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Omg...i Might Be On To Something


Rachel--24

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rinne Apprentice
......

I brought a couple of ice packs to work, since sitting seems to be the most uncomfortable...I've iced it this morning and so far it's not bad. I still can't bend or stoop well, but mostly it's better. I see the PT/doc again tomorrow.

Good news. :)

....

Rinne, I am also very interested in the info about the scars, I was not on the ball when Rachel first posted and didn't get it copied over, this means we must go back to fetch it... :ph34r: Scary!

....

Fortunately we do not have to be afraid, Rachel has come to our rescue. :)

Julie...I'll try to find the scar info. for you and Rinne today when I get off work. Dont try to go back!! :o

....

Thanks Rachel. :) I am afraid to go back too. :lol:

I was wondering if anyone has used bee pollen, it seems to be a good source of a number of nutrients.

I'm having another sleepy day. The weather here is overcast and there is a chilly wind, that always seems to affect me.


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confusedks Enthusiast

Julie,

I am only 17, but I have a friend who had surgery like this (a little different, but same concept) at the age of 12! :o It is actually pretty common to have it at a young age since scoliosis, etc. are usually developed at in adolescence. The reason I would have suregery is because I have had a back brace, etc. but it makes my sciatica problems worse. If I didn't have a disc bulge, I wouldn't EVER even consider surgery, but the pain is so unbearable I can't handle it much longer.

Rachel,

Thank you for the information about titanium. I guess at this point, there would be no real way to find out if I'm allergic...or is there maybe muscle testing for that? I am not against putting it in my body as it would be temporary from what my doctors have told me. Temporary meaning no more than a year or so.

Tom,

I am looking forward to hearing what your mom had done! I didn't mean to start a little heat between anyone, I just was more excited that someone (your mom) had good results with her surgery. Spinal surgery is scary and a BIG freakin' deal! So, it was very fitting when you posted that, because we had just talked about my options...and it gave me the possibility of a brightside!

Kassandra

ami27 Apprentice

I have had somewhat of a setback :( I'm sure it's from my own inability to pace myself. When I feel good I always overdo it. So it started last week. On Monday I had my second IV chelation treatment. I felt really good afterward as I did with the first one. So on Wednesday when I was off work I spent the whole day painting my office. I was exhausted by the end of the day. Then again the next day. By the time I got home from work on Friday I was wiped out like I used to be. I hadn't felt like this in a long time. So my husband took the boys to dinner and to see a movie so that I could relax. So what do I do? I decide to add some cilantro (a good handful) to my dinner. After that I decide to take a detox bath. I was hoping that I could get whatever was causing me issues, out of my system. But, I think I may have just stirred things up and made it worse. Who knows?? Then I woke up Saturday with the awful pain in my arm that I posted about. I was so 'out of it' mentally that I didn't even think about the all day paint-fest having anything to do with my arm hurting. But, now I think it did. So I've been in a fog with a hurt arm since Saturday!! I worked from home today, but got little done 'cause all I can seem to do is surf the net and do mindless tasks. ugh! It's so frustrating. I never give myself enough time to just heal before I over do it. I'm sorry to have gotten the discussion going about titanium. I don't think I have a problem with it, but appreciate all information. In my opinion the more information the better, I can take into consideration and make a more educated decision. But, It seems to just be that I've never regained the strength in that arm since the accident. I've been too tired to really work it and then when I do use it like that I pay for it. It used to hurt when I'd ride my bike too. But, I just kept doing it and now I can handle that pressure without it causing pain. I did talk to my doctor about all this and I'm not doing any other detox things until we are done with all the IV's. See I'm rambling...going to veg and watch a little tv now. I sure hope I'm better tomorrow. I was just getting used to feeling good.

CarlaB Enthusiast
I have had somewhat of a setback :( I'm sure it's from my own inability to pace myself. When I feel good I always overdo it. So it started last week. On Monday I had my second IV chelation

treatment. I felt really good afterward as I did with the first one. So on Wednesday when I was off work I spent the whole day painting my office. I was exhausted by the end of the day. Then again

the next day. By the time I got home from work on Friday I was wiped out like I used to be. I hadn't felt like this in a long time. So my husband took the boys to dinner and to see a movie so that I

could relax. So what do I do? I decide to add some cilantro (a good handful) to my dinner. After that I decide to take a detox bath. I was hoping that I could get whatever was causing me issues, out of

my system. But, I think I may have just stirred things up and made it worse. Who knows?? Then I woke up Saturday with the awful pain in my arm that I posted about. I was so 'out of it' mentally

that I didn't even think about the all day paint-fest having anything to do with my arm hurting. But, now I think it did. So I've been in a fog with a hurt arm since Saturday!! I worked from home today,

but got little done 'cause all I can seem to do is surf the net and do mindless tasks. ugh! It's so frustrating. I never give myself enough time to just heal before I over do it. I'm sorry to have gotten the discussion going about titanium. I don't think I have a problem with it, but appreciate all

information. In my opinion the more information the better, I can take into consideration and make a more educated decision. But, It seems to just be that I've never regained the strength in that arm

since the accident. I've been too tired to really work it and then when I do use it like that I pay for it. It used to hurt when I'd ride my bike too. But, I just kept doing it and now I can handle that

pressure without it causing pain. I did talk to my doctor about all this and I'm not doing any other detox things until we are done with all the IV's. See I'm rambling...going to veg and watch a little tv now. I sure hope I'm better tomorrow. I was just getting used to feeling good.

I just needed to break it up to be able to read it ... sorry, just ignore me. :)

CarlaB Enthusiast

Ami, I'm sorry, I hope you feel better soon.

tom Contributor
And you know this how?? Is it because you've studied allergy to titanium in the past and have aquired diferent results?? It sounds like you are making an assumption but do you have anything to back up the claim that the number is exaggerated??

Seems like any attempt to explore a viewpoint opposing yours instantly devolves into inane rhetoric.

There is nothing backing up the claim that 1 out of every 20 ppl are allergic to Ti !!!!!

That site, melisa.org, belonging to a group of companies that want us all to test for Ti allergy has nothing to back up the 5% number, save the preposterously vague "There are studies . . . ." statement.

I let things slide almost every time I come here, but being overly alarmist about Ti when Kassandra will have surgery soon? I had to speak up.

tom Contributor
Tom,

I am looking forward to hearing what your mom had done! . . . . I just was more excited that someone (your mom) had good results with her surgery. Spinal surgery is scary and a BIG freakin' deal! So, it was very fitting when you posted that, because we had just talked about my options...and it gave me the possibility of a brightside!

Kassandra

It IS scary and "a BIG freakin' deal!" ! But the truth really is that great strides have been made.

Here's what she said she had done:

"Anterior Cervical Corpectomy and a posterior cervical plate and lots of cadaver tissue, plastic , screws and some other materials.

This included fusions and removal of other stuff."

All I know is that she can't skate thru airport metal detectors any more, the xray looks freaky, and that she went SKIING!!!!!! :)


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AndreaB Contributor
I have had somewhat of a setback :(

I hope you feel better soon. When's your next chelation?

That site, melisa.org, belonging to a group of companies that want us all to test for Ti allergy has nothing to back up the 5% number, save the preposterously vague "There are studies . . . ." statement.

I let things slide almost every time I come here, but being overly alarmist about Ti when Kassandra will have surgery soon? I had to speak up.

Maybe it's like enterolab. Most people they test have a problem with gluten as that is one of the things they test for. Melisa.org companies would see more prevalence because that is something they test for. To me, people wouldn't be getting tested if they hadn't gone through other testing and ruled things out.

Kassandra,

Did you say your appointment is at the end of the month? Was this a consult for surgery/options?

ami27 Apprentice
I hope you feel better soon. When's your next chelation?

Thanks. My next chelation is Tuesday the 9th. I'm not over doing anything afterwards either. I'm going to take the binders and diflucan (along with my other daily stuff) and take it easy. Well as easy as one can take it with a job, a husband and 2 boys :)

Rachel--24 Collaborator
I let things slide almost every time I come here, but being overly alarmist about Ti when Kassandra will have surgery soon? I had to speak up.

Ummm.....thanks for "letting things slide". :rolleyes:

We share info. here....thats whats we've been doing looooong before you started posting here.

As far as I know...so far people have mostly benefited from that sharing of info. I dont know of anyone who has been harmed by being made *aware* of these things.

The thread has remained active nearly 17 months now...so I do believe some people are interested in learning new things.

I'm not sure exactly what your reason for posting here is (other than to dispute and sometimes "let things slide") but my purpose is to share my experiences, things I've learned from others (including my Dr.'s) and to help people who are looking for answers.

As far as being an "alarmist" when Kassandra is about to have surgury?? WTH are you talking about??

Ummmm...I was not even aware that Kassandra was gonna have surgury...or titanium for that matter. My post was directed to AMI....who actually *asked* for opinions. Here is a portion of her post (in case you missed it).

I would like your expert opinions on what is going on with me. Friday I ate a bunch of cilantro with some chicken. Later that evening I also took a detox bath (dead sea salt, epsom salt and detox essential oils). Saturday I woke up with my forearm hurting like it's never hurt before. Almost 3 years ago I fell roller skating and dislocated my elbow, shattered the radial head AND broke my ankle. I ended up having surgery and had a plate and 6 pins put in my ankle. I had to have a titanium spacer put in my elbow where the radial head was shattered. It was this forearm that was hurting.

I responded with every possibility I could think of....titanium being one of them...although the least likely.

Kassandra and her surgury had *nothing* to do with it.

For the first time on any message board I think its best to use my "ignore" feature. I feel that you have repeatedly felt the need to "challenge" info that I've posted (with nothing to back up your claims) and to initiate conflict.

Frankly, I dont think its in the spirit of this thread. We've always been here to learn from each other. What did we learn different about titanium allergy since my original post?? As far as I can see....you didnt contribute any new info.....all you did was claim that my info. was *wrong*. This is not the first time but you can be sure that its the last time. ;)

I'm really interested in learning new things....I'm not really benefiting from your posts so I see no reason to view them.

Hopefully this will prevent any furthur distractions from the thread.

Rachel--24 Collaborator
Then I woke up Saturday with the awful pain in my arm that I posted about. I was so 'out of it' mentally that I didn't even think about the all day paint-fest having anything to do with my arm hurting. But, now I think it did. So I've been in a fog with a hurt arm since Saturday!! I worked from home today, but got little done 'cause all I can seem to do is surf the net and do mindless tasks.

Ami...I agree that you overdid it with the detoxing as well as with the all day paint fest. We learn as we go.

Anyone here can tell you I've overdone it with just about everything you can think of....especially foods. :P

I had several paint-fests as soon as I started feeling good after making diet changes. I ended up causing myself a setback when I took on staining the fences outside. The chemicals in that particular paint set me back for awhile. That was pretty much the end of my painting project. :(

It makes sense that your arm pain was caused by overdoing it with the painting. With detox its best to go slow...if you end up mobilizing more than you can excrete you get symptoms of redistribution. Brainfog, confusion, depression, mood swings and those types of things are typical of too many metals floating around.

If you're doing chelation you dont wanna add anything else to that right now. Later on in your treatment you can probably do additional things to help detox but in the beginning its better to go slow and take it easy...like you said. :)

Even excersice can mobilize metals so between the chelation, the cilantro, the bath and the paint fest it was probably much more than you could handle right now.

My next chelation is Tuesday the 9th. I'm not over doing anything afterwards either. I'm going to take the binders and diflucan (along with my other daily stuff) and take it easy

That sounds like a good plan. Good luck with the next chelation.

Rachel--24 Collaborator

Rinne and Julie...heres the post I did about scars awhile back. It was from Dr. K.

Migraines, Seizures, and Mercury Toxicity

Chronic pain and other long-term symptoms often get resolved after a series of injections with a local anesthetic. It's called NEURAL THERAPY, and it works through the nervous system.

RICHARD LEVITON

--------------------------------------------------------------------------------

Maisie, a 32-year-old actress, had suffered from migraine headaches for nine years. They occurred twice a week and were so intense that she had to retreat to her bed with a cloth over her eyes, all the lights off, and the blinds drawn.

Most of the time, the pain lasted through the day, and the next morning she would feel nauseous and exhausted from the ordeal. Maisie was taking a serious amount of conventional migraine medications but none of the drugs abated the frequency or the severity of the attacks.

Maisie was fortunate in making contact with a physician who has an unusual approach to treating chronic pain conditions such as migraines. Dietrich Klinghardt, M.D., Ph.D., who practices in Seattle, Washington, asked Maisie when her migraines started.

She told him that, nine years before, she had been injured on a movie set when a prop gun discharged wrongly and seared her upper arm with powder burns. The burn wound was surgically treated three times to produce a cosmetically acceptable result, but it still left a large, highly visible scar.

Maisie's migraines started four months after this accident; she had never had migraines before. From Dr. Klinghardt's perspective, the scar was the cause of the migraines, and this understanding suggested the proper course of treatment.

After he gave Maisie a single injection into the scar of 1% procaine, a standard local anesthetic, she never had another migraine attack. That was ten years ago. The secret of how a scar can cause migraines and many other chronic conditions, and how injecting the scarred sites with an anesthetic can produce lasting relief, is the essence of Dr. Klinghardt

AndreaB Contributor
Well as easy as one can take it with a job, a husband and 2 boys :)

Just do the best you can. :D

--------------------------------------------------------------------------------

What a Scar Remembers

"Any part of the body that has been traumatized or ill -no matter where it is located- can become an interference field which may cause disturbance anywhere in the body," explains Dr. Klinghardt. In his estimation, 30-45% of all illness or pain is caused by an interference field or a linked series of such fields.

--------------------------------------------------------------------------------

I find this very interesting. It will probably be a long while before I can get far enough in treatments to know if my abdominal scars are causing any problems.

Any scar that results from an accident, surgery, or illness can produce a strange, hidden, but long-lasting effect on a person's health, explains Dr. Klinghardt.

Dr. Klinghardt notes that an injection in tonsil tissue can often relieve chronic migraines. The four front teeth of the upper and lower jaw are related to the urogenital system; problems with these teeth are frequently responsible for pelvic pain, chronic kidney disease, and even cancer in the pelvic organs.

In other words, scars and sites of physical trauma generate an energy field that interferes with the body's proper functioning. Dr. Klinghardt estimates that dental factors, extraction sites or root-canaled, devitalized or impacted teeth, can account for between 50% and 80% of interference fields.

--------------------------------------------------------------------------------

This is also interesting to me. My dad had dentures when he was a child. He lost all his teeth quite early in life. Makes me wonder if any of that made him more susceptible to prostate cancer and it spreading to his bones and kidneys.

The rest of the article is here....

Open Original Shared Link

My Dr. who does ART checks for scar disturbances. I didnt have any scars so it was a non-issue for me but she would primarily be looking at any "traumatic" scars...scars that go across the abdomen can cause alot of stress if I'm remembering correctly.

What about your head trauma from the accident. Do they think at this point in your treatment that that may be a problem.

Rachel--24 Collaborator
What about your head trauma from the accident. Do they think at this point in your treatment that that may be a problem.

No...they dont seem to think so. All of the Dr.'s are aware of it but noone has really felt its related to anything going on now.

There was no surgury, scars or lasting effects from it. I healed quickly and it was a very long time ago. I've wondered about it but the Dr.'s dont seem to think its significant. They've always been looking more along the lines of toxic insults from mercury, infections, mold, chemicals and those types of things....my symptoms point toward those things as triggers. I think they've pretty much ruled out trauma or emotional issues as a cause.

Green12 Enthusiast

Thanks so much Rachel for posting the info on scars, excellent info...and, you saved rinne and me from having to go back :lol:

I am making sure to copy it this time, good info flies through Rachelville so fast you've got to catch it when it first comes along!

Ami, hang in there!

Rachel--24 Collaborator

For anyone interested here is the link to several of the MELISA metal allergy studies. Apparantly these studies DO exist and the full articles for each study are available on their site.

Open Original Shared Link

MELISA does not just test titanium...they test all metals. Seems like Nickel is the most allergenic....which is not surprising.

The studies are interesting....mercury and materials used in dentistry are in most of these studies.

Heres a couple that incuded titanium..

Validity of MELISA
rinne Apprentice

Rachel, thanks for the information on scars.

Have I mentioned I had both my front teeth knocked out when I was ten, ended up with absysses and constant pain until they finally pulled what was left of them. I would fall asleep with aspirins on my gums to numb the pain and wake up to dead skin in my mouth. Okay TMI.

The caesarian and then further abdominal surgery, though my scars run like train tracks, up and down not across.

The constant ABX for acne in my early twenties.

The car accident in my twenties that left me with a pin down my femur for a couple of years, a broken jaw and the loss of a perfectly good tooth as a result. And a lovely scar on my butt.

Scarlet fever at thirty that nearly killed me.

I was remembering recently that it was after the vaccinations I received at 9 or so that I had a feeling of dislocation and that I exhibited mild signs of OCD which passed but now when I think of it, I feel I was poisoned and that poisoning set a pattern of future vulnerability.

Okay way too tired, night all. I'll be busy the next few days but will be reading along even if I'm not posting. :)

jerseyangel Proficient

That information on scars was most interesting. I had a vertical scar from a C-section that after 22 years was actually removed and replaced by another last year when I had surgery.

That probably only confused that matter, when you think about it. If the pathways were disturbed then, I would think they are even in a worse confusion now. :unsure:

Flor Apprentice

Rinne! Oh my gosh what a road you've traveled! How did you get scarlet fever??? I thought people didn't get that anymore. Something new to worry about!!!

dlp252 Apprentice
I never give myself enough time to just heal before I over do it.

...

I did talk to my doctor about all this and I'm not doing any other detox things until we are done with all the IV's. See I'm rambling...going to veg and watch a little tv now. I sure hope I'm better tomorrow. I was just getting used to feeling good.

I'm sorry you've had a setback, but believe me I think we've ALL done that here...I know I have. I'm doing it now... :ph34r: And, if you're like me, you'll have a few more of these episodes before you really learn, lol. My doctor told me no strength work until I get over this back thing...so yesterday I was feeling really good and decided to get on the treadmill at work so to be safe I kept the speed very slow and no incline--that's not strength, right?! Well it went well for a few minutes so I decided to speed it up a bit and increase the incline...as soon as I did that I could feel a twinge in my back. Fortunately, I heeded the message THIS TIME and put the incline back to 0 and the speed back down, but I can't tell how many times in the past I would have just ignored that twinge. I think I'm finally getting it, but it's taken a long time!

Anyone here can tell you I've overdone it with just about everything you can think of....especially foods. :P

Who? Rachel?! Overdoing it? :lol::P

Judyin Philly Enthusiast

Donna --glad your back is better and your listening to it :lol:

Renni-- will have to add this info to your bio from the lod thread..

Rachel--well let's hear it for Judy escaping under the gun on the 't' hip replacement joint. :lol:

Yes the scars issue..........you know that the rash i get in the lymphedeme leg when it comes is AWAYS ALONG the scar line from the back of knee to top of buttock from bone graft on the thigh bone from the unhealed break i walked on for a year ..............broken............ :ph34r:

Patti used a word for me that it was tenacious

I love that word and never ever thought of it when thinking of myself...

that's my MATRA now.

I guess one could say i was stupid for walking on a broken leg for a year............wasn't doing doctors back then................. :ph34r: (take that double meaning any way you want ;) ) but i now prefere to think i was just plain TENACIOUS :lol:

LOVE YOU ALL

JUDY

ami27 Apprentice
Anyone here can tell you I've overdone it with just about everything you can think of....especially foods. :P

I'm sorry you've had a setback, but believe me I think we've ALL done that here...I know I have. I'm doing it now...

Well at least I'm in good company :D

dlp252 Apprentice
(take that double meaning any way you want ;) )

OMGosh, good thing I didn't still have that big sip of water in my mouth that I just took, because it would have been all over my computer when I read this. :lol: :lol: :lol:

Scars...two from sugery: I have that big one on my abdomen...goes across and the ones from the surgery last year which is mostly internal, but two small on the outside. I also have one on my leg that I forget about...when I was very young I ran into a metal "survey" pole...those little sort of corkscrewy kind of skinny stakes that they tie little flags to. I was running at full speed and ran right into one of them and cut my shin open. I still have the scar from that although it is mostly faded now. That's on the left side. I also have a scar on my left instep from when I fell down my dad's driveway sometime in the late 80s or early 90s. My left foot kind of ended up underneath me and I slid down his graveled walk. That's largely faded too.

I've also had a couple of severe bruises that I can remember...one time my whole knee cap was blackened (feel on a wet floor at work back in the 70s). On my right front ankle area last year when I fell off the mini trampoline after getting my foot caught in the cover...I still have discoloration from that one. :(

Two broken toes ...about 17-18 years ago I dropped a piece of exercise equipment on them.

Gosh, I'm a bit accident prone aren't I. :ph34r::lol:

jerseyangel Proficient
Gosh, I'm a bit accident prone aren't I. :ph34r::lol:

Good gosh, Donna :o I hurt just reading that.

jerseyangel Proficient
wasn't doing doctors back then.................

Well, THAT'S good to know :lol:

You may be even more tenatious than I thought :unsure::D

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      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
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