if theyve been used by people who eat gluten? 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      Doctors and Celiac.com

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      All I can say is this site is great!
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