Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Just Have Celiac Only?

Moongirl

By Moongirl
in Coping with Celiac Disease

Recommended Posts

Moongirl Community Regular
Moongirl
Posted

I feel like the more I read posts and stuff here the more i see people that have multiple diseases or allergies or intolerances.....

So I was wondering if anyone just has Celiac, and nothing else....? :blink:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
I feel like the more I read posts and stuff here the more i see people that have multiple diseases or allergies or intolerances.....

So I was wondering if anyone just has Celiac, and nothing else....? :blink:

I think if we were all diagnosed as children, as we should be, we would have lots of people that would say 'Yea, only celiac' but since we have to be almost dead before they diagnose us most of us have multiple problems because of having this toxin acting on our systems for years. My goal is to have grandchildren of normal height and celiac related problem free. I know my grands on at least my DS side will never have the toxin in their homes.

Canadian Karen Community Regular
Canadian Karen
Posted
So I was wondering if anyone just has Celiac, and nothing else....? :blink:

I wish.......... <_<:angry:

Most of us have lasting damage and picked up additional diseases due to delay in diagnosis..... <_<

Hugs.

Karen

flagbabyds Collaborator
flagbabyds
Posted

Yeah i defenitely wish. Suddenly like all these allergies poped up out of no where.

elonwy Enthusiast
elonwy
Posted

Sofar as I can tell, I've only got Celiac. I might have a problem with nightshades, but its been kinda hard to pin down, because my reactions aren't the same every time. Other than the Celiac though, I appear to be perfectly healthy, which is nice. I wasn't even really anemic or anything, which surprises me because of how absolutely crappy I felt. I have chronic sinus allergies, but I don't think its related at all.

Elonwy

jerseyangel Proficient
jerseyangel
Posted

If I had been diagnosed at 9, instead of 49, I may not have developed the additional health issues that I now have.

nikki-uk Enthusiast
nikki-uk
Posted

Ummm,fraid not.

Hubbie dx with Psoratic Arthritis 4yrs before celiac disease dx.

As Jersey Angel said,if he'd been dx with celiac disease in childhood instead of at 40yrs maybe it would be different!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


penguin Community Regular
penguin
Posted

I wish, too. The other things are just annoying little things that are wrong with me though...

Like being allergic to air and tree nuts...

and the roadmap of vericose veins on my legs...

I wish the gluten-free diet would fix everything <_<

Lauren M Explorer
Lauren M
Posted

Knock on wood, I think that Celiac is the only thing wrong with me, physically speaking of course :lol:

- Lauren

nettiebeads Apprentice
nettiebeads
Posted
Knock on wood, I think that Celiac is the only thing wrong with me, physically speaking of course :lol:

- Lauren

Same here.

Annette

hez Enthusiast
hez
Posted

At this point I just seem to have celiac. So far no intolerences or allergies. When they checked my blood levels the vitamins looked great and my bone scan looked almost normal. I feel very lucky since my GI thought I had about 15 years worth of damage to my intestine.

Hez

Ursa Major Collaborator
Ursa Major
Posted

As somebody else said, too much damage. If I would have been diagnosed at the age of 2 instead of 52, that would likely have been all. I did have symptoms then already, but unbelievably, it took 52 years of being ill, before I diagnosed MYSELF!

flagbabyds Collaborator
flagbabyds
Posted

That would be so nice to have just celiac, so easy to dealy w/. But no never just one problem w/ me. As my doc said, if it's not one thing it's another. :)

taylor- Rookie
taylor-
Posted

I only have celiacs.

When I was little and I would go to the support group meetings(they always gave out free cookies and stuff i didn't normally get so I went to them even though I was only 6 or 7). All the older women would tell me how lucky I was to have only celiacs and be diagnosed so early. I never believed them, despite the fact that more than half of them had some kind of tube in them or a wheel chair or took pills with everything.

After reading some of the post on here though Im very thankful that I was diagnosed at 18 months and not once I had 10 million other problems that went along with it

~taylor

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

I too, "only" have celiacs. I guess I am amongst the lucky ones for just this one problem so far. Right after my hospital stay and diagnosis, I was a bit intolerant to a lot of different foods. I am pretty sure that was just b/c of the mess in my intestines. I hope to stay this way.

Tinkerbell

skoki-mom Explorer
skoki-mom
Posted

Yeah, as far as I know. I have hayfever and I get hives on my mouth if I eat uncooked cherries/peaches/nectarines etc, but that's it. The allergies probably go along with just have a whacked out immune system.

francelajoie Explorer
francelajoie
Posted

I think I only have Celiac...thats if I even have it. I know I'm gluten intolorent. If it's the same treatment either way, why go through the biopsy?

I don't think I was really sick. I had occasional D and C for about 6 months when I said enough!

Went to the doctors and after a blood test, she said I was gluten intolorent. After 2 days on the diet, I was back to normal...haven't been sick since.

nettiebeads Apprentice
nettiebeads
Posted
Yeah, as far as I know. I have hayfever and I get hives on my mouth if I eat uncooked cherries/peaches/nectarines etc, but that's it. The allergies probably go along with just have a whacked out immune system.

My immune system was funky to begin with. Certain foods and things like pollen and dust . But lately it's gotten worse. I mean more things are being added. Like now I can't have even a little red wine or champagne when before I hardly had any reactions. But so far it's not everyday common type foods; my food allergies are items that are easy to avoid. (so far)

Annette

Guest Viola
Guest Viola
Posted

Multiple problems here from a late diagnosis. It would be nice just to have Celiac, then you would be healthy as long as you stick to the diet.

If only we could get the medical system to recognize this, then future generations would just have Celiac. :)

darlindeb25 Collaborator
darlindeb25
Posted

I was 46 when I figured out I was celiac--been sick for over 20 years by then, that I remember. I have Raynauds Syndrome, intolerances to almost all grains, starches, and tomatoes. The worst is my peripheral neuropathy. Sometimes I think the celiacs is the easy part now. Deb

PBJ Newbie
PBJ
Posted
I feel like the more I read posts and stuff here the more i see people that have multiple diseases or allergies or intolerances.....

So I was wondering if anyone just has Celiac, and nothing else....? :blink:

I have just Celiac. I was diagnosed February last year after I had my son and have been physically better but mentally a little depressed. I've been sick all my life with symptoms but my mom never took me to a GI doctor. I guess it's nice to know what's wrong but I still get kind of jealous when I'm in a social group setting. I can't seem to get over the jealousy part of this even though I bring my own food. Do you have any suggestions? I'm 24 years old and I'm a stay at home mom and so far my son seems to be ok. Oh yeah, why does everyone say it's lucky to have only Celiac? I must have missed something; I feel like just Celiac is extremely difficult I can't imagine having more problems than that.

Guest nini
Guest nini
Posted

I wish I only had Celiac... if I had been correctly dx'ed as a child would I still be in constant pain from fibromyalgia?

mamaw Community Regular
mamaw
Posted

Count me in with the group that has everything plus the celiac's!!!!!!To add to my list I just got dx'd with mitral value prolapse, and spasms of my vessels and maybe my heart is throwing out blood clots.........

Sometimes I feel like a basket case.......

mamaw

lonewolf Collaborator
lonewolf
Posted
Oh yeah, why does everyone say it's lucky to have only Celiac? I must have missed something; I feel like just Celiac is extremely difficult I can't imagine having more problems than that.

A lot of us, as you can tell by the other posts in this thread, have many other problems, including food allergies. You're right, Celiac is difficult. But from my perspective, it would be "easy" if I could eat eggs, soy and dairy, and "all" I had to avoid was gluten. Others have it way worse than I do.

Guest Viola
Guest Viola
Posted

Yes, we do think it's the lucky people who have only Celiac. Please don't think we are saying that Celiac can't be hard sometimes. It is, and frustrating, sometimes even depressing. However, some of us that took 20 to 30 years to be diagnosed paid for it by being damaged through starving our bodies of the nutrients that we needed to grow properly and keep our bones and muscles strong.

I was left with early onset arthritis .. cronic constocontritis .. flangitis .. fibromyalgia ... and some allergies.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      When Gluten-Free Food Is Unavailable: A Child's Struggle Highlights the Hidden Risks for People with Celiac Disease

    2. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    4. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    5. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,349
    • Most Online (within 30 mins)
      7,748
    Sarah S
    Newest Member
    Sarah S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.