Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Is My Arthritis Getting Worse?


mythreesuns

Recommended Posts

mythreesuns Contributor

Arthritis was the last straw that drove me toward a gluten-free diet, so in that sense it's a *new* symptom. Is it normal for it to get worse, spreading to more and more joints, even though I'm gluten-free?

Only been gluten-free 3 weeks or so.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Hi Toni,

I have never been diagnosed with arthritis, but I had severe hip pain (worse upon awakening) and painful, red, swollen joints in my thumb.

They did respond to the gluten-free diet, but it took probably closer to 3-4 months before I noticed a difference--especially with the hip pain.

I would give it some more time :)

queenofhearts Explorer
Arthritis was the last straw that drove me toward a gluten-free diet, so in that sense it's a *new* symptom. Is it normal for it to get worse, spreading to more and more joints, even though I'm gluten-free?

Only been gluten-free 3 weeks or so.

Toni, I was diagnosed with arthritis, but I'm not entirely sure that's what it really is. I've been gluten-free 2.5 mo & it seems to be (slowly) improving. One thing I really recommend that helped me a lot even before gluten-free was daily (or better yet twice daily) stretching. I do a combination of yoga & active isolated stretching & it has greatly increased my mobility & decreased pain. I had horrible knee, hip & shoulder pain & stiffness that responded rapidly to a really dedicated stretching program. It hurts like hell while you're stretching, but makes the rest of the day much better.

Leah

Jestgar Rising Star

I had all kinds of annoying joint pain that went away after about three months gluten-free. I've recently starting taking one advil every night before I go to bed and I am no longer even stiff in the mornings when I wake up. I figure since the new recommendation is two baby aspirin once a day for overall health, I'll eventually switch to that, once I feel like I've gotten the generalized inflammation in my body under control.

I'm only 40. Way to young to have that old-lady shuffle in the mornings....

Nancym Enthusiast

You might want to check into trying a paleo diet, there are other foods linked to arthritis.

Also, I suppose it depends on the source of your arthritis. If you're like me, with an autoimmune disease causing the pain, then gluten-free probably isn't going to be the cure. However, it was probably the cause of the autoimmune disease in the first place. I'm sure I'd be getting worse faster if I continued on with the gluten and dairy.

mythreesuns Contributor
I'm only 40. Way to young to have that old-lady shuffle in the mornings....

Well, I'm only 33 and the dr already confirmed mild osteo-arthritis in my toe, so how's THAT for too young? LOL

You might want to check into trying a paleo diet, there are other foods linked to arthritis.

As soon as I can muster up the cash, I'm going to go through EnteroLab to test for the full range of intolerences.

I've never heard of the paleo diet...I'll look into that. I'm going to the dr this afternoon to further explore my arthritis, because I don't think he adequately checked into causes before.

lonewolf Collaborator

I was diagnosed with psoriatic arthritis, in almost every joint in my body, at age 32 - THAT was way too young. I had to eliminate almost everything from my diet - gluten, dairy, eggs, soy, red meat, poultry, beans, peanuts, tomatoes, potatoes, peppers and several other things. Actually, all I ate for a year was fish, most kinds of vegies, sunflower seeds, rice and fruit. Within 5 days of that diet I started feeling much better and after a year I felt well enough to start adding foods back. I still avoid gluten, dairy (except for occasional butter and raw goat cheese), soy and eggs. Today I am arthritis-free, although if I eat dairy and soy one toe will start to ache and I get extra careful.

You might have to eliminate more than just gluten too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nancym Enthusiast
I was diagnosed with psoriatic arthritis, in almost every joint in my body, at age 32 - THAT was way too young. I had to eliminate almost everything from my diet - gluten, dairy, eggs, soy, red meat, poultry, beans, peanuts, tomatoes, potatoes, peppers and several other things. Actually, all I ate for a year was fish, most kinds of vegies, sunflower seeds, rice and fruit. Within 5 days of that diet I started feeling much better and after a year I felt well enough to start adding foods back. I still avoid gluten, dairy (except for occasional butter and raw goat cheese), soy and eggs. Today I am arthritis-free, although if I eat dairy and soy one toe will start to ache and I get extra careful.

You might have to eliminate more than just gluten too.

Wow! This is good news. I have ankylosing spondylitis and the drugs that have been working so well for me seem to be failing. Maybe I'll give your diet a try. What sort of fish did you eat?

lonewolf Collaborator
Wow! This is good news. I have ankylosing spondylitis and the drugs that have been working so well for me seem to be failing. Maybe I'll give your diet a try. What sort of fish did you eat?

I ate mostly salmon, halibut, sardines, tuna (fresh and canned) and whatever I could get for as inexpensive as I could get. I also took 1 tbs flax oil every day.

Good luck - I hope it helps you!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,235
    • Most Online (within 30 mins)
      7,748

    judycs
    Newest Member
    judycs
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      How long have you been strictly gluten free? Certainly, it would be good to look into vitamin and mineral deficiencies and supplementation. The B vitamins, magnesium and D3 are all very important to neurological health. Unfortunately, it can be difficult to reverse gluten-induced neurological damage damage if it has gone on for a long time. 
    • nataliallano
      Thanks Trents I'm strict with my gluten-free diet now. I just don't feel any better. I'm going to get tested for vitamins and minerals to see if I need some supplements. For sure I got some damage that doctors call Menier's and the only way they treat it is with medicine that does damage my body more than it helps.   
    • Zuma888
      Thank you Scott for your helpful response! Based on this, would you say someone who is on a gluten-free diet - but not strict about cross-contamination and occasional cheating - and tests negative for tTg-IgA while having normal total IgA is not likely to have celiac, even if they have been 'gluten-free' for years?
    • Scott Adams
      That’s a really insightful observation about antibody testing and the gluten challenge! You’re absolutely right that antibody levels can remain elevated for months or even years after going gluten-free, especially if there’s ongoing cross-contamination or occasional slip-ups. The immune system doesn’t reset overnight—it can take time for antibodies like tTG-IgA to normalize, which is why many doctors recommend waiting at least 6–12 months of strict gluten-free eating before retesting. For someone who’s been gluten-free for less than two years or hasn’t been meticulous about avoiding cross-contact, there’s absolutely a chance they’d still test positive, since even small amounts of gluten can keep antibodies elevated. This is partly why the gluten challenge (where you eat gluten before testing) exists—it’s designed to provoke a measurable immune response in people who’ve been gluten-free long enough for antibodies to drop. But you raise a great point: the challenge isn’t perfect, and false negatives can happen if the timing or amount of gluten isn’t sufficient to trigger a strong antibody response. This is why diagnosis often combines antibody tests with other tools like genetic testing or endoscopy. Your question highlights just how nuanced celiac testing can be! For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:      
    • Betsy Crum
      Thank you for your response! I have considered starting a food diary in the past, I suppose this is as good a time as any to start.  
×
×
  • Create New...