Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pretend I'm A Newbie!


Matilda

Recommended Posts

Matilda Enthusiast

..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Hi Matilda, and welcome to this board (well, you said to pretend you're a newbie :P )..........sorry, couldn't resist.

Your plan sounds like a good one. Also, have you ever thought of doing an elimination diet? I know, it's hard to even THINK of cutting out more foods. But still, you may have to. Have you followed the links in my signature yet? You may find some clues there.

Also, especially rice (besides eggs and soy) will cause just about the same symptoms as gluten with me. Stomach ache, nausea, fatigue and diarrhea are some of them.

I hope you figure it out, it can be so frustrating!

hez Enthusiast

Have you kept a food diary? That might help to pin point a particular food. Have you gone through everything to make sure it is gluten-free? Glad to hear that the kitties are :) Another thing you might want to think about is having your thyroid checked. I know that can really mess things up. Just a thought.

Hez

Matilda Enthusiast

..

Nantzie Collaborator

I would suggest you check all of your personal care products to make sure they're all gluten-free. I've run into some problems with hair and makeup products that don't have any questionable ingredients listed, but they cause me to get glutened anyway. I think it's just a problem of cosmetics and shampoos and things like that not having the same rules that they have to follow as food.

Nancy

Matilda Enthusiast

..

Nantzie Collaborator
Thank you Nancy,

First thought: Good grief Nancy, do you think I'm completely uneducated!!! :(

Second thought: Actually there are 3 things I put on my face every day that I've never checked up on. I can't believe I've let this slip by! How many times have I read this advice?

Good suggestion! :)

Thanks,

Matilda

Anyone else? Remember I'm a newby. I know nothing. At least, I seem to have got very complacent!

Thanks.

Sometimes newbies need to have their hands held for a little bit..

Now, dear, you know that white flour has wheat in it right..? :lol:

Hey! No throwing stuff!

:P

Nancy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor
Sometimes newbies need to have their hands held for a little bit..

Now, dear, you know that white flour has wheat in it right..? :lol:

Hey! No throwing stuff!

:P

Nancy

:lol::lol::lol:

How about getting rid of the rest of the casein for six months and see if you feel better. Goat's milk.....I absolutely don't like it. Allergic too. :P

aikiducky Apprentice
How about getting rid of the rest of the casein for six months and see if you feel better. Goat's milk.....I absolutely don't like it. Allergic too. :P

This was my thought, too. How serious have you been about casein? I find that anything with even a trace of cross contamination with cows milk will give me symptoms just as bad as gluten. It's even more of a pain than eliminating gluten but really if it's what you need to do then you should do it.

Ok a really obvious question but the yoghurt is also made with goats milk right??? You definitively shouldn't be having cows milk yoghurt. :o Yoghurt might have less lactose than plain milk, but it still has casein.

As it happens I can have some goats cheese without trouble but some people are also sensitive to the casein in all goats milk products. So the kefir and yoghurt might be a problem and you should probably see what happens if you leave them out for a while.

Hope this helps... :)

Pauliina

gfp Enthusiast

Ok then same advice I give ALL noobies... :ph34r:

Drop everything with allergens for 3 months and I mean milk, soy specifically but you can remove anything YOU suspect... and then start adding stuff gradually and one at once like goats cheese....

Take NO CC risks and NO hidden gluten/soy/casein/lactose risks...

Just go totally natural for 3 months.

happygirl Collaborator

Matilda,

I'm actually in a very similar place to you right now! (Unfortunately for both of us!)

I have gone through a similar process....I'll PM you later this morning.

Good luck, dear!

Laura

elye Community Regular

Hi, Matilda,

My good friend has been feeling generally lousy now for the last three or four years, and last year when I was diagnosed with celiac, I passed my education-by-the-seat-of-my-pants along to her. She went gluten-free along with me, and while feeling somewhat better, is still exhausted/joint pain/headaches etc. Tests have been inconclusive. So, she went on the caveman (paleolithic? just plain old-fashioned?) diet (much like what gfp has described) in the summer and is now feeling some REAL improvement. Sometimes I will see her in tears, as she can't believe how long she's gone feeling so unlike this--i.e., normal. She will have to eventually try to figure out what in the processed foods is toxic for her, and as we all know that is a big list of possibilities. But for now, she's eating like we did thousands of years ago. Not easy, but I think well worth a try! Hope you're better soon.

gfp Enthusiast
Not easy, but I think well worth a try! Hope you're better soon.

Easy is relative......

Looking back I think its much harder to eliminate foods one by one which is what I did for 6 months ....than eliminate everything then slowly add them and on top of that I think mostly we all tend towards doing the gradual elimination BUT its way more confusing ...was it the soy or was it the milk???? and the whole delay thing with intolerances just makes this harder and even more confusing... was it the soy last week or the milk yesterday???

In the end I'm eating soy and milk... my casein intolerance is much more controllable than gluten and manageable so I eat limited dairy ... try and go goat over cow etc. but its not like being gluten-free all or nothing for me....

Soy, I never had a prob BUT my mom does/did....

I call it common sense not to eat something that might push you to an intolerance so I eat soy sparingly...

Jestgar Rising Star

Hi Matilda,

I tend to eat a lot of whole foods, so I rarely have to deal with this, but there is some additive in some sauces that turns everything in my body to water. If you were feeling okay until you started adding processed foods, maybe it's a chemical sensitivity. Go back to eating what you ate when you felt good.

CarlaB Enthusiast

I'm happy to say that I've found out what my problem is and am starting to feel much better! For me it was adrenal fatigue (you can google to see if it fits). With being sick and under constant inflammation for so long, our bodies get tired. It's all dietary, lifestyle, and supplement changes, so if the symptoms fit, give them a try. Actually, the advice given for adrenal fatigue is good for literally everone!

I also had a hair analysis done. It was interesting because it shows how your body is actually using the vitamins, minerals, etc. It was infomative and even reflected that I am having an autoimmune reaction, am prone to having low thyroid, adrenal fatigue, hypoglycemia, anemia, anxiety, and fatigue -- all stuff I already knew. The lab my doc used is Analytical Reseach Labs., Inc. The said when I talked to them that they have a website. Their phone number is (602)995-1580. All the reports were very comprehensive and give very clear recommendations, so you could easily go directly to the lab yourself.

Food diary and eliminating processed food -- both sound like good ideas.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Anne G posted a topic in Related Issues & Disorders
      0

      celiac disease and braces

    2. - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    4. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,434
    • Most Online (within 30 mins)
      7,748

    Malia Ana
    Newest Member
    Malia Ana
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Anne G
      Hello, My 17 yr old daughter was diagnosed with celiac disease 2 yrs ago. She does not have gum disease and no history of cavities. Her dentist is recommending braces for her lower teeth but I read it may worsen gum recession or possibly increase cavity risk which I know are already issues for patients with celiac. Has anyone here had braces and did it cause any problems or issues with gum recession?  Her dentist seemed oblivious that celiac patients are at higher risk of gum disease /cavities. Her bottom teeth are crooked but are pretty hidden even when she smiles. Thank you!!
    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.