Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pretend I'm A Newbie!


Matilda

Recommended Posts

Matilda Enthusiast

..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Hi Matilda, and welcome to this board (well, you said to pretend you're a newbie :P )..........sorry, couldn't resist.

Your plan sounds like a good one. Also, have you ever thought of doing an elimination diet? I know, it's hard to even THINK of cutting out more foods. But still, you may have to. Have you followed the links in my signature yet? You may find some clues there.

Also, especially rice (besides eggs and soy) will cause just about the same symptoms as gluten with me. Stomach ache, nausea, fatigue and diarrhea are some of them.

I hope you figure it out, it can be so frustrating!

hez Enthusiast

Have you kept a food diary? That might help to pin point a particular food. Have you gone through everything to make sure it is gluten-free? Glad to hear that the kitties are :) Another thing you might want to think about is having your thyroid checked. I know that can really mess things up. Just a thought.

Hez

Matilda Enthusiast

..

Nantzie Collaborator

I would suggest you check all of your personal care products to make sure they're all gluten-free. I've run into some problems with hair and makeup products that don't have any questionable ingredients listed, but they cause me to get glutened anyway. I think it's just a problem of cosmetics and shampoos and things like that not having the same rules that they have to follow as food.

Nancy

Matilda Enthusiast

..

Nantzie Collaborator
Thank you Nancy,

First thought: Good grief Nancy, do you think I'm completely uneducated!!! :(

Second thought: Actually there are 3 things I put on my face every day that I've never checked up on. I can't believe I've let this slip by! How many times have I read this advice?

Good suggestion! :)

Thanks,

Matilda

Anyone else? Remember I'm a newby. I know nothing. At least, I seem to have got very complacent!

Thanks.

Sometimes newbies need to have their hands held for a little bit..

Now, dear, you know that white flour has wheat in it right..? :lol:

Hey! No throwing stuff!

:P

Nancy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor
Sometimes newbies need to have their hands held for a little bit..

Now, dear, you know that white flour has wheat in it right..? :lol:

Hey! No throwing stuff!

:P

Nancy

:lol::lol::lol:

How about getting rid of the rest of the casein for six months and see if you feel better. Goat's milk.....I absolutely don't like it. Allergic too. :P

aikiducky Apprentice
How about getting rid of the rest of the casein for six months and see if you feel better. Goat's milk.....I absolutely don't like it. Allergic too. :P

This was my thought, too. How serious have you been about casein? I find that anything with even a trace of cross contamination with cows milk will give me symptoms just as bad as gluten. It's even more of a pain than eliminating gluten but really if it's what you need to do then you should do it.

Ok a really obvious question but the yoghurt is also made with goats milk right??? You definitively shouldn't be having cows milk yoghurt. :o Yoghurt might have less lactose than plain milk, but it still has casein.

As it happens I can have some goats cheese without trouble but some people are also sensitive to the casein in all goats milk products. So the kefir and yoghurt might be a problem and you should probably see what happens if you leave them out for a while.

Hope this helps... :)

Pauliina

gfp Enthusiast

Ok then same advice I give ALL noobies... :ph34r:

Drop everything with allergens for 3 months and I mean milk, soy specifically but you can remove anything YOU suspect... and then start adding stuff gradually and one at once like goats cheese....

Take NO CC risks and NO hidden gluten/soy/casein/lactose risks...

Just go totally natural for 3 months.

happygirl Collaborator

Matilda,

I'm actually in a very similar place to you right now! (Unfortunately for both of us!)

I have gone through a similar process....I'll PM you later this morning.

Good luck, dear!

Laura

elye Community Regular

Hi, Matilda,

My good friend has been feeling generally lousy now for the last three or four years, and last year when I was diagnosed with celiac, I passed my education-by-the-seat-of-my-pants along to her. She went gluten-free along with me, and while feeling somewhat better, is still exhausted/joint pain/headaches etc. Tests have been inconclusive. So, she went on the caveman (paleolithic? just plain old-fashioned?) diet (much like what gfp has described) in the summer and is now feeling some REAL improvement. Sometimes I will see her in tears, as she can't believe how long she's gone feeling so unlike this--i.e., normal. She will have to eventually try to figure out what in the processed foods is toxic for her, and as we all know that is a big list of possibilities. But for now, she's eating like we did thousands of years ago. Not easy, but I think well worth a try! Hope you're better soon.

gfp Enthusiast
Not easy, but I think well worth a try! Hope you're better soon.

Easy is relative......

Looking back I think its much harder to eliminate foods one by one which is what I did for 6 months ....than eliminate everything then slowly add them and on top of that I think mostly we all tend towards doing the gradual elimination BUT its way more confusing ...was it the soy or was it the milk???? and the whole delay thing with intolerances just makes this harder and even more confusing... was it the soy last week or the milk yesterday???

In the end I'm eating soy and milk... my casein intolerance is much more controllable than gluten and manageable so I eat limited dairy ... try and go goat over cow etc. but its not like being gluten-free all or nothing for me....

Soy, I never had a prob BUT my mom does/did....

I call it common sense not to eat something that might push you to an intolerance so I eat soy sparingly...

Jestgar Rising Star

Hi Matilda,

I tend to eat a lot of whole foods, so I rarely have to deal with this, but there is some additive in some sauces that turns everything in my body to water. If you were feeling okay until you started adding processed foods, maybe it's a chemical sensitivity. Go back to eating what you ate when you felt good.

CarlaB Enthusiast

I'm happy to say that I've found out what my problem is and am starting to feel much better! For me it was adrenal fatigue (you can google to see if it fits). With being sick and under constant inflammation for so long, our bodies get tired. It's all dietary, lifestyle, and supplement changes, so if the symptoms fit, give them a try. Actually, the advice given for adrenal fatigue is good for literally everone!

I also had a hair analysis done. It was interesting because it shows how your body is actually using the vitamins, minerals, etc. It was infomative and even reflected that I am having an autoimmune reaction, am prone to having low thyroid, adrenal fatigue, hypoglycemia, anemia, anxiety, and fatigue -- all stuff I already knew. The lab my doc used is Analytical Reseach Labs., Inc. The said when I talked to them that they have a website. Their phone number is (602)995-1580. All the reports were very comprehensive and give very clear recommendations, so you could easily go directly to the lab yourself.

Food diary and eliminating processed food -- both sound like good ideas.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,570
    • Most Online (within 30 mins)
      7,748

    Moody
    Newest Member
    Moody
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.