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Omg...i Might Be On To Something

Rachel--24

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miamia Rookie
miamia
Posted
Hi Miamia :)

Wow...you've had alot going on! I've heard good things about acupuncture...hopefully it can help you with some of the digestive stuff or any other symptoms.

I'm looking forward to seeing your test results if you post them. Right now I'm waiting for one test result that wont be in till after Christmas. I want to possibly take antibiotics briefly and then redo my Lyme tests...or do the urine test for Lyme bacteria. Still thinking about it.

Hope you have great holidays and just believe that you're heading in the right direction...you're gonna turn that corner and start getting some real answers. I just know it....you're gonna get better. :)

Rachel-

thank you so much for your positive words!!! I thought about you in my docotr appt. when he was like one more plus and you would have been positve I know you are like me and want real proof!!! I felt so frustrated that I could be that close to having it-....... and still somehow so far away!!!

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rinne Apprentice
rinne
Posted

Just a drive by, thanks for the links for information on vaccinations. I'm having problems posting but will try again later.

CarlaB Enthusiast
CarlaB
Posted

Good morning, everyone! Just wanted to say hi. I've been keeping up and thinking about all of you, but don't have anything to say. :blink: I look forward to feeling better .... I am NOT ready for Christmas ... I wonder how I'm going to create the magic of the holiday for the family. Thank goodness Morgan is home!

AndreaB Contributor
AndreaB
Posted

Donna,

Hope you "just" have a cold. Miserable things too but much better than strep. I think it's great that the ship was so vigilant about keeping hands clean. :)

Miamia,

I hear you about the financial aspect of trying to find out what is wrong. I often wonder what we would do if we needed a whole bunch of tests. We don't have ready cash either. :( I'm glad your doctor is willing to help you. :)

Patti,

Is that my favorite kitty that got lost for 8 days?

Rinne,

How are you doing? Can you post again?

Carla,

No wonder you've been scarce.....Morgan is home. :) Have fun with your whirlwind, energetic daughter. We are pretty much ready, aside from cooking. We are having the 5 boys and 1 girl over as well so that will make 11 of us. Of course Seth isn't onto much solids (aside from baby food) as he still only has 3 teeth, but there will be a few things we can give him. I've been advised to keep him off the hi allergen foods until he's 2 or 3 since our family is intolerant to so many different things. He already has a problem with salmon (forgot that was on the list).

Rachel,

Still waiting to hear about your last appointment. I didn't pester you Saturday as I was hoping you were having some fun.....and obviously, you had things to take care of yesterday. How are you feeling today?

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Rachel, thank Heavens your kitty is okay! Maybe he could come with you to your mom's next time?

Kitty cant come to my mom's with me. She doesnt allow pets in her house....shes not too fond of them. Sometimes I wonder how we are related?? :unsure:

Maybe shes not kidding when she tells me gypsies left me on her doorstep. :blink:

I dont get it...my cat wasnt even bothered by the fact that he had no food or water for 5 days....actually 6 days! :o

He came out of the room purring and rubbing against my leg....he didnt even take off to go eat or anything! :huh:

My room is all better now...its all fresh and clean again. :)

I went shopping...got an air filter! When I took the old one down it didnt seem dusty or anything....I thought..."Wow...2 years w/out changing it and its not even dirty??" :unsure:

I decided to buy a new one anyways and when I went to the store I realized that mine IS dirty....REALLY DIRTY! I found out that they are supossed to be white....not gray. :ph34r:

I also got new filters for my air purifier. Still gotta find filters for the vacuum...I couldnt find the kind I need anywhere.

I got a new super soft mattress pad. I figured it would protect my mattress in the event of another heinosity. I got a new comfortor too. :D

Next thing I need to take care of is the furnace thing. ;)

My cat discovered my electric blanket yesterday. I'm not letting him into my room cuz I dont want him "hiding" again. He is VERY angry with me. Kept looking at me like this :angry::angry:

He thinks its *his* room now and he wants my electric blanket. :rolleyes:

I didnt get much sleep last night because he was crying and crying and crying all night....right outside my door. Then throwing himself against the door and crying and crying....OMG...what a dramatic kitty. :rolleyes: Its not like its a "new" thing that hes not allowed in my room....its been since I started getting all these allergies. I hope its better next weekend. :ph34r:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Still waiting to hear about your last appointment. I didn't pester you Saturday as I was hoping you were having some fun.....and obviously, you had things to take care of yesterday. How are you feeling today?

Andrea...I think I might have dingo'd alot of stuff...it feels like it was a loooong time ago. :huh:

Stupid brainfog. :angry: I will have to put on my thinking cap and see if I can come up with anything. :unsure:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I forgot to add that I LOVE your picture! :D

Me too Donna!! :D

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jerseyangel Proficient
jerseyangel
Posted
Patti,

Is that my favorite kitty that got lost for 8 days?

:D Yep--one in the same! And come Christmas Eve, we will have had him for 15 years....or maybe I should say he's had us :lol:

angst2amity Rookie
angst2amity
Posted

You guys are so funny - it really is a soap-opera! And no one says "hey get off the internet!" to you because I think this is the place you go where doctors and loved ones say "I haven't a clue" but they aren't the ones that have to live this way.

Yeah...you definately have to taper off of the prednisone. I took it for only one week about 3 years ago and I swear it made me worse. I had to taper off it even though I was on it for such a short time. I'm glad you're getting off of them though! YIKES...steroids and Lyme...not a good combo. :(

I didnt know you were doing salt/c....I must have missed that?? :huh:

How long have you been doing it and have you noticed changes from it?? Make sure you're taking a good probiotic while you're on the antibiotics. :)

I think that I have researched just about everything possible before finding this site. Read lots of documents about how massive doses of Vitamin C can repair your immune system. I have been giving it a haphazard try for a while now. It may be working somewhat, but I have reactions to the C like mouth ulcers and um, new itching, and other things. So I quit and start and quit and start. BUT one of your early posts made me think, hmmmm maybe the asorbic acid is derived from corn. I called the manufacturer today - they will get back with me.

I also read about salt intake and the benefits of real sea salt. Have used that in place of regular salt for a long time. Sometimes I will drink 8 glasses of saltwater - sometimes I won't. Seems like my body wants it. Also doing a sinus salt flush. Also doing isotonic salt flushes when candida gets bad.

Been on probiotics forever. I am trying those Pearls, they are like ThreeLac in that they are supposed to survive your stomach and actually end up in your gut.

Today I am very dizzy and weak. Lots less pain so I shouldn't complain. Lots less brain pain and joint pain. No word about celiac disease or LD yet.

Sorry to hear about your kitty. Once when I was in college my bad kitty got mad (because I got a new roommates with a cat) and not only did he pee on my bed, he peed on top of all the CUPBOARDS. They said he had to go!! I got him a vasectomy instead and he has been mostly well behaved for the last 10 years. :lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
not only did he pee on my bed, he peed on top of all the CUPBOARDS.

:blink:

OMG...if my cat did this....he would be getting a vasectomy too! If he decided to pee on my cupboards...he'd be in big trouble.....for the first time in his 12 years he might become an outside kitty. :P

He did get really mad at me a long time ago....he peed on my bed....I cant remember why but he was a MAD kitty :angry: .....and he showed me just how mad he was. :rolleyes:

covsooze Enthusiast
covsooze
Posted
I dont get it...my cat wasnt even bothered by the fact that he had no food or water for 5 days....actually 6 days! :o

He came out of the room purring and rubbing against my leg....he didnt even take off to go eat or anything! :huh:

I would be asking myself what did the cat eat. My cat will eat almost anything. Probably would eat dust if she got really hungry! We ban her to the kitchen at night. She has a cat flap which leads out to our garden and, on a not irregular basis, we find fluffy 'presents' in the kitchen in the morning. :ph34r:

Donna - brilliant picture :)

My update is, I've been off the cipralex (lexapro) for three weeks now :D So I'm now enduring my first chocolate free anti-d free period :o If I can survive that OK, it'll be the elimination diet for me after Christmas. For the first time ever, I'll be able to identify with my colleagues who are going on New Years diets :lol: I have chickened out of going to my work Christmas meal on Friday, coz I really don't want to risk being ill for Christmas.

Susie x

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
Still gotta find filters for the vacuum...I couldnt find the kind I need anywhere.

I had exactly the same problem with my Sharp vacuum cleaner, which I loved because it was so quiet--couldn't find filters for it (or even bags) ANYWHERE. Ended up ordering them from the manufacturer, and I got so mad that all the new bags (I think I ordered 20 bags) and filters cost so much ($60!!! :ph34r: ), I went out and bought a second vacuum cleaner for $40. Now instead of buying new filters, I just use the other vacuum cleaner to vacuum the filters. Weird, I know.

My Sharp vacuum cleaner has now officially died, I think. I haven't completely given up on it (out of pure stubbornness, really, I've had the thing for 13 years), but I took it apart, cleaned it out, and put it back together again, and it still spits a small trail of fine dust whenever I roll it backwards. So I got a reconditioned Eureka Maxima bagless for $30, which isn't bad, especially considering I don't have to buy bags or filters for it but--I have to clean the darn filter every time I use the thing. I'm being lazy and using the other vac to vacuum it instead of washing it. :unsure:

Just what I need, 3 vacuum cleaners, one of which doesn't work. I should have my head examined.

AndreaB Contributor
AndreaB
Posted
Maybe shes not kidding when she tells me gypsies left me on her doorstep. :blink:

My cat discovered my electric blanket yesterday. I'm not letting him into my room cuz I dont want him "hiding" again. He is VERY angry with me. Kept looking at me like this :angry::angry:

He thinks its *his* room now and he wants my electric blanket. :rolleyes:

I didnt get much sleep last night because he was crying and crying and crying all night....right outside my door. Then throwing himself against the door and crying and crying....OMG...what a dramatic kitty. :rolleyes: Its not like its a "new" thing that hes not allowed in my room....its been since I started getting all these allergies. I hope its better next weekend. :ph34r:

:lol::lol:

I never trusted my cats with the electric blanket. I didn't want them chewing on it or anything.

Angst.....that sounds awful with your cat. I am familiar with angry cats but I don't think I've ever had one go on top of the cupboard. :blink:

Andrea...I think I might have dingo'd alot of stuff...it feels like it was a loooong time ago. :huh:

Stupid brainfog. :angry: I will have to put on my thinking cap and see if I can come up with anything. :unsure:

Hope you remember some of it. You know I look forward to hearing about your appointments. Don't make me call you twice a week. I don't think I could afford that. :lol:

:D Yep--one in the same! And come Christmas Eve, we will have had him for 15 years....or maybe I should say he's had us :lol:

I vote for he's had you. Cats seem to be that way. :P

She has a cat flap which leads out to our garden and, on a not irregular basis, we find fluffy 'presents' in the kitchen in the morning. :ph34r:

And to top it off you need to appreciate their gifts to you. :ph34r:

Glad you're not risking getting sick before Christmas....I wouldn't want to either.

Keep us posted on how you are doing.

I should have my head examined.

Nah, but it does seem in part like you are doing a lot of work with those two vacuums that work. :P

Judyin Philly Enthusiast
Judyin Philly
Posted

hi all

will post on the dr apt later tonight after i figure out what to say.

Rachel tried to send you this re: friends from the 'new feature' page..and your mail box said it was full and this note was unable to be sent.

MY UNSENT PM FROM THE 'NEW FEATURE THREAD." TO RACHEL.

I have you in my friends list. Are you sure you don't have some kind of block of yours?

I'm not sure about this 'friends' thing. i tried to add Donna and couldnt' and then today she was on my list. There was a request from her by email notice she wanted me to be her friend and guess there was somehwhere on there that i must have ck'd. GOD I CAN'T REMBER ANYTHING ABOUT IT.

Lot's to learn here but the features are good esp the spell check.

thanks for all the info getting ready for apt..just not up to posting about it right now..

to tired and kinda overwhelmed again.judy

WOOPS ANOTHER QUESTION. SEVERAL HAVE ASKED...WHAT ARE THE MEANING OF THE GOLD STARS UNDER THE PERSONS ICON???? HOW DO YOU GET RATED & WHO DOES THE RATING.?? IS IT LIKE HOW LONG YOU'VE BEEN ON OR HOW MANY POSTS YOU'VE DONE??

dlp252 Apprentice
dlp252
Posted

Thanks all for the comments on my picture...glad I did that yesterday when I FELT like having fun, lol. Today not so much...all I want to do is sleep. I went in for my chiro/PT appointment (although they had an earlier appointment so I went then). I asked them if they wanted me to come in sick and they said yes, and as a matter of fact it was probably MORE important for me to come in than normal. So they worked on my lymphatic system...can't say that I feel any different, but it was a massage so who cares, lol.

I asked about whether the results of my stool testing were in, and they were, but they won't tell you like that, you have to speak to one of the doctors...I'll do that on Wednesday. I do know that whatever they found needs a prescription, cuz they mentioned that one was already written. :( Hoping it's not C.Diff, but also not sure if I want any of the other parasites/bacteria either. Not really sure if any others can be fixed by prescription, Candida maybe??

Friday I will be re-evaluated for the chiropractic/physical therapy stuff to see if there is any improvement (um, my best guess, NO, lol). Preparing myself for the :huh: look I'll get when I reemphasize the mercury/lyme thing. :lol:

Ha, bad kitty! :lol: That's a move in Yoga Booty Ballet, lol. We have some very bad kitties amongst this group, lol.

Susie - good, (okay, not good), but at least I'll have company on the elimination diet, which I pretty much have to start over cuz I ate a bunch of stuff I shouldn't have while on vacation, lol.

Judy - take your time about posting, but hurry up okay, lol. :lol: Just kidding, sort of. :P

happygirl Collaborator
happygirl
Posted

Donna, I just have to add that your picture is so cute!

dlp252 Apprentice
dlp252
Posted

Thanks Laura, wished my ears showed up more, lol. :lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Is everyone ready for Christmas??

Well....its one week away and I've bought one gift so far. B) This is about right for me though....even when I was healthy I was a last minute shopper.

I'm not doing that much shopping this year anyways....just a few things. All the medical stuff is kind of taking a big chunk out of Xmas spending. Hopefully next year will be a whole lot better.

I only asked Santa for one thing.....hopefully he got my letter. :)

EDIT:

OK.....I asked for 2 things....but I'd be happy with just one. :D

CarlaB Enthusiast
CarlaB
Posted
Carla,

No wonder you've been scarce.....Morgan is home. :)

Actually, I've been feeling REALLY bad for about a week. Today was a little better, but I've been spending most of my time resting. Morgan came home last Wed., but went back for the weekend for some of her HS friends' parties since we used to live where she is going to college.

CarlaB Enthusiast
CarlaB
Posted
I got him a vasectomy instead and he has been mostly well behaved for the last 10 years. :lol:

I did this to a dog that lifted his leg on a chair ... only it was more of a castration ... from then on my hubby would tell people, "You'd better not make her mad, you should see what she did to the dog!"

happygirl Collaborator
happygirl
Posted

x

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I didn't put "freakin" when I asked him, but its almost Christmas and I'm running out of time ;)

Oh yeah, and for a doctor that has a clue. :)

:lol::lol::lol:

Hmmmm....Did I put "freakin" on my letter?? I might have. <_<

I think I'm entitled though....Santa has forgotten me the last 4 Xmas's.

Yeah....C'mon Santa!!!

I luckily have most of the other good things in life....great husband, great family and friends, two kitties, and a wonderful gfforum.com

:):)

Yes...we cant forget those things...cuz without those...where would we be??

Well....I dont have a hubby....but I have all the other stuff. :)

CarlaB Enthusiast
CarlaB
Posted

I'm pretty much done with my shopping. Adam realized weeks ago that I was only good for a short trip to the mall/stores, so he started having me meet him at his office for a shopping lunch back then. We'd go shopping for an hour or two. Today Morgan and I went out shopping for his gifts. I think I also heard that Santa was working on Adam's stocking today.

I just have a few things I need to buy for Morgan. I'm just sending my nieces and nephews money this year ... cop out, but I feel bad ... the out of town adults are getting a big box of candy to share (they're all in the same place). I didn't do cards this year.

I had my blood taken for the coinfections today. She had the seal break on the blood container -- TWICE! So the other nurse came in and took it from the other arm. HEINOUS!

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I went out and bought a second vacuum cleaner for $40. Now instead of buying new filters, I just use the other vacuum cleaner to vacuum the filters.

Alison....I think you might be on to something!! I wonder if I could try this with my Dustbuster. :unsure:

CarlaB Enthusiast
CarlaB
Posted

I have an Orek upright with an anti-allergen bag -- the permanent bag is the one that traps the allergens, so you just get regular bags for inside. They're expensive, but I really like it. It comes with a second more portable vacuum, and a dust-buster, so you have all the vacuum cleaners you need with just one purchase! :lol: Expensive though.

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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