Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

DingoGirl Enthusiast

Vincent - what are BS changes? oh wait....blood sugar...duh. :blink: just answered my own question. You have said that you get shaky without carbs....but I am wondering, are you getting enough protein? I know that if I eat a bowl of cereal, I am ravenous within an hour or two....I always need protein in the morning.

Rachel - heinous day at work! I hope today is better and no more perfume! :) But you stuck it out, that's amazing...I always wonder how you get through your work days with all of your issues and you manage to show up, stocking the Nuggetts ;) day in, day out. And BTW, what kind of birds are nesting/dying at your house?

Andrea - how are you doing today? Your dad, and your hubby?

Donna - YAY! A vacation! is it a gluten-free cruise? I know they exist and it's my dream to take one. Cruises are absolutely wonderful and it's all there for you if you just need to relax....the Bumble Bars...haven't started on my experiments yet...we will see! :)

Hi to everybody else....forget what else I wanted to say and a friend is showing up any moment....see you later!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
AndreaB Contributor

Hi all!

Vincent....I agree with Susan....you need more protein. I also find I'm ravenous if I don't have some protein early in the day. I usually eat two meals and find that when I had three and didn't have protein for the first one that I was hungrier than if I had only had two meals. :blink: Don't know about those headaches though.

Good to know that everyone is starting to feel better. I'm doing better today. School is going better today too, so far.

Carla and Julie.....it seems as if I've moved to a more protein diet. I still have too many carbs at times. Lots of rice, and rice pasta when we have pasta. I typically don't have bread anymore. I have no idea how to figure out anything as far as fat/protein/carbs, but I'm doing ok.

Donna......a trip sounds like fun. I want to take a train ride to California to come visit all you girls down there. :P Julie, Carla and Patti would just have to find a way to California too so we could all meet for a weekend or something. I know....I'm dreaming. :P

dlp252 Apprentice

Okay, I booked the cruise, lol. I had just finished booking it as my boss came in, lol.

Susan - it isn't a gluten-free cruise, but I saw on their website that gluten free was a choice under special dietary considerations. I have to send them a letter. From past experience (before I was even gluten-free) the staff on board are usually very accommodating...don't know what the corporate office will say, but I'm sure the crew will help any way they can.

Andrea - I've always wanted to do a train trip!!!! It sounds like so much fun. Back when I was a child (way back in the 1950s, lol) train travel was still sort of "in", so my parent took the train to Iowa to visit family...I can't remember anything about it really, just minute little pieces of memory here and there.

So Vincent, I'm wondering if the adrenals aren't the culprit in your case too since it seems so hard to control the blood sugar. I'm thinking it may be part of my ongoing issues as well, since I seem to have blood sugar symptoms, but test okay.

CarlaB Enthusiast
Julie, Carla and Patti would just have to find a way to California too so we could all meet for a weekend or something. I know....I'm dreaming. :P

If all you girls were going to California, I'd find a way out there, too!!

So Vincent, I'm wondering if the adrenals aren't the culprit in your case too since it seems so hard to control the blood sugar. I'm thinking it may be part of my ongoing issues as well, since I seem to have blood sugar symptoms, but test okay.

Adrenal fatigue does make you tend toward hypoglycemia. It could also cause the headaches. In my opinion, the diet and lifestyle changes to combat adrenal fatigue would be good for literally EVERYONE!!! It takes you back to the calmer way of living in the past -- eating right, eating often, light exercise rather than very strenuous exercise to make up for a sedentary life, go to bed early, rest, etc. The book I read even has you look at WHY you do the things you do -- i.e. why are you a perfectionist? What made you that way? It's a whole process of looking at the paradigm that got you to where you are healthwise, so that you can reverse it and go back to the health you were meant to have.

VydorScope Proficient
Vincent--I can't remember the exact nature of your migranes. Too many posts back, I guess :blink: But, did you have head pain, or is this something else?

It is impossible to explain. Its a freaky wierd, almost pins and needles feeling around my head in a nonspefic place, it increases irritbility, decreases focus, and is generaly not fun. No pain most of the time.

Vincent - what are BS changes? oh wait....blood sugar...duh. :blink: just answered my own question. You have said that you get shaky without carbs....but I am wondering, are you getting enough protein? I know that if I eat a bowl of cereal, I am ravenous within an hour or two....I always need protein in the morning.

I used to eat more protein in the AM, up till this week, I am now trying the new plan that I posted since I am sick of blacking out before I can make it to lunch. :(

Vincent....I agree with Susan....you need more protein. I also find I'm ravenous if I don't have some protein early in the day. I usually eat two meals and find that when I had three and didn't have protein for the first one that I was hungrier than if I had only had two meals. :blink: Don't know about those headaches though.

No matter what I eat, no matter how big or how little of a meal I eat, not mater protein conten/carb/etc with in 2 hours, if Im lucky 3.. I am starting to get BS issues, by four or 5 I am in real trouble. I know that carbs are required, cause I ahve tried all protien/fat and that was a major bad 24-48hrs recovering. :o I know that if I eat non stop all day (just eat when I feel the symptons, or constantly snack), I have no issues... but Im already up 12 pounds, and a pants size since this has hit, I need to get that back under control. So I am trying to find a min level to eat.

So Vincent, I'm wondering if the adrenals aren't the culprit in your case too since it seems so hard to control the blood sugar. I'm thinking it may be part of my ongoing issues as well, since I seem to have blood sugar symptoms, but test okay.

I think you mentioned that to me elsewhere.. but the thing is my blood sugar issues is directly related to the glucose in my blood, so its not a simular set of symptons, its actaully out of contorl BS which as far as I understand is related to over production of insulin. I have tested while having symptons and my levels usaull are either falling fast, or already to low.

BTW - THats great about the Cruise!!! My best vaction ever was our honeymoon on a 7 day cruise!

AndreaB Contributor
If all you girls were going to California, I'd find a way out there, too!!

Rachel, Donna, Susan and Tavi are in California. How close is Sacramento to everyone that's in California? I'd have to bring the little guy unless we waited 2 years. :P

I'd make my way down either driving myself or taking the train if everyone was willing to meet up.

dlp252 Apprentice

Well, shucks, there's got to be a reason why the BS is so hard to control...we just need to figure it out. :) (Thought I'd mentioned it before, but the way things have been going for me lately, I'm not sure what I've actually said out loud or typed or just thought about, lol.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Vincent, I had a hair analysis done by Analytical Research Labs, Inc. They told me all kinds of information so that my diet and supplements would be perfect for me. Several of the things mentioned in the report talked about blood sugar. For me, my body is not utilizing potassium and sodium correctly because of stress. That affects blood sugar. Also, I need to supplement chromium in order to process carbs correctly. The test, through my doc, but you can go to them on your own, was $138. Worth every penny. Two booklets of information, one on diet one on the analysis that are designed specifically for me. I am a different person completely than I was a month ago. I still have a long way to go ... but I'm finally making progress.

Rachel, interesting info, I have mercury toxicity and aluminum toxicity according to the hair analysis. I had my amalgams out 15 years ago, and did a supplement program to detox, so the mercury must be from fish, I've eaten a lot of it over the years.

Rachel--24 Collaborator
That is weird Rachel. When you say "ever since this whole thing started", do you mean your illness? Are they the same kind of bird? Are they dying in the same place? Is there a big window they are flying into?

Sorry, if all these questions seem obvious. Here, if we find a dead bird we call and the bird is taken and analysed for West Nile virus. I have no idea what is normal for birds dying but I think if you are really noticing them dying then there is something strange about it.

Rinne,

Sorry...I guess I didnt explain very well. The birds built a nest above my porch....by the time I noticed all the mess and looked up it was too late to do anything about it. Soooo...for several months now I've had to deal with all the bird poo on my door mat and birds constantly flying to and from the nest. I have no idea how many eggs they laid but I found some dead babies, broken eggs, and I've found about 3 young birds dead on the porch. I dont know if they fall out of the nest or if the mom throws them out or what.

It doesnt have anything to do with my illness though.

She FORGOT!! :o How could she forget!!!!!

Sounds like it won't be a problem in the future though.

Yeah...thats what I said!! How could you possibly FORGET???? :blink:

Anyways, the girl isnt gonna wear the perfume anymore....I guess she's kind of freaked out about it now. She called Michelle today and asked her if she can wear lotion...and what kind?? The poor girl is paranoid now. :ph34r:

AndreaB Contributor
Anyways, the girl isnt gonna wear the perfume anymore....I guess she's kind of freaked out about it now. She called Michelle today and asked her if she can wear lotion...and what kind?? The poor girl is paranoid now. :ph34r:

Boy, wat did your coworker say to her.......or was it the result of your reaction to it.

jerseyangel Proficient

Rachel,

Yes, this would be an excellent time to clear away the nest and all of the mess tht you're gonna find along with it. Last year, we did this in the fall and ended up having to actually repaint the trim around the doorway. It's white, and was a litttle stained in places.

After it's clean, you will probably want to do something up there so it won't happen again, because they will be back--that's for sure!

This past spring, we had to go out daily and run a broom over the doorway--they kept trying to build a nest even though we were doing that. They are very tenacious :D I expect to have to do it again this year....

Rachel--24 Collaborator
Rachel - heinous day at work! I hope today is better and no more perfume! :) But you stuck it out, that's amazing...I always wonder how you get through your work days with all of your issues and you manage to show up, stocking the Nuggetts ;) day in, day out. And BTW, what kind of birds are nesting/dying at your house?

Today is somewhat better....no perfume "episodes" so far. ;)

I'm pretty stressed out trying to work the 4 pallets of product I ordered. That and the fact that every other customer is stopping to ask me why we have NO milk on the shelf. We wont get any until tonight and they just stare at me in disbelief and horror at the thought of NO milk. :blink:

I dont know what kind of birds are nesting at my house but the're small...and messy. <_<

Donna,

I'm soooo jealous...I wanna go on a cruise when I get better. Its one of the things I'm excited to do in the future. You're gonna have a great time....now you'll have to do some shopping for the cruise. ;)

I have a feeling this will definately cheer you up. :D

Rachel, Donna, Susan and Tavi are in California. How close is Sacramento to everyone that's in California? I'd have to bring the little guy unless we waited 2 years.

When I'm in Manteca I'm about an hour from Sac.

VydorScope Proficient

Yae... we ahve a simular problem with birds in our dryer vent. I had to install fencing to keep them out!

Well, shucks, there's got to be a reason why the BS is so hard to control...we just need to figure it out. :) (Thought I'd mentioned it before, but the way things have been going for me lately, I'm not sure what I've actually said out loud or typed or just thought about, lol.)

heh either meaning of "BS" works there :lol:

No worries, I often have to look back over threads to see if I replied already :lol:

I am home now, so treating me self to a bunless cheese burger.

Anyways, the girl isnt gonna wear the perfume anymore....I guess she's kind of freaked out about it now. She called Michelle today and asked her if she can wear lotion...and what kind?? The poor girl is paranoid now. :ph34r:

Well thats great, it shows she actaully cares a bit. Its a good sign!

Green12 Enthusiast
Carla and Julie.....it seems as if I've moved to a more protein diet. I still have too many carbs at times. Lots of rice, and rice pasta when we have pasta. I typically don't have bread anymore. I have no idea how to figure out anything as far as fat/protein/carbs, but I'm doing ok.

Hi Andrea :) I don't really get super technical about it, I just eat a palm size portion of protein (chicken, beef, turkey), a serving of carbs (i.e. one red skinned potato, 1/2 lg sweet potato, 1/2 c. brown rice, etc), and a tablespoon or two of olive oil or some other healthy oil.

If I eat carbs I try to always eat protein with it, so if I have dessert I try to eat it with my meal. Or if I have Alexia fries for example, I might sprinkle some browned ground beef over the top or eat with a beef patty, or if I have pancakes I will eat scrambled eggs also.

Vincent, forgive me if you have posted this elsewhere on the forum, I rarely venture out of the OMG or Rachelville threads :lol: , but have you been checked out by a doctor, or had a panel of tests done for your BS problems/migraines? And when we say BS we mean BS :lol: It does sound like there is something going on there with the blacking out, that got my attention.

Rachel, sorry you are having trouble with the birds nesting again, I think you posted a thread about this over the summer if I am not mistaken. Hopefully the tips Patti and the others gave you will be helpful.

Carla, what is the name of the book you just read again? Sounds interesting. The hair analysis sounds interesting too. I had it done over 10 years ago but it was just checking for metals and etc., nothing as elaborate and involved as your test sounds. I agree that adressing adrenals would benefit everybody, our society/lifestyles are so "high stress" and medicated (i.e. coffee to stay awake, sleeping pills to sleep) most everyone is running on empty.

(Thought I'd mentioned it before, but the way things have been going for me lately, I'm not sure what I've actually said out loud or typed or just thought about, lol.)

:lol::lol: Donna :lol::lol:

VydorScope Proficient
Vincent, forgive me if you have posted this elsewhere on the forum, I rarely venture out of the OMG or Rachelville threads , but have you been checked out by a doctor, or had a panel of tests done for your BS problems/migraines? And when we say BS we mean BS It does sound like there is something going on there with the blacking out, that got my attention.

Several years of testing, by serveral different docs, in a couple different hosiptials and eventually I figured it out my self, self tested with glucose meter at home, and then brought the results to my doc who agreed. The testing procedure is well established for hypoglycemia and can safely/easly be done at home, though the respectable medical information sources will tell you it has to be done by a doc. Thats just CYA stuff.

Blacking out is one of the most comon symptons assoicated with it, up there with the shakes, vomiting, and other fun things!

I also have a heart condition, so thats probably not real helpful in this situation. :)

Vincent, I had a hair analysis done by Analytical Research Labs, Inc. They told me all kinds of information so that my diet and supplements would be perfect for me. Several of the things mentioned in the report talked about blood sugar. For me, my body is not utilizing potassium and sodium correctly because of stress. That affects blood sugar. Also, I need to supplement chromium in order to process carbs correctly. The test, through my doc, but you can go to them on your own, was $138. Worth every penny. Two booklets of information, one on diet one on the analysis that are designed specifically for me. I am a different person completely than I was a month ago. I still have a long way to go ... but I'm finally making progress.

$138 is way out of reach for me right now. But thank you for the suggestion.

AndreaB Contributor
Hi Andrea :) I don't really get super technical about it, I just eat a palm size portion of protein (chicken, beef, turkey), a serving of carbs (i.e. one red skinned potato, 1/2 lg sweet potato, 1/2 c. brown rice, etc), and a tablespoon or two of olive oil or some other healthy oil.

If I eat carbs I try to always eat protein with it, so if I have dessert I try to eat it with my meal. Or if I have Alexia fries for example, I might sprinkle some browned ground beef over the top or eat with a beef patty, or if I have pancakes I will eat scrambled eggs also.

I eat way more than that at a meal. I guess you could say I Rachel everything. :lol::ph34r:

rinne Apprentice
I eat way more than that at a meal. I guess you could say I Rachel everything. :lol::ph34r:

:lol:

CarlaB Enthusiast
I eat way more than that at a meal. I guess you could say I Rachel everything. :lol::ph34r:

That's about what I eat at any given meal, but I eat five or six of them!!

Julie, the book is Tired of Being Tired by Jesse Lynn Hanley, MD.

Vincent, most of the stuff in the hair analysis was also in the book, but it wasn't designed just for me personally.

AndreaB Contributor
That's about what I eat at any given meal, but I eat five or six of them!!

I'd probably still eat more than necessary but it would be much closer. I do only eat 2 meals a day so I make the most of it. When my hubby was home last week he had a better understanding of why I don't eat til so late at times. I don't know how I'd fit in three meals......I'd have to cut out my morning computer time....then I'd never catch up on here. :o

VydorScope Proficient
Hi Andrea smile.gif I don't really get super technical about it, I just eat a palm size portion of protein (chicken, beef, turkey), a serving of carbs (i.e. one red skinned potato, 1/2 lg sweet potato, 1/2 c. brown rice, etc), and a tablespoon or two of olive oil or some other healthy oil.

I would consider that to be a bigish dinner any more. But I do use a kitchen scale to get roughly "1 serving" of any given item... well okay fine I might Rachel ice cream occassionly.. okay prbly most nights :)

dlp252 Apprentice

You said BS :lol: (pssst...wish I had caught the double meaning, lol)

Somehow I missed the question about distance from where I am to Sacramento...it's about a 2 hour drive from where I live to Sacramento.

I'm Racheling chocolate right now...hope to get over it soon. :blink:

Hum, actually shopping WOULD make me feel better and I'll bet it would stop me from the chocolate rachelling that's been transpiring.

jerseyangel Proficient

Lately, I've been Racheling Nestle's chocolate chips--right out of the bag :ph34r:

dlp252 Apprentice
Lately, I've been Racheling Nestle's chocolate chips--right out of the bag :ph34r:

Ever dump the chocolate chips into the peanut butter (or whatever you can have)...it's quite tastey. :ph34r:

jerseyangel Proficient
Ever dump the chocolate chips into the peanut butter (or whatever you can have)...it's quite tastey. :ph34r:

I gotta try that with almond butter--wish I could still eat peanut butter :angry:

AndreaB Contributor

I like enjoy life chocolate chips with coconut (I know you can't have that Patti) and slivered almonds.

I used to make homemade peanut butter cups but since I can't have carob chips anymore and have quit with the peanut butter due to my soy intolerance I haven't tried anything else. Almond butter may be good though.

Donna if I make it down to Sacramento sometime would you be willing to drive up? I'm seriously considering coming down, just don't know when. What would we all do in person.....look for our computers to talk like Carla does. :P:lol: I don't have a laptop.....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Positive biopsy

    2. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New "Glowing Bacteria" Pill Could Transform Gut Disease Detection (+Video)

    3. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      7

      Help understand results

    4. - Jordan Carlson posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fruits & Veggies

    5. - wellthatsfun posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      heaps of hope!

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,998
    • Most Online (within 30 mins)
      7,748

    SpoonedMango
    Newest Member
    SpoonedMango
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.