Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

You're Know You're A Celiac If...

chgomom

By chgomom
in Coping with Celiac Disease

Recommended Posts

chgomom Enthusiast
chgomom
Posted
  • Author

ha...I do read the labels on plain green tea!

:blink:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 112
  • Created
  • Last Reply
GFBetsy Rookie
GFBetsy
Posted
You know you're a celiac if...

...your bread looks like a moon rock and tastes like dried out Play

Doh.

. . . Hey! What are you eating Play Doh for? Didn't you know it was full of gluten!!!???

:lol::lol::lol:

chgomom Enthusiast
chgomom
Posted
  • Author

Well....what I did'nt know, up until I got tested is why....depsite having eaten plain vegetables...and fruit...did I get soooo sick after doing a play dough masterpiece with my son.

I swaer...my hands would turn red....and I would be sick with in an hour....

whew....

you know you're a Celiac, when your child starts to correct you in the store.

My son....MOM *shaking his finger when I pick up pita bread longingly* Do you REALLY want the poops???

*lol*

GFBetsy Rookie
GFBetsy
Posted
...... you buy cookies at a water store

Cody -

Glad you found the store!

suzannabanana Newbie
suzannabanana
Posted

When travelling, you volunteer to make the coffee/breakfast run every morning because the hotel bathroom has one hell of an echo. :blink: My boyfriend just thought I was being a sweetie.

suzannabanana Newbie
suzannabanana
Posted

a couple more...

you have photos of the inside of your digestinal tract in your scrapbook.

you knew exactly when Post added barley flavoring back to the Fruity Pebbles and you're ticked.

you pay relatives back east exorbitant shipping rates to send you a $12 six pack of Gluten-free beer.

emcmaster Collaborator
emcmaster
Posted

- you cried when you saw your usually careful husband brushing the crumbs off his hands (from making a gluten-containing sandwich) RIGHT OVER the open utensil drawer

- there is a separate cabinet in your kitchen dedicated solely to all your supplements (vitamins, BCQ, digestive enzymes, etc.)

- you hear of a new health food store opening in a city close by and get ridiculously excited only to drive there, spend 2 hours walking around the place, reading labels, only to leave empty handed

- you talk about your disease (not the unpleasant parts) so much to your friends and acquaintances that your husband tells you you need to get another hobby

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Queen Serenity Newbie
Queen Serenity
Posted

These are very funny! I have one to add:

-you celebrate your birthday, without that delicious cake, covered in that sweet, sweet frosting.

Vicki :)

TriticusToxicum Explorer
TriticusToxicum
Posted

...you can celebrate poop.

kbtoyssni Contributor
kbtoyssni
Posted

...you take a list of safe drinks to the bar with you. And actually consult it before you order a drink. (In my defense, I was pretty new to celiac at the time).

Kody Rookie
Kody
Posted
Cody -

Glad you found the store!

The cookies were yummy. :D Thanks for the info.

suzannabanana Newbie
suzannabanana
Posted

I need that safe drinks list in a bad way.

VydorScope Proficient
VydorScope
Posted
Post added barley flavoring back to the Fruity Pebbles and you're ticked.

Not to get off topic, but WHEN did they do that? I have not bought a box in several months... but last I looked it was gluten-free.

Drama-Queen Rookie
Drama-Queen
Posted

And getting back on topic now.....

....Riding the bus home is torture because you have to stand up the whole way, and no one offers you a seat.

My problem here is that I am 20 and don't look like I am in searing pain. Some days I feel like a very stiff old woman who is 185 years old. Mind you I am not that old, nor am I commenting on anyone who has arthritis....my grandma has arthritis and osteoperosis, and I know how unpleasant it is. Getting onto the bus or going up any steps for that matter is a pain (literally). The people on the bus see that I am in pain and look at me with compassion but yet do not give up their seat. Even those who I know aren't in pain because I see them everyday. So I just glare and try to hold back my tears because the pain is so bad. I also try to hide my tendency to wince.

Ho hum....so is the human race <_<

Guest nini
Guest nini
Posted
Not to get off topic, but WHEN did they do that? I have not bought a box in several months... but last I looked it was gluten-free.

um yeah, I was wondering about that one too... yikes.

happygirl Collaborator
happygirl
Posted

banana-

https://www.celiac.com/st_prod.html?p_prodi...-44106251741.5d

hope that helps.

You know you are a celiac when you know where every bathroom is in every restaurant in a 25 mile radius. of your house. of your parents house. of your in-laws house. (etc)

lonewolf Collaborator
lonewolf
Posted

...You see someone buying rice flour in the bulk section and you just have to ask them if they are gluten intolerant too!

Kassiane Newbie
Kassiane
Posted

-You've ever sweettalked exhibitors with safe food at conferences into giving you their leftovers (and ended up leaving with donuts and wannabe Oreos and animal crackers and cereal...)

-You've ever dumped someone's food in the trash since they destroyed YOUR dinner with cross contamination.

-You know how to explain cross contamination to children

-Pizza commercials make you drooooooooool

-You've taken a stool sample, unrequested and unannounced, to a doctor and said "I TOLD you so!"

-You volunteer to write labels for every (homemade) item in a cakewalk, so other people will know if its worth the dollar to go for it.

-You've nearly broken a tooth on your oh so delicious cinnamon rock, er, toast...

Ursa Major Collaborator
Ursa Major
Posted

..........your favourite grocery store is determined by having a public bathroom. And you hope nobody knows it was you who made it smell so bad. :blink:

.........you risk being caught speeding, because you have to get home to go to the bathroom in time.

........you educate your doctor and nutritionist, instead of them educating you.

.........you have explained to your sister-in-law in detail about making gluten-free gravy at Christmas (who insisted that you could safely eat her cooking, because she understood), and holding back your sobs and smiling instead, telling her it was no problem, when she forgot and thickened it with wheat flour.

blueeyedmanda Community Regular
blueeyedmanda
Posted

You get excited when you find a cookie or cake or anything that tastes almost as good as wheat infested food.

Seems like a dream but that was how I felt the first time I had some butterfly cookies by The Grainless Baker

CarlaB Enthusiast
CarlaB
Posted

If you're on your way to the grocery and forgot your reading glasses, you turn back and go get them.

It drives you crazy when someone says they completely understand your diet, they did Atkins.

You wipe out the ceramic coffee cup at Panera Bread to be sure there's no flour on it.

You ask the person at Starbucks for a new lid because they just touched yours after touching a danish, nevermind they touched filthy money, it's not germs that worry you.

Your kids ask you if something they ate was gluten free before they give you a kiss.

Your kids think pizza is a good weather food because you'll only order it for them if they can eat it outside.

Your kids know more about the celiac diet than your doctor.

prinsessa Contributor
prinsessa
Posted

....people roll their eyes at you when you say "no thank you" to someone's gluten filled desert (trust me....if I could eat carrot cake I would :rolleyes: ...do I really have to explain gluten intolerance to everyone)

.....you go to eat dinner at someone's house and all you eat is plain salad and corn on the cobb

.....your DD asks you if you are sure you can drink a bottle of water since it might have wheat in it (I guess she is used to me checking every label)

Montana Julie Newbie
Montana Julie
Posted

These are so awesome! I shared them with my friends and family... they're learning! I especially liked the "ramming the cart into the shredded wheat display" one. I've often thought of sabotage in various bakeries... :P

Good to see the humorous side of things. I've finally gotten so adjusted to things now, life is so much better! So for the newly-diagnosed Cody: hang in there!!! It really wasn't as bad as I thought it would be. I feel so good now, that I hardly care about what to eat. Besides, I still get steak (carefully marinated) chocolate, potatoes and (most) ice creams (fortunately, no dairy/lactose problems) - my favorite foods!!

4.5 months since diagnosis, only 1 accidental glutening. So far, so good!

Thanks for the posts!

MT Julie

Kody Rookie
Kody
Posted
These are so awesome! I shared them with my friends and family... they're learning! I especially liked the "ramming the cart into the shredded wheat display" one. I've often thought of sabotage in various bakeries... :P

Good to see the humorous side of things. I've finally gotten so adjusted to things now, life is so much better! So for the newly-diagnosed Cody: hang in there!!! It really wasn't as bad as I thought it would be. I feel so good now, that I hardly care about what to eat. Besides, I still get steak (carefully marinated) chocolate, potatoes and (most) ice creams (fortunately, no dairy/lactose problems) - my favorite foods!!

4.5 months since diagnosis, only 1 accidental glutening. So far, so good!

Thanks for the posts!

MT Julie

Hey now! Why do you feel so good and not me?! ARG!! <_<

jk, I feel a lot better now... but it's only been three days (I'd like to say fifth, but I recently found out that I got glutened on my second day ;;)

So like, is your mind clear, are you energetic as heck and all the good stuff? :P

jkmunchkin Rising Star
jkmunchkin
Posted

ROFLMAO!!!

.... You get on line at the sandwich station at work and inform the guy behind the counter, "don't worry we're gonna work through this together." as he looks amazingly puzzled as you instruct him step by step (from putting down a paper and changing gloves) how to make a lettuce wrap.

..... Your friend invites you over for your birthday and want to make you a gluten free birthday cake but you plead with them not to, because although you're trying to seem like you don't want to put them through the hassle, you're secretly terrified there will be cross contamination.

..... You talk about endoscopy's and colonoscopy's like these are normal everyday occurences that everyone gets nearly every year. (I had a few before finally getting diagnosed).

..... You've refused things as "simple" as gum or sucking candies because you don't know if they're safe.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine. Legumes (beans) do contain thiamine. Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and Cobalamine B12 are mostly found in meats. Meat, especially organ...
    2. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc. Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food....
    3. Scott Adams
      - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    4. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

      @lizzie42, You're being a good mom, seeking answers for your son. Cheers! Subclinical thiamine deficiency commonly occurs with anemia. An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal. Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps...
    5. Scott Adams
      - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748
    MaryannHall
    Newest Member
    MaryannHall
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Bob red mill gluten free oats

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.