Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

*****sigh*****home From Hospital--temporarily


chrissy

Recommended Posts

chrissy Collaborator

i've just gotten home tonight from 5 days in the hospital with tianna. kevin is staying with her right now, i will go back up on tuesday. i don't think she will be coming home for quite awhile. the doc said he is keeping her there until we have a "plan". her potassium was low, so she is on supplements and a heart monitor. her heart rate is pretty low because her body has gone into a conservation mode---it has been dropping even lower when she sleeps. the nurse came in and woke her up one night because of it being so low. she is pretty restricted. the bathroom door is locked, the water in the sink is turned off, and the garbage can has been removed from the room. she has to use a portable potty chair, and someone has to be in with her when she showers. she is not supposed to be walking around, so i have to take her in a wheelchair to get the outside sunshine that the doc wants her to get. she was originally being allowed to order her own meals, but she wasn't eating enough, so yesterday the doc had the dietician step in and now tianna's meals are just brought in to her. friday and sat she only ate 700 cals and 795 cals. the doc says he does not want to put a tube in her nose, but if she doesn't eat enough, he will. last night she ate a good dinner, pretended to have a stomach ache, and then threw up with me sitting right there-----even sitting with her i couldn't stop her. as soon as arrangements are made, she will be going to an eating disorder clinic. she just wants to die---i think she thought she could starve herself to death. the doc thinks that she has probably had the tendency for the eating disorder for awhile, but being diagnosed with celiac was just the last straw.

christine


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tony'sMom Rookie

I'm so sorry. I hope your daughter gets the help she needs and that she recovers soon. I will keep your family in my thoughts.

Guest nini

my heart just breaks for you and your family. I do hope that they are able to keep her diet gluten-free at the hospital... even hospital staff make mistakes with this diet...

{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}}}}}}}

jaten Enthusiast

{{{{{{{{{{{{{{{HUG}}}}}}}}}}}}}}}}

jerseyangel Proficient

Chrissy--I'm so sorry, I wish there was more I could say or do. Sending good thoughts, prayers and a hug your way.

wolfie Enthusiast

I am so sorry. I will keep you and your family in my prayers.

I have suffered on & off with an eating disorder for years. It is a tough battle and will continue to be one for the rest of my life. I am glad that she is in a place where she can receive the help that she needs.

((((((HUGS))))))))))

wonkabar Contributor

I'm so sorry to hear this. You and your family are in my thoughts. I can't even imagine how difficult this must be for you. The greatest gift we can give our kids is love; your daughter is very lucky to have you.

--Kristy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

Chrissy,

My heart goes out to you and I will keep you and your daughter in my thoughts and prayers. I can't imagine the feeling of helplessness watching your child go through this. At least she is exactly where she should be to get the best treatment. Are they giving her any kind of psyciatric treatment, specializing in eating disorders? I hope so......

{{{{{{{{{{{{{{{{{{{{{{{{{{{{ HUGS }}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}

Karen

mouse Enthusiast

I am so very sorry that your daughter has this eating disorder. Like Karen said she is in the best place she can be. My prayers are with you, your daughter and your family. HUGS to all of you.

Becky6 Enthusiast

I am so sorry!! Hugs!!!!

penguin Community Regular

I'm sorry, eating disorders are so hard. It makes family and friends feel so helpless.

I hope she improves soon. :)

jenvan Collaborator

Chrissy-

Oh wow... I am so sorry. I am sure your heart must be breaking right now. Eating disorders are such a hard, and usually, lifelong battle. I am going to pray for healing, for a recovery, that her desires to harm herself would disappear. I had an eating disorder many years ago...and by the grace of God just snapped of it, I lost the desire. Rare story...but true. I hope she lets her guard down, listens to her family and counselors and loses the fear she is tangled up in... Prayers for you too...

RoseNNJ Apprentice

Sending Hugs and Prayers.

carriecraig Enthusiast

Chrissy, I'm so sorry you and your family are going through such a tough time right now. You're in my thoughts...

{{{{{{HUGS}}}}}}

Guhlia Rising Star

I fought with my own anorexia for three years. God bless you for being so strong for her. She will need it. I'll be praying that she's able to make a complete recovery soon.

2Boys4Me Enthusiast

(((((((((((((((((((((((((HUG)))))))))))))))))))))))))))

JenAnderson Rookie

My thoughts and prayers are with you.

((((hug)))))

schuyler Apprentice

(((((((HUGS)))))))

I am so sorry about what you have been going through. I can't even imagine what it would be like to watch you're own child go through this. My thoughts and prayers are with you, Kevin, Tianna, Kassie, and the rest of your family.

evie Rookie

Sending prayers for you and your family..you can not have too many @ such a time as now...We will all be thinking of you and yours. evie

Fiddle-Faddle Community Regular

I'm so sorry--my thoughts and prayers are with you. I hope things improve.

prinsessa Contributor

((((((HUGS))))))) I'm sorry you daughter isn't doing well right now, but atleast she is getting the treatment she needs.

TCA Contributor

hugs and prayers from our family to each of you.

Tanya

JakeARoosMommy Newbie

Chrissy,

Lots of hugs to you! I am so sorry to hear about your daughter's condition. A church member of ours had a daughter that we helped to send off to a rehab center for eating disorders down in Arizona. It was costly, but it seems to be working. I pray that your daughter will recover soon.

ryebaby0 Enthusiast

I am so sorry for your pain, and her's. We will keep you in our prayers. She has two things going for her: she's in a place where she is safe, and people will take care of her AND she has a fantastic mom who is on her side. Eating disorders and depression are so serious, and so long-term, but even the longest journey has to start somewhere, and sometime. Keep us up to date and let us know how she and you are doing. (You can create a website for her at caringbridge.com and save yourself the trauma of having to re-tell things over and over)

It's okay to worry. And it's okay to take a break and watch TV or sleep or read a book, too. Take care

Joanna

ravenwoodglass Mentor

((((((((((Hugs))))))))))) and prayers. I hope things improve for you all soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,818
    • Most Online (within 30 mins)
      7,748

    Twiggy777
    Newest Member
    Twiggy777
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.