Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

happygirl Collaborator
happygirl
Posted

Patti and Donna:

Thanks ladies!!!!!!!

I think it is huge to. It is seriously the biggest relief. I never remembered a tick...but this is all proof that there was one h$ll of one that got me.....

I think I'm in shock.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
tom Contributor
tom
Posted

Yay! Happy for u too.

I'm feeling good enough from going soy-free last week that I'm off to play bball for the 1st time in easily over a yr! :)

dlp252 Apprentice
dlp252
Posted
I'm feeling good enough from going soy-free last week that I'm off to play bball for the 1st time in easily over a yr!

That's HUGE too! Yay!

happygirl Collaborator
happygirl
Posted

ok, so right now i see judy, rinne, donna, and susan----this makes me feel like a huge part of my family is here with me right now. :)

dlp252 Apprentice
dlp252
Posted
ok, so right now i see judy, rinne, donna, and susan----this makes me feel like a huge part of my family is here with me right now. :)

:wub: It's almost like we're there to celebrate with you!!!

jerseyangel Proficient
jerseyangel
Posted
:wub: It's almost like we're there to celebrate with you!!!

Yes--and to give you a big old group hug! :D

rinne Apprentice
rinne
Posted

Hi Laura, so glad you have had it confirmed. :wub:

Patti and Donna:

Thanks ladies!!!!!!!

I think it is huge to. It is seriously the biggest relief. I never remembered a tick...but this is all proof that there was one h$ll of one that got me.....

I think I'm in shock.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jmengert Enthusiast
jmengert
Posted

I'm happy for you, Laura! I hope this is the beginning of getting your health under control and to many better days ahead!

CarlaB Enthusiast
CarlaB
Posted

Laura, that's GREAT news!! I can honestly say, I know how you feel. Excited to have a diagnosis (we went out to celebrate the day I got my results), yet at the same time realizing you have a serious fight ahead of you.

You're strong, you'll be able to fight this now that you know what it is. It's been a long road for you. :D:wub:

rinne Apprentice
rinne
Posted
.....just that, I think many, many people HIDE in their illnesses, and accept the wastebasket diagnoses and the state of illness, because in that state, much less is demanded of them as humans and as participants in the world.

It takes courage, strength, and not a small amount of ferocity and tenacity to become well.....as we all know. :) All, hallmarks of Citizens of Rachelville.

Love and happy Friday to all! :wub:

Beautifully said. :P:wub:

....

My goal is to get better.....not to see how many foods I can restrict from my diet, and not to outdo others with the strictness of my anti-candida regime. I'm focused on the bigger picture...which is to get my body to a healthy state by eliminating the toxic burden.

Well said Rachel. :)

Rachel,

I wasn't questioning your personal health issues or decisions. I tried to present an opposing viewpoint on the topic of lingering candida.

Apparently that makes me argumentative. Seems more like a mars/venus thing to me.

Sorry if I offended u or anyone else.

Hi Tom,

Todays news from Laura is a wonderful example of why this thread is so precious to us.

As to the Mars/Venus thing, could be. :lol:

Essentially you walked into a room with a group of mostly women who have formed a close friendship, some of us have been talking to eachother for over a year and most of us have been through HELL. It has been not only our illness, which is devasting enough, but with doctors who have treated us without respect and family and friends who think we're crazy.

If we are protective it is only because this is one of the few places we come to and know we are safe. :)

We are AMAZONS. :lol::lol::lol:

jerseyangel Proficient
jerseyangel
Posted
If we are protective it is only because this is one of the few places we come to and know we are safe. :)

I've been wanting to say that all day--as usual, Rinne said it better than I could, and I thank her for it. :)

Mtndog Collaborator
Mtndog
Posted
I return to that moment where I understood that with each breath I have a choice.

I can lean toward illness or I can lean toward wellness and the leaning itself has power, if the leaning is supported with nutrition, detoxification and treatment then wellness may be realized. Conversely, if I lean toward ill health even with nutrition, detoxification and treatment I may not ever get well. What is that?

I see a lot of people get tangled up in their sickness, their sickness becomes a belief system they imbed their lives in. I am not interested in that.

What can be poison for you may be cure for me, what cures me may harm you, the road to wellness is as unique as the person walking it.

What I love, love, love about this thread is our joy and determination to be well.

rinne- that is what we love about you! What you just said is so beautiful. Like you. :wub: :wub:

Almond Spice is far too bland for you....I shall christen thee Serendipitous Spice.

Susie- You are under rachelville House arrest on this thread. we NEED you here!!!!!!!!! Esp to make fun of me. I love a good ribbing!

Donna- You have a beautiful smile (from your other avatar) so I crown thee Smiley Spice. :rolleyes:

Laura- YIPPPEEEEEEE!!!!!!!!!!!!!!!!!!!!!!!!!!! what a relief. It helps so much when what you're fighting has a name. I'm so happy for you!

Patti- That's great news about Marc's job.... I know you said PA but I forget where? Will you be close to Judy?

Tom (Murph)- yeah...you can go play that's great! And it could very well be the Mars/Venus thing. I think we also feel very protective of each other because we've been through so much in the 1171 pages of this thread! So, we are women hear us ROAR! Not at you, but at the thought of getting healthy!!!!

HAPPY FRIDAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! :wub: :wub: :wub: :wub: :wub: :wub: :wub:

AndreaB Contributor
AndreaB
Posted
So-------its official. This is what I have AND I have the paper to back it up. I have an appt on Monday to discuss everything.

Thank you to everyone---I am overwhelmed---laughing and crying....but it is proof that something IS wrong. I don't know what I would have done without everyone. HUGSSSSSSS :wub:

I'm so glad you have your answers and know what needs to be fought now! :D

Love and hugs back to you. :wub::wub: :wub:

Keep me on the email list if you do updates by email. :D

AndreaB Contributor
AndreaB
Posted
Yay! Happy for u too.

I'm feeling good enough from going soy-free last week that I'm off to play bball for the 1st time in easily over a yr! :)

That's great! Have a good time. :D

If we are protective it is only because this is one of the few places we come to and know we are safe. :)

I think I'm thirding or fourthing this. :P

We have grown very close over the last year. I'm the healthiest as far as symptoms go but I'm not taking that for granted. I'm also not sure if I have a candida problem and I'm not going there until my little guy is weaned late next year. He had enough of a problem with the tiny bit of chlorella I was taking.

I've pushed back my amalgam removal and crowns due to that. But, even if this thread is long dead by the time I can go through testing I will still keep everyone posted by email or pm's if I don't have their email address.

One of the reasons I'm still here is to learn but the far greater reason is my love for my friends here......that I've never met before this thread.

We welcome newcomers, this is not a clique, it's a growing family.

Love to everyone. :wub: :wub: :wub: :wub:

rinne Apprentice
rinne
Posted
.....

We welcome newcomers, this is not a clique, it's a growing family.

Love to everyone. :wub: :wub: :wub: :wub:

Yes, I love that too and thank you for saying it so well Andrea. :)

Oh and yes to Serendipitous Spice, that's me. :lol:

jerseyangel Proficient
jerseyangel
Posted

That was very sweet, Andrea.

I'm feeling especially emotional today--my husband gave his official notice, so we begin another chapter. Somewhat bittersweet.....I love that amidst all that we go through individually, we all have this place to come home to.

DingoGirl Enthusiast
DingoGirl
Posted
Dear Susie,

We are so glad you are here! You cannot leave. That is not allowed. You are being held captive in Rachelville. The dingos are guarding the gates. :P

silly girl! I am guarding the dingos! ;) But don't worry, we'll stick around.

ok, so right now i see judy, rinne, donna, and susan----this makes me feel like a huge part of my family is here with me right now. :)

:wub:

LAURA!!! so ecstatic for you!!!!!!!!! I'm going to pm you my email address......I am just not really up on exactly what Babesis is or does, or the other one - was it Erlichia? something like that? But now you know what buggers to treat! SO SO happy for you. and so happy that we, your cyber family, can be here for you.

The dingos send lots of kisses and a biff on your leg with their rear ends (kind of like canine HIGH FIVE) ;)

Essentially you walked into a room with a group of mostly women who have formed a close friendship, some of us have been talking to eachother for over a year and most of us have been through HELL. It has been not only our illness, which is devasting enough, but with doctors who have treated us without respect and family and friends who think we're crazy.

If we are protective it is only because this is one of the few places we come to and know we are safe. :)

We are AMAZONS. :lol::lol::lol:

:lol::lol::lol::lol: Amazonian Lyme Ladies of the Rachelville Paradise Cult Farm in-the-Mountains-by-the-Sea. ;)

whew - - good thing we smoothed over the slight disharmony in Rachelville - - I was goign to have to send the dingos out to find those shirtless cops we had last summer....... :P

Yay Tom for the baseball!!!!!!!!!

We welcome newcomers, this is not a clique, it's a growing family.

Yes! Well-said, Mother Spice! (or was it - Mama Spice? can't remember)....

Bev - - you are just a lunatic.......through and through....... (winky face here)

AndreaB Contributor
AndreaB
Posted
:lol::lol::lol::lol: Amazonian Lyme Ladies of the Rachelville Paradise Cult Farm in-the-Mountains-by-the-Sea. ;)

I don't know how you keep that straight. :blink::o:huh::lol:

AndreaB Contributor
AndreaB
Posted
I'm feeling especially emotional today--my husband gave his official notice, so we begin another chapter.

An exciting chapter......just remember to relax, you don't want to get yourself sick. :)

DingoGirl Enthusiast
DingoGirl
Posted
I'm feeling especially emotional today--my husband gave his official notice, so we begin another chapter. Somewhat bittersweet.....I love that amidst all that we go through individually, we all have this place to come home to.

It IS emotional! Big changes (and good ones!) ahead for you and Mark......another chapter - - another adventure! We will be here for you. ;)

I don't know how you keep that straight. :blink::o:huh::lol:

:lol::ph34r: If dingo-brained memory serves me correctly.....I may have been the one to kind of give it the name GFPCF - - I think, as we started describing our perfect world - - yours truly just *may* have been the one to say, this sounds like a CULT :lol:

I have a very active and whimsical imagination, you have all let me sort of run wild with it on this thread :lol: which is why I am back again!

:wub:

AndreaB Contributor
AndreaB
Posted
I have a very active and whimsical imagination, you have all let me sort of run wild with it on this thread :lol: which is why I am back again!

:wub:

Run away.....We love having you here! :wub: I hope you don't want me to post the town list again :ph34r: .........it's not even up to date. I do have it on my computer though. :ph34r:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
So-------its official. This is what I have AND I have the paper to back it up. I have an appt on Monday to discuss everything.

BIG NEWS indeed!! :D

Lots of reading and catching up to do but just HAD to respond to this right now.

I'm so happy for you Laura....I know its not the BEST diagnosis in the world....but OMG...its proof...and its official.....and you are going to get better!! :)

No reasons for anyone to second guess you now. ;)

I know how much it meant to you to have those positive results...especially having gone through all the same stuff I went through with all the Dr.'s...getting the runaround and noone taking things seriously.

I know it must have been killing you to wait for the results...well....for me its always the worst part. I'm not very patient. :ph34r:

Just wanted to say congrats. :D

I never doubted you were on the right track with this but its certainly nice to have the positive results in your hands for reassurance. :)

I'm sure its really emotional for you to have these answers finally. Will look forward to your posts. I'm kind of pre-mature posting so maybe there is more info. I havent read yet.

Anyways.....YAY!!! :D

Now my next question is.....are you gonna show these results to any of your previous docs?? :P

happygirl Collaborator
happygirl
Posted

rach-

real quick---- thanks for all your sweet words :)

and the running joke is that i'll send the results, with a nice letter (a la rinne!), and a picture of me, holding a certain finger up. don't worry, its a joke, but i've laughed (and cried) over it a handful of times already.

tom Contributor
tom
Posted

Only four minutes until a shuttle launch!

Always an amazing spectacle.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Todays news from Laura is a wonderful example of why this thread is so precious to us.

Yeah..its just the most exciting thing to me to see all my friends getting answers and I just know we're all gonna be healthy one day soon. :) We'll have a real-life Rachelville get together....lots of food and Rinne Bars for everyone!! :D

I still remember when Laura first joined us here....and she said something to the effect of never thinking she was as bad off as "Rachel is" and so she didnt think she really needed to join this thread....but made the decision to jump in anyways.

I think my face looked like this... :o....it was pretty funny though...I always laugh when I think of that. :lol:

Yeah....nobody wants to end up in Rachelville where people cant eat anything. :rolleyes:

Little do they know how much fun we have. :P

Anyways...we're all really glad you did decide to join us Laura. We all love you and are very happy for you today. :wub:

If we are protective it is only because this is one of the few places we come to and know we are safe. :)

Yup...this thread is near and dear to us....our home away from home...the one place where the light is always on and everyones always welcome. :wub:

We are AMAZONS. :lol::lol::lol:

:lol::lol:

True that!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    2. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    4. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748
    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.