Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This Is Strange...

Ashley

By Ashley
in Coping with Celiac Disease

Recommended Posts

Ashley Enthusiast
Ashley
Posted

I just downed a small bowl full of grapes and a half of a kinnikinnick cinnamon sugar doughnut, which are gluten-free 'course. My stomach is hurting so bad, and I'm pretty sure it wasn't the grapes. Anyone else not respond well to kinnikinnick? This bag confuses me, but, I think these are casein-free too ( I have had problems with diary, especially when I was a baby. I absolutely refuse to cut out dairy, I have a hard enough time with Celiac. I'd only cut it out if it did damage like Celiac. I do moderation with milk. Yeah I'm a hard head :unsure: )

-Ash

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

I had a Kinnikinnick donut this morning with no problems. I have a problem with casein, and feel much better and less bloated off the dairy. You might give it a try for week and see if it makes a difference. I buried my head in the sand for while ... but stopped getting better, so just cut it out a week ago. BIG difference

I do better with fruit if I eat it on an empty stomach, especially something as watery as grapes. If I ate them first, then ate the donut a little while later, I'd be fine. If I ate them with the donut or after, it might bother me. Watermelon and cantelope are the worst for this ... I can only eat them on an empty stomach.

Ashley Enthusiast
Ashley
Posted
  • Author

I guess that would be helpful. My nutritrionist told me to add some yogurt in my diet (I can't even remember why now), and mostly avoid dairy for the most part. I don't get much, but this doughnut set my stomach on fire, I'm still hurting. Guess I'd be willing to try it for a week.

Thanks Carla :)

CarlaB Enthusiast
CarlaB
Posted
I guess that would be helpful. My nutritrionist told me to add some yogurt in my diet (I can't even remember why now), and mostly avoid dairy for the most part. I don't get much, but this doughnut set my stomach on fire, I'm still hurting. Guess I'd be willing to try it for a week.

Thanks Carla :)

I think I was more upset about the casein than the gluten ... I just love butter, kifir, and ice cream. <_< But, I'm doing okay with it ... I've even been off coffee for the week since I like my half and half with it. Good luck with it ... let me know how it goes. I was in total denial, but if I look back, most of the times I thought I was glutened by cc, I had dairy. I don't think the donuts have dairy ... but I had one with plain white frosting.

If you can tolerate dairy, yogurt is very good for building the good bacteria in your intestines.

Lister Rising Star
Lister
Posted

yeah i was gonna say that, yogurt supposdly really helps your stomic with healing, dont know personaly still avoiding dairy until i have a day to set aside incase i get sick from it. trying it on my birthday hope it dont ruin it.

you really should cut out the dairy for a bit as hard as it is, it will give your body a easyer healing time. also do you drink lots of liquid when you eat? you should eat with only a few sips of liquid and then finish the glass 2 minutes afterwards to prevent stomic cramps

lorka150 Collaborator
lorka150
Posted

are you sensitive to sulphites? grapes are naturally high in them.

Ashley Enthusiast
Ashley
Posted
  • Author

Carla- Thanks, absolutely will let ya know. Maybe that's my case. No matter what I do, I cannot get rid of this bloating...

Lister- That's what that nutritrionist lady told me! Love my memory. Really? I usually drink more liquid than what I eat :blink: will give that a try.

Lorka- Not that I know of.

-Ash

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


skoki-mom Explorer
skoki-mom
Posted

My sister (who has celiac disease, like me) has a lot of trouble with sulphites. Grapes are loaded with sulphites before they come off the vine. Just a thought. Hope you feel better.

My sister (who has celiac disease, like me) has a lot of trouble with sulphites. Grapes are loaded with sulphites before they come off the vine. Just a thought. Hope you feel better.

Oops. Should have read lorkas response first!

penguin Community Regular
penguin
Posted

Could have been a couple of things:

1: grapes have a lot of sugar, it may have been a sugar problem if you ate a bunch of them. I know that would bother me!

2: Are the kinnikinnik donuts fried? I can't imagine what obscure flours and oil would do to my stomach, eep!

3: A combination of both

4: you just feel sicky today?

Feel better! :)

2kids4me Contributor
2kids4me
Posted

kinnikinnik has a habit of changing the flour combo every once in a while. A celaic I know is sensitive to pea flour and any of their products with peas flour make her bloat up, gives her a headache and stomach ache.

Any sensitivity to peas?

Mango04 Enthusiast
Mango04
Posted

Kinnickinnick makes me sick sometimes for no apparant reason...

Rachel--24 Collaborator
Rachel--24
Posted

I'm going to say the same thing others have already said about the grapes and sulfites. Do you normally eat grapes w/ no problems? I react to sulfites and cant handle any grapes. All grapes are loaded with sufites...as someone already mentioned.

eKatherine Apprentice
eKatherine
Posted

If I ate a bowl of grapes on an empty stomach, it would give me D and the shakes, and I'm not sensitive to sulfites.

gfp Enthusiast
gfp
Posted
If I ate a bowl of grapes on an empty stomach, it would give me D and the shakes, and I'm not sensitive to sulfites.

LOL

True, eating lots of fruit is always a good way to clear yourself out...

As a kid that grew up in the countryside I would regualrly find a cherry tree or fruit bushes and eat lots and oif course this produces belly ache and D in everyone.

I don't know about kinnikinnik but I know lots of gluten-free stuff is full of just about everything else.

jerseyangel Proficient
jerseyangel
Posted

I can't eat the K products (or any other processed gluten-free baked goods) because I'm sensitive to tapioca and legumes--they tend to use those flours a lot. Not to mention the rice :(

rinne Apprentice
rinne
Posted

I see now that I have many sensitivities and that they are all related. The sulphites they spray on grapes is toxic to many people, over ten years ago I found that I could no longer drink red wine without triggering a migraine. So, I wonder if it was the grapes.

I hear you about the cheese. I seriously did not want to give up cheese and cream and butter but I finally had to acknowledge it was making me feel sick. The truth is I am now sick enough that I don't miss the things that hurt me.

lorka150 Collaborator
lorka150
Posted

grapes naturally produce sulphites.

Rachel--24 Collaborator
Rachel--24
Posted
grapes naturally produce sulphites.

All grapes are also sprayed with sulphites. I believe spraying sulphites on fresh produce has been banned with the exception of grapes and fresh cut potatoes. Some people died from consuming salad bar foods that had been sprayed with sulphites so it is now illegal...although it is still done occasionally....illegally.

loraleena Contributor
loraleena
Posted

Hi,

If you don't want to completely give up dairy I would suggest eating raw dairy. You can get cheeses at Whole foods and milk from some local farms. I also eat a wonderful water buffalo yogurt that is gentler on the stomach. Many people are lactose intolerant because of the pasterization and homogenization of dairy. It kills all the enzymes we need to digest it. I can tolerate raw but not pasterized. The cheeses are yummy and taste better than regular cheeses. Read about the dangers of pasterization and homogenization on the web. If casein is an issue than raw probably won't help. You could try goat and sheep dairy which is better for you anyway.

Ashley Enthusiast
Ashley
Posted
  • Author

Grapes are a normal part of my diet. I at least eat them around three times a week. Never had a problem with them.

They took one of those prickley things on my arm for food sensitivies while they did needles for other allergies when I got tested for getting shots. My nutrientist told me that those tests aren't very acturate. Peas did show up, but, those are normal in my diet too.

I'll try all these suggestions when I can. I went to the ER last night. I had an asthma attack or hyperventilation, they can't say for sure. Back musle spasms happened, my face, above my eyes, lips and hands turned blue and I l ost feeling. Before that, I went to my post-op for sinus surgery and they had to break scaring trying to form over the cuts they made. It hurt like a lot of things I shouldn't say. I'm miserable right now and just need prayers.

-Ash

jerseyangel Proficient
jerseyangel
Posted

Oh Ashley, I'm sorry! Feel better soon--I'm saying a little prayer for you right now :)

queenofhearts Explorer
queenofhearts
Posted
Grapes are a normal part of my diet. I at least eat them around three times a week. Never had a problem with them.

They took one of those prickley things on my arm for food sensitivies while they did needles for other allergies when I got tested for getting shots. My nutrientist told me that those tests aren't very acturate. Peas did show up, but, those are normal in my diet too.

I'll try all these suggestions when I can. I went to the ER last night. I had an asthma attack or hyperventilation, they can't say for sure. Back musle spasms happened, my face, above my eyes, lips and hands turned blue and I l ost feeling. Before that, I went to my post-op for sinus surgery and they had to break scaring trying to form over the cuts they made. It hurt like a lot of things I shouldn't say. I'm miserable right now and just need prayers.

-Ash

What an ordeal, Ashley! I hope you are feeling much better now. You know we are all rooting for you.

Leah

gfp Enthusiast
gfp
Posted
Hi,

If you don't want to completely give up dairy I would suggest eating raw dairy. You can get cheeses at Whole foods and milk from some local farms. I also eat a wonderful water buffalo yogurt that is gentler on the stomach. Many people are lactose intolerant because of the pasterization and homogenization of dairy. It kills all the enzymes we need to digest it. I can tolerate raw but not pasterized. The cheeses are yummy and taste better than regular cheeses. Read about the dangers of pasterization and homogenization on the web. If casein is an issue than raw probably won't help. You could try goat and sheep dairy which is better for you anyway.

I gotta agree.

I only (mainly) eat raw cheeses and mainly buffalo, goat or sheep.

In addition to this you also get a lot of pro-biotics natually ... one specific oner is found in the stomachs of cows and sheep and of course is part of the rennet in a real cheese but pasturising kills them off.

There is a probitic thread somewhere which specifally mentoins this particular beasty...

indyceliac Newbie
indyceliac
Posted

I got really nauseous after eating a kinnikinick chocolate donut. It was on an empty stomach and I figured it was just from way too much sugar.. (I have blood sugar issues too). No more donuts for me.

evie Rookie
evie
Posted
I can't eat the K products (or any other processed gluten-free baked goods) because I'm sensitive to tapioca and legumes--they tend to use those flours a lot. Not to mention the rice :(

Jersey..have you been allergic to rice long? I was found to be allergic to rice a few months before I knew I am c eliac. I have a slight hope I will over come that, do you think that will be possible? Just wishful tninking maybe. I believe I do better doing my own baking/ my choice of flours and etc. i have some new ones need to try soon. Stay well, evie

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,927
    • Most Online (within 30 mins)
      7,748
    Heathercb
    Newest Member
    Heathercb
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Shining My Light
      Virus, celiac disease or both?

      By Shining My Light · Posted

      @knitty kitty I had an injury from assuming I could do work outs at the gym like I did in my 20s 😏. it didn’t work in my favor. My orthopedic doctor told me to go on 50,000IU /per week for 4-6 weeks for a boost and then do a maintenance. I took 2 and got nervous to take any more, it seemed so high to me. About 7  months later I had a blood test revealing that my Vit D levels are lower than normal. I started taking vit D supplements-4000IU./a day now. (the natural garden of life ones) I had a friend whose levels were low and she was having a mental breakdown.  My B12 levels were right in the middle of the range.     
    • knitty kitty
      Confused About Results

      By knitty kitty · Posted

      @Ginger38, Have you been checked for nutritional deficiencies, besides iron?   Celiac disease causes inflammation which results in nutritional deficiencies.   Iron needs Thiamine and the other B vitamins to make new red blood cells.   Iodine and thiamine deficiencies affect the thyroid.  The thyroid is one organ that uses lots of thiamine.   Vitamin D deficiency leads to hormonal problems, including menstrual problems.  Vitamin D needs Thiamine to activate it.   Heart palpitations and chest pain after gluten exposure can be evidence of poor digestion and a drop in available thiamine.  Consumption of any  foods high in carbohydrates can cause a drop in thiamine.  This is called high calorie malnutrition. Anxiety, numbness, tingling, acne, and brain fog are symptoms of Thiamine and the other B vitamin deficiencies.  There's eight B vitamins that all work together in concert.  They are water soluble.  They can be hard to absorb by inflamed intestines.  Vitamin A can improve acne. I suffered from all the same symptoms which only resolved with B Complex and Thiamine (in the forms TTFD and Benfotiamine) supplements, Vitamins D, A and C.  Magnesium, Thiamine and B6 Pyridoxine will get rid of the nightmares. Replenishing your vitamin and mineral stores will help heal and feel better faster.  Talk to your nutritionist and doctor about supplementing. Think about adopting the Autoimmune Protocol diet to help with SIBO and MCAS to reduce bloating and heal the intestines. @Alibu and I were just discussing diagnosis without obvious villus damage here.   This study followed people who showed no or little villi damage at first....they accrued more damage over time. Outcomes of Seropositive Patients with Marsh 1 Histology in Clinical Practice https://pmc.ncbi.nlm.nih.gov/articles/PMC4980207/ There's a move to be less reliant on endoscopy for diagnosis. Biopsy‐Sparing Diagnosis of Coeliac Disease Based on Endomysial Antibody Testing and Clinical Risk Assessment https://pmc.ncbi.nlm.nih.gov/articles/PMC12074562/
    • Ginger38
      Confused About Results

      By Ginger38 · Posted

      Okay, Thank you!! I already have thyroid problems and my total iron binding capacity is high which usually means low iron but everything else was normal, lower end but “normal” my hair falls out and my nails won’t grow without breaking but nothing is being treated iron wise.  I have started having palpitations and chest pain,  both of which seem to be attributed to exposure to gluten. I’ve also been having a lot of nightmares, anxiety, numbness and tingling, brain fog, spotting between cycles and acne. Idk if all those are relatable to gluten / celiac but I’m concerned  I’ve finally tipped my body/ immune system into a bad place. Is there anyway to detox and heal faster or treat these symptoms if related to gluten ? 
    • knitty kitty
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By knitty kitty · Posted

      @Alibu, Start with this study... High-dose thiamine supplementation improves glucose tolerance in hyperglycemic individuals: a randomized, double-blind cross-over trial https://pubmed.ncbi.nlm.nih.gov/23715873/ "Conclusion/interpretation: Supplementation with high-dose thiamine may prevent deterioration in fasting glucose and insulin, and improve glucose tolerance in patients with hyperglycemia. High-dose thiamine supplementation may prevent or slow the progression of hyperglycemia toward diabetes mellitus in individuals with impaired glucose regulation." They used 100 mg of thiamine three times a day.  They don't say which kind of thiamine was used.  Benfotiamine is my recommendation because it has been shown to promote intestinal health and helps with leaky gut and SIBO.  Thiamine forms including Benfotiamine and TTFD are safe and nontoxic even in higher doses.   The old "gold standard" diagnosis is changing.  It must be confusing for doctors as well.  I went through all this myself, so I understand the frustration of the vagueness, but set your course and watch as your health improves. Keep us posted on your progress!   P.S. here's another link.... https://pubmed.ncbi.nlm.nih.gov/39642136/
    • Alibu
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By Alibu · Posted

      @knitty kitty I see, thank you!!  Yes, basically the biopsy just said "normal villous architecture."  It didn't give any kind of Marsh score at all, but it sounds like it would be a 0 based on the biopsy report, which is why he's saying it's Latent or Potential celiac.  It's just weird because I know in Europe if I was a child, they wouldn't even do the biopsy, so how does this system make any sense?? I have had an A1c and it's normal.  I do know that I have insulin resistance, however, so there's that. Wow, thank you for all this information!!!  I have a lot of reading to do!
×
×
  • Create New...