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Cbs News Story

floridanative

By floridanative
in Publications & Publicity

Recommended Posts

DingoGirl Enthusiast
DingoGirl
Posted

(revealing my total non-techno saviness, here)

Can someone tell me what is a listserve? do I write to that email address and ask for something? :blink:

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tiffjake Enthusiast
tiffjake
Posted
(revealing my total non-techno saviness, here)

Can someone tell me what is a listserve? do I write to that email address and ask for something? :blink:

Yeah, usually just send them an email that says "I want to subscribe"

And I got an email about it too! I am so watching it! It comes on at 5:30 here (Texas). You can check at www.tvguide.com for your local time/channel!

Michi8 Contributor
Michi8
Posted
(revealing my total non-techno saviness, here)

Can someone tell me what is a listserve? do I write to that email address and ask for something? :blink:

A Listserv is like a newsgroup or forum, but all communication is done via email. Members become part of the group, and posts are sent to all members via email.

Michelle

Nantzie Collaborator
Nantzie
Posted

I'm glad I checked. It comes on at 5:30 here too (Sacramento, CA).

Nancy

IrishKelly Contributor
IrishKelly
Posted
I'm glad I checked. It comes on at 5:30 here too (Sacramento, CA).

Nancy

Would that be 5:30 Chicago time, i have to watch this!

tiffjake Enthusiast
tiffjake
Posted

Its on! Hope you are watching!

happygirl Collaborator
happygirl
Posted

WOW-----this is a GREAT STORY! I HAVE GOOSEBUMPS. WOW. SO HAPPY TO SEE A REAL REPORT---AND GREAT TO SEE DR. GREEN

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tiffjake Enthusiast
tiffjake
Posted
WOW-----this is a GREAT STORY! I HAVE GOOSEBUMPS. WOW. SO HAPPY TO SEE A REAL REPORT---AND GREAT TO SEE DR. GREEN

I agree! Short and Sweet! Enough to get people thinking and asking questions!

CarlaB Enthusiast
CarlaB
Posted

GREAT PIECE!!!

jerseyangel Proficient
jerseyangel
Posted

Wow! I thought it was very good. They put a lot of info into the few minute segment. :)

Kinda strange seeing it on TV like that....

AndreaB Contributor
AndreaB
Posted

So, what'd he say?

Lisa Mentor
Lisa
Posted

Good gosh you guy are fast.

It was the best coverage on national news that we have ever gotten. I CERTAINLY am no fan of Katie Couric, but someone put it out there and bless their hearts.

Lisa

Turtle Enthusiast
Turtle
Posted

COOL! I thought they did a good job! And of course anything with Dr. Peter Green RULES!

jerseyangel Proficient
jerseyangel
Posted

Lisa--I feel the same way! After all the letters and emails we have sent over the months, it's just so gratifying to see something like that.

I like how the doctor said that when he was in med school, they were taught Celiac was a rare disease! He wasn't all that old, either ;)

IrishKelly Contributor
IrishKelly
Posted

Very good...but i wish it would've been alot longer, i feel like there were so many other symptoms they could've mentioned. But, i am super thankful they did a segment on us :D

jerseyangel Proficient
jerseyangel
Posted
omg... YOU guys made this happen with your e-mails? omg... you guys are HEROS!

Who knows what ultimately got them to do it--I just know that a lot of us have writen to every news outlet that we could think of--maybe someone finally listened :D

wonkabar Contributor
wonkabar
Posted

YIPPEE!! I thought the segment was great! I honestly didn't expect it to be much longer than a 5 minute segment. They touched upon a lot in a brief amount of time. In fairness to them, they *did* give Celiac Disease a major boost in mainstream media and couldn't possibly get into all of the symptoms and related issues in a "segment". Kudos to CBS for putting it out there.

Does anyone else find Katie Couric to be stiff and have little affect?? :huh:

penguin Community Regular
penguin
Posted

THAT WAS THE BEST SEGMENT ON CELIAC I HAVE EVER SEEN!!!!!

I'm so glad they didn't push the biopsy or that all symptoms are GI. AWESOME!!! :D

jayhawkmom Enthusiast
jayhawkmom
Posted

I didn't see it!!! I was at a cubscout meeting with my son, and just got home!!!

DRATS!!!

I saw Dr. Green in Stanford, he was awesome....very funny, but he DID push the biopsy at that point. I'm kind of surprised to read that he didn't.

I wish I could have seen it. Heading to see if I can find a replay of it on the cbs website.....

Nantzie Collaborator
Nantzie
Posted

I haven't seen it yet, but I went to the website and they have an article. Not sure if this is a transcript or not.

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penguin Community Regular
penguin
Posted

It's a transcript :)

AndreaB Contributor
AndreaB
Posted

Thanks for posting that link Nancy. :)

happygirl Collaborator
happygirl
Posted

Floridian,

Actually, for a national news segment (think, 30 min, minus commercials...what, maybe 22 min?) I was actually REALLY impressed that it got as much time as it did (lead in from Katie, story, then 'discussion'). My husband works in the news business so I pay more attention to that type of stuff....so I must say, I was impressed that they gave it so much time! I was afraid it was going to be a 20 second segment on a research study or something.

Laura

par18 Apprentice
par18
Posted
I was just watching the CBS evening news and there was a teaser for a story coming on tomorrow night. The teaser went something like this: this whole family has a disease but none of them knew it until little Emily got sick. It's thought a million Americans have it but most of them don't know it yet (end of tease). Chills went down my spine and I usually have excellent instincts so I think the story may be about Celiac. I don't even watch the CBS news so it was a fluke that I had it on. I can't be home tomorrow to watch but I'm going to tape the whole show tomorrow night, just in case I'm right. I'll post back if I'm right or wrong.

It was so on the mark I was actually starting to get tears in my eyes!

Tom

happygirl Collaborator
happygirl
Posted

When you click on the link, it is the transcript, BUT, on the right hand side, you can click to play the WHOLE story. It was a 3:42 segment. YAY

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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      IBS-D vs Celiac

      By SilkieFairy · Posted

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