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Omg...i Might Be On To Something

Rachel--24

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jenvan Collaborator
jenvan
Posted

Ugh to your poopy friend Judy :angry:

I have a pair of jeans that tell me if I've gained or lost a few pounds better than my scale! B)

dito dito dito Patti

I don't ususally have advice to offer you Rachel...BUT....I DO NOW....

PLEASE PITCH THOSE DAMN SCALES..AFTER YEARS OF FIGHTING MY WEIGHT...TO GO DOWN :lol: AND MANY DIETS AND SEMINARS AND CLASSES AND LECTURES..THE ONE CONSTANT (EXCEPT FOR WEIGHT WATCHERS..BEEN THERE DONE THAT AND LOST 70 #'S EACH OF THE 3X'S I'VE DONE IT AND GAINED IT ALL BACK..) :ph34r::(:ph34r::(<_< -----

SOOOOO- After one year on the gluten-free, soy & dairy free program :lol: I've lost 50#'s and the only way i know is my clothes...agree with Patti take one pair of jeans or what ever and just keep putting them on see.

oH YEH, I KNOW 50 #'s from dr visits and weight myself once a month on the first of the month at the pool when iwas swimming 4 days a weeks. gosh, i havne't there in so long...first one thing and now the celluitius..but that's how i know.. once a month that's it and the same scales at the pool.

Yesterday a friend (HA :ph34r: ) came over and said she couldn't believe i'd lost 50 #'s because she couldn't tell it....some times you wonder about 'so called friends' so got out a pair of pants i was putting a draw string in so i could keep them up...they were so huge that that i could fold them over like 4 times. so

THIS FRIEND WHO IS BLIND" SAYS "WELL GUESS YOU HAVE LOST WEIGHT.." DID THOSE REALLY FIT WHEN YOU STARTED THIS...I SAID WELL AFTER A YEAR, I'D GUESS SOME WEIGHT WOULD COME OFF" :ph34r:

GEEZZEE BETTER WATCH AS MY FRIEND LIST GETS SHORTER...SHE' HAD LOST WEIGHT AND I WAS SO SURRPORTIVE AND NOW SHE'S GAINED IT ALL BACK + ABOUT 20 EXTRA #'S...OH WELL IT JUST GOES RIGHT OVER MY HEAD AS I'M HAPPY WITH ME AND AS FAR AS I'M CONCERNED..I'M THE ONLY ONE + HUBBY AND SON WHO I CARE ABOUT WHAT THEY THINK..

WOW I'M ON A SOAP BOX TODAY.

JUDY

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Judyin Philly Enthusiast
Judyin Philly
Posted

hey, Rachel, glad the new med is working. :lol:

yeh, I was on a roll...hubby calls it "spinning". :ph34r: Son says.." MOM, MOM, MOM--TAKE A BREATH AND COME UP FOR AIR..."

Can you imagine me taking 100 miles a minute and not stopping to take a breath..and my mouth just keeps 'flapping'

hugs

judy

jerseyangel Proficient
jerseyangel
Posted

Nice *friend*, Judy :angry: I'm with Rachel--she gained all her weight back and added some more besides. Sounds like she's jealous and dosen't want to admit that you succeeded at something that she didn't. Kind of petty, considering you had to get sick and completely change your way of eating. Don't let that get you down ;):D

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Okay, I know I've been gone for a while but I don't remember this part.... what "mess" did you get yourself into? Was it the "sweet potato madness?" :D

Hi Floridian,

Yeah....I was talking about the sweet potatoes. I guess I was right about them because every single day last week I had loose stools and ever since I stopped eating them the bm's are normal again. Stupid sweet potatoes. <_<

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Okay, I went to the first site and printed out all 7 pages and read through them. I would not be at all surprised if what they're saying is true (glutamic acid can cause health problems).

BUT--where are the studies they are quoting? Why aren't they cited so we can read them as well? The fact that they don't list the specific studies takes so much from their credibility. It's just as bad as the vaccine manufacturers bleating, "Studies show that vaccines are safe."

I'm sorry, but I want to read the studies on which they base their claims.

One other thing was kind of weird: "It has been repeatedly demonstrated that infant animals fed processed free glutamic acid when young develop neuroendocrine problems such as gross obesity, stunted growth, and reproductive disorders later in life, and that they also develop learning disablities."

Um, I didn't know that they could measure learning disabilities in animals, or that learning disabilities in animals have even been identified. And they didn't cite any studies showing when and where this has been demonstrated.

I'm not arguing with their conclusion (yet). But shouldn't they back up their claims with specific studies?

OK...just did a quick search cuz I'm only on my lunch break...I didnt find the sites I'd seen previously but found some results of various studies that were done. I remember reading that there have been something like over 400 studies done on lab animals so there should be plenty of info. out there. I'll look more later too.

Open Original Shared Link

Also I found this link but havent checked it yet.

If you are one of the few who can still believe that MSG is good for us, and you don't believe what John Erb has to say, see for yourself. Go to the National Library of Medicine, at Open Original Shared Link < http://www.pubmed.com> . Type in the words "MSG Obese" and read a few of the 115 medical studies that appear

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
If you are one of the few who can still believe that MSG is good for us, and you don't believe what John Erb has to say, see for yourself.

I didn't say I believe that it's good for us! Where did you get that idea? :blink:

I just think it's ridiculous to say "studies show that..." and not name those studies! It makes it look less than truthful.

Thank you for posting the links!

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I didn't say I believe that it's good for us! Where did you get that idea? :blink:

:lol:

Oh...sorry. I actually didnt write it. I just pulled up that whole paragraph and pasted it with the link cuz I was in a hurry on my lunch break. I dont even know who John Erb is?? :huh:

Sorry if it sounded like I was writing that....thats not my style. :P

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AndreaB Contributor
AndreaB
Posted

Thanks for the links Rachel. I wish now that I had kept up with info on msg. I unknowingly consumed more than I would have liked to during the last pregnancy. With all the msg sprayed on crops now it will be a wonder if that many children now grow up without some sort of problem(s). :angry:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

:(:( I wish I could eat out :(:(

I just came home from another really fun night out. It was only a movie...but if I could eat out like the rest of the world around me the night could start earlier and end later. Know what I mean? ;)

I'm pouting right now.

Anyways, I'm not really prepared for getting interested in anybody. Its not exactly part of my

"plan" ya know. I was suppossed to get better first. :(

I've totally stuck to the "plan" for 2 years now...I havent accepted any dates or anything....just focused on my health. Its actually been really good for me since I've never been single or had "time off" since I was under 16. I've learned alot about myself.

Only reason I started going out with this guy is cuz we're friends...so no big deal. Now I'm really liking spending time with him.....maybe a little too much. :ph34r:

Also I dont know if he's at all interested in me. Guess time will tell. :)

Oh, he did say that when he dates someone he likes to take them to different restaraunts and try all different foods. Guess if he ever did wanna date me he'd have to be a little more creative huh? Or we could just keep going to all the movies and hope we dont run outta stuff to see. :P

miamia Rookie
miamia
Posted
:(:( I wish I could eat out :(:(

I just came home from another really fun night out. It was only a movie...but if I could eat out like the rest of the world around me the night could start earlier and end later. Know what I mean? ;)

I'm pouting right now.

Anyways, I'm not really prepared for getting interested in anybody. Its not exactly part of my

"plan" ya know. I was suppossed to get better first. :(

I've totally stuck to the "plan" for 2 years now...I havent accepted any dates or anything....just focused on my health. Its actually been really good for me since I've never been single or had "time off" since I was under 16. I've learned alot about myself.

Only reason I started going out with this guy is cuz we're friends...so no big deal. Now I'm really liking spending time with him.....maybe a little too much. :ph34r:

Also I dont know if he's at all interested in me. Guess time will tell. :)

Oh, he did say that when he dates someone he likes to take them to different restaraunts and try all different foods. Guess if he ever did wanna date me he'd have to be a little more creative huh? Or we could just keep going to all the movies and hope we dont run outta stuff to see. :P

Rachel-

I feel for you. I have been doing more latley and its great but its frustrating becasue I feel like if I can do some of the normal stuff why can't I do more- Like GO Out to eat!! or go for a drink. I was never a huge drinker but god I miss meeting friends for a quick drink so badly. And I was always a huge eater so I definitly miss going out for a quick bite. being sick just puts so many limits on what you can do. I know I ahve to be disiplined I just wish I was getting more positive results.

It sounds like this guy does like you. And think about it he likes going out and trying new foods you could introduce him to foods that he would never find out about with a regular chick- millet, quinoa, weird vegees.

Miamia

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
It sounds like this guy does like you. And think about it he likes going out and trying new foods you could introduce him to foods that he would never find out about with a regular chick- millet, quinoa, weird vegees.

Miamia

LMAO!!! :lol::lol:

I'm thinking that would be a great way to scare him off....in case I dont like him later!! :lol:

I know I'd be scared if the situation was reversed....quinoa is gross! :P

I know you were meaning to be serious but thanks for the laugh Miamia! :D

Oh...at least if we cant eat out right now...couldnt we at least be able to have Starbucks or Jamba Juice or something....sheeesh....why does everything have to be off limits?? :(

I was having a reaction yesterday....it wasnt a major one but when I react its sooo much more noticeable now. It was kind of like last Friday when I wasnt clear headed and kind of "giddy"....at least this time I didnt do anything stupid...I think. :huh:

Anyways I felt like I was driving like I'd been drinking or something...nothing dramatic....just like I was a little buzzed. Also, I kept bumping into him while we walked (it wasnt on purpose :P ). He was laughing about it...sometimes when I get a reaction my balance is kind of thrown off for a day or two and I crash into stuff alot...walls, people, doors....pretty much anything that gets in my way.

Do any of you crash into stuff during a reaction? I'm thinking I could have been glutened minorly...it seems like I get like that from gluten. I know it was from pancakes....I think because of my gut still being really leaky....I'm just more vulnerable to cc from the flours. I know they cant be totally down to 0 ppm but I hate that such trace amounts have an affect. :(

rinne Apprentice
rinne
Posted

I've noticed a dizziness in the past year or so, it is like I'm drunk, just a little bit, and I have to concentrate to keep walking in a straight line. It has been less since I've been somewhat gluten free.

The symptoms we all share astonish me. I think it was on this thread/book that there was a discussion about earings and glutening, yes? In the past couple of years I've also had that problem. I wonder what else there is? At 51 I figured the night sweats I was having were related to menopause and then I read somewhere that this is also an experience people have when they are getting off gluten and that is when I started having them !

Is there anywhere all these symptoms are collected?

Also.

I was told yesterday that even olive oil which says 100% olive oil may contain soy oil. Has anyone else heard this?

Judyin Philly Enthusiast
Judyin Philly
Posted

RACHEL--Do any of you crash into stuff during a reaction? :ph34r::blink: IS THE POPE CATHOLIC????? :lol:

RINNE--1.I've noticed a dizziness in the past year or so, it is like I'm drunk, just a little bit

2.I was told yesterday that even olive oil which says 100% olive oil may contain soy oil. Has anyone else heard this?

WHEN I WENT TO NEUROLOGIST WHO DID MY LASTES REPEAT SLEEP STUDY IN THE LAB FOR SLEEP APENA, I TOLD HIM I WALK LIKE I'M DRUNK...I DIDN'T TIE IT TO GLUTEN THO..MAYBE THAT IS THE WAY IT IT IS SHOWING NOW INSTEAD OF 'D' ...WHAT DO YOU THINK.

DID A MRI WITH DYE THAT STARTS WITH 'G' AND HE SAID DIDN'T LOOK LIKE GLUTEN ATAXIA BUT FOUND SOMETHING ON BACK OF SOFT PALET (THAT'S NOT IN THE BRAIN IS IT) :blink::o:blink::o:blink::ph34r: HE SET ME UP WITH APT WITH ANOTHER NERUO SPECIALIST WHO TREATS NEURO MUSCULAR & GAIT PROBLEMS BUT HE CALLED ORIG DR. HE WON'T SEE ME W/O A BIOP..(AS I SAID BEFORE ON HERE--WHEN HELL FREEZES OVER :ph34r: THEN 3 DAYS LASTER GOT THE CELLULITIUS SOOOOOO HAVEN'T EVEN THOUGHT ABOUT IT TILL NOW.

OK, EXPERTS, WHAT DO YOU THINK?

PS POSTED ON CELLULITIUS THREAD THIS AM...GOT 20 MIN IN GARDEN TODAY WITH CHIRO PERMISSION. COURSE IT WAS MORE LIKE 45 MIN..BUT LEG NOT TOOOO BAD. DID MEASURE WHEN I GOT BACK IN AND TOOK ACE OFF.

JUDY IN PHILLY

Mango04 Enthusiast
Mango04
Posted

Did you find out about the cysts Rachel? I ask because when I start bumping into things and dropping things it's usually hormonal. Sorry you probably talked extensively about the cyst thing already (I missed a few pages here and here :))

If your guy cooks I think you should give him a bunch of ingredients that are safe and challenge him to cook something for you. Hey if he manages you'll know he's a keeper :lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Did you find out about the cysts Rachel? I ask because when I start bumping into things and dropping things it's usually hormonal. Sorry you probably talked extensively about the cyst thing already (I missed a few pages here and here :))

I havent mentioned the cysts in awhile so you havent missed much there....my appt. is coming up on the 13th. I'm pretty sure I'm just having another food reaction but I'm also ovulating which seems to make me more sensitive and reactive anyway. I ate a ton of chocolate so I think that set me off.

If your guy cooks I think you should give him a bunch of ingredients that are safe and challenge him to cook something for you. Hey if he manages you'll know he's a keeper

I'm thinking he doesnt cook since he eats pretty much like I used to eat before I got sick. Mostly fast food...he proabably eats mexican food everyday... its his favorite....he eats alot of it. I really miss those big burritos and corn chips w/ guacamole. We talk about food alot. If I was still healthy we would never disagree on what to eat.....we like all the same stuff. Except I'm a Big-Mac girl....always and he's a Quarter Pounder guy. <_<

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
I really miss those big burritos and corn chips w/ guacamole. We talk about food alot. If I was still healthy we would never disagree on what to eat.....we like all the same stuff. Except I'm a Big-Mac girl....always and he's a Quarter Pounder guy. <_<

Get cooking, girlfirend!!!!! Ask him over for dinner, and make those burritos (with corn tortillas) and guacamole, and get gluten-free corn chips like Fritos Scoops! Or make your own buns (I've come across a bunch of recipes, tried one which was not bad, haven't tried Annalise's yet, but I hear her submarine bread is great), and make Big Macs AND Quarter Pounders! Heck, have him cook with you--it's fun!! :P

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Get cooking, girlfirend!!!!! Ask him over for dinner, and make those burritos (with corn tortillas) and guacamole, and get gluten-free corn chips like Fritos Scoops! Or make your own buns (I've come across a bunch of recipes, tried one which was not bad, haven't tried Annalise's yet, but I hear her submarine bread is great), and make Big Macs AND Quarter Pounders! Heck, have him cook with you--it's fun!! :P

Haha...sounds really fun...and yummy. :)

Maybe in the future I could do something like that. Right now I'm too limited in what I can eat. If I could eat any of the stuff in your post I'd be a happy camper right now and my diet wouldnt even be an issue. Unfortunately thats not the case. :(

I've learned how to cook and I enjoy it but theres just not much I can make....it would be kind of pointless to cook a gluten-free meal for him that I cant eat myself.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Oh, poop. I didn't realize you couldn't eat corn. Sorry, Rachel. :(

I wonder if anybody's ever made millet tortillas....

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Oh, poop. I didn't realize you couldn't eat corn. Sorry, Rachel. :(

Its ok. :)

I'm optimistic that in the next year or so I'll be eating alot of stuff I cant eat now. Maybe it will just be gluten and dairy I'll have to worry about. Maybe even just gluten!

AndreaB Contributor
AndreaB
Posted

Rachel,

Your friend sounds like he could benefit from your knowledge of food. :lol:

It's nice that you have someone you can pal around with.

We went to church today, first time in awhile with my daughters sickness and then with the baby. We went upstairs since my daughter wanted to go to the fellowship hall, to see who was in the kitchen. The first thing she and M did was take a roll. I was only out of their sight for about 2 minutes. Talitha says that she didn't know the rolls had gluten in them. :blink: I wasn't a very happy camper to say the least. I obviously need to do some educating. :( Now we'll wait and see if either of them have a reaction to the gluten.

evie Rookie
evie
Posted

I was told yesterday that even olive oil which says 100% olive oil may contain soy oil. Has anyone else heard this?

...GOT 20 MIN IN GARDEN TODAY WITH CHIRO PERMISSION. COURSE IT WAS MORE LIKE 45 MIN..BUT LEG NOT TOOOO BAD. DID MEASURE WHEN I GOT BACK IN AND TOOK ACE OFF.

JUDY IN PHILLY

Green12 Enthusiast
Green12
Posted
Anyways, I'm not really prepared for getting interested in anybody. Its not exactly part of my

"plan" ya know. I was suppossed to get better first. :(

I've totally stuck to the "plan" for 2 years now...I havent accepted any dates or anything....just focused on my health. Its actually been really good for me since I've never been single or had "time off" since I was under 16. I've learned alot about myself.

Only reason I started going out with this guy is cuz we're friends...so no big deal. Now I'm really liking spending time with him.....maybe a little too much. :ph34r:

Also I dont know if he's at all interested in me. Guess time will tell. :)

Oh, he did say that when he dates someone he likes to take them to different restaraunts and try all different foods. Guess if he ever did wanna date me he'd have to be a little more creative huh? Or we could just keep going to all the movies and hope we dont run outta stuff to see. :P

Rachel,

This is not a lecture, just an observation, but you know the saying, "life is what happens when you are busy making plans...", or something like that? I am in total support of focusing on one's health, but I would hate for anyone to let something pass them by because they were waiting for the "right time". You know what I mean?? Because there never really is the "right time" for anything.

I say this because this is what I experienced, and I almost let the biggest and best thing in my life pass me by because I didn't feel like I could be a part of something while I wasn't healthy.

Just food for thought :lol::lol:

Do any of you crash into stuff during a reaction? I'm thinking I could have been glutened minorly...it seems like I get like that from gluten. I know it was from pancakes....I think because of my gut still being really leaky....I'm just more vulnerable to cc from the flours. I know they cant be totally down to 0 ppm but I hate that such trace amounts have an affect. :(

One of my symptoms when I am reacting is dizziness and my balance being off.

We went to church today, first time in awhile with my daughters sickness and then with the baby. We went upstairs since my daughter wanted to go to the fellowship hall, to see who was in the kitchen. The first thing she and Micah did was take a roll. I was only out of their sight for about 2 minutes. Talitha says that she didn't know the rolls had gluten in them. :blink: I wasn't a very happy camper to say the least. I obviously need to do some educating. :( Now we'll wait and see if either of them have a reaction to the gluten.

Andrea,

I hope your kids don't get a reaction :unsure:

penguin Community Regular
penguin
Posted

Olive oil - HOLY SPIT, BATMAN!!!!

Open Original Shared Link

Mango04 Enthusiast
Mango04
Posted
Olive oil - HOLY SPIT, BATMAN!!!!

Open Original Shared Link

Okay so now I have to grow all my own fruits and vegetables AND make my own olive oil. Just kidding, but seriously, what's up with the inability we have in this country to buy safe food? Why can't a bottle that says "olive oil" just be olive oil? :blink: That whole thing is really bizzare.

Okay I just checked my olive oil. It's Bionaturae, and it claims that it's made in Italy and the olives are grown on small organic farms. I hope there's not mystery ingredients in my olive oil...

Green12 Enthusiast
Green12
Posted
Olive oil - HOLY SPIT, BATMAN!!!!

Open Original Shared Link

This totally p*sses me off :angry::angry:

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      how much gluten do I need to eat before blood tests?

      By trents · Posted

      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
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