Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

11 Cavities In A 3 Year Old?

floridanative

Recommended Posts

floridanative Community Regular
floridanative
Posted

Okay - some of you know that I have tried unsuccessfully to get my sister (tested neg. for Celiac) to get her children tested as well. The girl catches every virus around and is sick 1/2 the time and the boy who is three is thought to have lactose intolerance which you know Celiac imitates very well. So we were visiting the family out of town over the weekend and my husband informed me that my nephew has 11 cavities according to my sister. Does this sound abnormal to anyone or is that just the way some kids baby teeth are? He does not eat a lot of sugar and if he gets a soda it's a very rare treat - unlike most other kids I know who drink soda every day and do not have cavities. As I the aunt and my Mother (the kids blood grandmother) both have Celiac, we know it runs in the family. I have two cavities now and had a root canal last spring and just now found out I have osteopenia due to lack of calcium absorption. I'd appreciate any opinions I can get.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

I have six kids and none of them had anywhere near 11 cavities by the time they were three!!!! Not normal!

AndreaB Contributor
AndreaB
Posted

If the child ate a lot of candy, sweets, pop, sugar, sugar, sugar, then I would say yes.

Also if the child never brushed their teeth I'd say maybe.

Something else is going on here (IMO)

nikki-uk Enthusiast
nikki-uk
Posted

Sounds very similar to my friends little boy.

By the age of around 6yrs he had to have 5 teeth out as the dentist couldn't save them-in fact,it was the dentist who suggested that he wasn't absorbing calcium.

After seeing a paediatrician,he thought it was celiac disease,but bloods were negative.He was eventually diagnosed with lactose intolerance.

I've gotta say,I do actually wonder though-is he a coeliac?

My friend thinks I am a crazy coeliac spotter( :ph34r: !),but I know that he still has D even when he hasn't had milk,but hey I've broached the subject,and she's happy with the fact that he had neg bloods all them years ago <_<

Have you explained to your sister that the state his teeth could be due to celiac disease?

At the end of the day,if she's adamant you're wrong about celiac disease,there's not much else you can do-although very frustrating I know. :)

jerseyangel Proficient
jerseyangel
Posted

That sounds like an excessive amount of tooth decay for a 3 year old--especially one who eats very little sugar. Considering the family history, this added with the lactose intolerance should convince your sister to have him tested. What does she have against the testing?

floridanative Community Regular
floridanative
Posted
  • Author

First of all - thank you to everyone for sharing your opinions.

Jerseyangel - you may not have read my older post about my sister's idiot pediatrician. He thinks if my sister doesn't have Celiac - her kids do not need to be tested. I've sent all the proven medical info showing that is ridiculous and told her repeatedly her kids should be tested at age five even if they have NO symptoms due to our family history. I guess she doesn't want him to have it and really the baby teeth will fall out eventually. But if he gets cavities in his permanent teeth like he has now, I don't think my sister can put off testing him for Celiac then. I just think it would be better to find out now if he has it since he could go off gluten and he'd never even remember having it.

jerseyangel Proficient
jerseyangel
Posted
First of all - thank you to everyone for sharing your opinions.

Jerseyangel - you may not have read my older post about my sister's idiot pediatrician. He thinks if my sister doesn't have Celiac - her kids do not need to be tested. I've sent all the proven medical info showing that is ridiculous and told her repeatedly her kids should be tested at age five even if they have NO symptoms due to our family history. I guess she doesn't want him to have it and really the baby teeth will fall out eventually. But if he gets cavities in his permanent teeth like he has now, I don't think my sister can put off testing him for Celiac then. I just think it would be better to find out now if he has it since he could go off gluten and he'd never even remember having it.

Hi Tiffany--Yes, I missed that post. The doctor--should have known <_< I just hate to see anyone have a delay in diagnosis. I hope that she will change her mind--it would be easier for the little boy to get off gluten now, if need be, before he gets any older. Not to mention his health and development if he does have it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
First of all - thank you to everyone for sharing your opinions.

Jerseyangel - you may not have read my older post about my sister's idiot pediatrician. He thinks if my sister doesn't have Celiac - her kids do not need to be tested. I've sent all the proven medical info showing that is ridiculous and told her repeatedly her kids should be tested at age five even if they have NO symptoms due to our family history. I guess she doesn't want him to have it and really the baby teeth will fall out eventually. But if he gets cavities in his permanent teeth like he has now, I don't think my sister can put off testing him for Celiac then. I just think it would be better to find out now if he has it since he could go off gluten and he'd never even remember having it.

Please let her know that even though these are baby teeth the adult ones are also being effected. How is his growth, ask her where he was at birth and where he is now. Has he lost ground? Undiagnosed celiac in children has life long effects to their brains and bodies. It can stunt growth severely and can cause problems with learning and cognition. The longer she waits the more chance there is that the delay will cause permanent damage. I hope she not only will test but will also try the diet.

flagbabyds Collaborator
flagbabyds
Posted
Okay - some of you know that I have tried unsuccessfully to get my sister (tested neg. for Celiac) to get her children tested as well. The girl catches every virus around and is sick 1/2 the time and the boy who is three is thought to have lactose intolerance which you know Celiac imitates very well. So we were visiting the family out of town over the weekend and my husband informed me that my nephew has 11 cavities according to my sister. Does this sound abnormal to anyone or is that just the way some kids baby teeth are? He does not eat a lot of sugar and if he gets a soda it's a very rare treat - unlike most other kids I know who drink soda every day and do not have cavities. As I the aunt and my Mother (the kids blood grandmother) both have Celiac, we know it runs in the family. I have two cavities now and had a root canal last spring and just now found out I have osteopenia due to lack of calcium absorption. I'd appreciate any opinions I can get.

Thats weird!

I've never had a cavatie, and im 16.

You gotta love them rich silicon valley people having flourine in the h2o we drink out of the tap.

TCA Contributor
TCA
Posted

My son is 3 and had dentla surgery week before last for his nonexistant enamel. 7 crowns, 3 fillings, and sealants on the 2 teeth that were left. He had classic sypmtoms since birth and had a dairy allergy that he outgrew. His bloodwork was inconclusive and he had 2 neg. biopsies. Symptoms persisted, so we tried the diet and it was a miraculous turn around. After gene testing, he was given a somewhat positive diagnosis. Not on his chart, but to me because of insurance purposes. The dr. knows me well and said he didn't want to do more harm than good since he knows I"ll keep him on the diet.

Please tell these moms to try the diet even if the tests are negative. I guess that is if you can get them to do the tests in the first place!!!

My SIL needs to be tested too, but hasn't been. I think she just doesn't want to know. It's frustrating, but we can't make thier decisions for them.

prinsessa Contributor
prinsessa
Posted

I had tons of cavites my whole life (starting at a young age) and I never ate much candy and brushed my teeth all the time. I never had symptoms of gluten intolerance before a year or so ago so I don't know if that has anything to do with it (I think it does though). Hopefully your sister will get him tested. Good luck!

gfp Enthusiast
gfp
Posted

floridanative: Is this in the UK? just asking because the dental service is terrible and the way dentists get paid is by creating work.

When I was about 10 my dentist retired and someone took over the practice. I went from no cavities to him finding a new one each time, I stopped going when I was 11-12 but my mother continued and eventually ended up in a malpractice suite .. long story... and although the dental assoc defended his actions offically he was struck off for something else about a year after.,

chrissy Collaborator
chrissy
Posted

some kids just have really soft baby teeth(2 of my non-celiacs have had to have some pulpotomies on baby teeth, but with celiac in the family i would sure want to get them tested if i were your sister------is she not testing because her doc doesn't feel it is necessary, or because she just doesn't want to do it?

floridanative Community Regular
floridanative
Posted
  • Author

Where my sister lives, there is not ONE doctor in the entire town who knows any current info on Celiac. My onw Celiac Mother is supposed to have a biopsy late this month when she'll have been gluten free for over three months.....at least the diet is working for her so I don't think she'll go back to gluten when he tells her she doesn't have Celiac - blookwork was positive in March.

Back to my sister's ped. He knows almost nothing of Celiac (dx'd his first patient with it recently and he's in his 40's) and told her if she doesn't have it then there's no need to test her kids. It's hard to convince people that doctors really don't know about Celiac and my sister knows I haven't been to medical school.... I've sent her all the info with all the symptoms and I just think she doesn't want her kid to have it so she'd rather not think that he could. I've been fairly abnoxious about the fact that her doc knows nothing, can't be trusted to recognize Celiac, and her kids both need to be tested. Now I have to tread lightly so I can keep a relationship with my sister. We only see each other a few times a year but I don't want those times to be strained because of the Celiac elephant in the room.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.