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- rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11High DGP-A with normal IGA
I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score. -
- knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11High DGP-A with normal IGA
Food and environmental allergies involve IgE antibodies. IgE antibodies provoke histamine release from mast cells. Celiac disease is not always visible to the naked eye during endoscopy. Much of the damage is microscopic and patchy or out of reach of the scope. Did they take any biopsies of your small intestine for a pathologist to examine? Were... -
- rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11
High DGP-A with normal IGA
I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting! The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac... -
- trents replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications10Finding gluten free ingredients
Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. -
- knitty kitty replied to Colleen H's topic in Coping with Celiac Disease6
Gluten related ??
@Colleen H, I have had similar reactions and symptoms like yours. I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne. Her book, The Paleo Approach, is very helpful in understanding what's going on in the body. Not only do you have antibodies attacking the body...
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I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score. -
By knitty kitty · Posted
Food and environmental allergies involve IgE antibodies. IgE antibodies provoke histamine release from mast cells. Celiac disease is not always visible to the naked eye during endoscopy. Much of the damage is microscopic and patchy or out of reach of the scope. Did they take any biopsies of your small intestine for a pathologist to examine? Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"? Just curious. -
I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting! The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
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Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes.
-
By knitty kitty · Posted
@Colleen H, I have had similar reactions and symptoms like yours. I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne. Her book, The Paleo Approach, is very helpful in understanding what's going on in the body. Not only do you have antibodies attacking the body, there are mast cells spreading histamine which causes inflammation. Foods also contain histamine or act as histamine releasers. Our bodies have difficulty clearing histamine if there's too much. Following the low histamine AIP diet allows your body time to clear the excess histamine we're making as part of the autoimmune response, without adding in extra histamine from foods. High histamine foods include eggs, processed foods and some citrus fruits. The AIP diet allows meat and vegetables. No processed meats like sausage, luncheon meats, ham, chicken nuggets, etc. No night shades (potatoes, tomatoes, peppers, eggplant). No dairy. No grains. No rice. No eggs. No gluten-free processed foods like gluten free breads and cookies. No nuts. No expensive processed gluten-free foods. Meat and vegetables. Some fruit. Some fruit, like applesauce, contains high levels of fructose which can cause digestive upsets. Fructose gets fermented by yeasts in the gastrointestinal tract. This fermentation can cause gas, bloating and abdominal pain. The AIP diet changes your microbiome. Change what you eat and that changes which bacteria live in your gut. By cutting out carbohydrates from grains and starchy veggies like potatoes, SIBO bacteria get starved out. Fermenting yeasts get starved out, too. Healthy bacteria repopulate the gut. Thiamine Vitamin B 1 helps regulate gut bacteria. Low thiamine can lead to SIBO and yeast infestation. Mast cells release histamine more easily when they are low in Thiamine. Anxiety, depression, and irritability are early symptoms of thiamine insufficiency. A form of thiamine called Benfotiamine has been shown to promote intestinal healing. Thiamine works with the seven other B vitamins. They all need each other to function properly. Other vitamins and minerals are needed, too. Vitamin D helps calm and regulate the immune system. Thiamine is needed to turn Vitamin D into an active form. Thiamine needs magnesium to make life sustaining enzymes. Taking a B Complex and additional Benfotiamine is beneficial. The B vitamins are water soluble, easily lost if we're not absorbing nutrients properly as with Celiac Disease. Since blood tests for B vitamins are notoriously inaccurate, taking a B Complex, Benfotiamine, and magnesium Threonate, and looking for health improvements is a better way to see if you're insufficient. I do hope you will give the low histamine AIP diet a try. It really works.
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I know--the more I find out, the more I think Celiac will be a sideline. But, we'll wait and see--any mention is better than none at all!
Just bumping this--tonight's the night!
I also saw preview and was wondering how they are going to tie celiac disease to this womans problems. Although with all the reading I've done I know some people do get seizures. I do hope this show is good. I for one will be Tivo'g it so I can watch again.
In one preview, she looked darnright possessed!
Let's hope it gets celiac "out there"......
Hugs.
Karen
It will be interesting to see what the "research" section of the website will reveal after tonight's episode.
Let's hope it doesn't make people with celiac look "out there"....
*fingers crossed*
Actually, I bet this stie will get hammered. Every here should be ready for it... IF celiac disease is the star of the show, then ppl will hope online, and guess what site comes up first in google..... I feel for the moderators!
Yeah, good luck moderators!
I meant that I hope it doesn't make celiacs look like crazy baby-drowning posessed crazies.
Maybe I'd better take a nap this afternoon--get rested up for tonight
THis would be a bad day to swear off cafine....
NaNa NaNa, Boo Boo!!!!!!!
Better rest up moderators!!!!!
Hugs.
Karen
thanks I realy need that this am!
Ha--got out just in the nick of time
Hey all, just checked on the time in my neck of the woods, and the summary says this (on tvguide.com site)
"A mother almost drowns her newborn son when she has a seizure while bathing him, but that's not what's causing his serious illness. And the mother's "seizure" turns out not to be a seizure at all. Meanwhile, Chase begins working in the Neonatal Intensive Care Unit; Cuddy and Wilson have dinner together; and Foreman's back at work, though his mental acuity isn't all the way back."
So........hm.......maybe she has celiac? Tune in to find out! LOL! I will
I know that this has been repeated over and over but someone please say it again...What time is tonights show? I am coming home from work early just so I can see it but I am having a brain fog moment. Sorry.
Sis
It's on at 9 PM Eastern.
9pm eastern time
You beat me to it Patty..hehehe
9pm on the west coast too. always check your local listings. ;-)
Thanks a bunch!
8 CENTRAL
9 p.m. what channel...
My TV is set to HBO Sopranos -- I don't watch much of anything else. BUT tonight I'm looking forward to this.... what channel???
Fox.
-Elonwy