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Cbs News Story


floridanative

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DingoGirl Enthusiast

(revealing my total non-techno saviness, here)

Can someone tell me what is a listserve? do I write to that email address and ask for something? :blink:


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tiffjake Enthusiast
(revealing my total non-techno saviness, here)

Can someone tell me what is a listserve? do I write to that email address and ask for something? :blink:

Yeah, usually just send them an email that says "I want to subscribe"

And I got an email about it too! I am so watching it! It comes on at 5:30 here (Texas). You can check at www.tvguide.com for your local time/channel!

Michi8 Contributor
(revealing my total non-techno saviness, here)

Can someone tell me what is a listserve? do I write to that email address and ask for something? :blink:

A Listserv is like a newsgroup or forum, but all communication is done via email. Members become part of the group, and posts are sent to all members via email.

Michelle

Nantzie Collaborator

I'm glad I checked. It comes on at 5:30 here too (Sacramento, CA).

Nancy

IrishKelly Contributor
I'm glad I checked. It comes on at 5:30 here too (Sacramento, CA).

Nancy

Would that be 5:30 Chicago time, i have to watch this!

tiffjake Enthusiast

Its on! Hope you are watching!

happygirl Collaborator

WOW-----this is a GREAT STORY! I HAVE GOOSEBUMPS. WOW. SO HAPPY TO SEE A REAL REPORT---AND GREAT TO SEE DR. GREEN


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tiffjake Enthusiast
WOW-----this is a GREAT STORY! I HAVE GOOSEBUMPS. WOW. SO HAPPY TO SEE A REAL REPORT---AND GREAT TO SEE DR. GREEN

I agree! Short and Sweet! Enough to get people thinking and asking questions!

CarlaB Enthusiast

GREAT PIECE!!!

jerseyangel Proficient

Wow! I thought it was very good. They put a lot of info into the few minute segment. :)

Kinda strange seeing it on TV like that....

AndreaB Contributor

So, what'd he say?

Lisa Mentor

Good gosh you guy are fast.

It was the best coverage on national news that we have ever gotten. I CERTAINLY am no fan of Katie Couric, but someone put it out there and bless their hearts.

Lisa

Turtle Enthusiast

COOL! I thought they did a good job! And of course anything with Dr. Peter Green RULES!

jerseyangel Proficient

Lisa--I feel the same way! After all the letters and emails we have sent over the months, it's just so gratifying to see something like that.

I like how the doctor said that when he was in med school, they were taught Celiac was a rare disease! He wasn't all that old, either ;)

IrishKelly Contributor

Very good...but i wish it would've been alot longer, i feel like there were so many other symptoms they could've mentioned. But, i am super thankful they did a segment on us :D

jerseyangel Proficient
omg... YOU guys made this happen with your e-mails? omg... you guys are HEROS!

Who knows what ultimately got them to do it--I just know that a lot of us have writen to every news outlet that we could think of--maybe someone finally listened :D

wonkabar Contributor

YIPPEE!! I thought the segment was great! I honestly didn't expect it to be much longer than a 5 minute segment. They touched upon a lot in a brief amount of time. In fairness to them, they *did* give Celiac Disease a major boost in mainstream media and couldn't possibly get into all of the symptoms and related issues in a "segment". Kudos to CBS for putting it out there.

Does anyone else find Katie Couric to be stiff and have little affect?? :huh:

penguin Community Regular

THAT WAS THE BEST SEGMENT ON CELIAC I HAVE EVER SEEN!!!!!

I'm so glad they didn't push the biopsy or that all symptoms are GI. AWESOME!!! :D

jayhawkmom Enthusiast

I didn't see it!!! I was at a cubscout meeting with my son, and just got home!!!

DRATS!!!

I saw Dr. Green in Stanford, he was awesome....very funny, but he DID push the biopsy at that point. I'm kind of surprised to read that he didn't.

I wish I could have seen it. Heading to see if I can find a replay of it on the cbs website.....

Nantzie Collaborator

I haven't seen it yet, but I went to the website and they have an article. Not sure if this is a transcript or not.

Open Original Shared Link

penguin Community Regular

It's a transcript :)

AndreaB Contributor

Thanks for posting that link Nancy. :)

happygirl Collaborator

Floridian,

Actually, for a national news segment (think, 30 min, minus commercials...what, maybe 22 min?) I was actually REALLY impressed that it got as much time as it did (lead in from Katie, story, then 'discussion'). My husband works in the news business so I pay more attention to that type of stuff....so I must say, I was impressed that they gave it so much time! I was afraid it was going to be a 20 second segment on a research study or something.

Laura

par18 Apprentice
I was just watching the CBS evening news and there was a teaser for a story coming on tomorrow night. The teaser went something like this: this whole family has a disease but none of them knew it until little Emily got sick. It's thought a million Americans have it but most of them don't know it yet (end of tease). Chills went down my spine and I usually have excellent instincts so I think the story may be about Celiac. I don't even watch the CBS news so it was a fluke that I had it on. I can't be home tomorrow to watch but I'm going to tape the whole show tomorrow night, just in case I'm right. I'll post back if I'm right or wrong.

It was so on the mark I was actually starting to get tears in my eyes!

Tom

happygirl Collaborator

When you click on the link, it is the transcript, BUT, on the right hand side, you can click to play the WHOLE story. It was a 3:42 segment. YAY

Open Original Shared Link

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      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
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    • Peace lily
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