Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What To Say?

Heater

By Heater
in Coping with Celiac Disease

Recommended Posts

Heater Rookie
Heater
Posted

What's a good way of saying what happens when you eat gluten?

I have to eat out with people quite a bit for work, and I never know what to say past 'it makes me sick' if they keep asking. Generally I just go out for one or two meals with the same people, then never see them again- they're here for business, so I don't feel the need to explain it in a lot of detail. And I don't even really like talking about it all- in detail or not.

Any ideas on what I can say? Or how to change the topic?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chrissy Collaborator
chrissy
Posted

it damages your small intestine.

TriticusToxicum Explorer
TriticusToxicum
Posted
it damages your small intestine.

I say "intestinal distress" if I think I'll ever see them again. They usually look at me quizically for a moment and then you see the light bulb go on...

gfp Enthusiast
gfp
Posted

I just say it''s not fitting conversation for a dinner table!

If they press I just say my body tries to get rid of it any and which way it can.... now can we move on!

Corkdarrr Enthusiast
Corkdarrr
Posted

I tell them that it's similar to having the stomach flu.

I've never had to carry the conversation any further than that.

-Courtney

StrongerToday Enthusiast
StrongerToday
Posted

If we're at the table, I'll say something like "oh, you're eating... best not to talk about it right now".... that usually shuts them right up :rolleyes:

mookie03 Contributor
mookie03
Posted

I have to deal w/ that at work too, but i just say something like "it's an auto-immune reaction, so the symptoms vary and a lot of the effects are long-term so they are more difficult to pinpoint"

It is vague enough that they wont ask too many questions and u dont have to get into the details

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mango04 Enthusiast
Mango04
Posted

If people keep asking and I really don't want to talk about it I just say, "my immune system attacks and destroys my internal organs." It's never failed to totally shut people up LOL.

Nantzie Collaborator
Nantzie
Posted

I call it "bathroom issues", but I feel like even that is saying too much. I like Courtney's description of saying it's like having the stomach flu. I think I'm going to start using that.

Nancy

tiffjake Enthusiast
tiffjake
Posted
What's a good way of saying what happens when you eat gluten?

I have to eat out with people quite a bit for work, and I never know what to say past 'it makes me sick' if they keep asking. Generally I just go out for one or two meals with the same people, then never see them again- they're here for business, so I don't feel the need to explain it in a lot of detail. And I don't even really like talking about it all- in detail or not.

Any ideas on what I can say? Or how to change the topic?

I always say "its like food poisoning" because they get the idea, and I don't have to share the details.

Green12 Enthusiast
Green12
Posted
If people keep asking and I really don't want to talk about it I just say, "my immune system attacks and destroys my internal organs." It's never failed to totally shut people up LOL.

Excellent response Mango :lol::lol:

carriecraig Enthusiast
carriecraig
Posted

Reading your post reminded me of a topic that I started in January: Open Original Shared Link

Most annoying comments/questions asked.

Some of the answers are hysterical - this is my favorite: Yea, I've gotten the "Can't you just eat a LITTLE??" Yea, I answered... if I want MOLTEN ACID shooting out my butt.

chrissy Collaborator
chrissy
Posted

one of my kids has no symptoms, and of the other two, only one gets intestinal distress----so the bathroom stories don't necessarily work for us.

eleep Enthusiast
eleep
Posted

molten acid!

hahahahahahahahahahaha! snort! hahahahahahahahahah!

eleep

happygirl Collaborator
happygirl
Posted

I tell people it causes an auto-immune reaction that in turn damages my intestines and causes numerous long-term health problems, as well as "making me sick." I quickly move on and say, if I don't eat it, then I'm fine!

And move on!

Now my poor friends know the REAL story (those poor poor people)

2Boys4Me Enthusiast
2Boys4Me
Posted

Ty doesn't get symptoms, so I tell people it's like smoking - Nothing's happening on the outside, but damage is happening inside.

Lymetoo Contributor
Lymetoo
Posted

Thanks for the good answers!!

Turtle Enthusiast
Turtle
Posted
If people keep asking and I really don't want to talk about it I just say, "my immune system attacks and destroys my internal organs." It's never failed to totally shut people up LOL.

:lol: GOOD ONE!!!

I like the molten acid coming out my butt comment too! TOO FUNNY!

teebs in WV Apprentice
teebs in WV
Posted

I don't typically have intestinal symptoms, but I do have DH. I typically show my arm and when people see the visible scars they get it. But even then, I get the feeling that they just think "big deal, she gets a rash". After a year I am still not sure of myself when asked the question........

Guest ~jules~
Guest ~jules~
Posted

I usually say imagine how you would feel if you drank drano, or if its someone I'm close to I just use the stomach flu as an example. Oh god, my husband told a waiter I may go into seizures, thats never even happened to me, I guess he felt like the guy wasn't listening :blink:

Mtndog Collaborator
Mtndog
Posted

I usually say that it's like a combination of stomach flu and a REALLY bad hangover that lasts for 3days- weeks. The look on their faces says it all. :P

taz sharratt Enthusiast
taz sharratt
Posted
I just say it''s not fitting conversation for a dinner table!

If they press I just say my body tries to get rid of it any and which way it can.... now can we move on!

very polite gfp.

luvs2eat Collaborator
luvs2eat
Posted

Ha ha... molten acid shooting out of my butt is my response... if they persist beyond my more polite answer of, "I have serious intestinal distress."

ianm Apprentice
ianm
Posted

I say "Okay I'll eat it but you're the one who's cleaning up the mess not me." Usually gets the point across.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.