Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

AndreaB Contributor

Welcome back Donna! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
aprilh Apprentice
We use Eden Organic. It doesn't have citric acid.

That's probably the one I buy! :D

Sherry, I am going to be taking very large doeses of Vit D also. My Dr has come across studies finding a connection between HAE and Vit D levels.

Oh - this is good! Hopefully that will provide you some answers and treatment! :)

Paula do you feel better using the detox foot pads? I feel like those ones are just better at getting out the nasty toxins. I was thinking about using the foot pads as well. The more toxins well can pull out the better.

Has anyone done a detox foot spa treatment? They seem pretty pricey but might be worth a try?

I have done the spa treatments. My ND does not believe in them. Seems they have done testing on the water to see what actually can come out and the ingredients are the same with and without the feet.

I did them for a while, but not sure if it helped or not.

:o :o :o

:angry:

Must go look up our supplements. I know I've seen that word lots of times.....just don't know how much it's in at this time.....

It is very hard to find supps without mag stearate. Its the ingredient used to make the capsule. You can avoid by dumping the capsule out. We had a big discussion about this on yeast connection one time. I'll see if I can dig up some of that information.

Ok, I have to start taking electrolytes in the next couple weeks. I'm aware of pedialyte......does anyone know of good electrolytes without all the garbage added?

I haven't looked at the ingredients of pedialyte yet.

There is a water that has electrolytes that taste like water. I give it to the kids when they are sick. They won't touch pedilyte. Its so yuck! :P

I have a recipe for a homemade concoction, too.

Green12 Enthusiast

Andrea, I take electrolytes that taste just like water and it doesn't have a lot of that other crap that pedialyte has in it. I'll look at the brand, I don't know off the top of my head.

Hi Donna, welcome back!

Green12 Enthusiast

Andrea, on the bottle it says Peltier Electrolyte Concentrate, Executive Formula, Crayhon Research

Formulated and distributed by Crayhon Research Inc

www.crayhonresearch.com

AndreaB Contributor

Thanks Julie. :)

Looks like you have to be a doctor to get that one. I'll have to see what Dr E says about the selectrolytes. I'm thinking she may be able to order the Peltier if I would need her to.

Rachel--24 Collaborator
Some of my supplements have magnesium sulfate in them as well. I guess you cant avoid all toxins. I will probably still take them until I can get one's without this stuff in them.

Lisa....magnesium sulate isnt considered to be toxic. Sulfate is essential for our health.

Donna F Enthusiast

I have "SmartWater" by Glaceau. It is electrolyte enhanced water. Maybe you could try that? I buy it at just about any grocery store here in Massachusetts.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor
I have "SmartWater" by Glaceau. It is electrolyte enhanced water. Maybe you could try that? I buy it at just about any grocery store here in Massachusetts.

Thanks. :) I'll look into that.

confusedks Enthusiast

I am finally up here in Lake Tahoe. I've been in bed the whole time...so I hope I feel semi human soon, so I can do something.

I'm having really horrible cramps so I'm going to call the Dr today and see what she says. Also, the bleeding is heavier than it's supposed to be. <_< I sure hope that this is normal for after a D&C.

dlp252 Apprentice

My mother had a couple of D&Cs but I can't remember how that went. I know she had lots of cramping and I do think she bled, but not sure how much.

NoGluGirl Contributor

Dear Everyone,

I am catching up! I am on page 2025 right now. Tomorrow I have another appointment with Dr. D.

I will post an update and let you know what happens tomorrow. Until then, I am reading along.

Sincerely,

Jin

miamia Rookie
Ok, I have to start taking electrolytes in the next couple weeks. I'm aware of pedialyte......does anyone know of good electrolytes without all the garbage added?

I haven't looked at the ingredients of pedialyte yet.

andrea -

coconut water has a ton of electrolytes

tabasco32 Apprentice
Lisa....magnesium sulate isnt considered to be toxic. Sulfate is essential for our health.

OH yeah sorry, I mean magnesium stearate. :rolleyes:

confused Community Regular

I just wanted to say between all the salmonella going around and the way i react to food. That i am going to give up eating everything lol I know that isnt healthy. But im getting to the point im afraid to eat or drink anything.

paula

confusedks Enthusiast

I got ahold of the Dr and she said that she wants to give it one more day, then if the bleeding doesn't slow down considerably, then we will have to add more hormones. :unsure:

She said I had so much tissue she couldn't get it all out. She is going to try to get ahold of pathology to see if there's any cancer. I'm SO nervous! Ahhh! ;)

And, the severity of the cramping is really extreme. That isn't normal. We'll see what happens tomorrow morning.

confused Community Regular

Kasssandra,

Im sorry your in so much pain while in lake tahoe. Just dont stress about it, the stress will make it 10 times worse for the cramps. I know easier said then done. Just try to relax and enjoy your time there. Update us tommorow if it gets better, which im sure it will.

paula

tabasco32 Apprentice

Wow Kassandra I will pray that everything is okay for you.:(

Nanjkay Apprentice
Dang....even my probiotics have magnesium strearate....and they're a really good brand!!

Hey all-

I have had good luck with Pure Encapsulations. They are excipient and filler free and come in a vegetable capsule. If the capsule is a problem, you could empty the contents. They have a wide variety of supplements and they seem to be on par with the latest research. Each bottle has this written:

"This encaptulated product contains no hidden coatings, excipients, binders, fillers, shellacs, artificial colors or fragrance. Contains no dairy, wheat, yeast, gluten, corn, sugar, starch, soy, preservatives or hydrogenated oils."

Nancy

Rachel--24 Collaborator
I have had good luck with Pure Encapsulations. They are excipient and filler free and come in a vegetable capsule. If the capsule is a problem, you could empty the contents. They have a wide variety of supplements and they seem to be on par with the latest research.

Thanks Nancy,

I'll look into that. :)

I always discard my capsules so that part I'm definately used to. ;)

Hopefully I can find some probiotics. :)

Kassandra,

Like Paula said....try not to stress too much. I hope you're able to enjoy your time in Tahoe. Hopefully the bleeding will resolve soon.

Rpm999 Contributor

hey rachel, i remember you saying you had a bunch of links, and thinking of those messages you sent me, do you have any good ones on parasites/yeast/gut infections and neuro/mental symptoms? any interesting reads? i'm not good at finding things :lol: and it'd be nice to read some of those things we were talking about, i figured i'd say it here so other people could be helped out too

but anyways, about that doctor i was talking about, i talked to him and he seems to know about a lot...he doesn't just have the igenex labs, he has the quest ones and some other one that has tech in the name that i forgot....but i think that quest one is a very good lab? he said he can order any test i wanted, so i think i'll get that OAT test and the other test...he had one of those bloodwork sheets, and something on it was yeast antibodies so i'm sure he knows about those type of things

from what i hear, that OAT test sounds like it says a LOT about the body, huh? seems like in my case, it's bound to shed some light, but i'm wondering about those lyme tests too...i know about igenex, but i've heard a lot about the other two but really don't have a clue...but i figure since he's so open minded and wants to order any test, it'd be good to get everything i need

he woman at the front desk had chronic lyme and she looks beyond healthy now and they were both very soft spoken and helpful and all i did was stop by...i haven't even have an appointment with him yet, and he was going to order the igenex test for me to have it done on the spot just from me talking to him (didn't because of some insurance thing, but i'll ask my question with that later on to see if anybody knows), but as far as telling them about the really bad neuro/mental and other strange type symptoms, they seemed to really understand so i think i just need to have the right things done and it's bound to get me somewhere i hope

tabasco32 Apprentice

does anyone know of a real good natural product they use to make there teeth white?

Nanjkay Apprentice
Hopefully I can find some probiotics. :)

I don't know if I mentioned it before but there is a product called Progurt from Australia. I guess it is similar to VSL #3 in that it is very strong and comes in a sachet. I make my own yogurt from the sachet and each serving is supposed to contain something like one trillion (bacteria/units?). Each sachet makes about 7 servings of yogurt. The big difference with Progurt is that it is not Bovine probiotic, it is human bacteria, don't ask me how they extract that, but I am all for it. Also, I am casein free, and so I make the yogurt with goat's milk, this stuff is so strong, I think anything I am allergic to is broken down by the bacteria..I have no reaction to the goat's milk yogurt whatsoever. Since taking it I do notice a difference with food intolerance...subtle but I do notice I am a bit less reactive.

Also Researched Nutritionals makes a soil based probiotic and I have had good luck with the MegaFlora probiotic...I don't have a bottle in front of me but I think it is pretty straightforward.

Nancy

AndreaB Contributor
andrea -

coconut water has a ton of electrolytes

I've seen an ad for coconut water and was going to look into but never did. That sounds good too. :)

Paula,

Hang in there. :)

Kassandra,

Hoping your cramping calms down real soon. Try not to worry and enjoy your time at Tahoe.

mftnchn Explorer

Kassandra, sending you hugs and best wishes for the bleeding and pain to stop very soon, and good news from the pathology.

Sherry

Rachel--24 Collaborator
hey rachel, i remember you saying you had a bunch of links, and thinking of those messages you sent me, do you have any good ones on parasites/yeast/gut infections and neuro/mental symptoms? any interesting reads? i'm not good at finding things and it'd be nice to read some of those things we were talking about, i figured i'd say it here so other people could be helped out too

Hey....I'll get back to you on this because it WAY past my bedtime.

I started posting in an enzyme thread...and woah....BIG mistake. :blink:

Can someone remind me not to venture out of Rachelville too often....I just end up getting myself into trouble out there. :ph34r:

Anyways...Rpm....I'm pretty good at finding things. Google is my best friend. :) I'm pretty sure I could find some things for you to read. ;)

Unfortunately, I'm not so good at going to bed on time. :P

About Quest....dont use them for Lyme testing!!

That lab sucks for Lyme.....they miss alot of positive cases of Lyme. I think they are one of the worst.

If you're gonna have the tests done...get it done right....use IgeneX. Everyone here will tell you the same thing.

Its good that the Dr. will let you order any test......but does he have any experience with interpreting the results?? Hopefully he's familiar with OAT (as well as the other tests)....because if something shows up...he needs to have a good understanding of how to proceed with treatment.

I'm glad he's open minded. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

    2. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    4. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    5. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,142
    • Most Online (within 30 mins)
      7,748

    Mark Conway
    Newest Member
    Mark Conway
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.