Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

Green12 Enthusiast

Carla, I was just going to ask if you were feeling any better because you hadn't posted, I am so sorry that not much has changed for you and you are still experiencing the d :(

While I agree with Patti and Andrea, that the supplements (or diet) could be a factor, I still think the infrared sauna has a very powerful effect on the body and the detox process- that is why I was always told to go very slowly with it given my complex health problems and level of toxicity.

I found this info:

In the infrared sauna, invisible light rays emanate from several infrared emitters. This infrared light penetrates deep into the fat and muscles of the body, creating a more powerful detoxifying influence upon the deeper tissues of the body.

Radiant heat (infrared) sauna provides the following benefits:

-Speeds up metabolic processes of vital organs and glands, including endocrine glands.

-Inhibits the development of pleomorphic microforms and creates a "fever reaction" of rising temperature that neutralizes them.

-Increases the number of leukocytes in the blood.

It might be a case that it just "sped" the metabolic processes up really quickly in your body, more than you could handle at once.

It might be a good idea to go back to the drawing board and eliminate your supplements, and things in your diet, one by one to see if that will rule any of them out as the source.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
jerseyangel Proficient

Julie,

Thats a very good point about the saunas--I didn't know that. I know that the healing process can be difficult, and the Kinesiologist told me that sometimes people choose to ease up on some of the suppliments or other things that they're using because of the difficult symptoms.

OK everyone, I don't know what's going on here, but I feel like I'm going through a second healing! You know that feeling when you first got off gluten and started to feel better? And then got really hungry? Thats me the last couple of days. Once I got over the tomato-burning episode, I really seemed to feel better :D

Yesterday, I made brownies from The Gluten Free Kitchen cookbook (the one that uses potato starch). So, naturally, I had to make some Vance's banana "ice cream" to go on top :huh: . Then, today, I made the pumpkin-spice bread from the same cookbook :ph34r:

It's like suddenly, I'm not aware of my stomach all the time--I'm "regular"--and I'm hungry :lol:

I don't know how long this is gonna last, so I'm enjoying it while I can! :P

dlp252 Apprentice

I know Vitamin C definitely give me D if I take too much, I seem to be okay in lower doses throughout the day rather than 1 big one, but that's one of the reasons I stopped taking it at the beginning of the year, so I could see if that was what was causing the D. It helped when I stopped but didn't stop the D altogether.

In your case Carla, I think it really may be the combination of things...

How much Vitamine C and glutathione are you taking...not questioning how much you take but wondering how much I should take, lol.

You're welcome Andrea!

Thanks Rachel! I'm feeling better than yesterday, but am still woozy...I wish I brought my blood pressure monitor to work with me...bet it's really low again. :(

TriticusToxicum Explorer
Julie,

Thats a very good point about the saunas--I didn't know that. I know that the healing process can be difficult, and the Kinesiologist told me that sometimes people choose to ease up on some of the suppliments or other things that they're using because of the difficult symptoms.

OK everyone, I don't know what's going on here, but I feel like I'm going through a second healing! You know that feeling when you first got off gluten and started to feel better? And then got really hungry? Thats me the last couple of days. Once I got over the tomato-burning episode, I really seemed to feel better :D

Yesterday, I made brownies from The Gluten Free Kitchen cookbook (the one that uses potato starch). So, naturally, I had to make some Vance's banana "ice cream" to go on top :huh: . Then, today, I made the pumpkin-spice bread from the same cookbook :ph34r:

It's like suddenly, I'm not aware of my stomach all the time--I'm "regular"--and I'm hungry :lol:

I don't know how long this is gonna last, so I'm enjoying it while I can! :P

Cheers for Patti's Tummy! (now are you gonna pass the brownies? :ph34r: ) :P

jerseyangel Proficient
Cheers for Patti's Tummy! (now are you gonna pass the brownies? :ph34r: ) :P

:D I wish I could! Honestly, my house smells so good now--I wish you could all come over for tea.

dlp252 Apprentice
:D I wish I could! Honestly, my house smells so good now--I wish you could all come over for tea.

You mean there are REALLY brownies...I thought that was another phrase like "frisk the wookie" or something. :P

jerseyangel Proficient
You mean there are REALLY brownies...I thought that was another phrase like "frisk the wookie" or something. :P

:lol: Donna--yes, there are really brownies and ice cream and pumpkin bread! I'm making hay while the sun shines :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TriticusToxicum Explorer
:D I wish I could! Honestly, my house smells so good now--I wish you could all come over for tea.

Party at Patti's - Brownies AND Tea AND Ice Cream and BREAD! Check you Wookies Friskers at the door :P

Fiddle-Faddle Community Regular

Andrea, for fruit spread you can make your own freezer jam, using thawed frozen strawberries, sugar, and powdered pectin (I use sure-jell). It's not like regular canning--you're storing the jars in the freezer til ready to use. I usually was my jars in the dishwasher right before making the jam.

I know with 4 children you have no time, but maybe you can make it into a homeschool science lab about liquids and solids....

Green12 Enthusiast

Patti, great news! I am so glad you are feeling "good" and have been able to break from your normal restricted diet to try a few different things, and best yet, that it is sitting well with you :D:D

Everything sounds so yummy that you made :) .

I hope you enjoy every last bite!

CarlaB Enthusiast

Patti, that is great that you're feeling so good!!!! I wish I could come over for real!!! Vance's ice cream ... I'm definately going to have to try that some day!

Donna, I don't remember how much I took ... I remember the glutathione seemed to really be the one that made me feel better and it was taken several times per day. The C I don't remember either. It was about 15 years ago that I had my removal. I think I remember the vitamin C was taken to the point where it started causing discomfort and diarrhea, then back off from that amount.

Julie, thank you for the suggestions on the sauna ... that could be it. I read yesterday that the first thing that starts detoxing is your liver and kidneys. Your liver basically dumps bile into your colon ... that definately could be the cause of the d. It was also definately stuff I hadn't seen before. :ph34r: I seem to be doing somewhat better yesterday and today, so I'm not going to back off anything right now ... but if I take a downward turn, I will.

I've read and appreciated all of everyone's suggestions, thank you. I really don't know how I could cut more out of my diet ... except eggs -- and we're not going there right now :blink:

AndreaB Contributor

Thanks Alison, I will have to try that.

I bought some at the store which has citric acid in it. Still have to check on that but it seems like that has been ok. We'll find out sometime today or tomorrow as Talitha couldn't wait for me to check on it.

Patti, Don't I wish I lived near you......those sound good.

Carla, Keep us posted please. I'm getting concerned.

Hi everyone!

I'm off to find something to eat........have not eaten yet today.......haven't started school today either........errands get in the way of everything.

happygirl Collaborator

x

Rachel--24 Collaborator

Patti.....AWESOME....I'm so glad that you're enjoying some really yummy foods (wish I could have some) and still feeling good!! I'll cross my fingers (and toes) that things stay this good for you. :D

AndreaB Contributor

Just got a call from my dad after trying to reach him for a week. The new med he is on makes him sleepy/loopy. He has a hard time focusing. He said something to the effect that he'll be on the med and dialysis for as long as he's alive, which won't be long. Before he was talking about years.....such a big change from last month. :(

CarlaB Enthusiast

Laura and Andrea, and everyone else, thank you for your concern. I'll keep you posted. Laura, we have to look at the positive ... would we appreciate our health once it returns if we got better that easily? :) I certainly did not appreciate my relative health before!! I have gotten a lot of life lessons from this and grown into a better, stronger person ... Okay, enough of that, where's Richard to lighten things up?

happygirl Collaborator

x

CarlaB Enthusiast

Andrea, sorry about your dad.

Rachel--24 Collaborator

Awwww Andrea...I'm really sorry about your dad. :(

I'm glad you were finally able to reach him ...I know you were getting really concerned. I wish he'd had some better news for you though. :(

AndreaB Contributor

Laura,

He has kidney failure. He had one removed about 5 years ago because of prostate cancer that had spread. He is on dialysis 3 days a week and now this new med. Maybe it's the med because he wasn't that concerned about dialysis to begin with. I'm wondering what happened that he had to be put on it, and no, I don't know what it is. He was hospitalized in September, got out and was hospitalized again within the week with 1 litre of fluid in his lungs. His kidney is shot. He lives in Arizona which is a warm climate. Don't know if winter blues applies to warm climates or not since they still see lots of sun. Apparently he can't be left alone because his wife's brother came over to watch him while she ran errands.

CarlaB Enthusiast
Don't know if winter blues applies to warm climates or not since they still see lots of sun.

The lack of sunlight in the winter still bothered me when I lived in Florida. They make full-spectrum light bulbs that I use a lot of in my house, in areas that you want it to be like daytime (kitchen, bathroom, etc.). I don't really like them in the family room because of the purplish tint of light in them. I don't even notice the lack of light now. I don't think it was ever a huge problem for me, but it did used to bother me enough that I noticed.

AndreaB Contributor

I've heard of those light bulbs. I will be looking into getting them for next winter. I don't think I've really been bothered by winter blues. Now if we saw miles of snow instead of miles of rain that might be different. I would definately be blue worrying about Mitch on slip slide roads.

CarlaB Enthusiast
I've heard of those light bulbs. I will be looking into getting them for next winter. I don't think I've really been bothered by winter blues. Now if we saw miles of snow instead of miles of rain that might be different. I would definately be blue worrying about Mitch on slip slide roads.

They're just like regular light bulbs, no big deal, I just get them at the grocery.

I know what you mean about the weather. Adam travels through 6 states. He was in Northern Ohio all week, stopped home for about 12 hours last night, and is in Nashville, TN today. He was in a freeway accident on a slippery road a couple years ago ... driving in snow a couple days ago.

jerseyangel Proficient

Andrea,

I'm sorry to hear that your dad isn't doing well. I know you've been concerned about him.

AndreaB Contributor
I know what you mean about the weather. Adam travels through 6 states. He was in Northern Ohio all week, stopped home for about 12 hours last night, and is in Nashville, TN today. He was in a freeway accident on a slippery road a couple years ago ... driving in snow a couple days ago.

You must not like snowy weather very well either. I actually love snow, just not on the roads. :P His schedule sounds not to my liking either. I know, you're probably used to it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

    2. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    3. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    4. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,355
    • Most Online (within 30 mins)
      7,748

    tealangel09
    Newest Member
    tealangel09
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.