Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

You're Know You're A Celiac If...

chgomom

By chgomom
in Coping with Celiac Disease

Recommended Posts

chgomom Enthusiast
chgomom
Posted
  • Author

ha...I do read the labels on plain green tea!

:blink:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 112
  • Created
  • Last Reply
GFBetsy Rookie
GFBetsy
Posted
You know you're a celiac if...

...your bread looks like a moon rock and tastes like dried out Play

Doh.

. . . Hey! What are you eating Play Doh for? Didn't you know it was full of gluten!!!???

:lol::lol::lol:

chgomom Enthusiast
chgomom
Posted
  • Author

Well....what I did'nt know, up until I got tested is why....depsite having eaten plain vegetables...and fruit...did I get soooo sick after doing a play dough masterpiece with my son.

I swaer...my hands would turn red....and I would be sick with in an hour....

whew....

you know you're a Celiac, when your child starts to correct you in the store.

My son....MOM *shaking his finger when I pick up pita bread longingly* Do you REALLY want the poops???

*lol*

GFBetsy Rookie
GFBetsy
Posted
...... you buy cookies at a water store

Cody -

Glad you found the store!

suzannabanana Newbie
suzannabanana
Posted

When travelling, you volunteer to make the coffee/breakfast run every morning because the hotel bathroom has one hell of an echo. :blink: My boyfriend just thought I was being a sweetie.

suzannabanana Newbie
suzannabanana
Posted

a couple more...

you have photos of the inside of your digestinal tract in your scrapbook.

you knew exactly when Post added barley flavoring back to the Fruity Pebbles and you're ticked.

you pay relatives back east exorbitant shipping rates to send you a $12 six pack of Gluten-free beer.

emcmaster Collaborator
emcmaster
Posted

- you cried when you saw your usually careful husband brushing the crumbs off his hands (from making a gluten-containing sandwich) RIGHT OVER the open utensil drawer

- there is a separate cabinet in your kitchen dedicated solely to all your supplements (vitamins, BCQ, digestive enzymes, etc.)

- you hear of a new health food store opening in a city close by and get ridiculously excited only to drive there, spend 2 hours walking around the place, reading labels, only to leave empty handed

- you talk about your disease (not the unpleasant parts) so much to your friends and acquaintances that your husband tells you you need to get another hobby

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Queen Serenity Newbie
Queen Serenity
Posted

These are very funny! I have one to add:

-you celebrate your birthday, without that delicious cake, covered in that sweet, sweet frosting.

Vicki :)

TriticusToxicum Explorer
TriticusToxicum
Posted

...you can celebrate poop.

kbtoyssni Contributor
kbtoyssni
Posted

...you take a list of safe drinks to the bar with you. And actually consult it before you order a drink. (In my defense, I was pretty new to celiac at the time).

Kody Rookie
Kody
Posted
Cody -

Glad you found the store!

The cookies were yummy. :D Thanks for the info.

suzannabanana Newbie
suzannabanana
Posted

I need that safe drinks list in a bad way.

VydorScope Proficient
VydorScope
Posted
Post added barley flavoring back to the Fruity Pebbles and you're ticked.

Not to get off topic, but WHEN did they do that? I have not bought a box in several months... but last I looked it was gluten-free.

Drama-Queen Rookie
Drama-Queen
Posted

And getting back on topic now.....

....Riding the bus home is torture because you have to stand up the whole way, and no one offers you a seat.

My problem here is that I am 20 and don't look like I am in searing pain. Some days I feel like a very stiff old woman who is 185 years old. Mind you I am not that old, nor am I commenting on anyone who has arthritis....my grandma has arthritis and osteoperosis, and I know how unpleasant it is. Getting onto the bus or going up any steps for that matter is a pain (literally). The people on the bus see that I am in pain and look at me with compassion but yet do not give up their seat. Even those who I know aren't in pain because I see them everyday. So I just glare and try to hold back my tears because the pain is so bad. I also try to hide my tendency to wince.

Ho hum....so is the human race <_<

Guest nini
Guest nini
Posted
Not to get off topic, but WHEN did they do that? I have not bought a box in several months... but last I looked it was gluten-free.

um yeah, I was wondering about that one too... yikes.

happygirl Collaborator
happygirl
Posted

banana-

https://www.celiac.com/st_prod.html?p_prodi...-44106251741.5d

hope that helps.

You know you are a celiac when you know where every bathroom is in every restaurant in a 25 mile radius. of your house. of your parents house. of your in-laws house. (etc)

lonewolf Collaborator
lonewolf
Posted

...You see someone buying rice flour in the bulk section and you just have to ask them if they are gluten intolerant too!

Kassiane Newbie
Kassiane
Posted

-You've ever sweettalked exhibitors with safe food at conferences into giving you their leftovers (and ended up leaving with donuts and wannabe Oreos and animal crackers and cereal...)

-You've ever dumped someone's food in the trash since they destroyed YOUR dinner with cross contamination.

-You know how to explain cross contamination to children

-Pizza commercials make you drooooooooool

-You've taken a stool sample, unrequested and unannounced, to a doctor and said "I TOLD you so!"

-You volunteer to write labels for every (homemade) item in a cakewalk, so other people will know if its worth the dollar to go for it.

-You've nearly broken a tooth on your oh so delicious cinnamon rock, er, toast...

Ursa Major Collaborator
Ursa Major
Posted

..........your favourite grocery store is determined by having a public bathroom. And you hope nobody knows it was you who made it smell so bad. :blink:

.........you risk being caught speeding, because you have to get home to go to the bathroom in time.

........you educate your doctor and nutritionist, instead of them educating you.

.........you have explained to your sister-in-law in detail about making gluten-free gravy at Christmas (who insisted that you could safely eat her cooking, because she understood), and holding back your sobs and smiling instead, telling her it was no problem, when she forgot and thickened it with wheat flour.

blueeyedmanda Community Regular
blueeyedmanda
Posted

You get excited when you find a cookie or cake or anything that tastes almost as good as wheat infested food.

Seems like a dream but that was how I felt the first time I had some butterfly cookies by The Grainless Baker

CarlaB Enthusiast
CarlaB
Posted

If you're on your way to the grocery and forgot your reading glasses, you turn back and go get them.

It drives you crazy when someone says they completely understand your diet, they did Atkins.

You wipe out the ceramic coffee cup at Panera Bread to be sure there's no flour on it.

You ask the person at Starbucks for a new lid because they just touched yours after touching a danish, nevermind they touched filthy money, it's not germs that worry you.

Your kids ask you if something they ate was gluten free before they give you a kiss.

Your kids think pizza is a good weather food because you'll only order it for them if they can eat it outside.

Your kids know more about the celiac diet than your doctor.

prinsessa Contributor
prinsessa
Posted

....people roll their eyes at you when you say "no thank you" to someone's gluten filled desert (trust me....if I could eat carrot cake I would :rolleyes: ...do I really have to explain gluten intolerance to everyone)

.....you go to eat dinner at someone's house and all you eat is plain salad and corn on the cobb

.....your DD asks you if you are sure you can drink a bottle of water since it might have wheat in it (I guess she is used to me checking every label)

Montana Julie Newbie
Montana Julie
Posted

These are so awesome! I shared them with my friends and family... they're learning! I especially liked the "ramming the cart into the shredded wheat display" one. I've often thought of sabotage in various bakeries... :P

Good to see the humorous side of things. I've finally gotten so adjusted to things now, life is so much better! So for the newly-diagnosed Cody: hang in there!!! It really wasn't as bad as I thought it would be. I feel so good now, that I hardly care about what to eat. Besides, I still get steak (carefully marinated) chocolate, potatoes and (most) ice creams (fortunately, no dairy/lactose problems) - my favorite foods!!

4.5 months since diagnosis, only 1 accidental glutening. So far, so good!

Thanks for the posts!

MT Julie

Kody Rookie
Kody
Posted
These are so awesome! I shared them with my friends and family... they're learning! I especially liked the "ramming the cart into the shredded wheat display" one. I've often thought of sabotage in various bakeries... :P

Good to see the humorous side of things. I've finally gotten so adjusted to things now, life is so much better! So for the newly-diagnosed Cody: hang in there!!! It really wasn't as bad as I thought it would be. I feel so good now, that I hardly care about what to eat. Besides, I still get steak (carefully marinated) chocolate, potatoes and (most) ice creams (fortunately, no dairy/lactose problems) - my favorite foods!!

4.5 months since diagnosis, only 1 accidental glutening. So far, so good!

Thanks for the posts!

MT Julie

Hey now! Why do you feel so good and not me?! ARG!! <_<

jk, I feel a lot better now... but it's only been three days (I'd like to say fifth, but I recently found out that I got glutened on my second day ;;)

So like, is your mind clear, are you energetic as heck and all the good stuff? :P

jkmunchkin Rising Star
jkmunchkin
Posted

ROFLMAO!!!

.... You get on line at the sandwich station at work and inform the guy behind the counter, "don't worry we're gonna work through this together." as he looks amazingly puzzled as you instruct him step by step (from putting down a paper and changing gloves) how to make a lettuce wrap.

..... Your friend invites you over for your birthday and want to make you a gluten free birthday cake but you plead with them not to, because although you're trying to seem like you don't want to put them through the hassle, you're secretly terrified there will be cross contamination.

..... You talk about endoscopy's and colonoscopy's like these are normal everyday occurences that everyone gets nearly every year. (I had a few before finally getting diagnosed).

..... You've refused things as "simple" as gum or sucking candies because you don't know if they're safe.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    2. Theresa2407
      - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

      thank you for your advice. I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated. I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    3. KathyR37
      - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and gloves when cooking for them. One huge problem...
    4. Scott Adams
      - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are fee...
    5. KathyR37
      - KathyR37 posted a topic in Coping with Celiac Disease
      3

      New here

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,812
    • Most Online (within 30 mins)
      7,748
    Papa Emeritus 79
    Newest Member
    Papa Emeritus 79
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New here

      By trents · Posted

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      New here

      By KathyR37 · Posted

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.