Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Results Soooonnnn

num1habsfan

By num1habsfan
in Related Issues & Disorders

Recommended Posts

num1habsfan Rising Star
num1habsfan
Posted

Well, just to remind everyone: Sept. 14th at 4:40 pm is when I get my colonoscopy/barium xrays results!!! :blink: I was ok with it before and calm, but as Thursday approaches closer and closer.....I'm really kinda starting to freak out now. I know I shouldnt, but I'm so scared that its going to show nothing, and I'm trying to think of what I'll ask to have done if they tests show nothing (like ask to be referred out of province, etc).....

And it dont help that I dont really have anyone to talk....my closest guy friend cant talk during the day because he starts work usually by 7 am, and we cant talk at night because when you take in the 1 hr time difference, and by the time I come home from school, hes already sleeping!! And hes the one who ALWAYS makes me strong....

I thought I could turn to another one of my guy friends, but it sure doesnt seem that way, hes been a bit odd lately-including the fact that when he lived in another province he gave me his phone # without me even asking for it, but last night when I asked for his # here in SK he refused to give me it :blink:

So I dont know ... HELP :P

~Lisa~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


PaulaG Newbie
PaulaG
Posted
Well, just to remind everyone: Sept. 14th at 4:40 pm is when I get my colonoscopy/barium xrays results!!! :blink: I was ok with it before and calm, but as Thursday approaches closer and closer.....I'm really kinda starting to freak out now. I know I shouldnt, but I'm so scared that its going to show nothing, and I'm trying to think of what I'll ask to have done if they tests show nothing (like ask to be referred out of province, etc).....

And it dont help that I dont really have anyone to talk....my closest guy friend cant talk during the day because he starts work usually by 7 am, and we cant talk at night because when you take in the 1 hr time difference, and by the time I come home from school, hes already sleeping!! And hes the one who ALWAYS makes me strong....

I thought I could turn to another one of my guy friends, but it sure doesnt seem that way, hes been a bit odd lately-including the fact that when he lived in another province he gave me his phone # without me even asking for it, but last night when I asked for his # here in SK he refused to give me it :blink:

So I dont know ... HELP :P

~Lisa~

Hi Lisa,

I am a very new member, so just wondering a bit more about your history?? Why did they do a Colonoscopy ?? Is your Doctor looking for something in particular??

The reason I ask, is that I just had one done, last Wedneday, and when I woke up from the surgery (had to be put to sleep, i was too uncomfortable to be awake) but the nurse told me that it was most likely Celiac Disease and blood tests were ordered??? I didnt think that a colonoscopy showed Celiac disease, so I think it may have something else, but hey I am no doctor so what do i know.

I look forward to chatting with you further, I am very worried about all my testing lately as well, so we can be worried together!! :)

Nantzie Collaborator
Nantzie
Posted

Yea, a guy who will give you one number, but won't give you another number has something to hide, either from you or someone else. File him as an aquaintance.

I hope your appt gives you some answers.

Nancy

jerseyangel Proficient
jerseyangel
Posted

Hi Lisa

I sure hope that your tests will finally give you some concrete answers--I know it's been a "long haul" for you!

Sorry about your friends--although it's not quite the same, you know you always have us here to talk to. You can PM me anytime! :)

trents Grand Master
trents
Posted

Lisa,

A recap about what has led up to this and what you've been struggling with healthwise would be helpful so we get a better idea what is prompting this clonoscopy appointment. I vaguely remember your earlier post(s) but we read a lot of posts and we need a little refresher.

I assume you are having some GI distress. If you are being tested for Celiac disease please know that a colonoscopy will not be helpful. A colonoscopy gives the doctor a look at the colon, i.e., the last part of your intestinal track. What needs to be done for dx Celiac disease is an endoscopy, a scoping of the upper part of the intestinal track, which is the part the disease does damange to. Have you had the antigliadin blood tests done yet? That is usuall the starting point in Celiac dx.

I have had both procedures done at one time or another. They were not painful.

Steve

num1habsfan Rising Star
num1habsfan
Posted
  • Author

PaulaG and trents...I will refresh your memory ;)

I've been in severe constant pains since January 28th of this year(yes, the pains have continued from that day, never faded), even eating 100% strict gluten-free gives me pains. they've seemed to ruled out any other options, so I got in for an emergancy colonoscopy / barium x-rays, because my family doctor and the doc who took the scope/x-rays suspect I have Crohn's disease (not just Celiac)..

Nancy/Patti--yeah the guy issue just sucks..I thought he was a good friend, and it would be nice to have more than 1 potential boyfriend, but I guess thats just not possible for me! I've already text messaged the other one about how I've been feeling, hopefully reply, I'll let you know if he does :P

~lisa~

num1habsfan Rising Star
num1habsfan
Posted
  • Author

OK, I officially cant concentrate in school or on school because of this...I know I'm not supposed to worry but I CANT HELP IT!

~ lisa ~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nantzie Collaborator
Nantzie
Posted

Hope you're sleeping and not wide awake because of your appt tomorrow. I'm crossing my fingers that they found some answers for you.

Cute picture! I need to get one up one of these days too. With the kids, I'm the one usually taking the pictures and rarely in them. It really is nice putting a face to a name.

Nancy

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Hope you're sleeping and not wide awake because of your appt tomorrow. I'm crossing my fingers that they found some answers for you.

Cute picture! I need to get one up one of these days too. With the kids, I'm the one usually taking the pictures and rarely in them. It really is nice putting a face to a name.

Nancy

Thanks, to both things..I'm not sleeping yet because I'm still doing some homework lol .. but I know when I DO try to go to bed, it wont be easy :blink: I've really been 'out of it' today, even during classes (thank god I left early to get to town, would have never survived til 10 lol)

I promise as soon as I get home from my appointment I will post!

~lisa~

num1habsfan Rising Star
num1habsfan
Posted
  • Author

No, I didnt get results yet but.... 2 1/2 hourssssss til I do :blink:

~lisa~

num1habsfan Rising Star
num1habsfan
Posted
  • Author

Well, I ended up spending 2 hours between the the doctors office and the hospital...

The test showed just what I suspected...a big ******* nothing...The doctor in Yorkton (who took the tests)doesnt know what it can be, he suspects some sort of infection...my family doctor is completely clueless, himself...He says its all up to the specialist in Regina now, to suggest what I do...I mentioned about being sent to Calgary if the specialist in Regina cant figure it out, and even my family doctor nodded his head... :(

Then my family doc was nice enough to drive me to the hospital and called one of the ladies from the lab to come and give things for me to take stool samples again (to see if that infection is there or not)...Once I collect enough samples (which will take 6 days at the shortest), then I have to take a prescription of Cipro and Flagyl...

All I feel like doing right now is crawling into a corner and just crying...I know that probably sounds retarded, but this is hard for me to take...The worst part is that I dont even have a friend to come and give me a hug (the nearest lives 2 hours away) :(

I'm really hating life right now...

Time to go attempt some homework, even tho I dont feel like doing it AT ALL, but I am positive my teachers wont accept any of this as an excuse tomorrow when its not done... :wacko:

~lisa~

Nantzie Collaborator
Nantzie
Posted

Oh Lisa... I'm so sorry. It doesn't sound retarded at all. You just need some answers. It doesn't even matter what the answer is I'm sure. You've been going through a lot this year and you've got to be exhausted of everything.

Hopefully the Cipro and Flagyl will help. I've heard that those can be pretty strong on your system, so don't be surprised if you don't feel so great with those. But if you've got an infection somewhere, that will take care of it.

{{{{HUGS}}}}}

Nancy

TCA Contributor
TCA
Posted

Can you have the results sent to a well know celiac specialist to see if they have a clue? Hugs!!!!

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Oh Lisa... I'm so sorry. It doesn't sound retarded at all. You just need some answers. It doesn't even matter what the answer is I'm sure. You've been going through a lot this year and you've got to be exhausted of everything.

Hopefully the Cipro and Flagyl will help. I've heard that those can be pretty strong on your system, so don't be surprised if you don't feel so great with those. But if you've got an infection somewhere, that will take care of it.

{{{{HUGS}}}}}

Nancy

Well, I've been on the Cipro before, 2 or 3 times this year, obviously that didnt do the job, so it cant be a stupid infection like they say ... the worst part of all is I didnt hear from my close friend :(

~lisa~

mouse Enthusiast
mouse
Posted

Lisa, I am so sorry. I can only imagine how hard this is on you, to be going through this alone. But, I can understand that you would want an answer now and any answer will be fine. Then you can cope with it and move forward. Please keep posting here as we will certainly try and give you all the support and caring thoughts that we can. Many Hugs!!!

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Lisa, I am so sorry. I can only imagine how hard this is on you, to be going through this alone. But, I can understand that you would want an answer now and any answer will be fine. Then you can cope with it and move forward. Please keep posting here as we will certainly try and give you all the support and caring thoughts that we can. Many Hugs!!!

Yes, I would take any answer, I dont care how bad it is even. ANYTHING.

Wish you could give me a real hug :P

I know you guys support me, and I love you all sooo much for that, wish I could get more support from the people I personally know, tho!

This will be fun trying to explain to my teachers tomorrow (without breaking into tears)...

~lisa~

debmidge Rising Star
debmidge
Posted

sorry to hear about your frustration with the medical test results and the infection....

Don't stress yourself over this..it'll make you sicker. Stay calm, take the anti biotic and anti viral meds (try to take probiotics too).

I know it's hard to accept "what is" and "what can and cannot be changed." That's my husband's situation too.

Take lots of care,

Deb

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. sc'Que?
      - sc'Que? commented on Celiac.com Sponsor: Review's article in Product Reviews
      1

      Bold Taste, No Alcohol & Crafted to Remove Gluten: Daura Non-Alc Beer Takes Alcohol-Free Beer to the Next Level

      @Daura Damm: Can we get a gluten-free Imperial Oatmeal Stout, please? Please?!?
    2. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    4. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    5. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,545
    • Most Online (within 30 mins)
      7,748
    PatientOne
    Newest Member
    PatientOne
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.