Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

mftnchn Explorer

Okay here's the abstract I mentioned:

"The relationship between childhood abuse and subsequent chronic medical conditions was researched in 121 patients from a medical practice in the northwestern United States during a 2-year period from 1994 to 1996. The patients


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
mftnchn Explorer
I am good about winging it. And I like to make soups - just never used bones in there. What would you use for beef bones??? What kind of beef?

I've heard that you break up the bones a bit, so that the marrow is open...not sure if that would help with calcium.

CarlaB Enthusiast
I am good about winging it. And I like to make soups - just never used bones in there. What would you use for beef bones??? What kind of beef?

I don't know .... I'd talk to the butcher. :)

Sherry, that is interesting. Was there any difference between verbal/emotional and physical abuse in the study?

NoGluGirl Contributor

Dear Everyone,

I will do as I did last time when I got behind. I will type out PMs and e-mails to topics covered over the last couple of weeks. Anything from page 1820 onward will be posted in my usual column on the thread. I have not been home much because of the ongoing makeover. So far, I have spent twelve hours at the salon!

Sincerely,

Jin

P.S. I should be able to go to Lyme Chat on Thursday and Saturday.

CarlaB Enthusiast

When will we see a picture, Jin?

confusedks Enthusiast

Sherry,

That was a very interesting study. I am so amazed at how all of the emotional and physical stuff is interconnected. It makes so much sense. It's so interesting that things from our childhood's can have so much ipmact forever, not just in relationships, but with our health!

ShadowSwallow Newbie

Hi Everyone,

I just sent out the email. :) If anyone else wants a copy, just PM me. :D

To generally sum up: I was diagnosed clinically with Lyme, I have a positive Ehrlichiosis test (so we know I have at least that coinfection!) and h. pylori test. I also have strep at the moment. The LLMD put me on Zith and I have so many scripts for bloodwork and other tests I don't know if I can make that much! :P

Jin,

I can't wait to see those pictures!!!! :D :D

Birdy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer
Sherry, that is interesting. Was there any difference between verbal/emotional and physical abuse in the study?

I'd have to look back at the whole thing. What I recall is that the verbal/emotional didn't show up as much, I might not have had enough data on just that alone without accompanying other forms of abuse. I tried to look for all the major chronic illness issues that I noticed in the records, but sometimes the number was just too small to see any trend.

Sherry

mftnchn Explorer

Yay, Jin. I can't wait to see the results!

Woohoo Birdy! Not that you have lyme disease, LOL, but for getting some answers and starting treatment!!

Nyxie63 Apprentice
One of the interesting things I have read is about PTSD (post traumatic stress disorder)..... People can say, "I know it up here" pointing to their heads, and then say "but it doesn't compute here" pointing to their hearts.

That's so true. I was dx'd with PTSD a little over 8 years ago after a breakdown. The traumatic event wasn't childhood abuse or anything like that, but devastating nonetheless. I know how to deal with it in my head - the exercises, the visualization, etc. The problem is that the hole in my heart/spirit is still there and no amout of "proper thinking" will make it go away. I've seen plenty of therapists and even did a 2-week (voluntary) in-patient stint at the hospital. It sounds like a self-defeating attitude, I know. It isn't. Its the simple truth. The hole is a part of me and always will be. The best I can do is work around it.

Jin,

Yeah, we wanna see pics! :D

Birdy,

Congrats on the dx... I think. Well, yeah. Congrats! Progress is a goooood thing.

Rachel--24 Collaborator

Just popping in to say hi. :)

As always I'm thinking of all of you. I've been reading along but my brain hasnt been too focused on scientificness...I've been pretty "scattered" to say the least! Hence....my lack of long winded posts. :P

I sort of got side-tracked lately. I kind of unexpectantly fell for someone! :blink:

See what happens...I totally lost my focus!

Anyways...I'm trying to get it together. :rolleyes:

Sorry to anyone that I failed to respond to in pms, emails, etc. There are lots of things I've wanted to reply to....hopefully I'll get back on track soon. :)

So thats my explanation for lack of scientificness. ;)

mftnchn Explorer

Nyxie, thanks for sharing. I read a book called Shattered Assumptions that made so much sense to me about how these experiences undermine these simple assumptions we make that let us move through life without such anxiety that bad things will/might happen. I really liked what she talked about in terms of how we have to come to grips with it and create some new assumptions that fit better and are more realistic. That sounds very cognitive and in a sense it is, but I liked how it talked about living with these realities.

Carla, I looked back at my research and I think there wasn't enough information to differentiate. I was looking more in depth at sexual abuse because that seems to be (on average) more severe in the emotional impact and impact on normal development. So I only asked one question about verbal abuse. My assumption was that if that showed some connection, further exploration could be made about the rest. I did list the percentage of patients that reported verbal abuse which was, interestingly enough, lower than the reported sexual abuse. I also looked at the total number of patients who reported any type of abuse. It was 71% of my sample!

Part of the issue was that this was a master's thesis, so I didn't analyze every bit of data I collected. There was enough there for a much more in depth exploration. I was encouraged to go further with it and seek a PhD but life has gone on and I have never gone back to it.

I can email a copy of the study if someone wants it. What I have on my computer might not be the final draft but it is close. It's 92 pages with references...so that might be more than anyone wants. What might be interesting is the review of the literature of some of the diagnoses that in the research literature were linked with sexual abuse. It was quite surprising to me.

mftnchn Explorer

Rachel, I wondered if that might have happened...LOL! What a GREAT reason to be side-tracked and not posting....hope you are having fun with this. Nice to know you are more and more getting your life back!

mftnchn Explorer

Julie, I tried my first castor oil pack today, except years ago I tried a liver pack. Anyway, noticed a flare of toxic like feeling for awhile. I took extra chlorella, and was going to take some charcoal but it seems to be better.

I might have kept it on too long.

I know that my doctor recommended them to me at the outset of my lyme treatment so I thought I could safely try. I'll check in though about how often and stuff.

Sherry

confused Community Regular

JIn,

Thanks for the email, im so glad you are having an makeover at the salon and will now also start the 6wbm, you will be amazed on how fast u lose weight and feel great. Im so jealous of the makeover, what all are you having done. In april my mom and I are going to the spa for an day, i cant wait to spend the whole day with just her and be pampered, i so need it.

I am working out again and love it, i feel so much better about myself. I cant wait for tax money to buy some cute clothes for spring and summer (even if hubby said they cant be too cute lol)

My leg twitching has gone away and i am so happy for that. Who knows what it was but if it comes back i will probably have it checked out or at least go across the street and ask my doctor (an beneift of ur md living across the street lol)/

paula

CarlaB Enthusiast
I sort of got side-tracked lately. I kind of unexpectantly fell for someone! :blink:

:wub: :wub: :wub: :wub: :wub: :wub: YAY!!! I'm so excited!!!!

hopefully I'll get back on track soon. :)

Let's hope not! You have something better to do than spend all day online! LOL

Sherry, that is interesting. I would think sexual abuse would be more traumatic, I can't imagine much worse. I'll let you draw your own conclusions of why I'm more interested in the verbal/emotional abuse part. ;) I'd ask for the paper, but honestly, I don't think I could wrap my brain around 92 pages, LOL.

Nyxie, it's okay to have a hole ... donuts have holes and they are very sweet and everyone loves them! :wub::D With something like we've been talking about here, there will always be a hole .... we're not trying to fix it, but fix the way we react to it. We were robbed of something special, no matter what caused the pain .... there is no getting that back, but it is important for our own health to come to terms with the trauma, in the sense that we've processed the emotions from it and haven't blocked them inside causing illness (I had trouble letting go of the emotions, like I said, I boxed them up so as not to deal with them) .... not in the sense that we ever get back what was lost or ever stop missing it.

I realize this is easy for me to say ..... we all have different pasts .... but it is interesting that NO ONE here said, "No, Carla, I don't have any emotional issues behind my illness." ;)

I started taking artemisia again yesterday. I was having air hunger .... I am wearing a mouthpiece that makes it hard to breathe and Adam was saying he thought it was from that, but I was having it even after having the mouthpiece out for an hour.

I don't feel bad, at all. I guess there is just going to be more maintenance than I would like. I was at least hoping babesia would not be an issue any longer. I had a little sweat last night .... nothing like I used to ... and I don't really know what's normal, is it normal to sweat at night? I'm thinking it was a mini-herx from the artemisia. I have a phone consult in a couple weeks, so I'll ask about the new Cowden babs herb then.

Another thing that might be a factor is that I'm supposed to take Lariam every 5 days .... I took it after 7 days one week, then after 6 the next .... so maybe that allowed it to flare up a little. At any rate, I know it's still there and I'm not letting it get the better of me this time! I'm not going to be in denial when I become symptomatic and end up with a full blown relapse! :P

Overall, I'm feeling good. My knee hurts regularly, but I'd put it at a 1 on a 10 point scale. I'm just aware that it's not right. I'm sleeping well with a half an Ambien, 5 HTP, and Melatonin before I go to bed. Last night I only slept for six hours, but I feel rested .... the night before my alarm woke me up at 8, so I had a great night's sleep, I was hoping for that today because the kids have a snow day and I didn't set my alarm, but, NO, I had to go and wake up at 6! :angry:

confused Community Regular

Im thinking i want the 92 page abstract, i love reading stuff like that, my undergraduate work was done in psych and sociology, who knows i might have read it before lol.

paula

jerseyangel Proficient
I sort of got side-tracked lately. I kind of unexpectantly fell for someone! :blink:

I just have to pop in for this! :D

How wonderful, Rachel--I'm so happy for you :D:D

Nyxie63 Apprentice

Rachel,

WooHoo!!! You go, girl! :D

Nyxie, thanks for sharing. I read a book called Shattered Assumptions that made so much sense to me about how these experiences undermine these simple assumptions we make that let us move through life without such anxiety that bad things will/might happen. I really liked what she talked about in terms of how we have to come to grips with it and create some new assumptions that fit better and are more realistic. That sounds very cognitive and in a sense it is, but I liked how it talked about living with these realities.

I'd be very interested in your study. Will PM you with my e-mail. Dunno what I'll be able to get out of it at this point. Maybe if I chew it in small bites. ;)

My key interest is changes in interactions with other people after trauma. Its not an anxiety that the trauma will reoccur, but an expectation that something like it will happen again. Especially if one has a history of similar experiences. Does that make any sense? Its not a matter of feeling "deserving" of the trauma like I've heard about in many abuse cases. Rather more like feeling "fated" to repeat the experience again on some level - that such things happening is inevitable. I suppose my assumption has become "its painful, but not a surprise".

Btw, who's the author of that book? Sounds interesting. Might pick it up when I have a brain again.

:Nyxie, it's okay to have a hole ... donuts have holes and they are very sweet and everyone loves them! :wub::D With something like we've been talking about here, there will always be a hole .... we're not trying to fix it, but fix the way we react to it. We were robbed of something special, no matter what caused the pain .... there is no getting that back, but it is important for our own health to come to terms with the trauma, in the sense that we've processed the emotions from it and haven't blocked them inside causing illness (I had trouble letting go of the emotions, like I said, I boxed them up so as not to deal with them) .... not in the sense that we ever get back what was lost or ever stop missing it.

Awwwww! :) Thanks.

Shoving down the emotions from the trauma is how I ended up having the breakdown. Stifled it all for 4 years. One morning, it woke up and bit me on the azz. Got up, got ready for work, went to leave the house..... and couldn't. I simply could not force myself to go out the front door.

Gotta tell you tho, I'd highly recommend a breakdown for everyone. Only half kidding. It's a great (albiet painful) way of having to take a look at yourself and deal with unresolved issues. It's also a great opportunity to reshuffle your priorities.

I guess what you're getting at here is the old, yet true, standard that dis-ease causes disease.

--------------

Oh! And I finally got that bloodwork done this morning that I've been putting off for 2 months. Ugh! Only 6 tubes this time. Yay? Wondering what my cortisol level is going to look like since I've only gotten about 4 hours sleep each night for the last week.

dlp252 Apprentice

To Jin (this won't make sense to anyone else, lol):

Yeah, I'm finding out the purer that my products are the better for me. So far so good with the EM stuff!

Yeah, I feel bad too if I eat too many carbs of any kind...it actually causes low blood sugar feelings in me, not to mention the awful bloat and gas it causes.

I had my appraisal for the refinancing on Sunday...now I just have to hope she appraises my place at more than what I want to borrow...I should think it would be, but one never knows...that's the last hurdle I have to pass I think. I haven't heard yet.

My doctor said I could do the B-12 shots once OR twice a week. The bottles both say 1x per week. I tried two times per week for a couple of weeks, but I just CAN'T give myself shots that often, lol. I just can't. Once a week is hard enough.

I'm awful at taking pictures...just awful. I have a decent camera, but no matter what kind of camera I have, my pictures just don't come out well, lol. I have a friend who can take a picture with one of those cheap disposable cameras, and it comes out like a professional picture, not me, lol.

The caffeine really seems to be the culprit with the breast pain. I haven't had a single episode of the searing pain since I cut it out. I've been having a little decaf, so it's probably not the coffee itself, but seems like it might be the caffeine. I'm getting ready to test that theory out by having a little caffeine every day for a week or two and see what happens. Haven't started that yet though. I don't take calcium...I should, but I don't. :(

dlp252 Apprentice

Woohoo Rachel!!! You DESERVE a little distraction!!! Enjoy it!!! :P

CarlaB Enthusiast

Breakdowns for everyone! :lol:

Lyme disease allowed me to reshuffle my priorities. :)

dlp252 Apprentice

I'm reposting something I posted on the makeup thread because it's just too exciting for me. Some of you know what a long road it's been for me, some of you don't. I've been sick for the better part of 10-12 years and the last 5 years have just basically floored me. The difference I've seen in the last few months has been astonishing, but it's stuff like this that really brings it home for me:

Well, I'm pretty excited here girls...I've mentioned before how excited I am about EM because for the first time in years I'm actually excited about putting makeup on and taking care of my appearance...well, apparently it's spilling over into the rest of my life, lol.

For the first time in about 12 years....I actually feel excited about fixing up my condo. I haven't felt that way in a long time...couldn't really because I felt so bad. I actually pulled out paint chips (old ones--will have to get new updated colors this weekend), and started planning what paint goes on what wall, and actually started thinking I could do the painting myself! I'll have to get low VOC paint of course, but if I only do one wall at a time (in a day if I have to), I think I can do it myself.

Nyxie63 Apprentice
Breakdowns for everyone! :lol:

I'll bring the chips! :P:lol:

For the first time in about 12 years....I actually feel excited about fixing up my condo. I haven't felt that way in a long time...couldn't really because I felt so bad. I actually pulled out paint chips (old ones--will have to get new updated colors this weekend), and started planning what paint goes on what wall, and actually started thinking I could do the painting myself! I'll have to get low VOC paint of course, but if I only do one wall at a time (in a day if I have to), I think I can do it myself.

Cool! We'll need before and after pics, you know. ;)

dlp252 Apprentice

Yep, I think I can do before and after, lol. I have pictures of when I first moved into my condo...that was bad, lol. I did some improvements myself before I got sick, but those are nearly 12 years old now, lol. It's really time for some work. :P

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748

    Patty6133
    Newest Member
    Patty6133
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      Yes, you are right. Indeed, I’ve been feeling anemic since the beginning of this week, and today I felt horrible during a lecture at the university, I was trembling a lot and felt all my body incredibly heavy, so I had to come back home. I’ll do a blood test tomorrow, but I’m just worried about the possibility of it coming back negative. I’ve been eating two cookies in the morning as my only source of gluten over the past two weeks—could that affect the final result?
    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.