Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Suspected celiac, advice appreciated!


reecey

Recommended Posts

reecey Newbie

Hi All,

I am a 25/M based in the UK and I suspect I might be celiac or have a gluten / wheat intolerance. 

Over the last few years I have experienced an increasing frequency of burping after eating, to the point of having 'burp attacks' that last from 5 to 60 minutes approx. I have also had loose stools and occasional mucousy stool.

In March 2021, after a few months of intense emotional stress, I had a 'flare up' of symptoms including dizziness/vertigo, 'itchy veins' (in arms), shortness of breath, and various digestive issues. These died down after a few months and have recently re-occured, although slightly different. 

About a month ago, again after several months of intense emotional stress, I developed a shortness of breath again which appeared to just be a virus, as I originally had fever/chills. However, the fever/chills have gone away but the shortness of breath and nasal congestion have remained, along with various digestive issues again, and excessive bloating & burping after eating pretty much anything. The nasal congestion appears to get worse after eating or drinking water and I suspect this is some kind of histamine response. 

I have had blood tests on liver function, kidney function, thyroid function, full blood count and these were all 'within the normal range', although in previous blood tests my liver enzymes have been slightly raised, which I have read can also be a symptom of celiac. 

I have been gluten free for 7 days and don't feel much different, and have a celiac blood test screening booked in for Friday, although I am unsure if being gluten free for a week beforehand will influence the results of the test. 

 

Has anyone here had similar symptoms or 'flare ups'?

Cheers


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
(edited)

Being gluten free for one week will lower scores some and that could be enough if the test results are borderline to move you from positive to negative. But if the numbers are in the higher range it should still be valid.

Edited by trents
Scott Adams Grand Master

This article may be helpful regarding the blood tests:

 

Russ H Community Regular

Yes, get back on gluten and postpone the test if necessary.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,201
    • Most Online (within 30 mins)
      7,748

    Karen LK
    Newest Member
    Karen LK
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.