Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

CarlaB Enthusiast
CarlaB
Posted

Happy Birthday, Sherry!

I think China is ahead of us .....

Donna, I really feel it is helping with the bloating, and nothing has before. :) Fortunately, today I did not see any tapeworm. :) I SAW about 4 feet, and I didn't do a thorough search, so there very well could have been more. It was making me nauseous for quite some time after I used the bathroom .... I think just the idea of it nauseated me!

I have to adjust to the new colors, too! I'm looking at it for the first time and don't have my glasses on ... so we'll see later! I didn't like the gray and blue, but I liked the blue it was before .... I think I'll like the green ... it's my favorite color!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
confusedks Enthusiast
confusedks
Posted

I'm not so sure I like the new board format. It's a little confusing...I guess I'll get used to it. ;)

Kassandra

Flor Apprentice
Flor
Posted

Sorry to interrupt here with an unrelated (but related) item:

This is a new report on possible link between electro-magnetic radiation and mercury toxicity. YIKES!

Open Original Shared Link

confusedks Enthusiast
confusedks
Posted

Okay, I have REALLY GOOD NEWS!!! The insurance has approved up to $800 a day for iron IV's!!!!! YAY!!!!!!!!!!!!!!!! Since the IV's cost about $300- 500 a day, so there will be enough for a PICC line also. The Dr. just needs to order that and figure out exactly how this will all work out. I am so relieved!!!

On another note, the Igenex stuff still hasn't gone through. We decided that we are going to get blood drawn through the Medical Group I was going to (the ones who ran the most recent blood work) and since it's only $35 for the Western Blot, my mom figures if it comes back positive then great...but if its negative we will pursue Igenex.

Kassandra

Green12 Enthusiast
Green12
Posted
Sorry to interrupt here with an unrelated (but related) item:

This is a new report on possible link between electro-magnetic radiation and mercury toxicity. YIKES!

Open Original Shared Link

catesfolly, you aren't interupting! Jump in any time.

YIKES is right! Thanks for posting that.

Kassandra, GREAT NEWS on the insurance coming through for your iron IV's!! I am sure you and your family are so relived about that.

That is the route I went, same price for the test, might even be the same lab. Igenex is the next step so you can see how that one worked out for me :lol:

Anybody heard from SUsie UK? She hasn't posted in a long time.

Carla, that's good you are noticing less bloating with the product.

You must be feeling well, I can tell when you aren't around as much you are probably out and about living your life!

I don't care for the board change, I love green, but I can't read this very well, the posts are muddled together :(

CarlaB Enthusiast
CarlaB
Posted

catesfolly, thanks for posting that!

Kassandra, I'm glad the iron is covered ... and the Western Blot sounds like a good idea, maybe you'll get a positive and won't have to worry about IGeneX.

It looks like I am going to get through this cold without a Lyme flare! This is HUGE! I do have more muscle aches than normal, and a little knee pain, but a small cold used to send me to bed for two weeks .... this time it was a fever and bed only one day. :)

AndreaB Contributor
AndreaB
Posted
Sorry to interrupt here with an unrelated (but related) item:

This is a new report on possible link between electro-magnetic radiation and mercury toxicity. YIKES!

Open Original Shared Link

Thanks Catefolly. I've heard lots of stuff about how bad cell and cordless phones are. It's interesting to see a report on it.

That is the route I went, same price for the test, might even be the same lab. Igenex is the next step so you can see how that one worked out for me :lol:

Anybody heard from SUsie UK? She hasn't posted in a long time.

Carla, that's good you are noticing less bloating with the product.

You must be feeling well, I can tell when you aren't around as mucch you are probably out and about living your life!

I don't care for the board change, I love green, but I can't read this very well, the posts are muddled together :(

Is Igenex in your future?

Susie UK was reading a day or two ago.

Yep, Carla's not on as much when she's feeling better.

I don't like the format very well. I agree it's hard to read the posts now with the poster information strung across the top of the post instead of the side. I do like the green color though.

It looks like I am going to get through this cold without a Lyme flare! This is HUGE! I do have more muscle aches than normal, and a little knee pain, but a small cold used to send me to bed for two weeks .... this time it was a fever and bed only one day. :)

YAY!!!!!

Kassandra,

I thought I'd hit quote for your post.....anyway YAY on getting the IV's approved!

I do hope your mom will follow through with Igenex if your other lyme test comes out negative.....which I won't be surprised if it does......see Julies response.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Yeah, I get busy playing catch-up when I'm feeling well. Today I feel pretty good ... it's just that I'm supposed to be cleaning ... gosh, I'm worse than the kids!

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Sorry to interrupt here with an unrelated (but related) item:

This is a new report on possible link between electro-magnetic radiation and mercury toxicity. YIKES!

Open Original Shared Link

Unfortunately this stuff is true. I've posted a little about it awhile back. There is a definate link and very often people who are highly toxic with metals will notice reactions to EMF's. There was a time when I'd feel it just sitting in front of the computer...although its not so bad anymore.

My Dr.'s have talked to me about EMF's and I've been tested for EMF stress...and they did find that my body was under some stress from that. I had to stop using my electric blanket and I unplugged the cordless phone that was in my room...also the alram clock that was over my head.

I'm supposed to avoid putting my cell phone up to my head but I havent addressed that yet. :ph34r:

One of my Dr.'s said that this is definately showing up as a problem with her autistic kids. She said some of them will go nuts when they get around a cell phone tower...and some have to be holding onto some type of electronic device at all times or they have meltdowns.

I asked her if this stuff is gonna prevent me from recovering. She said that right now we just really need to focus on getting the metals out.

She also told me to not put my body right next to the computer tower....she said to keep my body away from it as much as possible.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

I cant read the board as well....it hurts my eyes. :(

I'm not sure what it is cuz I love green ....its my favorite color...but my eyes dont adjust too well to this. All the posts seem to run together. :unsure:

Hopefully my eyes will adjust cuz right now its hard for me to read the posts.

Maybe its the font?? Is the font lighter or something?? :unsure:

confusedks Enthusiast
confusedks
Posted

Julie,

Lol! I am not expecting anything from this lab. If it comes back negative, we will pursue Igenex, but if it's positive, we won't unless the LLMD wants us to.

Kassandra

ami27 Apprentice
ami27
Posted

Thank you all for your kind words of support. You are all a great group of people :wub:

tom Contributor
tom
Posted
Okay, I have REALLY GOOD NEWS!!! The insurance has approved up to $800 a day for iron IV's!!!!! YAY!!!!!!!!!!!!!!!!

YAhOOOOOoooooooooooOOOOOOOO!!

So happy for you!!! :)

It's a lonely and precarious position to be hoping an Insurance company will do the right thing. <_<

confusedks Enthusiast
confusedks
Posted
YAhOOOOOoooooooooooOOOOOOOO!!

So happy for you!!! :)

It's a lonely and precarious position to be hoping an Insurance company will do the right thing. <_<

Tom,

Lol!! Thank you! We are very happy! Now I am freaked out to get the PICC line! AHH!!

Everyone,

The place that was going to run the test for Lyme (western blot) didn't call me back today! I guess I will have to wait until Monday or Tuesday.

Kassandra

Green12 Enthusiast
Green12
Posted
Thank you all for your kind words of support. You are all a great group of people :wub:

I've been thinking a lot about you Ami, I hope you are holding up ok.

Don't be a stranger.

Green12 Enthusiast
Green12
Posted
Everyone,

The place that was going to run the test for Lyme (western blot) didn't call me back today! I guess I will have to wait until Monday or Tuesday.

Kassandra

You might be in for a little bit of a longer wait with the timing of all of this. It will be a short week for offices/labs next week with Thanksgiving.

Judyin Philly Enthusiast
Judyin Philly
Posted

Oh My Gracious........... :blink:

I haven't been on a few days............

This format has sure changed

It is so bright i just can't read it.

I was just reading the one page posts here and I'm going to have to get off.

I just have to squint to keep the brightness out. :o:(

confusedks Enthusiast
confusedks
Posted

Judy,

If you press refresh, it won't be as bright...

Julie,

Grr! I hadn't thought about that! It's like there something going on because every time I try to get something done...it doesn't happen!!! :angry:

Jin,

WHERE ARE YOU!???

Kassandra

AndreaB Contributor
AndreaB
Posted
My Dr.'s have talked to me about EMF's and I've been tested for EMF stress...and they did find that my body was under some stress from that. I had to stop using my electric blanket and I unplugged the cordless phone that was in my room...also the alram clock that was over my head.

She also told me to not put my body right next to the computer tower....she said to keep my body away from it as much as possible.

I had EMF stress come up on my ASYRA testing. I'm still on the computer almost all day. :(

Looks like the main board color has been toned down now........still light print though.

confusedks Enthusiast
confusedks
Posted

Andrea,

I know...the print is too dull...it needs to be black...not charcoal! LOL!

Kassandra

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

I had DMPS again yesterday. It went really well...no problems at all.

I wish I had been collecting urine again but I do feel alot better knowing that last time the metals were coming out.

I wish I had started earlier so that I might be eating holiday food this year. :(

I had a baby dose again (1cc). My Dr. wrote on my chart "DMPS 1-3". The nurse told me since he wrote that I could pick which dose I want 1-3. :huh: I was really tempted to say "2 please". :)

I know what my Dr. meant by 1-3...so I told her he wants me to start with 1 and then work up to 3.

So I got the smallest again. :rolleyes:

I asked her if anyone else is getting 1cc...and she said no..that most people get 5cc's...which is the "normal" dose. I said "Everyone else is getting 5 cc's??" :blink:

She said thats what most people get. I told her my doc said I probably wont ever have 5 cc's. :(

Judyin Philly Enthusiast
Judyin Philly
Posted

Thanks guys this is better.

doing it in bold so we'll see how this comes out.

NoGluGirl Contributor
NoGluGirl
Posted

Dear Everyone,

Just when I thought I was getting caught up, there was more! Do not worry, I am reading along and will post soon. I have been busy, but will respond shortly.

I just worry this new format will mess up my ability to recall things as well. Tomorrow, I may get my hair done! Maybe by this time tomorrow, I will have my Jen Zen going on!

Sincerely,

Jin

AndreaB Contributor
AndreaB
Posted
Thanks guys this is better.

doing it in bold so we'll see how this comes out.

I need to try and remember to post everything in black. :)

Just when I thought I was getting caught up, there was more! Do not worry, I am reading along and will post soon. I have been busy, but will respond shortly.

I just worry this new format will mess up my ability to recall things as well. Tomorrow, I may get my hair done! Maybe by this time tomorrow, I will have my Jen Zen going on.

Thanks for the drive by. I've been worried about you.

confusedks Enthusiast
confusedks
Posted

So I know plenty of you have had to deal with insomnia, so I was just wondering what is something that I can get over the counter that won't make me sleep for 10 days straight...lol.

Kassandra

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      When Gluten-Free Food Is Unavailable: A Child's Struggle Highlights the Hidden Risks for People with Celiac Disease

    2. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    4. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    5. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,347
    • Most Online (within 30 mins)
      7,748
    Carla Mort
    Newest Member
    Carla Mort
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.