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Omg...i Might Be On To Something

Rachel--24

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Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
.

i'm not sure if i really want to stay off gluten until i am all better. I am still having a really hard time with no bread. that is really the only problem that i have with the no gluten thing.

Buy Annalise Roberts' Gluten-Free Baking Classics. All her recipes are amazing--cakes, cookies, and BREADS!!!! She uses a mix of millet flour, sorghum, potato starch, cornstarch, and tapioca starch. The recipes are really easy (no kneading!!!), and you can double them.

The subway sandwich bread recipe is unbelievable--it tastes kind of like a really good rustic European bread--nice crispy crust, and soft chewy inside. It's better than many wheat-based breads I've made!

There are some really good recipes on her website, too: www.foodph.org. I think her chocoate chip cookie recipe is on there.

You can do it! (Besides, you have to stay off gluten forever, not just til you're all better, right?)

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jerseyangel Proficient
jerseyangel
Posted

Donna! Welcome back :D

Good luck wading through the 40 or so pages--and you came back to the new and improved board :blink:

It sounds like you had a great vacation--

dlp252 Apprentice
dlp252
Posted
But what does this feature actually do??? :unsure:

Does it have a purpose?? Is it cuz we all have brain-fog and cant remember who our friends are??? :huh:

:lol: !!!!!

evie Rookie
evie
Posted
Hi everyone, I'm BAAAAACCCCKKKKK! :lol: Got in at 2:00 this morning, and got to bed around 3:00 a.m. so I'm just hanging out...only got about 3 hours of sleep, but apparently they were good ones cuz I don't feel that bad today. I'll write more about my time in Disneyworld later--THEY ROCK with food intolerances!

Okay, going back into the murkey missed pages of Rachelville...don't send out the dingos for a while however...I've got about 40 pages to read I think, lol. I promise to not comment too much on "old news" though, lol.

Welcome back from your vacation Donna!! Hello to all you, I just skipped a lot of pages so will need to catch up on your doings and goings on. I see you have a lot of whistles and such added, will check them out.

I have been kicked off for awhile and just got a password from Scott that works!! Got on for 1 or 2 days a week ago but soon gone. I am lots better but will take some time to get more energy and more pills and DR. visits. Went shopping Wed and Friday, wore me out but sure was fun. :D evie

CarlaB Enthusiast
CarlaB
Posted

Andrea, I don't remember when we stopped doing shots. I know Sadie is the only one who doesn't have any. Morgan and Luke got all their younger shots, but not the boosters in sixth grade, or whenever you're supposed to get those. I don't remember Chloe specifically.

dlp252 Apprentice
dlp252
Posted
All interesting thinking though. Has anyone had mercury amalgans removed and did you feel better ? My Dr wants me to do that - but am petrified of the dentist :o

Several people here have...I'm going through it now. I've had two of four quadrants done and will have the other two done in January (my dentist divides the mouth into four quadrants and does all the amalgam in the quadrant, so last time I had two crowns and two fillings done and the time before that had one crown and one filling done). I haven't noticed any benefit yet of course, but also haven't felt any negative affects either...make sure your dentist uses safety protocol when removing. Mine uses a "dam" to protect your mouth (and prevent you from swallowing) the amalgam "shavings" and uses a really powerful vacuum plus cool air while he is removing them. I won't lie and say it's been pleasant though. <_< I also don't like dentists much, lol. Still I think the benefit in the end will be worth it. Welcome by the way. :P

AndreaB Contributor
AndreaB
Posted

Evie!

It's so good to see you! I've been wondering where you were and how your were doing. :)

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evie Rookie
evie
Posted
hi Honey

Your support is greatly appreciated with all you have going on.

I've been ck'n on you hear but not posting.

we had company fly in for 9 days 2 of which i spent in bed. they were the best medicine for me and hubby took them out for fun while i was in bed.

my internist couldn't see me as he'd left the late in the day i called them but they got me in to see this lady dr the next day early am.

my internist is seeing me monday morning so hope he will be resecptive.

he's up on main stream lymes..but not sure about alternative med...he really likes my chiro tho so that's a plus.

you keep up the good fight too honey.

i just get weary but don't we all.

hugs

judy

have to get off an get leg in the pump for an hr.

Judy...so sorry you have been so sick, has that been for long? I so appreciated you chatting/ daughter Shirley when I was in the hospital. She and hubby are here for the weekend, sure do appreciate all of our 3 dd's!!. Has PM been removed from the board? was going to send you one but did not find that area. Is your cellulitis any better? I do not have that but I do have to wear TED stockings for foot and leg swelling. Wonder what summer will be like, gets hot and humid here then?

Well, I will just cope if it is all necessary yet then. Hope you can get some help and feel better soon

Judy. Take care of self!! :) evie

jerseyangel Proficient
jerseyangel
Posted
Judy...so sorry you have been so sick, has that been for long? I so appreciated you chatting/ daughter Shirley when I was in the hospital. She and hubby are here for the weekend, sure do appreciate all of our 3 dd's!!. Has PM been removed from the board? was going to send you one but did not find that area. Is your cellulitis any better? I do not have that but I do have to wear TED stockings for foot and leg swelling. Wonder what summer will be like, gets hot and humid here then?

Well, I will just cope if it is all necessary yet then. Hope you can get some help and feel better soon

Judy. Take care of self!! :) evie

Hi Evie! Nice to see you and so glad that you're doing better :) I've also been curious about how you were getting on.

You can still send a PM. Go to the person's name over their avatar, and hold the cursor there. Click on the arrow to the right. A drop down box will give you several options--one of them is to send a message. Click on that, and send as usual.

Let us know if you have any problems with this or any other of the new features :)

dlp252 Apprentice
dlp252
Posted
Welcome back from your vacation Donna!! Hello to all you, I just skipped a lot of pages so will need to catch up on your doings and goings on. I see you have a lot of whistles and such added, will check them out.

I have been kicked off for awhile and just got a password from Scott that works!! Got on for 1 or 2 days a week ago but soon gone. I am lots better but will take some time to get more energy and more pills and DR. visits. Went shopping Wed and Friday, wore me out but sure was fun. :D evie

Hi Evie!!!!!!! Sooooo happy you are doing better!

dlp252 Apprentice
dlp252
Posted

OMGOSH :blink: I've been reading for hours, lol. I've prepared and eaten lunch and prepared and eaten dinner and prepared and eaten my evening snack, lol. I've indexed pages with links so I can go bookmark them when I get to work on Monday.

My vacation was wonderful and I took a very modest (if I do say so myself) amount of pictures of the cruise and Disneyworld. The cruise was wonderful...everyone was very helpful in making sure I could eat without getting sick. One of the cooks from the buffet, even noticed that I was looking at all the selections but not taking anything, so he asked me what I was looking for...when I started asking about ingredients, he said he would go back and prepare something especially for me. He did that a few times throughout the 10 days. Even some of the "lesser" cooks noticed and looked out for me when I ate at other places. The panama canal was really fun and interesting...we watched the working from several different places on the ship, but perhaps the most interesting was on a lower deck where when we looked out the windows just saw the walls, then as the lock filled with water, it was like being in an elevator until we eventually saw sky. On our balcony we could see it all, but didn't get that elevator affect as much, lol.

The weather was VERY hot and humid and it rained several days. Rachel, you would have loved the heat, lol.

Disneyworld wsa fantastic too. We stayed at one of the Disneyworld property hotels. This place didn't have a sit down restaurant, but had a food court with mostly "fast" food type selections. I was very worried about eating there, but on arrival at our hotel, we decided to check it out. I figured I'd just have a hamburger patty. But I saw on the menuboard a notice saying to ask for help with special diets, so did that. One of the cooks was there, but they called out the chef, who went over all of my restrictions and verified that the hamburger and the french fries were gluten free. They prepared a hamburger patty and french fries which they prepared in the back to make sure it wasn't cooked on anything that had had gluten on it.

The next morning I went up and asked for help, so they called out the chef (a different person). I told her my restrictions and asked if there was anything they could do for me...OMGOSH!!!! She said for breakfast they could make me gluten-free/dairy-free pancakes. And not only that but she told me they could also make waffles, they had gluten-free hamburger buns and for dinner they could do gluten-free pasta, dessert gluten free brownies, etc. So the next morning I went in and asked for help, a different chef came out, but they had me on file cuz the first chef wrote it all down. They made me the BEST pancakes!!!! I haven't had pancakes in years, and they just tasted SOOOOO good. She verified that the bacon was gluten-free and even gave me two little jars of pure maple syrup to make sure it was gluten-free!

For dinner that day I had a real hamburger on a gluten-free bun, lol. AND FRENCH FRIES!!!

I made it through the entire vacation with no serious food-related issues. I did gluten myself once on the ship, but fortunately it wasn't a huge amount...there was a mustard coating on some roast beef which I should have verified had no gluten--but didn't...fortunately I didn't eat much. The next day they had a similar dish, and noticed that they said "with bread crumbs" (I think they were labeling for me). I only had a tummy ache for a day though so not so bad. They got so that when they saw me come through the line they would automatically tell me which dishes had butter or gluten, so I wouldn't take it...by the end of the cruise, they had more selection made with oil instead of butter and at least one selection without gluten!!!

Rachel -- going way back, I'm sure you'll make it one day to Disneyland and I'm sure you'll be able to eat there!

AndreaB Contributor
AndreaB
Posted

Donna,

You trip sounds absolutely wonderful.

I'm so glad you could have your diet/restrictions accomodated.

I'm so happy for you. I hope you are nice and refreshed.

jerseyangel Proficient
jerseyangel
Posted

Yes--wow Donna, it sounds like they took very good care of you. The food sounded delicious--especially those pancakes :P

angst2amity Rookie
angst2amity
Posted
LOL! I joined Mensa, but didn't renew my membership because it seemed that way to me, too. :lol: Now that the Lyme has become active again, I think my IQ has dropped about 50 points!!!

Your test could still come out negative. It's the sickest people who get the false negatives. Check out www.lymephotos.com. They talk about salt/vitamin c. I had been doing this when I took my Lyme test .... who knows, maybe it's what got my immune system going enough for the test to be positive. I think it makes me herx, but I feel so bad all the time I can't really tell if it's a herx or I'm just sick. It was the salt and C making me "sicker" that got me to get tested for Lyme in the first place.

Oh, and the picture on the bottom left ... that is EXACTLY what the floater in my eye looks like. I not only feel bad, but get to look at those blasted bacteria all the time!!!

CarlaB

I feel the same about Mensa, but admit it - it was fun to be able to join! I looked at the pictures the other day - enough to make you want to scrub your insides with steelwool. I have been doing a haphazard salt/C for a while - but the C gives me terrible canker sores. I have the grossest floaters all of the time lately.

Rachel

I think I am in constant Herx because of the steroids and antibiotics. Steroids push my immune system down while the antibiotics, salt/C, sugar-free, gluten-free, corn-free is helping me to fight. I had to be on major doses because they thought my sinuses were full of fungus - I am going off them but it has to be a slow taper, or I think it will break my adrenal glands more.

Something happened today! Only on 30mg predinisone instead of 60mg. No gluten for a while. No sugar for a while. No corn recently. No MSG recently. Less Dairy. Hot Baths. Had a good Night Sweat during the morning- which I think means my body is cooking the bacteria. I thought I was going to die yesterday - today I think my immune system is winning!!!! Man, I am balanced on a fine line. Will be off steroids in about 5 days. Maybe no need to go to Mayo after all but I will pursue the Lyme test further if it is negative.

Oh, I have lost many teeth - maybe from celiac disease, but I am having my amalgams removed soon too!

I think this whole OMG post can be life-altering in that several dedicated people seem to be figuring out un-figurable stuff just by the back-breaking trial and error.

Thanks Again!

Judyin Philly Enthusiast
Judyin Philly
Posted

EVIE----so great to you you on board. I'd sent you some pm's so going to try to follow's patti's tip and see if i can do from Avatar..It was a pleasure to get to heard from Shirley..so glad your girls can help you out. Know they like to be needed by you too.

so glad your getting your strength back.

I'm having good and bad days but pray on Monday I WILL GET SOME ANSWERS OR A LEAST A PLAN OF ATTACK FOR MY WELLNESS...I'M TIRED OF THE ROLLIE COASTER RIDE. BET YOU ARE TOO.

hI PATTI..THANKS FOR THE TIPS.

DONNA GLAD YOUR BACK AND HAD SUCH A GREAT TRIP..AFTER YOUR GLOWING REPORT I JUST MIGHT RECONSIDER DOING A CRUISE WHICH I NEVER EVER WANTED TO DO..

THANKS ALL FOR YOUR HELP TODAY WITH INFO.

DO ANY OF YOU KNOW IF WALNUT ACRES SOUPS ARE GLUTEN FREE...I KNOW THE SAVORY TOMATO IS NOT gluten-free BUT THOUGTH THAT THE CREAMY TOMATO IN THE CAN WAS?

ANY OF OUR EXPERTS OUT THERE KNOW ABOUT THIS. ATE SOME TODAY AND GOT SO SICK COURSE NO ONE COULD ANSWER QUESTIONS TODAY AT COMPANY.

ALSO MOUNTIAN DEW..IS IT gluten-free..JUST THE MAIN KIND?

JUDY

dlp252 Apprentice
dlp252
Posted

Yes, I've decided I LOVE cruising and need to do 3 more short ones so I can get free Internet to keep up with this thread, lol.

I neglected to say welcome to all the recent new posters who aren't so new anymore now that I've been gone so long, lol.

Judyin Philly Enthusiast
Judyin Philly
Posted

Donna,

know you posted what cruise line you went on but i forget. can you tell me again.

thanks

judy

linds Apprentice
linds
Posted

Fiddle-Faddle- i don't know if i have to be off gluten for life or not. i am not sure if gluten is the problem. i have been having problems and am trying the gluten free diet. but it has now been almost 3 months and not a single symptom has gotten better yet so i am thinking about trying to eat it again.

is there any gluten free bread that would be like a multi grain bread? i have only ever at 7 or 12 grain bread can't stand the taste of white bread or the cheap almost like white wheat bread.

happygirl Collaborator
happygirl
Posted

Donna, so happy to hear about your wonderful cruise!

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
Fiddle-Faddle- i don't know if i have to be off gluten for life or not. i am not sure if gluten is the problem. i have been having problems and am trying the gluten free diet. but it has now been almost 3 months and not a single symptom has gotten better yet so i am thinking about trying to eat it again.

is there any gluten free bread that would be like a multi grain bread? i have only ever at 7 or 12 grain bread can't stand the taste of white bread or the cheap almost like white wheat bread.

The gluten-free subway sandwich bread really IS a multigrain bread. It just so happens that none of those grains are wheat! (Millet and corn both classify as grains, don't they?) I'm not kidding, even my gluten-eating family scarfs it down every time I make it!

I can't remember--did you have any bloodwork that indicated a problem with gluten?

Lymetoo Contributor
Lymetoo
Posted
Since my test was positive, I can only assume that my immune system is in good shape ... so I think I'll try the natural stuff first, and if I can't overcome it, then I'll have antibiotics for a while. I hate to hurt my "healthy" immune system with antibiotics if it doesn't need the help.

I wouldn't assume that! I fully believe you need antibiotics in the beginning or you will never get well. Just my bias. I've seen alot over the past 6 yrs.

Sorry I haven't had time to follow everything here....just stepped in to comment on this.

You guys are always welcome at Lymenet!! :D

If I don't see you folks for awhile....MERRY CHRISTMAS!!! I'm headed to Texas Monday....gone several weeks. Send any snow you don't want! :P

gayle

linds Apprentice
linds
Posted

Fiddle-Faddle- i had the blood work done but it was negative but they didn't do it until recently and i had been gluten free for like 2 months so i don't think it would be that accurate.

angst2amity Rookie
angst2amity
Posted

Here is a big question for you all, which I am sure you've covered before, but I haven't heard the answer...

If you have lyme disease, and you have a major episode(s) from late stage neuro-LD which causes you to have all sorts of complications including becoming gluten-intolerant, if you can rid your body of Lyme, Mercury, Candida, Allergans, will everything else resolve? Like celiac disease?

Anyone know anyone with any experience with this?

DingoGirl Enthusiast
DingoGirl
Posted
Okay, going back into the murkey missed pages of Rachelville...don't send out the dingos for a while however...I've got about 40 pages to read I think, lol. I promise to not comment too much on "old news" though, lol.

HI DONNA!! The dingos were on standby. ;) We are so glad you are back and your vacation sounds fab!!!

Hi Evie! Always nice to see you and we are all so glad you're here. :)

Hello to everybody else! I am SO behind......need to catch up. :huh: Life is good here, though. Work's good, life is fine, and the poops are solid. ;) You know something, I now realize that I was getting frequently glutened over the summer.....was just so sloppy - I've been SO careful and the poops are the proof - - totally solid and normal. Just thought I'd share. :rolleyes:

wub you guys..... :wub: (it is WAY harder to do the wub now in the new format :angry: )

off to bed! I'll catch up later......way behind.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Hi everyone :)

This is a total drive-by. It looks like I have some catching up to do and I see that DONNA is back!!

Yay...I cant wait to read all about your trip! I cant wait to see if you had gluten free pancakes shaped like mickey mouse ears!! This is what I had heard about....hopefully I'll find out myself someday soon. :D

I'm homebound....leaving in a few minutes. Just wanted to tell all of you how much you guys mean to me! Its almost Xmas and I'm feeling kind of mushy. :rolleyes:

Anyways, luv you guys! :wub::wub::wub:

Thanks for making the hardest time in my life so much easier....you cant know how much you all have helped me. :)

Looks like Evie was here too! :)

I hope things are going well for Evie!!

I'll catch up later....I just got back from seeing the CUTEST movie EVER. It was a perfect holiday movie...I LOVED it. :D I think it was called "The Holiday"?? :unsure:

Anyways...great movie....great night....I still LOVE Christmas!! :D

Be back later :wub::wub:

Omgosh.....even my drive-by's are loooong. :ph34r:

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      Insomnia help

      By cristiana · Posted

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By SilkieFairy · Posted

      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
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